,

[Guest guest]

Thanks so much for getting back to me. We just had our first ever " clean " EEG

last month. He has been on meds with Dr. Chez for a year now. We started

steroids in August of last year. We also started Pro-EFA April 1 of this year

and Carnaware the first of May. You have given me hope that our Hayden too will

have more speech within the year. So far on the Carnaware we have seen him at

least eat some new foods.

Mark & Donna/Indiana

Carl 20, Hayden (LKS), ,Trevor 4

Baby Sister-Madison 4months, New Years Day Baby

Hayden's Story : http://www.geocities.com/HotSprings/1000/kids/haydena.htm

Scrapbook Addict, to visit my album,

go to: http://www.photoalbumweb.com/tripletmom98/

" The mother of a disabled child will never take for granted a " spoken word " .

She will never consider a " step " ordinary. When her child says " momma " for the

first time,

she will be present at a miracle and know it " Erma Bombeck

[ ] Re: Fatty acids/seizures/Dr. Chez

Donna and Betsy -

My son just turned five and yes, he has a lot of unprompted language

(complex sentences, imaginative stories). However, it has taken about 9

months from the time of his first " clean " EEG to develop and his

articulation remains a serious issue. His experience sounds similar to that

of Hayden, in that he understood everything and had the beginning of a core

vocabulary, all of which was subsequently lost. He began to regain his

language gradually, but he really recovered when his seizure disorder was

corrected. It was almost overnight (well, maybe a month is more realistic)

that his receptive language returned and in the subsequent months with the

seizures abated, the expressive developed...Betsy, yes we had no idea,

although some suspicion, that there was seizure activity. Apparently, with

this disorder, Landau Kleffner, the seizures are primarily nocturnal, and

subclinical, so you can't see them. (I think Dr. Laverman (sp?) keeps urging

people to get 24 EEG's done if one is called for, I am assuming to rule out

this disorder....excellent advice from my experience and I wish I had gotten

it earlier).

[Guest guest]

- i never realized that formula had silicone and heavy metals in it.

I have never heard of such a thing - that is terrible. Where did you find this as I would like to forward to some friends of mine.

My issue w/ the implants & breastfeeding wasn't just the silicone and metals - mine were saline and very highly contaminated. I was worried about having passed the mold, bacteria, and yeast that were found in mine to him. I think this is why I am so sick along with the silicone exposure

good luck to you and your baby!!

shari

[Guest guest]

> Reading about Shari's son being sick is very heart breaking.

Yes, I totally agree it is.

> It is a mothers moral oblagation to protect there child at what

ever

> cost to them. I know that you love your baby with all your heart.

> Why take that risk.

As I stated in my previous post, formula has silicone in it. In much

higher levels than any breastmilk tested from implanted women have

ever shown. So I have guaranteed silicone right there. Can't pick

it out of the can, can't say 'maybe', it's right there, no way to

avoid it. Also, the levels of aluminum are very worrisome to me in

ABMs.

I can have my breastmilk tested. I can see what that shows. But to

drop breastfeeding right this second and trade it for *guaranteed

silicone and other metals that are known or suspected to cause infant

harm*, I cannot morally do that. I am trading a maybe risk for an

absolute risk that I cannot undo.

Yes your brother had trouble after your mother

> stoped breat feeding, but that could have just been that he was

> alergic to milk. (My oldest was, made him very ill, had to feed him

> soy milk for years).

He got goat's milk, not cow's fwiw. No one will ever really know

what harmed him or if he was born weak from something else. I'm

grateful he is well now, and helping so many with nutrition,

vitamins, etc. If he was lactose intolerant, he probably would be

soy intolerant as well, as those usually go hand in hand.

>

> Your milk may be just fine. But what if its not?

I will have it tested. The line isn't simply 'fine' or 'not fine'.

I have a definite 'not fine' can of ABM with levels of silicone,

GMOs, and other known harmful things to humans waiting for me.

If it had been any ol' doc or plastic surgeon advising me on

breastfeeding with implants, I'd probably disregard it. But when

these are respectd doctors performing explants on the silicon-

diseased community, I pay more attention, frankly.

