Re: another choosing a doctor question

[Guest guest]

stephanie

I don't want to beat a dead horse here - I know that you have spoken w/ several docs who said that the nursing was ok but I am worried for you and your baby. I never would have nursed mine without calling my surgeon first to get his approval - my PCP also gave the approval and said it would be fine so I did it. I understand the need to bond - I loved nursing my baby. I was working full time a pumping at work - it was a hassle but I did it everyday for 9 months. He is 2 1/2 now - close to 3. Last night I was up half the night again with him as he couldn't sleep - I had to change his sheets & pillowcase twice as I keeps getting these nightsweats and he and the bed are soaked. Earlier this week he had a fever around 103 for two days - took him to the doctor and they can't find anything wrong. The fever thing happens around twice a month - high fevers for several days. Sometimes he has an ear infection but sometimes it is nothing. I am so scared for him and angry with myself over this. I know your doctors say it is OK - mine did too. Now there is this tiny little life that depends 100% on me - his mommy - and I have to live with the fact that every time one of these things happens to him it may be my fault. I can only hope that he forgives me one day if this is the cause of his illnesses.

I guess what I am saying is it may be ok - completely safe or maybe not, but it isn't worth the risk. Everytime I look at his perfect little face when he is sick I want to die - that is the honest truth. good luck in whatever you decide but I would definitely not go to a doctor who does not deal in silicone disease as they may not believe it and do the surgery properly. been there. done that

Love,

Shari

[Guest guest]

,

I to had smooth saline implants. I was wanting my implants out so

fast I called my PS who put them in (great surgeren) before I

talked to anyone on this site about the proper way to remove them. I

did know that he had to remove everything and after reading his

surgery report I have faith that he did. He was not an expert on

explant due to illness but had done many for other reasons. He told

me that if I said they were making me sick, he believe me and said

he would get everything out of me. He only charged me 2000.00 to do

so. Other than the fact that he puts implants in women he is an

artist when it comes to surgery. I don't even have scares. He was so

upset that I was sick, he felt responable.(I guess in a way he was )

I honesty don't think he thougth you could get sick from them. Well

anyway, my recovery seems to fall in line with others who have had

the full eblock. (one step forward two steps back) But I think alot

has to do with the fact that I had smooth not textured and saline

not silicone implants. And may implants were clear. I only had them

in for 17 months.

Honey this is your call. I knew my surgon and had faith he him. If I

had to go to someone unknown I would what them to really understand

the seriousness of the explant.

Breast feeding is one of the most rewarding parts of motherhood, I

breast feed three kids, and I remember crying when my last

one stoped because I knew I would never breat feed again.

Having said that I can tell you that you have a lot of mothering to

do still to come and you are going to want to be healthy. My kids

our 20, 18 today and 16. And if you asked them if they could choose

would you have liked to have been breat fed or have me healthy

enough to go to all your school events, sports, fix your meals and

be a healty mom. Well you know what there answer would be. Your kids

our going to need you more later. So do what is going to make you

the healty mom they need.

Breast feeding is important but its small compared to how important

you are to your children thru out there growing up.

Love Cricket

> I mentioned that I've contacted some PSs for explant help and

overall

> advice. I've contacted only surgeons (so far) recommended here or

at

> the 'explant issues' Delphi Forum. I've only heard that I should

> continue to breastfeed, wait until I'm no longer a lactating

woman.

> Also, my idea of a trans axillary explant was not a good one. I

can

> have the incision made at the crease of the breast, though, so I'm

> considering that, too, hoping to preserve the milk ducts and

nerves.

> Just like with my first surgery.

>

> I contacted Dr. peter chapman after ''s recommendation here

(I

> think you posted this, Patty) and while he says he can certainly

do

> the explant (once breastfeeding is done), he also says that any

> discussion of 'silicone disease' (he put it in quotations)

> is 'outside of his area of expertise'.

>

> Do you all think it's best to have the explant done by a PS who

gets

> it, for lack of a better phrase, or to find the best explant PS

> possible for capsule removal and preservation of the breast and

> *then* go on your own and do the Silicone Protocol, take Fungal

> Defense, etc.?

>

> Thanks once again,

>

[Guest guest]

> stephanie

> I don't want to beat a dead horse here - I know that you have

spoken w/

> several docs who said that the nursing was ok but I am worried for

you and your

> baby.

But it isn't simply 'several docs'. These are the plastic surgeons

who have been recommended here and at the Explant Issues Delphi Forum

for specifically, silicone sickness and explants. I wouldn't waste

my time with just 'docs', i have those in my family already if I

wanted only that opinion. I am quering only those doctors

recommended by women who have/had silicone disease and needed an

expert to remove the implant.

