Guest guest Posted July 8, 2008 Report Share Posted July 8, 2008 A letter wrote to someone who wrote me. Dear , I learned by way of Sheri Nakken that you became disabled immediately following the hep B vaccine you were forced to receive as a condition of employment in 1989. Your story is very sad and I feel compassion for you and all that you've experienced. My life has taken a turn also since being forced to receive the hep B vax in nursing school in August 1990. The onset was slow and insidious, and it wasn't until meeting a dental hygienist in 1994 who had an acute reaction that I put the pieces of the puzzle together. She didn't want the vax, but was forced to receive it on the job.. The night of her first dose she lost bowel and bladder control. After the second dose, she immediately became numb from the waste down and was diagnosed with transverse myelitis. She went out on disability and probably has multiple sclerosis, but she is so mistrusting of the medical system that, last I heard, she would not allow them to run confirmatory tests. Until very recently, the few times I had access to a computer and did a search for other vax victims, I wasn't coming up with anything. Now the " establishment " is thinking we're getting out-of-hand, telling our scary stories on the internet. Thank goodness the truth is getting out! So I've attached a very lengthy account of my history, (adapted from a post I made on one of the many predominantly " pro-vax " sites) especially post vaccination, in case there are any parallels you can draw to your situation that may be helpful. God bless you. Feel free to contact me, if you like. Sincerely, Kreider, RN 's story... Some folks feel that there are an abundance of so-called anti-vax whackos dominating the Internet with their scary tales. The reason for this is simple: those of us who have had our lives ruined as a result of vaccinations are pretty ticked-off. We know that over 90% of vaccine injuries are not reported or properly diagnosed, and that journalists and the media are being paid handsomely by the AMA and private industry not to cover the story. The FDA acknowledges this underreporting. This account is not to be construed as medical advice. The decision to vaccinate -or not -should be up to an individual and physician of their choice. In the mid-to-late 1980s I donated blood at the American Red Cross. My blood type, AB-negative, is rare: I donated almost 3 gallons of blood during these years. My blood is no longer suitable for donation, per my immunologist, because of its high concentration of antinuclear-antibodies. In August 1990 I quit a full-time job to attend the Abington Memorial Hospital School of Nursing. It was a 3-year diploma program to prepare me to become a registered nurse; I had already earned a BS degree at Drexel University. My employer was not happy when I resigned. Prior to being accepted into the program, I was required to provide a medical history and undergo a physical examination by an AMH physician. I was a normal healthy physical specimen, which should have been no surprise considering I held a JKA 3rd degree black belt in Shotokan karate. After I had become enrolled as a student, it was necessary that I provide a full history of vaccinations. The flu shot was strongly recommended, and yet it was not recorded on my official student immunization record. I assume that it was the annual ‘garden variety.’ The “tetanus” booster (likely a triple cocktail DPT) was not recorded with more detail than “tetanus.” I was forced to either take the Hepatitis B vaccination series, or forego participation in clinical practice, scheduled to commence mid-September. My consent form states that following three shots of Hepatitis B vaccine ‘85-96% of people will develop antibodies to the virus.’ To the best of my recollection, I never spoke to a physician about the full gamut of possible adverse effects to vaccines. A nurse reviewed the consent form with me. On signing the consent form, I understood that there are a group of people who receive the vaccine who don’t develop antibodies after the shots, and must have additional shots. Presumably they are the unspecified ‘4-15%,’ I am led to believe. I never imagined that there are an unknown number of super-responders that may be as high as 10%. It is standard procedure, I am assured, that a titer will be evaluated following the 3rd injection. Having heard nary a discouraging word about vaccines, I acquiesced with the vaccination recommendations according to a strict schedule: the 2nd shot one month following the 1st shot, with a 3rd shot 6 months later. Having a strict schedule to follow to ensure vaccination effectiveness gave me a sense that this standard of practice was supported by extensive clinical trials from a wide demographic sample. I was never provided a manufacturer’s package insert, nor offered so much as a peek into a Physicians’ Desk Reference, (although that is not something a 1st semester