>

> Love Cricket

[Guest guest]

I know that you will do the best thing you can for your baby. It

really sucks that we were all put in this place. I guess I was

thinking more about the bactia in the sailine than the silicone. But

your right about the silicone in caned milk. Doesn't all this just

make you want to scream. It does me.

follow your instint, thats normaly right on. No one is

more contected than mother and child.

Love Cricket

> > Reading about Shari's son being sick is very heart breaking.

>

> Yes, I totally agree it is.

>

> > It is a mothers moral oblagation to protect there child at what

> ever

> > cost to them. I know that you love your baby with all your

heart.

> > Why take that risk.

>

> As I stated in my previous post, formula has silicone in it. In

much

> higher levels than any breastmilk tested from implanted women have

> ever shown. So I have guaranteed silicone right there. Can't

pick

> it out of the can, can't say 'maybe', it's right there, no way to

> avoid it. Also, the levels of aluminum are very worrisome to me

in

> ABMs.

>

> I can have my breastmilk tested. I can see what that shows. But

to

> drop breastfeeding right this second and trade it for *guaranteed

> silicone and other metals that are known or suspected to cause

infant

> harm*, I cannot morally do that. I am trading a maybe risk for an

> absolute risk that I cannot undo.

>

> Yes your brother had trouble after your mother

> > stoped breat feeding, but that could have just been that he was

> > alergic to milk. (My oldest was, made him very ill, had to feed

him

> > soy milk for years).

>

> He got goat's milk, not cow's fwiw. No one will ever really know

> what harmed him or if he was born weak from something else. I'm

> grateful he is well now, and helping so many with nutrition,

> vitamins, etc. If he was lactose intolerant, he probably would be

> soy intolerant as well, as those usually go hand in hand.

> >

> > Your milk may be just fine. But what if its not?

>

> I will have it tested. The line isn't simply 'fine' or 'not

fine'.

> I have a definite 'not fine' can of ABM with levels of silicone,

> GMOs, and other known harmful things to humans waiting for me.

>

> If it had been any ol' doc or plastic surgeon advising me on

> breastfeeding with implants, I'd probably disregard it. But when

> these are respectd doctors performing explants on the silicon-

> diseased community, I pay more attention, frankly.

>

>

>

> >

> > Love Cricket

[Guest guest]

In a message dated 4/29/2004 3:23:13 PM Eastern Standard Time, naturalbeauty38@... writes:

Wow girl you seem to have come here for advice and now your totally seeming angry about this. I can tell you for a fact that I never breast fed and my daughter never was ill once as a baby or as a child, she is healthy as anyone can possibly be. I don't understand why you would want to take these chances even if there is the MOST REMOTE chance it is a good thing, when it could be dangerous.It is your baby, it is your choice, but I don't think you should be so angry at others for trying to give you some good advice here. If your baby ends up sick later on in life you might really eai i have two daughters the oldest i never breastfed, the youngest i did but only for 2 weeks for she was born with 2 teeth and continued to bite me....and i guess that was long enough as she has all kinds of problems, from fibromyalgia to migraines....she is in pain everyday, do i think there is a connection .......YES...........do i ever regret breastfeeding her YES..... do i live with the guilt YES....everyday...i guess we all do what we have to do, and some have to learn the hard way...i did ask if it was safe to breastfeed and i was told yes...but that was before all this stuff with the silicone came to a head...............we can't challenge the world or stop some from doing what they feel is truly OK with them....if anything let us sympathize with them and pray that everything indeed will work out for them and no one will get hurt by there decisions.....

[Guest guest]

In a message dated 4/29/2004 2:39:32 PM Eastern Standard Time, stephsummer@... writes:

Even if you breast feed a couple of weeks, your baby gets > all the colustrum and immunity. Again, sorry this isn't true. Have you visited Dr. Mercola's site? That might be a good place to learn about the benefits of breastfeeding (for the baby) beyond two weeks. No science or doctor states that 'all the...immunity' is gained in two weeks of breastfeeding. Please, be careful about your assertions.

first off i was told by many many doctors that yes indeed the first two week your child gets all the colustrum and immunity, the important part of nursing is the first few nursings....not to say that continuing is even better for the child, yes its best to continue to breastfeed if you can, what i don't understand is why is it so easy to believe one person on this site about breastfeeding and not believe tons of women who have children who are just as sick as they are........and who are actually here to verify this.....i believe its because breastfeeding is a conviction you believe in so you fight the war....well we fight the war we feel is right as well.. ....but you have to do what is right for you, and you have to live with whatever the outcome is....and i never would wish ill of that....i pray all goes well, and basically my theory is if you have already started to nurse, and if something would happen it wouldn't matter if you stopped now or not the damage would already have been done....