I'm planning on speaking with my original surgeon but until I hear

the number of explants he performs, his opinion on the now numerous

studies I've gathered on breastfeeding with implants (including the

huge study that appeared in the 1998 Nov Pediatrics issue I mentioned

yesterday), I'm not going to choose him for the explant. I have to

see someone's work before I let them touch me, also.

I've read everything I can in the last week on this issue and looking

at the silicone molecule, how silicone acts in the blood and plasma,

how tiny the aveoli are and what can and cannot pass through, etc. I

do not take this lightly, believe me!

I'm also looking at ABMs and the straight out of the can levels of

silicone in virtually all ABMs, which makes my decision more

complicated. I may or may not be able to pass silicone through

aveoli but if I use ABM, then I am giving my child silicone straight,

no ifs ands or buts. As well as fluoride (which we try to avoid

altogether) and a host of other potential allergens and foreign

substances which do not adapt to my baby's immune needs as does

breastmilk. Breastmilk is the only substance that changes according

to my baby's immune demands. Since her immune system won't be fully

developed until she is 5 or so, I need to do everything I can to

support that development. ABMs have not so great stats as far as

infant mortality and morbidity. I have read probably twenty studies

of breastfeeding moms with implants as compared with non implanted

women and there just isn't a clear decision from those studies for me

right now.

>I understand the need to bond - I loved nursing my baby.

FTR, I do not believe that breastfeeding/pumping breastmilk=bonding.

Adoptive mothers bond, non breastfeeding mothers bond. I'm not

saying this is the only road toward bonding.

Last night I was up half the night again with

> him as he couldn't sleep - I had to change his sheets & pillowcase

twice as I

> keeps getting these nightsweats and he and the bed are soaked.

Earlier this

> week he had a fever around 103 for two days - took him to the

doctor and they

> can't find anything wrong. The fever thing happens around twice a

month -

> high fevers for several days. Sometimes he has an ear infection

but sometimes it

> is nothing. I am so scared for him and angry with myself over

this.

I'm so so sorry you both are going through this. I cannot imagine

how hard it is. I am really, really pained for you reading this.

I know

> your doctors say it is OK - mine did too.

But were those doctors plastic surgeons who are interfacing with

silicone-diseased women and performing their explants like the

plastic surgeons I contacted (and was recommended to contact b/c of

their expertise in silicone issues?

> I would definitely not go to a doctor who does not deal in silicone

> disease as they may not believe it and do the surgery properly.

been there.

> done that

Thanks for your input on that. That was my main question since I

wonder if a PS has to get it in order to do the surgery properly.

I really hope your son can find healing somehow, Shari. I think

about your situation a lot ever since coming here and reading your

posts. I mentioned my brother had so many of these same symptoms and

my mom never had implants of any kind, never had surgery either. We

just thought his immune system was weak somehow and she blamed

herself for ceasing breastfeeding at eight months as he went downhill

at that time and didn't recover for a decade. But he had a lot of

things pumped into his little body like all the mercury from

vaccinations and allergy shots and then lots his tonsils which didn't

help things. I know moms are the queens of self blame and I hope

that your son can be well so that you can let yourself off the hook.

That is so much for you to bear.

>

>

[Guest guest]

,

What is ABM's?

Thanks,

Ann

> > stephanie

> > I don't want to beat a dead horse here - I know that you have

> spoken w/

> > several docs who said that the nursing was ok but I am worried

for

> you and your

> > baby.

>

> But it isn't simply 'several docs'. These are the plastic surgeons

> who have been recommended here and at the Explant Issues Delphi

Forum

> for specifically, silicone sickness and explants. I wouldn't waste

> my time with just 'docs', i have those in my family already if I

> wanted only that opinion. I am quering only those doctors

> recommended by women who have/had silicone disease and needed an

> expert to remove the implant.

>

> I'm planning on speaking with my original surgeon but until I hear

> the number of explants he performs, his opinion on the now numerous

> studies I've gathered on breastfeeding with implants (including the

> huge study that appeared in the 1998 Nov Pediatrics issue I

mentioned

> yesterday), I'm not going to choose him for the explant. I have to

> see someone's work before I let them touch me, also.

>

> I've read everything I can in the last week on this issue and

looking

> at the silicone molecule, how silicone acts in the blood and

plasma,

> how tiny the aveoli are and what can and cannot pass through, etc.

I

> do not take this lightly, believe me!

