Guest guest Posted May 5, 2004 Report Share Posted May 5, 2004 Where is your doctor located? I'm tired, and I need a doctor to diagonose me with autoimmune diseases that these implants cause. Can't seem to find one. Do you know of one. I've had 10 breast implants and have had them for 20 years. I've decided to get them removed, I'll just have to deal with another mental part of all this ....... Neenienantynannie <nantynannie@...> wrote: Judi,His name is E. Galpin (818) 344-6111. He is an infectious disease specialist and immunologist who works with many AIDS patients. He is not a rheumy, in fact he sent me to one as part of his overall work up to get another opinion. The rheumy who is supposed to be top in his field said that I had FM. Also, he sent me to a great neuro who said I had FM and CFS. This makes me think that FM CFS and connective tissue disease are all so intertwined with each other that at times they may be indistinquishable by even the best docs. All of the other docs dismissed me and tried to put me on antidepressants, but at least Galpin believed me. That was the only thing that kept me going! I know how you feel about docs thinking you are nuts. I was sick long before I even considered implants being related and I often connect my illness with toxic exposure at work, so I never brought up implants and they still thought I was crazy!!!I have been seeing Galpin since October 2003 and he just now sent my blood sample to the University. He does many other tests and referrals prior to that step to rule out anything obvious and not so obvious. His initial office visit was $450 and after that about $115 for each visit and quite a bit for extensive specialty lab work. I was fortunate enough to have decent insurance. If you are a candidate for the University thing then it is free. Even if you don't make it that far, it might be worth your while to see him. I cannot tell you what peace of mind it gave me to find a doc who did not think I was crazy. Just that knowledge got me through many tough times. Let me know if you have any questions...Ann PS: what are your symptoms that go along with the positive ANA and how high were the titers?-- In , jaylow2100@a... wrote:Hi Ann,If I can't find anyone here I might try to go to him. I live in New Mexico and so far I haven't found any Rhuematologist here that are worth while. They don't even want to touch me and think I'm nuts. Even though I have had a positive ANA (the last time it was negative) they say it's no big deal and as far as my pain just take pain pills. Southern California isn't that far from me. I used to live in LA (that's where I got the & *%^ & *^ implants in).Mine have been out for 18 months and I have improved but I still have pain (especially back) in arms, hands and back. When I wake up my hands are slightly swollen but it goes away during the day.They tested me for all the autoimmune diseases and CRP and all were negative, but I know something is going on. I am hoping it will lessen as time goes on but I am also excited about all the new pending research. It feels like they are on the brink of a cure. I know that they are doing clinical trials on Lupus at USC at the Keck School of Medicine using the same approach, only modifying the overactive part of the immune system. I think that is going on right now or really soon. Anyway if you wouldn't mind giving me the name of your doc I would appreciate it.ThanksJudi--- End forwarded message --- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 5, 2004 Report Share Posted May 5, 2004 Where is your doctor located? I'm tired, and I need a doctor to diagonose me with autoimmune diseases that these implants cause. Can't seem to find one. Do you know of one. I've had 10 breast implants and have had them for 20 years. I've decided to get them removed, I'll just have to deal with another mental part of all this ....... Neenienantynannie <nantynannie@...> wrote: Judi,His name is E. Galpin (818) 344-6111. He is an infectious disease specialist and immunologist who works with many AIDS patients. He is not a rheumy, in fact he sent me to one as part of his overall work up to get another opinion. The rheumy who is supposed to be top in his field said that I had FM. Also, he sent me to a great neuro who said I had FM and CFS. This makes me think that FM CFS and connective tissue disease are all so intertwined with each other that at times they may be indistinquishable by even the best docs. All of the other docs dismissed me and tried to put me on antidepressants, but at least Galpin believed me. That was the only thing that kept me going! I know how you feel about docs thinking you are nuts. I was sick long before I even considered implants being related and I often connect my illness with toxic exposure at work, so I never brought up implants and they still thought I was crazy!!!I have been seeing Galpin since October 2003 and he just now sent my blood sample to the University. He does many other tests and referrals prior to that step to rule out anything obvious and not so obvious. His initial office visit was $450 and after that about $115 for each visit and quite a bit for extensive specialty lab work. I was fortunate enough to have decent insurance. If you are a candidate for the University thing then it is free. Even if you don't make it that far, it might be worth your while to see him. I cannot tell you what peace of mind it gave me to find a doc who did not think I was crazy. Just that knowledge got me through many tough times. Let me know if you have any questions...Ann PS: what are your symptoms that go along with the positive ANA and how high were the titers?