[Guest guest]

-

I was just wondering if there is any way that you could have your

milk tested? That way you would know for sure. It appears, like

everything else, there is a risk here. My sister has saline

implants and breastfed and her children appear to be ok. However,

she hasn't gotten sick from her implants. She has had them at least

14 years. You, on the other hand, are sick. That would make me

seriously question the safety of your milk. How old is your baby?

He has already gotten alot of the benefit from breastfeeding

anyway. Even if you breast feed a couple of weeks, your baby gets

all the colustrum and immunity. Millions of people have bottlefed

their babies and raised healthy, loving children. Personally, I

couldn't live with the risk. If my child got sick because of

something I knew was a possibility---and we do know it is a definite

possibility--I would feel horrible about it.

You have been told by ps that breastfeeding is ok. However, these

same PS will tell you that breast implants are safe. YOu have

already found out that isn't necessarily true, why would you trust

their judgement where something as important as your child's health

is concerned? If you have any doubts whatsoever, don't breastfeed.

that way you will be sure you did the best you could with what you

knew at the time for your child. I will be praying that God give

you a peace about what to do in this situation---and that your baby

hasn't been harmed and won't be. God bless

kathy

-- In , " cricket5643000 "

<cricket5643000@y...> wrote:

> Reading about Shari's son being sick is very heart breaking. She

is

> right in my opinon. You should reach down in your sole and ask

> yourself am I wanted to breat feed my baby because I am doing the

> best thing for him or am I being (please don't take this wrong) or

> am I being selfish. Am I doing this for me?

> It is a mothers moral oblagation to protect there child at what

ever

> cost to them. I know that you love your baby with all your heart.

> Why take that risk. Yes your brother had trouble after your mother

> stoped breat feeding, but that could have just been that he was

> alergic to milk. (My oldest was, made him very ill, had to feed

him

> soy milk for years).

>

> Your milk may be just fine. But what if its not?

>

> Love Cricket

[Guest guest]

> > Reading about Shari's son being sick is very heart breaking. She

> is

> > right in my opinon. You should reach down in your sole and ask

> > yourself am I wanted to breat feed my baby because I am doing the

> > best thing for him or am I being (please don't take this wrong)

or

> > am I being selfish. Am I doing this for me?

> > It is a mothers moral oblagation to protect there child at what

> ever

> > cost to them. I know that you love your baby with all your heart.

> > Why take that risk. Yes your brother had trouble after your

mother

> > stoped breat feeding, but that could have just been that he was

> > alergic to milk. (My oldest was, made him very ill, had to feed

> him

> > soy milk for years).

> >

> > Your milk may be just fine. But what if its not?

> >

> > Love Cricket

[Guest guest]

- I am sorry that some of my posts are angering you - i was just trying to help and I didn't mean any disrespect. I am just so freaked out about my baby being sick that I wanted to share my thoughts with you so you didn't feel like me a few years down the road. I am sure you have done the research and will do what is best. As I said, I am just trying to help and meant no ill feelings about my breastfeeding posts. we all have our opinions as to what is right for us.

God bless and good luck

shari

[Guest guest]

Wow girl you seem to have come here for advice and now your totally

seeming angry about this. I can tell you for a fact that I never

breast fed and my daughter never was ill once as a baby or as a

child, she is healthy as anyone can possibly be. I don't understand

why you would want to take these chances even if there is the MOST

REMOTE chance it is a good thing, when it could be dangerous.

It is your baby, it is your choice, but I don't think you should be

so angry at others for trying to give you some good advice here. If

your baby ends up sick later on in life you might really regret this.

good luck and try not to attack everyone for being helpful

In , " stephsummer " <stephsummer@y...>

wrote:

>

> > > Reading about Shari's son being sick is very heart breaking.