>

> I'm also looking at ABMs and the straight out of the can levels of

> silicone in virtually all ABMs, which makes my decision more

> complicated. I may or may not be able to pass silicone through

> aveoli but if I use ABM, then I am giving my child silicone

straight,

> no ifs ands or buts. As well as fluoride (which we try to avoid

> altogether) and a host of other potential allergens and foreign

> substances which do not adapt to my baby's immune needs as does

> breastmilk. Breastmilk is the only substance that changes

according

> to my baby's immune demands. Since her immune system won't be

fully

> developed until she is 5 or so, I need to do everything I can to

> support that development. ABMs have not so great stats as far as

> infant mortality and morbidity. I have read probably twenty

studies

> of breastfeeding moms with implants as compared with non implanted

> women and there just isn't a clear decision from those studies for

me

> right now.

>

>

> >I understand the need to bond - I loved nursing my baby.

>

> FTR, I do not believe that breastfeeding/pumping

breastmilk=bonding.

> Adoptive mothers bond, non breastfeeding mothers bond. I'm not

> saying this is the only road toward bonding.

>

> Last night I was up half the night again with

> > him as he couldn't sleep - I had to change his sheets &

pillowcase

> twice as I

> > keeps getting these nightsweats and he and the bed are soaked.

> Earlier this

> > week he had a fever around 103 for two days - took him to the

> doctor and they

> > can't find anything wrong. The fever thing happens around twice

a

> month -

> > high fevers for several days. Sometimes he has an ear infection

> but sometimes it

> > is nothing. I am so scared for him and angry with myself over

> this.

>

> I'm so so sorry you both are going through this. I cannot imagine

> how hard it is. I am really, really pained for you reading this.

>

>

> I know

> > your doctors say it is OK - mine did too.

>

> But were those doctors plastic surgeons who are interfacing with

> silicone-diseased women and performing their explants like the

> plastic surgeons I contacted (and was recommended to contact b/c of

> their expertise in silicone issues?

>

>

> > I would definitely not go to a doctor who does not deal in

silicone

> > disease as they may not believe it and do the surgery properly.

> been there.

> > done that

>

> Thanks for your input on that. That was my main question since I

> wonder if a PS has to get it in order to do the surgery properly.

>

> I really hope your son can find healing somehow, Shari. I think

> about your situation a lot ever since coming here and reading your

> posts. I mentioned my brother had so many of these same symptoms

and

> my mom never had implants of any kind, never had surgery either.

We

> just thought his immune system was weak somehow and she blamed

> herself for ceasing breastfeeding at eight months as he went

downhill

> at that time and didn't recover for a decade. But he had a lot of

> things pumped into his little body like all the mercury from

> vaccinations and allergy shots and then lots his tonsils which

didn't

> help things. I know moms are the queens of self blame and I hope

> that your son can be well so that you can let yourself off the

hook.

> That is so much for you to bear.

>

>

> >

> >

[Guest guest]

Ann,

It's Artificial Baby Milk.

> > > stephanie

> > > I don't want to beat a dead horse here - I know that you have

> > spoken w/

> > > several docs who said that the nursing was ok but I am worried

> for

> > you and your

> > > baby.

> >

> > But it isn't simply 'several docs'. These are the plastic

surgeons

> > who have been recommended here and at the Explant Issues Delphi

> Forum

> > for specifically, silicone sickness and explants. I wouldn't

waste

> > my time with just 'docs', i have those in my family already if I

> > wanted only that opinion. I am quering only those doctors

> > recommended by women who have/had silicone disease and needed an

> > expert to remove the implant.

> >

> > I'm planning on speaking with my original surgeon but until I

hear

> > the number of explants he performs, his opinion on the now

numerous

> > studies I've gathered on breastfeeding with implants (including

the

> > huge study that appeared in the 1998 Nov Pediatrics issue I

> mentioned

> > yesterday), I'm not going to choose him for the explant. I have

to

> > see someone's work before I let them touch me, also.

> >

> > I've read everything I can in the last week on this issue and

> looking

> > at the silicone molecule, how silicone acts in the blood and

> plasma,

> > how tiny the aveoli are and what can and cannot pass through,

etc.

> I

> > do not take this lightly, believe me!