nursing school student, generally speaking, can fully comprehend.) The consent form didn’t list potential disastrous outcomes of an acute or chronic nature. Several benign conditions such as transient malaise, low-grade fever ‘usually < 101 degrees F,’ and inflammation at the site of the injection, etc., were listed. I signed and dated the consent form with each of my presentations to Student Health for my scheduled injections. The nurse who administered the injections was not thorough with her documentation. The manufacturer of the 1st dose was Kline, product name Engerix, according to my immunization record. No manufacturers were listed for the 2nd and 3rd injections. Not one lot number was documented for any of the three doses I received. Within a few of days from the 3rd shot (March 18, 1991) my hands turned cadaver blue. An astute nursing instructor encouraged me to visit the rheumatology clinic. I had, since she mentioned it, noticed a vague tingling in my right hand. Because I was not expecting any neurologic events and because the tingling was insidiously vague, I was not especially alarmed about my health status at this point. There were no grand mal seizures, or gastrointestinal complications, no fevers or outstanding psychiatric moments. Ironically, it was April Fool's Day 1991, two weeks after the third shot, that I was evaluated. Most bizarre was my serum anti-nuclear antibody (ANA) titer, positive at 1:2560. March 15, 1993 they were 1:5120. Over the next few months and years I was increasing ambulatorily- challenged. I lost my reflexes, sensation to light touch, and proprioception. I developed glove-and-stocking paresthesias, which continue to this day. My movements lost fluidity. I lost proficiency in participating in step aerobics class. While in nursing school I presented from time to time to the Rheumatology Clinic as per their recommendations. Both house staff and supervising attending Pritchard, MD were inclined towards a diagnosis of systemic lupus erythematosis, but seemed less than convinced. X-rays of my hands were done; my hands were increasingly swollen and my ring fingers changed from size 6-1/2 to 8-1/4. An EMG was performed and verified sensory nerve damage. Bio-feedback therapy was attempted a few times; I was hooked up to a thermometer attempting to raise the temperature in my cyanotic ‘sausage-like digits, but I felt little control over the reduced temperature in my extremities. The only medication offered to me was Procardia XL 30. I was advised to wear gloves even in moderate weather, although mittens prove to be far superior. I was warned about the 2-cups daily coffee habit I have. I was especially warned regarding the fact that I smoked a pack of cigarettes a week, although in one of the progress notes my habit was significantly over-reported as a pack a day. I quit this habit in 1994 -becoming so spastic after smoking one cigarette that I couldn’t take a few steps without falling. Second semester I took a part-time job as a nurse-extern at Chestnut Hill Hospital. They evaluated my Hepatitis B antibodies; I wasn’t given a booster. Despite vocalizing my concerns about my massively elevated ANA, the employee health nurse encouraged me to receive the MMR vaccine in May and June 1991. I graduated May 1993, concerned about climbing and descending bleachers, unassisted, as I became more and more awkward and accident-prone. Jobs for nurses were tight at this time; the majority of my classmates didn’t have offers. I accepted a full-time position as a graduate nurse at Eagleville Hospital, providing care to drug addicts and alcoholics. The pay was low, but it offered benefits. During the fall of 1993 I experienced an acute illness. I had a severe sore throat and could see some kind of gray lesion on one of tonsils. A culture was taken and I was given a prescription for penicillin. I had no appetite. After several days I was informed that the penicillin would not be effective. I stopped it. That night I had such intense vomiting that I considered taking myself to the emergency room. I even had a ‘black hairy tongue,’ which I had only heard about. Somehow I survived, but I was out of work two weeks and lost about 10 lbs. (9% of my usual BW.) I continued to have no appetite. My walking was getting worse and worse. I started to panic. Instead of covering various units and Detox on weekends, the supervisor moved me to the PEP Unit (Program for Employed Persons) full-time. They thought I would have less chance of getting knocked down than on a volatile unit such as Detox, where fights break out regularly among patients who are miserable. The PEP Unit Manager told me that I was a good role model; many of our clients scammed to claim disabilities. I saw another rheumatologist, Selby, MD. He didn’t believe that I had SLE because my cardiac, liver and renal functions were intact. He suggested that I might have a limited form of scleraderma, affecting only my hands and feet, and described my ‘sausage digits’ in his report. He rendered a diagnosis of ‘undifferentiated connective tissue disease.’ He concurred with the prescription for Procardia. Judith Bronstein MD was frankly uncomfortable treating my neurologic damage. She stated that it was not what she was used to seeing. She gave me a referral to a neurologist at Germantown Hospital, D. Silberstein who specializes in headaches. He gave me one. He performed an EMG, confirming sensory nerve damage. He evaluated serum B12 and folate levels. A month later I had a follow-up appointment with this neurologist. He clearly hadn’t prepared for this scheduled appointment. He sucked on his soda straw, distractedly, like I was interfering with his lunch break. My serum B12 and folate levels were normal. He told me to come back in a month because he had to ‘make some calls around the world to people who specialize in these kinds of things.’ Clearly, not him. I was so disgusted with his attitude, I made a formal complaint to my HMO provider a few days later when I was in one of those kick-the-dog kind of moods. Early 1994 a doctor who made weekly rounds on the PEP Unit, Carroll, DO asked appropriate questions regarding my obvious impairment and need for treatment, ‘have they evaluated for heavy metals?’ etc. I appreciated that she was clearly concerned and thoughtful. I asked if she would manage my care. With a competent and concerned medical professional to manage my care, I was provided numerous referrals to a variety of specialists. A blood sample ruled out serum metals toxicity. (I have since learned that serum mercury tests are inconclusive one year following a significant exposure.) An MRI of my brain and cervical spine ruled out MS, but showed that I had some herniated cervical disks. I was evaluated by another neurologist, Stern, MD known for his expertise in movement disorders. He confirmed that while the disks are herniated, they do not compress the spinal cord. He referred me to Bird, MD a neurologist at the Hospital of the University of Pennsylvania for further work-up. I was concurrently evaluated by a third rheumatology practice, Bruce Freundlich, MD initially. It was Kendra Kaye, MD who managed my care. Another EMG confirmed sensory nerve damage and ascertained that it was a non-demylenating variety. Dr. Bird stressed to me how rare this type of neuronopathy is. He said that only 4 things are known to cause this type of nerve damage: (1) B6 toxicity, (2) Sjogren’s Disease, (3) Cancer, or (4) ideopathic. Blood tests, MRIs, CT-scans, mammography, CXR, minor salivary gland bx and other ophthalmic tests ruled out these conditions. The minor salivary gland bx confirmed a chronic inflammatory process, but no attention was paid to this finding to explore the cause. One of the CT-scans revealed a suspicious 2 cm. lesion in my RLL. A thoracotomy was performed. It was an enlarged lymph node. A sural nerve bx. confirmed a diagnosis of ‘severe sensory neuronopathy of idiopathic origin.’ After the diagnostic tests were performed I was prescribed 60 mg. Prednisone daily for two months. I felt worse while on the steroids, specifically more ambulatorily-challenged. I was next prescribed a course of pulse-steroids. I tolerated 3 days of IV Solumedrol, and started another course of Prednisone but soon weaned off of it, becoming non-compliant because it wasn’t helping. An Rx for methotrexate, a chemotherapy drug, was offered by Dr. Kaye and declined. Childless, I was afraid of this chemotherapy drug that can cause horrible birth defects. In 1995 I had migraine headaches that occurred monthly. Usually they did not last for more than a day. A diagnosis of borderline HTN was also made. I noticed that while taking a diuretic my gait improved. I gave up the cane for a while. For a few years (1994 - 96) I had painful neuralgia in my toes. I tried a prescription for Elavil and evening primrose oil, because I had heard that it might be helpful with neuralgia associated with diabetes. Nothing seemed to alleviate the pain, intermittent in nature. My neighbor, a licensed acupuncturist, provided a few treatments but I was unable to support the expense for the intensity of treatments I suspected I would need for significant improvement. The pain has since abated. In late 1994 an administrator at Eagleville Hospital referred me to the dental hygienist, because " She walks like you do. She believes that she was injured by the Hepatitis B vaccine. " At that moment of cognitive association, I realized that my profound decline in immuno / neurologic status was at least temporally associated with vaccinations I had received. I attempted to gather complete medical records from the AMH Department of Student / Occupational Health. I filed with the Vaccine Adverse Event Reporting System. They contacted me twice, seeking lot numbers and manufacturer names. The hospital that had administered the shots couldn’t provide the information. A nursing instructor who had