She

> > is

> > > right in my opinon. You should reach down in your sole and ask

> > > yourself am I wanted to breat feed my baby because I am doing

the

> > > best thing for him or am I being (please don't take this wrong)

> or

> > > am I being selfish. Am I doing this for me?

> > > It is a mothers moral oblagation to protect there child at what

> > ever

> > > cost to them. I know that you love your baby with all your

heart.

> > > Why take that risk. Yes your brother had trouble after your

> mother

> > > stoped breat feeding, but that could have just been that he was

> > > alergic to milk. (My oldest was, made him very ill, had to feed

> > him

> > > soy milk for years).

> > >

> > > Your milk may be just fine. But what if its not?

> > >

> > > Love Cricket

[Guest guest]

, I have thanked every one here, multiple times for their

information and support. I refuse to let false information slide,

especially when the post was addressed specficially to me and my

situation. We all want the truth, right? We are willing to go

against the grain of huge systems out there because we want the

truth? There were absolutely false and erroneous statements made to

me, I addressed those.

When plastic surgeons (like Melmed whom I spoke about in my post)

advise me to keep breastfeeding, I listen. It isn't fair for anyone

here to say, 'oh, Dr. Melmed understands! Have you read his amazing

article at explantation.com?' and then tell me that this is 'some

doc' or the 'same..ps who will tell you (the implants) are safe'.

That is a blantantly false statement and the women here, including

myself do not deserve to have such false information stated as if it

is fact.

You don't understand why I'm taking chances you think are risky. If

the Owner and Moderator of this forum need me to leave based on my

researching the choice whether or not to breastfeed, then please let

me know. If women like Dr. Kolb are able to continue to have their

saline implants and no known plans of removal AND post here, then I

believe that I should be able to stay and relay what I'm finding in

research on this issue and what reputable, quoted, recommended

plastic surgeons who are explant experts are recommending I do.

> > > > Reading about Shari's son being sick is very heart breaking.

> She

> > > is

> > > > right in my opinon. You should reach down in your sole and

ask

> > > > yourself am I wanted to breat feed my baby because I am doing

> the

> > > > best thing for him or am I being (please don't take this

wrong)

> > or

> > > > am I being selfish. Am I doing this for me?

> > > > It is a mothers moral oblagation to protect there child at

what

> > > ever

> > > > cost to them. I know that you love your baby with all your

> heart.

> > > > Why take that risk. Yes your brother had trouble after your

> > mother

> > > > stoped breat feeding, but that could have just been that he

was

> > > > alergic to milk. (My oldest was, made him very ill, had to

feed

> > > him

> > > > soy milk for years).

> > > >

> > > > Your milk may be just fine. But what if its not?

> > > >

> > > > Love Cricket

[Guest guest]

No one said you had to leave, i just was voicing my feelings that you

seemed angry about our advice, again it is your child and if you feel

comfortable doing this, then that is your choice. I am just telling

you that I would not take this risk. Not based on any scientific

data, since I don't believe there is any real reliable data right now

anyhow.

good luck and best wishes to you.

In , " stephsummer " <stephsummer@y...>

wrote:

> , I have thanked every one here, multiple times for their

> information and support. I refuse to let false information slide,

> especially when the post was addressed specficially to me and my

> situation. We all want the truth, right? We are willing to go

> against the grain of huge systems out there because we want the

> truth? There were absolutely false and erroneous statements made

to

> me, I addressed those.

>

> When plastic surgeons (like Melmed whom I spoke about in my post)

> advise me to keep breastfeeding, I listen. It isn't fair for

anyone

> here to say, 'oh, Dr. Melmed understands! Have you read his

amazing

> article at explantation.com?' and then tell me that this is 'some

> doc' or the 'same..ps who will tell you (the implants) are safe'.

> That is a blantantly false statement and the women here, including

> myself do not deserve to have such false information stated as if

it

> is fact.

>

> You don't understand why I'm taking chances you think are risky.