> >

> > I'm also looking at ABMs and the straight out of the can levels

of

> > silicone in virtually all ABMs, which makes my decision more

> > complicated. I may or may not be able to pass silicone through

> > aveoli but if I use ABM, then I am giving my child silicone

> straight,

> > no ifs ands or buts. As well as fluoride (which we try to avoid

> > altogether) and a host of other potential allergens and foreign

> > substances which do not adapt to my baby's immune needs as does

> > breastmilk. Breastmilk is the only substance that changes

> according

> > to my baby's immune demands. Since her immune system won't be

> fully

> > developed until she is 5 or so, I need to do everything I can to

> > support that development. ABMs have not so great stats as far as

> > infant mortality and morbidity. I have read probably twenty

> studies

> > of breastfeeding moms with implants as compared with non

implanted

> > women and there just isn't a clear decision from those studies

for

> me

> > right now.

> >

> >

> > >I understand the need to bond - I loved nursing my baby.

> >

> > FTR, I do not believe that breastfeeding/pumping

> breastmilk=bonding.

> > Adoptive mothers bond, non breastfeeding mothers bond. I'm not

> > saying this is the only road toward bonding.

> >

> > Last night I was up half the night again with

> > > him as he couldn't sleep - I had to change his sheets &

> pillowcase

> > twice as I

> > > keeps getting these nightsweats and he and the bed are soaked.

> > Earlier this

> > > week he had a fever around 103 for two days - took him to the

> > doctor and they

> > > can't find anything wrong. The fever thing happens around

twice

> a

> > month -

> > > high fevers for several days. Sometimes he has an ear

infection

> > but sometimes it

> > > is nothing. I am so scared for him and angry with myself over

> > this.

> >

> > I'm so so sorry you both are going through this. I cannot

imagine

> > how hard it is. I am really, really pained for you reading this.

> >

> >

> > I know

> > > your doctors say it is OK - mine did too.

> >

> > But were those doctors plastic surgeons who are interfacing with

> > silicone-diseased women and performing their explants like the

> > plastic surgeons I contacted (and was recommended to contact b/c

of

> > their expertise in silicone issues?

> >

> >

> > > I would definitely not go to a doctor who does not deal in

> silicone

> > > disease as they may not believe it and do the surgery

properly.

> > been there.

> > > done that

> >

> > Thanks for your input on that. That was my main question since I

> > wonder if a PS has to get it in order to do the surgery

properly.

> >

> > I really hope your son can find healing somehow, Shari. I think

> > about your situation a lot ever since coming here and reading

your

> > posts. I mentioned my brother had so many of these same symptoms

> and

> > my mom never had implants of any kind, never had surgery either.

> We

> > just thought his immune system was weak somehow and she blamed

> > herself for ceasing breastfeeding at eight months as he went

> downhill

> > at that time and didn't recover for a decade. But he had a lot

of

> > things pumped into his little body like all the mercury from

> > vaccinations and allergy shots and then lots his tonsils which

> didn't

> > help things. I know moms are the queens of self blame and I hope

> > that your son can be well so that you can let yourself off the

> hook.

> > That is so much for you to bear.

> >

> >

> > >

> > >

[Guest guest]

:

A friend of mine who had a very bad implant disaster following mastectomy, recieved help from Dr. at Indiana University. Good luck to you dear!stephsummer <stephsummer@...> wrote:

I mentioned that I've contacted some PSs for explant help and overall advice. I've contacted only surgeons (so far) recommended here or at the 'explant issues' Delphi Forum. I've only heard that I should continue to breastfeed, wait until I'm no longer a lactating woman. Also, my idea of a trans axillary explant was not a good one. I can have the incision made at the crease of the breast, though, so I'm considering that, too, hoping to preserve the milk ducts and nerves. Just like with my first surgery.I contacted Dr. peter chapman after ''s recommendation here (I think you posted this, Patty) and while he says he can certainly do the explant (once breastfeeding is done), he also says that any discussion of 'silicone disease' (he put it in quotations) is 'outside of his area of expertise'.Do you all think it's best to

have the explant done by a PS who gets it, for lack of a better phrase, or to find the best explant PS possible for capsule removal and preservation of the breast and *then* go on your own and do the Silicone Protocol, take Fungal Defense, etc.? Thanks once again,

[Guest guest]

Hey there,

I felt kind of stupid after I posted the question I figured it out!

I had NO IDEA that there is silcone in formula! This is craziness.

Here I am trying to tell my sister about the possible complications

of breast feeding with implants and I had no idea that the

alternative also contained this poison! Thanks for the info. Please

keep us updated on what you find out, I want to present my sister

with the facts. Please let me know if you find an alternative method

or formula that is healthy for the baby in case she decides not to

breastfeed (baby is due in November). Thanks,

Ann

> > > > stephanie

> > > > I don't want to beat a dead horse here - I know that you have

> > > spoken w/

> > > > several docs who said that the nursing was ok but I am

worried

> > for

> > > you and your

> > > > baby.