taught a class 'Legal Aspects in Nursing' refused to respond to my phone calls / letter. Unbelievably, VAERS informed me that the hospital was not remiss by this lack of detail. The official documentation provides vague information about a PPD administration, aside from the aforementioned limited details. VAERS assured me that my report was ‘among the most serious they have received,’ and that the hepatitis B vaccine was not covered by the National Vaccination Injury Compensation Program. They cursorily corresponded once again to evaluate complainant progress, to pretend to be performing a service. That was years ago. I spoke with the dental hygienist, Ann and her husband on numerous occasions. We met with Hugo, Esquire of Boston while he was visiting Philadelphia. He said that he would provide legal counsel. Months later, however, he returned my medical records, explaining that he was overwhelmed with breast implant litigation. Ann became more angry and disabled. She went out on total disability -the day of the OJ Simpson verdict, coincidentally. We lost contact sometime in 1995 because she didn’t feel that I was angry enough. I expressed my concerns regarding my immunization history, especially the hep B vaccine, to Dr. Kaye. To her credit, she contacted the CDC. They assured her that there were no relationships between the hep B vaccine and rheumatoid conditions and autoimmune disease. By 1995 I had to have hand controls installed in my car. I was having ‘panic attacks’ (self diagnosed) while driving. If I gave myself plenty of room for reaction time, cars cut me off. Sometimes when I would go for the breaks, I would wind up with my foot on the accelerator. Sometimes my foot would end up underneath the pedal. I became diaphoretic, my heart raced. I maintained employment, working at least 4 hours over-time a week. When he brushed me off, Hugo referred me to a female lawyer in land. She stated that she had handled one Hepatitis B vaccine injury claim, but explained how difficult such litigation was due to multiple factors. She referred me to a neurologist who had provided testimony as an expert witness. This neurologist was kind enough to return my phone call. He stated that it is very difficult to prove causation in such matters, and that he wouldn’t be able to take me on as a client because -coincidentally -he was retiring from practice that very week and had most of his professional belongings in moving boxes. He added that he believed that there had been a settlement in the case that he provided testimony. He was, however, under a GAG ORDER not to discuss it! I went on with my life. I took a desk job. The pay was still lousy, but I could commute less, avoid working weekends, use my medical knowledge, and learn a new skill. HomeNurse, Inc. in Wayne, PA provided supplemental employment opportunities. Despite making full disclosure regarding my physical limitations, occasionally to meet their scheduling needs they would inappropriately assign me. Once or twice I was removed from an assignment because a client required care I was unable to provide. Through networking I learned of an employment opportunity at an Children’s Hospital. I accepted the position at the end of January 1997. Because of the improved pay I was able to lose the second job. I had earned additional certification, and so pursued employment at the Hospital of the University of Pennsylvania, my present employer. In September 1998 I revisited Dr. Bird. I was curious whether he thought it was plausible that the Hepatitis B vaccine caused my injury. He stated, “We know of no toxins that can cause the kind of nerve damage you have.” He added, ”It could have been caused by a virus.” He reiterated how rare the type of nerve damage I have is: “My colleagues at s Hopkins University and I see 20 cases of sensory neuropathy a week. We may see a case like yours once every 3 months.” In late 1998 my PMD treated me for a polysystemic yeast infection that I probably had had for a number of years, especially considering that the Hepatitis B vaccine contains DNA from some and the fact that I had been on steroids for a prolonged period. Finally, a persistent fungus under my thumbnail led to treatment with a strong oral medication, Lamisel. I took the medicine as prescribed for two months. These symptoms abated. In November 1998 I participated in a research study looking for subjects with borderline HTN, funded by the NIH, for a period of 14 months. It was to evaluate the effects of exercise on blood pressure. As a condition of the study, I had to give up the diuretic and calcium channel blocker. As I suspected, my walking deteriorated again. The long-term benefits of exercise outweigh the temporary disadvantage of increased difficulty with ambulation due to giving up the diuretic, I reasoned. The only other prescription medicine that I take regularly is Flonase nasal spray for relief of seasonal allergies May through October. Thanks to this steroid