If

> the Owner and Moderator of this forum need me to leave based on my

> researching the choice whether or not to breastfeed, then please

let

> me know. If women like Dr. Kolb are able to continue to have their

> saline implants and no known plans of removal AND post here, then I

> believe that I should be able to stay and relay what I'm finding in

> research on this issue and what reputable, quoted, recommended

> plastic surgeons who are explant experts are recommending I do.

>

>

>

>

>

> > > > > Reading about Shari's son being sick is very heart

breaking.

> > She

> > > > is

> > > > > right in my opinon. You should reach down in your sole and

> ask

> > > > > yourself am I wanted to breat feed my baby because I am

doing

> > the

> > > > > best thing for him or am I being (please don't take this

> wrong)

> > > or

> > > > > am I being selfish. Am I doing this for me?

> > > > > It is a mothers moral oblagation to protect there child at

> what

> > > > ever

> > > > > cost to them. I know that you love your baby with all your

> > heart.

> > > > > Why take that risk. Yes your brother had trouble after your

> > > mother

> > > > > stoped breat feeding, but that could have just been that he

> was

> > > > > alergic to milk. (My oldest was, made him very ill, had to

> feed

> > > > him

> > > > > soy milk for years).

> > > > >

> > > > > Your milk may be just fine. But what if its not?

> > > > >

> > > > > Love Cricket

[Guest guest]

I did not intend to come off rude, I just feel if there is even a

slight chance of your baby being harmed why risk it? I personaly have

found all the Plastic Surgeons have view points that I do not agree

with, I heard Dr Mehlmed say Salines were safe, I heard Kolb

say that some tolerate them better than others, which is true, but

she told me I was a good candidate for reimplanting with saline

smooth implants, I just don't buy that at all. Most of them, even if

they are there to help us, still do not by any means know the true

depths of silicone poisoning. I trusted Dr Feng to remove my implants

and i doubt she would agree with breastfeeding if your symptomatic,

but maybe I am wrong. I still just don't see how it can be a good

idea, but if your set on doing it, it is like telling someone not to

get implants, they will do what they will do.

Again I was only trying to help.

In , Baboola57@a... wrote:

> In a message dated 4/29/2004 2:39:32 PM Eastern Standard Time,

> stephsummer@y... writes:

> Even if you breast feed a couple of weeks, your baby gets

> > all the colustrum and immunity.

>

> Again, sorry this isn't true. Have you visited Dr. Mercola's

site?

> That might be a good place to learn about the benefits of

> breastfeeding (for the baby) beyond two weeks. No science or

doctor

> states that 'all the...immunity' is gained in two weeks of

> breastfeeding. Please, be careful about your assertions.

> first off i was told by many many doctors that yes indeed the first

two week

> your child gets all the colustrum and immunity, the important part

of nursing

> is the first few nursings....not to say that continuing is even

better for the

> child, yes its best to continue to breastfeed if you can, what i

don't

> understand is why is it so easy to believe one person on this site

about

> breastfeeding and not believe tons of women who have children who

are just as sick as

> they are........and who are actually here to verify this.....i

believe its

> because breastfeeding is a conviction you believe in so you fight

the war....well we

> fight the war we feel is right as well.. ....

> but you have to do what is right for you, and you have to live with

whatever

> the outcome is....and i never would wish ill of that....i pray all

goes well,

> and basically my theory is if you have already started to nurse,

and if

> something would happen it wouldn't matter if you stopped now or not

the damage would

> already have been done....

[Guest guest]

I think that we have to many well intentioned mothers her. There is

nothing worse than thinking that someone is questioning your abilty

to be a good mother. (And we are not) Our fleathers go up and we are

ready for a fight. Just wait till that little angle is a teenager,

and how much advice from others you will get. (and they will all

have little ones or no children yet)Its enough to make you want to

put on boxing gloves. I just smile now and say your time is comming.

I have a sign hanging in my kitchen that says " MOTHERS OF TEENAGERS

KNOW WHY ANIMALS EAT THERE YOUNG. "

I'm just rabblings here but I guess the point is we all are mothers

and we really truely care about each other, sometimes the things we

type just don't come out the same as if we were sitting together and

talking. throwing out idea's, gasping for straws,anything that we

can think of that might be of help, light the light bulb.

I think your idea about getting your milk tested is a good one, that

will ease your mind.