> > >

> > > But it isn't simply 'several docs'. These are the plastic

> surgeons

> > > who have been recommended here and at the Explant Issues Delphi

> > Forum

> > > for specifically, silicone sickness and explants. I wouldn't

> waste

> > > my time with just 'docs', i have those in my family already if

I

> > > wanted only that opinion. I am quering only those doctors

> > > recommended by women who have/had silicone disease and needed

an

> > > expert to remove the implant.

> > >

> > > I'm planning on speaking with my original surgeon but until I

> hear

> > > the number of explants he performs, his opinion on the now

> numerous

> > > studies I've gathered on breastfeeding with implants (including

> the

> > > huge study that appeared in the 1998 Nov Pediatrics issue I

> > mentioned

> > > yesterday), I'm not going to choose him for the explant. I

have

> to

> > > see someone's work before I let them touch me, also.

> > >

> > > I've read everything I can in the last week on this issue and

> > looking

> > > at the silicone molecule, how silicone acts in the blood and

> > plasma,

> > > how tiny the aveoli are and what can and cannot pass through,

> etc.

> > I

> > > do not take this lightly, believe me!

> > >

> > > I'm also looking at ABMs and the straight out of the can levels

> of

> > > silicone in virtually all ABMs, which makes my decision more

> > > complicated. I may or may not be able to pass silicone through

> > > aveoli but if I use ABM, then I am giving my child silicone

> > straight,

> > > no ifs ands or buts. As well as fluoride (which we try to

avoid

> > > altogether) and a host of other potential allergens and foreign

> > > substances which do not adapt to my baby's immune needs as does

> > > breastmilk. Breastmilk is the only substance that changes

> > according

> > > to my baby's immune demands. Since her immune system won't be

> > fully

> > > developed until she is 5 or so, I need to do everything I can

to

> > > support that development. ABMs have not so great stats as far

as

> > > infant mortality and morbidity. I have read probably twenty

> > studies

> > > of breastfeeding moms with implants as compared with non

> implanted

> > > women and there just isn't a clear decision from those studies

> for

> > me

> > > right now.

> > >

> > >

> > > >I understand the need to bond - I loved nursing my baby.

> > >

> > > FTR, I do not believe that breastfeeding/pumping

> > breastmilk=bonding.

> > > Adoptive mothers bond, non breastfeeding mothers bond. I'm not

> > > saying this is the only road toward bonding.

> > >

> > > Last night I was up half the night again with

> > > > him as he couldn't sleep - I had to change his sheets &

> > pillowcase

> > > twice as I

> > > > keeps getting these nightsweats and he and the bed are

soaked.

> > > Earlier this

> > > > week he had a fever around 103 for two days - took him to the

> > > doctor and they

> > > > can't find anything wrong. The fever thing happens around

> twice

> > a

> > > month -

> > > > high fevers for several days. Sometimes he has an ear

> infection

> > > but sometimes it

> > > > is nothing. I am so scared for him and angry with myself

over

> > > this.

> > >

> > > I'm so so sorry you both are going through this. I cannot

> imagine

> > > how hard it is. I am really, really pained for you reading

this.

> > >

> > >

> > > I know

> > > > your doctors say it is OK - mine did too.

> > >

> > > But were those doctors plastic surgeons who are interfacing

with

> > > silicone-diseased women and performing their explants like the

> > > plastic surgeons I contacted (and was recommended to contact

b/c

> of

> > > their expertise in silicone issues?

> > >

> > >

> > > > I would definitely not go to a doctor who does not deal in

> > silicone

> > > > disease as they may not believe it and do the surgery

> properly.

> > > been there.

> > > > done that

> > >

> > > Thanks for your input on that. That was my main question since

I

> > > wonder if a PS has to get it in order to do the surgery

> properly.

> > >

> > > I really hope your son can find healing somehow, Shari. I

think

> > > about your situation a lot ever since coming here and reading

> your

> > > posts. I mentioned my brother had so many of these same

symptoms

> > and

> > > my mom never had implants of any kind, never had surgery

either.

> > We

> > > just thought his immune system was weak somehow and she blamed

> > > herself for ceasing breastfeeding at eight months as he went

> > downhill

> > > at that time and didn't recover for a decade. But he had a lot

> of

> > > things pumped into his little body like all the mercury from

> > > vaccinations and allergy shots and then lots his tonsils which

> > didn't

> > > help things. I know moms are the queens of self blame and I

hope

> > > that your son can be well so that you can let yourself off the

> > hook.

> > > That is so much for you to bear.

> > >

> > >

> > > >

> > > >