spray I suffer from far fewer headaches. At least twice a year since approximately 1996 my back goes into spasm. In addition to alternating wet heat compresses and ice packs, I use Skelaxin 400 mg. t.i.d. with ibuprofen 600 mg. for a few days. When evaluated by the ED for one of these incidents, they agreed that they are likely a result of my gait irregularities. I still use a cane in bustling places such as at work. My coworkers assist me when we go to the cafeteria; I am unable to walk while balancing a tray of food. Highly polished floors look slippery and this increases my nervousness, adding to my spasticity. Once a month or so I fall. I usually don’t get hurt. At my 8 month medical check-up for the HTN study I qualified to be taken off the Vasotec 2.5 mg. I consulted a registered pharmacist about my condition. Vitamin and herbal supplements have cost me in excess of $100 per month. VAERS didn't call me, although I 'should have known,' in August 1997 when the Hepatitis B vaccine was added to the NVICP. Likewise, they did not inform me about a statute of limitations August 6, 1999 for folks like myself. January 22nd 1999 a neighbor lady / friend called me to alert me to the fact that she had heard 'out the corner of her ear' that ABC’s “20/20” was featuring a story about Hepatitis B vaccine, airing concerns about public health. I learned of victims other than the dental hygienist and myself. I became aware of the National Vaccine Information Center and Bonnie S. Dunbar, PhD of Cell Biology at Baylor College of Medicine, whose brother was injured by the hepatitis B vaccine. I attended the May 18th Congressional Hearings of the Subcommittee on Criminal Justice, Drug Policy, and Human Resources of the Committee on Government Reform, and submitted written testimony to the Chairman Congressman Mica (Rep., Fl.) I have learned that there have been some 25,000 VAERS report in the 1990s. Of adults, 77% are females, predominantly of European lineage. The CDC claims nurses 'over-report'. The FDA admits that 9 out of 10 doctors are reluctant to report these suspected temporal events. I am enrolled as one of 100 subjects in Dr. Dunbar’s study " Mechanisms of Adverse Reaction to Hepatitis B Vaccine, " and contributed blood samples to each of the three laboratories. At the August 3rd hearings I heard Dr. Dunbar’s colleague report that a 3rd grant proposal has been rejected by the NIH. In September 1999 I was evaluated by an immunologist who confirms that my autoimmune disorder was likely caused by the hep B vax. I learned that my IgE immunoglobulins are 2,041.2 indicative of a severe allergic event. In February 2000 I was evaluated by Harold Buttram, MD, FAAEM of Quakertown, PA. I had heard him speak on the radio about vaccine-related injuries. He noted that an analysis of my hair demonstrates an elevated mercury level. Reading the “comments” provided by Great Smokies Laboratory, I realized that I had many of the health problems associated with chronic mercury toxicity. I remembered meeting Anne Ferreira at the two congressional hearings I had attended. She had given me information about mercury in dental amalgams, and I reviewed the information carefully, although > 6 months later. I became very concerned about all of the dentistry I had had in my life. In April 2000 I completed the HTN Study, and was found not to require medication. Dr. Buttram advised me to see a biologic dentist. I consulted Brockman, DDS in March 2000. We were surprised when the mercury vapor reading registered “0.” She noted that I have amalgam tattoos on my gums, and what appears -on xray- to be a cavitation in my alveolar bone. There was galvanic energy as a result of juxtaposition of dissimilar metals, e.g. a crown with -150 charge next to a filling with a charge of +6 fcreating a battery effect. The day I saw her my back was in spasm. Dr. Brockman eyes were wide when I told her that I ate fish a couple of times a week. I had had broiled filet of salmon stuffed with crabmeat, two nights consecutively. That night my spasm got worse. I was out of work the whole week, unable to straighten up. Since giving up seafood entirely for three months my back hasn’t gone into spasm. Dr. Brockman also made me aware that when I had allergy desensitization shots, weekly for two years in the mid-1980s, there is a strong chance that these shots also contained thimerosal. In April 2000 a Cliffords Materials Reactiviy Test confrimed sensitivity to 16 of the 83 chemical groups and families of compounds evaluated, including: aluminum, formaldehyde and mercury. I noted that 71% of the orthodontic materials on the market are considered “not suitable” for me. I suspect that the fact that I wore braces for 4 years in the early 1970s with materials that were (likely) biologically incompatible contributed to the fact that I had required such extensive dental work in the 1980s. In the first two weeks of May 2000 I had my dental fillings and crowns removed. It cost