Love Cricket

[Guest guest]

we are all hormonal.

I'm trying to remember and can't an actress who said.

" I love PMS because it is the only time I can truely be myself. "

I think about that some times when I'm feeling hormonal.

Love Cricket

> > I think that we have to many well intentioned mothers her. There

is

> > nothing worse than thinking that someone is questioning your

abilty

> > to be a good mother. (And we are not) Our fleathers go up and we

> are

> > ready for a fight. Just wait till that little angle is a

teenager,

> > and how much advice from others you will get. (and they will all

> > have little ones or no children yet)Its enough to make you want

to

> > put on boxing gloves. I just smile now and say your time is

> comming.

> > I have a sign hanging in my kitchen that says " MOTHERS OF

TEENAGERS

> > KNOW WHY ANIMALS EAT THERE YOUNG. "

> >

> > I'm just rabblings here but I guess the point is we all are

mothers

> > and we really truely care about each other, sometimes the things

we

> > type just don't come out the same as if we were sitting together

> and

> > talking. throwing out idea's, gasping for straws,anything that

we

> > can think of that might be of help, light the light bulb.

> >

> > I think your idea about getting your milk tested is a good one,

> that

> > will ease your mind.

> >

> > Love Cricket

[Guest guest]

I'm so sorry but I cannot read this because of all the foggy brain I

get when there is just no breaks in between paragraphs. I really

wish I could! I hope to be able to read through it once I am more on

the way to my healing.

> > > > Reading about Shari's son being sick is very heart breaking.

> She

> > > is

> > > > right in my opinon. You should reach down in your sole and

ask

> > > > yourself am I wanted to breat feed my baby because I am doing

> the

> > > > best thing for him or am I being (please don't take this

> wrong)

> > or

> > > > am I being selfish. Am I doing this for me?

> > > > It is a mothers moral oblagation to protect there child at

> what

> > > ever

> > > > cost to them. I know that you love your baby with all your

> heart.

> > > > Why take that risk. Yes your brother had trouble after your

> > mother

> > > > stoped breat feeding, but that could have just been that he

> was

> > > > alergic to milk. (My oldest was, made him very ill, had to

> feed

> > > him

> > > > soy milk for years).

> > > >

> > > > Your milk may be just fine. But what if its not?

> > > >

> > > > Love Cricket

[Guest guest]

-

I used to have terrible foggy brain too. That fortunately, was one

of my first symptoms to go. I hope and pray it will be for you also!

Blessings, kathy

-- In , " stephsummer "

<stephsummer@y...> wrote:

> I'm so sorry but I cannot read this because of all the foggy brain

I

> get when there is just no breaks in between paragraphs. I really

> wish I could! I hope to be able to read through it once I am more

on

> the way to my healing.

>

>

>

>

[Guest guest]

In a message dated 5/3/2004 12:06:00 AM Eastern Standard Time, faussettdp@... writes:

BJ,I am really, really sorry to hear of your daughterhaving problems. I didn't realize that was yoursituation with your children, and it must beheartbreaking to you. I think there are several womenhere in that same boat...I know Anita has a son thatshe thinks was hurt by her silicone gel implants too.What kinds of problems have you had to deal with interms of while your youngest daughter was growing up? What does she do now (can she function fairlynormally?) How has this affected her life?And you said the first one you did notbreastfeed...does she have any health problems? Ifnot, do you think the difference between your twodaughters is that the one you breastfed was harmed byyour implants? This actually would be very importantinformation for Dr. Zuckerman's organization.Patty

Hi Patty,

The first child i never breastfed.....she has a few things going on but normal everyday stuff we go threw....backache from childbirth etc...my younger daughter i did breastfeed but only for a couple of weeks....whether there is a connection or not i have no idea..she suffered from asthma as a child and even stopped breathing on me on two occasions...that scared the daylights out of me...she has fibromyalgia, her joints hurt so far the test for lupus is neg and they said sometimes it doesn't show till they are in there late 20's don't know why...she continues to get migraines more times in the month then not.... i would say she gets them 3 weeks out of 4...she suffers from anxiety.....so you see i am not sure if this is from that or normal.....maybe you can give me some insight....the brain fog really has a hold on me..............love ya BJ