Re: Crystal I am new here - intro

[Guest guest]

Yes Fiona you are right, I did almost completely recover right after

explant.. and you are so right diet and the positive mental attitude

visualizing yourself the way you were prior to implants... I still

have to take ABX for mycos, but I am back to where I was almost!!!!

Im glad you are doing well Fiona!!!! I keep everyone here in my

prayers for healing emotionally and physically, love Iggy

In , " Fiona Parkinson " <fionap@i...>

wrote:

> Hi there,

> I had my silicone implants for 10 years, been explanted for a week,

and have had no further symptoms apart from a small rash/lesion on my

leg, which is shrinking by the day, and very, very slight pain in my

one hand, which crops up maybe once a day. So far, all my symptoms

seem to have gone or are going, FAST ! Before explant I had lots of

muscle/joint pain, skin issues, fatigue, brain fog, candida,

mycoplasms, I own;t bore you with the whole list, basically 90% of

the symptoms listed on this site, some very bad indeed.

> There are some girls here who suffer horribly even after explant,

yes, but also many who have recovered just about completely....Iggy,

I think you are one of them ?

> I'm sure there are lots of ladies here who saw a vast improvement

in their scleroderma too....seems like siliconosis mimics the

symptoms of many auto-immune disorders, then it vanishes when you

have explant...at any rate, whatever help you give your body

afterwards is guaranteed to be better than what you are going through

now, yes ? I think it is also very, very important to mentally

program yourself to have an excellent outcome after surgery, spending

time visualising yourself getting better and better....mind and body

truly are ONE ! Not to say the sick ladies here failed to do so, or

blame them in any way for still being ill, not at all !!! Every BODY

is different, therefore the different results, but set yourself up

for success ))Diet is key, here, and that includes what you feed

yourself mentally too ! Perhaps that is why pro-implant Amy left, the

choc-chip cookie turned bitter as she bit into it with gusto...she

seems to have chosen to feed her mind with pro-implant info, ISO

tasting both dishes and then following her gut feel after

digestion.....

> You can only go " up " from explant, girl, there are deeply

instinctual experiences you have afterwards that are hard to put into

words - I just KNOW explant was the right thing, my body feels

cleansed, lighter...these sentences only scratch the surface of what

your body gratefully hollers at ya after explant. It is liberating,

to say the least. Good luck, and good health to you !

>

> Fiona

> Re: I am new here - intro

>

>

> Kathy

> I was diagnosed w/ scleroderma primarily because of my skin on my

> hands & feet. The skin there is 'bound' down. The skin on my

calves

> are also tight sometimes as well. My other symptoms include...

> joint/muscle aches, swollen hands & feet, red/ purple feet when

cold,

> shooting pains that come & go in my legs, all over weakness,

fatigue,

> breathing trouble that comes & goes (just from walking up 1

flight of

> stairs) & a flu like feeling that comes & goes. I also had an

episode

> of " hazy " vision for 4 days but I don't know if that was a side

> effect of 'Plaquinil'. I was only on that for 3 weeks when that

> happend & then stopped taking it. My hands are very 'tight' & I

can't

> make a fist.My knees & ankles hurt alot also.

> All of my blood work so far is normal except for a speckled

> borderline positive ANA. I will have my surgery just as soon as

my

> doctors (my rhumatologist & cardiologist) feel it is safe to go

under

> anesthesia (due to the breathing problem). I have to have a few

more

> tests done. Thankfully I have two wonderful rhumatologists that

> believe my problems are linked to my implants so they support

having

> the explant performed.

> I just wish that after explant, this will all go away. I have to

say,

> it dissapoints me to read that so many women still feel sick

after

> removing there implants. I know they felt alot worse w/ them, I

just

> wish it would go away entirely. I haven't read of anyone who is

100%

> better although the ps's I have spoken to (about explant) have

told

> me that some do. Do you know anyone that is 100% better?

> This is just like a bad dream... I never would have thought I

could

> be this sick at only 29!!!!

> Crystal

> , " mikat828 " <mikat828@y...> wrote:

> > -

> > Crystal

> > I was never diagnosed with scleroderma. However, I was

diagnosed

> > with mixed connective tissue disease with some symptoms of

> > scleroderma. Mixed connective tissue disease is when you have

> > symptoms of more than one type of connective tissue disease--

like

> > lupus, sclero, etc. I have posted my weird symptoms many times

on

> > rheumatic sites and the only three people who thought they had

> > similar symptoms had been diagnosed with scleroderma. But my

> > symptoms are not the classic ones. Yes, I have gotten much

better

> > with explant. Many of my symptoms are gone. The weird skin

ones

> > seem to cycle in and out. Especially if I herx to something I

am

> > taking. How was your diagnosis made? What symptoms do you

have

> > other than what you have already mentioned? Let us know how

your

> > tests come out. I will be praying that you can get the

implants

> out

> > as soon as possible. Take care!