-- In , jaylow2100@a... wrote:Hi Ann,If I can't find anyone here I might try to go to him. I live in New Mexico and so far I haven't found any Rhuematologist here that are worth while. They don't even want to touch me and think I'm nuts. Even though I have had a positive ANA (the last time it was negative) they say it's no big deal and as far as my pain just take pain pills. Southern California isn't that far from me. I used to live in LA (that's where I got the & *%^ & *^ implants in).Mine have been out for 18 months and I have improved but I still have pain (especially back) in arms, hands and back. When I wake up my hands are slightly swollen but it goes away during the day.They tested me for all the autoimmune diseases and CRP and all were negative, but I know something is going on. I am hoping it will lessen as time goes on but I am also excited about all the new pending research. It feels like they are on the brink of a cure. I know that they are doing clinical trials on Lupus at USC at the Keck School of Medicine using the same approach, only modifying the overactive part of the immune system. I think that is going on right now or really soon. Anyway if you wouldn't mind giving me the name of your doc I would appreciate it.ThanksJudi--- End forwarded message --- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 5, 2004 Report Share Posted May 5, 2004 Where is Dr. jeffrey Galpin located?jeanine buchanan <neenie502002@...> wrote: Where is your doctor located? I'm tired, and I need a doctor to diagonose me with autoimmune diseases that these implants cause. Can't seem to find one. Do you know of one. I've had 10 breast implants and have had them for 20 years. I've decided to get them removed, I'll just have to deal with another mental part of all this ....... Neenienantynannie <nantynannie@...> wrote: Judi,His name is E. Galpin (818) 344-6111. He is an infectious disease specialist and immunologist who works with many AIDS patients. He is not a rheumy, in fact he sent me to one as part of his overall work up to get another opinion. The rheumy who is supposed to be top in his field said that I had FM. Also, he sent me to a great neuro who said I had FM and CFS. This makes me think that FM CFS and connective tissue disease are all so intertwined with each other that at times they may be indistinquishable by even the best docs. All of the other docs dismissed me and tried to put me on antidepressants, but at least Galpin believed me. That was the only thing that kept me going! I know how you feel about docs thinking you are nuts. I was sick long before I even considered implants being related and I often connect my illness with toxic exposure at work, so I never brought up implants and they still thought I was crazy!!!I have been seeing Galpin since October 2003 and he just now sent my blood sample to the University. He does many other tests and referrals prior to that step to rule out anything obvious and not so obvious. His initial office visit was $450 and after that about $115 for each visit and quite a bit for extensive specialty lab work. I was fortunate enough to have decent insurance. If you are a candidate for the University thing then it is free. Even if you don't make it that far, it might be worth your while to see him. I cannot tell you what peace of mind it gave me to find a doc who did not think I was crazy. Just that knowledge got me through many tough times. Let me know if you have any questions...Ann PS: what are your symptoms that go along with the positive ANA and how high were the titers?-- In , jaylow2100@a... wrote:Hi Ann,If I can't find anyone here I might try to go to him. I live in New Mexico and so far I haven't found any Rhuematologist here that are worth while. They don't even want to touch me and think I'm nuts. Even though I have had a positive ANA (the last time it was negative) they say it's no big deal and as far as my pain just take pain pills. Southern California isn't that far from me. I used to live in LA (that's where I got the & *%^ & *^ implants in).Mine have been out for 18 months and I have improved but I still have pain (especially back) in arms, hands and back. When I wake up my hands are slightly swollen but it goes away during the day.They tested me for all the autoimmune diseases and CRP and all were negative, but I know something is going on. I am hoping it will lessen as time goes on but I am also excited about all the new pending research. It feels like they are on the brink of a cure. I know that they are doing clinical trials on Lupus at USC at the Keck School of Medicine using the same approach, only modifying the overactive part of the immune system. I think that is going on right now or really soon. Anyway if you wouldn't mind giving me the name of your doc I would appreciate it.ThanksJudi--- End forwarded message --- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2004 Report Share Posted May 6, 2004 nantynannie <nantynannie@...> wrote: Jeanine,He is in Southern California. Where are you living? Ann> Hi Ann,> > If I can't find anyone here I might try to go to him. I live in New > Mexico > and so far I haven't found any Rhuematologist here that are worth > while. They > don't even want to touch me and think I'm nuts. Even though I have > had a > positive ANA (the last time it was negative) they say it's no big > deal and as far as > my pain just take pain pills. Southern California isn't that far from > me. I > used to live in LA (that's where I got the & *%^ & *^ implants in).Mine > have been > out for 18 months and I have improved but I still have pain > (especially back) > in arms, hands and back. When I wake up my hands are slightly swollen > but it > goes away during the day.They tested me for all the autoimmune > diseases and CRP > and all were negative, but I know something is going on. I am hoping > it will > lessen as time goes on but I am also excited about all the new > pending > research. It feels like they are on the brink of a cure. I know that > they are doing > clinical trials on Lupus at USC at the Keck School of Medicine using > the same > approach, only modifying the overactive part of the immune system. I > think that > is going on right now or really soon. Anyway if you wouldn't mind > giving me > the name of your doc I would appreciate it.> Thanks> Judi> --- End forwarded message ---> > > > > Quote Link to comment Share on other sites More sharing options...
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