almost $12,000 because my dentist used hi-tech precautions to prevent me from further mercury exposure. After the removal of each quadrant I visited Dr. Buttram’s office to receive IV vitamin C in case any mercury was inadvertently released into my bloodstream. The fillings and crowns had been manufactured and installed using approximately 7 - 9 grams of mercury (for the sake of reference, it takes only ½ gram of mercury in a 10-acre lake to warrant posting a fishing hazard warning.) Dr. Brockman suspects that nickel was also removed. My new friends at DAMS (Dental Amalgam Mercury Syndrome support group) advised me not to take the urine challenge test recommended by Dr. Brockman. They said that it can cause permanent injury. Dr. Buttram agreed, when I conveyed their concerns. In fact, he refused to order the test for me after the amalgams had all been removed. He said the results would be “academic.” He stated that there was enough physical evidence of mercury toxicity, and that the test would be unnecessarily dangerous. In fact, he refused to order IV chelation therapy for me for the same reason. Instead he has prescribed: chlorella, methylsulfonyl methane, zinc, and selenium to help me detoxity slowly and deliberate. He explained that the sulfur changes the form of the mercury from solid to gas, so that it is more easily excreted in feces. On my first visit for the IV vitamin C therapy, the nurse drew a blood sample for a detailed analysis of my red blood cell essentials fatty acids by BodyBio in New Jersey. It cost $300. I received the results at my June visit. They indicated severe metabolic dysfunction and were supportive of a diagnosis of heavy metals toxicity. In particular, arachidonic acid is 164% deficient. (The brain is 60% lipid, and arachidonic acid should make up 12% of these.) Conditions associated with an arachidonic acid deficiency include: chronic fatigue syndrome, metal toxicity, schizophrenia, and ADHD (attention deficit hyperactivity disorder.) Arachidonic acid is critical for cognitive function, mental stability, cell membrane fluidity, and other important metabolic functions. In fact, the decreased fluidity index explains to me, on a cellular level, why I lost reflexes and experience stiffness in movement. Dr. Buttram explained that good dietary sources of arachidonic acid are butter and eggs, and that I should really load up on these things. The report gave me a variety of specific suggestions for my optimal rehabilitation, such as: venison, thyme oil, kiwi, avocado, venison, parsley, nutmeg, hearts of palm, mushroom and papaya. Since Dr. Buttram advised me to stay away from shellfish, especially -he says moderate size fish are okay once in a while -I cannot take BodyBio’s suggestion to eat lobster and shrimp. DARN!! The report stated that I should avoid peanut butter and canola oil, but encourages me to eat raw pecans, almonds, pistachios, etc. This is a diet I can follow! Dr. Buttram also prescribed trace minerals and electrolytes, based on my specific BodyBio findings. It is a relief having dietary suggestions specific to my needs; I plan to repeat the study in 6 months, per Dr. Buttram’s recommendation, of course. I have since learned that many newborns have an elevated mercury level proportionate to the number of their mother’s ‘silver’ dental fillings. To say that these fillings are stable while the scraps are treated as hazardous wastes is absurd. The Lorsheider-Vimy experiments conducted on pregnant sheep in Calgary in the late 1980s using xrays of radiographically-tagged ‘silver’ dental fillings proved that in only 29 days the mercury does indeed travel throughout the respiratory and digestive tracts. When the experiment was challenged, using pregnant primates, the results were confirmatory. The fetuses had significant mercury exposures. It is likewise absurd to include mercury, aluminum, formaldehyde and MSG in vaccines whether they are used in the manufacturing process to deaden an antigen, used as an adjuvant, or added as a cytotoxin to prolong shelf-life. In 1990 the World Health Organization declared that there are no acceptable levels of mercury exposure. How can the pharmaceutical manufacturers assure us that this “cytotoxin” is only going to prevent mildew from forming in the vials, and will have no untoward effects on tissues in the neonate’s central nervous system? Instead of just manufacturing new vaccines that contain less mercury (aka thimerosal,) old vaccines in stock should be recalled and trashed -in a manner such as one would dispose of other biohazardous wastes. Likewise, with all the stronger, more aesthetically pleasing biologically compatible dental materials now available, there is no place for amalgams with high mercury content in the market. What’s the financial difference of $20 of so, compared to preserving one’s health? Quote Link to comment Share on other sites More sharing options...
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