> > Hugs, kathy

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> > -- In , " cryslaris "

> > <crystalcampitiello@M...> wrote:

> > > Kathy,

> > > Hi! Thank you for that info., I am going to check it out!

Where

> > you

> > > diagnosed with scleroderma or did you just think you had

symptoms

> > of

> > > it? What where you diagnosed with?

> > > You mentioned you have been explanted for 3 years, how much

> better

> > is

> > > your health?

> > > My lungs have been checked. I have had sooooo many tests it's

> > crazy.

> > > So far they look o.k. but they are concerned w/ my heart

because

> > the

> > > breathing problem comes & goes. I have to be sure I'm o.k. in

> > order

> > > to have my explant done. I plan on having them removed

a.s.a.p.,

> > > hopefully in June.

> > > Crystal

> > > > > > With a very heavy heart, I'm introducing myself. :-(

> > > > > >

> > > > > > I am 33 years old, have sub pec smooth saline (mentor)

> > implants

> > > > for

> > > > > > five years now with no problems until seven months

ago. I

> > have

> > > > two

> > > > > > children, one who is 5 months and breastfeeding (I fed

my

> > > > > > successfully b/fd my first as well, with implants). I

went

> > > from

> > > > > 34B

> > > > > > to 35D.

> > > > > >

> > > > > > My symptoms are:

> > > > > > - extreme joint pain, stiffness. First it was neck

then

> > back

> > > > and

> > > > > now

> > > > > > it is severe in knees, hips, groin, wrists, ankles,

feet.

> > My

> > > > rings

> > > > > > no longer fit and my shoe size is up one size.

> > > > > >

> > > > > > - joint pain and stiffness/achiness aggravated any time

I

> > sleep

> > > > or

> > > > > > rest

> > > > > >

> > > > > > - flu like feelings constantly, never gets better with

rest

> > > > > >

> > > > > > - fuzzy thinking, fog-brain (I am sleep deprived but I

was

> > with

> > > > my

> > > > > > first child and I was still whip smart, not like I am

now

> > > > > >

> > > > > > - extreme fatigue - like someone just pulled the plug

on me

> > > > > >

> > > > > > - joints feel hot, I sweat a lot and am hot all the time

> > > > > >

> > > > > > - hand dexterity significantly reduced

> > > > > >

> > > > > > No headaches, though and I have no numbness, chest

rashes.

> > > > > >

> > > > > > I kept blaming my pain and fatigue on things like

> > relocation,

> > > > new

> > > > > > mattress, new baby, just tired, etc. But the *fact*

is,

> I'm

> > > > > getting

> > > > > > worse not better and I feel 73, not 33. I miss how I

used

> > to

> > > > feel

> > > > > so

> > > > > > much! I used to go for long hikes with my (then)

infant

> son

> > > and

> > > > > > never was tired or sore, just healthy. Now I wince and

> gear

> > up

> > > > > just

> > > > > > to get out of bed.

> > > > > >

> > > > > > I moved out of the US, haven't see a doc here. My PS

is in

> > CA,

> > > > > > haven't contacted him either. I feel strongly that

when I

> > see

> > > > my

> > > > > GP,

> > > > > > he will not include my implants as a probable cause for

my

> > > > symptom

> > > > > > profile. And the thought of being ignored or dismissed

is

> > > > crushing

> > > > > > right now.

> > > > > >

> > > > > > I cannot have surgery at this time as I have to

continue to

> > > > > > breastfeed my baby, so any explant will have to wait a

> bit.

> > I

> > > > want

> > > > > > to breastfeed more children of mine in the future and

am

> > very

> > > > > worried

> > > > > > that when I get the explant (b/c I believe the implants

are

> > the

> > > > > > prob), I will risk my ability to breastfeed.

> > > > > >

> > > > > > My husband is very worried with all my implant talk and

> > > research

> > > > > and

> > > > > > thinks it's drastic to even consider explant. I am

> > beginning

> > > to

> > > > > feel

> > > > > > like i have an invader in my chest and I want it out

> *now*.

> > I

> > > > feel

> > > > > > creepy all of the sudden that I have these implants in

me

> > (what

> > > > was

> > > > > I

> > > > > > thinking???) Husband thinks if I sleep more and drink

no

> > > > coffee,

> > > > > it

> > > > > > will improve but I tell ya, I think he is wrong. I do

not

> > feel

> > > > > right

> > > > > > and that fact isn't going away.

> > > > > >

> > > > > > So, that's my intro and I so so appreciate this group

being

> > > > here.

> > > > > It

> > > > > > makes sense to me that the saline could get moldy, that

the

> > > > silicon

> > > > > > shell could break down and migrate - all these things

are

> so

> > > > > > logical. What doesn't make sense to me is a doc

> saying 'oh,

> > > > it's

> > > > > not

> > > > > > the implants' or that bs about saline being harmless

and

> the

> > > > shell

> > > > > > shards unlikely.

> > > > > >

> > > > > > Thanks for this space.

> > > > > >

> > > > > >

>

>

>

>