Guest guest Posted May 3, 2004 Report Share Posted May 3, 2004 One of my Drs. almost had me convinced early on in my illness that I could possibly have chronic lyme(I had negative western blot). It took much research and finding this group that lead me to the truth about implants. I know someone else that lives in my area that has implants and they told her she has chronic lyme, hmmm seems all too coincidental. I would really consider removing the implants. Barby Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2004 Report Share Posted May 4, 2004 I was also told that I had Lyme with positive IGM, but negative Western blot and PCR. Good luck, Ann > One of my Drs. almost had me convinced early on in my illness that I could > possibly have chronic lyme(I had negative western blot). It took much research > and finding this group that lead me to the truth about implants. I know > someone else that lives in my area that has implants and they told her she has > chronic lyme, hmmm seems all too coincidental. I would really consider removing > the implants. > Barby Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 5, 2004 Report Share Posted May 5, 2004 I was told that if a person has an elevated rheumatoid factor it causes false positives on IGM, so maybe thats why some women test positive for lyme or EBV or any test that measure IGM. I had tested positive IGM for babesia and at the same time I had an elevated rheumatoid factor and one Dr. explained this to me, I dont know if this helps or not but a lot of implanted women have elevated rheumatoid factors so maybe thats why some test positive for lyme? Barby Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 5, 2004 Report Share Posted May 5, 2004 Patty, I had my RF rechecked 3 months after explant(which was this December) and it was normal. It was elevated when I had the implants and then went back to normal when I took them out. Its funny after 3 months of explanting that the RF went down and I began menstruating again and began driving again. Everyone thought it was all in my head though. Barby Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 5, 2004 Report Share Posted May 5, 2004 I get that it is all related to inflammation, but to test for Lyme Disease when it is a disease that is caused by a tick bite and has very defining symptoms, bulleye rash aroung the bite, fever, chills... a tick!!!! those boys dont just fall off, you gotta pull them off. If you've been in a wooded area unprotected and get these symptoms, take the test, otherwise, I think someone is trying to take advantage of sick women by doing unnecessary test and taking money for something they know is not the problem. That makes me angry! VickieBARBY4271@... wrote: I was told that if a person has an elevated rheumatoid factor it causes false positives on IGM, so maybe thats why some women test positive for lyme or EBV or any test that measure IGM. I had tested positive IGM for babesia and at the same time I had an elevated rheumatoid factor and one Dr. explained this to me, I dont know if this helps or not but a lot of implanted women have elevated rheumatoid factors so maybe thats why some test positive for lyme? Barby Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 5, 2004 Report Share Posted May 5, 2004 I live in a pretty suburban area, however, the CDC has now named my county endemic for lyme disease. My cat brought in some ticks last year, and the ticks were babies (nymphs), which apparently can bite you, not attach, and still transmit lyme...you would never have known you were bitten. If not for the nymphs we found on our bed last year, I would 100% discount lyme. I can't however, because it IS a possibility for me. I dont doubt though that something is going on with my implants, because of the burning sensation I have. Even on the chance I do have lyme, I don't know how my body could fight it with the implants in. > I was told that if a person has an elevated rheumatoid factor it causes false positives on IGM, so maybe thats why some women test positive for lyme or EBV or any test that measure IGM. I had tested positive IGM for babesia and at the same time I had an elevated rheumatoid factor and one Dr. explained this to me, I dont know if this helps or not but a lot of implanted women have elevated rheumatoid factors so maybe thats why some test positive for lyme? > Barby > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 11, 2004 Report Share Posted May 11, 2004 Patty, I have been explanted for about 8 months now and I still have some symptoms but some arent as bad. I no longer have the light sensitivity, last year I hated any kind of sunlight and now I can enjoy it, I still have fatigue but I can do a little more than before , I still get dizzy at times, and the joint pain only comes if I try to overdo it, and the brain fog is not everyday like it was. I have to say thank God I am better than I was prior to explant. I am able to do more things but I am no where near being 100%, I hope someday I will be. I saw around a dozen Drs. that said it wasnt related to the implants , but the 1st infectous disease Dr. I saw last yr. said looking at it from an infectous disease point of view it can harbor bacteria and it is a foreign object , but unfortunately she moved to Calif., and when I asked one of the other Drs. about the RF being normal now he just kind of blew it off and gave me some lame story. I never returned to the other 10 drs. I saw I completely lost faith and dont believe a word any of them say.The menses thing they just told me it was because I was too skinny and that you need body fat to menstrate and that was the reason. I am still skinny , so why I am menstrating now? I had so many diagnoses such as lyme, CFS,epstein barr, depression, etc. I did test positive for mycoplasma but they dont really consider that an issue so I am taking the doxy on my own , but I dont know how long to take it for since none of them believe in long term treatment. I really hate to take antibiotics but I think they are helping me. Everyone thought I was crazy Barby Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 11, 2004 Report Share Posted May 11, 2004 Her name is Clough, she didnt necessarily say that the implants were making me sick she just agreed that they do harbor bacteria and they are a foriegn body. I am not sure what part of California she moved too though. Barby Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 11, 2004 Report Share Posted May 11, 2004 Barby, do you mind if I ask you what infectious disease dr. you saw that moved to Calif? I'm in California. Thanks! > Patty, > I have been explanted for about 8 months now and I still have some symptoms > but some arent as bad. I no longer have the light sensitivity, last year I > hated any kind of sunlight and now I can enjoy it, I still have fatigue but I can > do a little more than before , I still get dizzy at times, and the joint pain > only comes if I try to overdo it, and the brain fog is not everyday like it > was. I have to say thank God I am better than I was prior to explant. I am > able to do more things but I am no where near being 100%, I hope someday I will > be. I saw around a dozen Drs. that said it wasnt related to the implants , > but the 1st infectous disease Dr. I saw last yr. said looking at it from an > infectous disease point of view it can harbor bacteria and it is a foreign object > , but unfortunately she moved to Calif., and when I asked one of the other > Drs. about the RF being normal now he just kind of blew it off and gave me some > lame story. I never returned to the other 10 drs. I saw I completely lost > faith and dont believe a word any of them say.The menses thing they just told me > it was because I was too skinny and that you need body fat to menstrate and > that was the reason. I am still skinny , so why I am menstrating now? I had so > many diagnoses such as lyme, CFS,epstein barr, depression, etc. I did test > positive for mycoplasma but they dont really consider that an issue so I am taking > the doxy on my own , but I dont know how long to take it for since none of > them believe in long term treatment. I really hate to take antibiotics but I > think they are helping me. Everyone thought I was crazy > Barby Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2004 Report Share Posted May 13, 2004 Joleen, What part of California are you from? Ann > > Patty, > > I have been explanted for about 8 months now and I still have some > symptoms > > but some arent as bad. I no longer have the light sensitivity, > last year I > > hated any kind of sunlight and now I can enjoy it, I still have > fatigue but I can > > do a little more than before , I still get dizzy at times, and the > joint pain > > only comes if I try to overdo it, and the brain fog is not > everyday like it > > was. I have to say thank God I am better than I was prior to > explant. I am > > able to do more things but I am no where near being 100%, I hope > someday I will > > be. I saw around a dozen Drs. that said it wasnt related to the > implants , > > but the 1st infectous disease Dr. I saw last yr. said looking at > it from an > > infectous disease point of view it can harbor bacteria and it is a > foreign object > > , but unfortunately she moved to Calif., and when I asked one of > the other > > Drs. about the RF being normal now he just kind of blew it off and > gave me some > > lame story. I never returned to the other 10 drs. I saw I > completely lost > > faith and dont believe a word any of them say.The menses thing > they just told me > > it was because I was too skinny and that you need body fat to > menstrate and > > that was the reason. I am still skinny , so why I am menstrating > now? I had so > > many diagnoses such as lyme, CFS,epstein barr, depression, etc. I > did test > > positive for mycoplasma but they dont really consider that an > issue so I am taking > > the doxy on my own , but I dont know how long to take it for since > none of > > them believe in long term treatment. I really hate to take > antibiotics but I > > think they are helping me. Everyone thought I was crazy > > Barby Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2004 Report Share Posted May 18, 2004 Patty, I take the doxy three times a week. Unfortunately there arent any Drs. in this state that follow the long term abx. so I am just treating myself, the only problem I have is how long to stay on them for. Kathy and how long have you been doing the abx protocol? What is the usual recommendation? Barby Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2004 Report Share Posted May 18, 2004 Funny because I took doxycycline for about a year and a half for acne right before I got implants, I stopped it about a month before my surgery. Strange. It made me very sensitive to the sun, in fact in my pre op implant pic where my boobs are all gross and saggy I had a really bad sunburn from the doxy. - In , BARBY4271@A... wrote: > Patty, > I take the doxy three times a week. Unfortunately there arent any Drs. in > this state that follow the long term abx. so I am just treating myself, the > only problem I have is how long to stay on them for. Kathy and how long > have you been doing the abx protocol? What is the usual recommendation? > Barby Quote Link to comment Share on other sites More sharing options...
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