Guest guest Posted March 31, 2000 Report Share Posted March 31, 2000 As I am packing, I found a great book I forgot I owned. It gives all of us hope for the future! The Whole Community Catalogue published by Communitas, Inc., Manchester, Connecticut. This book doesn't talk about therapies or medicines. It talks about building circles of support and what that does to all our thinking. Now that I re-read it - all last night- I can tell you I am smiling inside and out. All my best to all of you. Sara - mom to Elie, 14 DS, ASD, PDD-NOS?, ODD?, BRAT, and boy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 2001 Report Share Posted June 12, 2001 Hi Leah, " we must endure to achieve for our kids " - so well said!!! What conference were you at in Michigan? I posted awhile back about this great book (which is Canadian) - Building Bridges Through Sensory Integration by Yack, Sutton & Aquilla (3 OT's). Isn't it wonderful? They don't have a website or 1-800 #, but here's the local phone # where you can order the book (Toronto) - 416-785-7899. I thought ('s Mom) in Texas would really like this book. Have you been in touch with her? , are you out there & how are you doing? Thanks for continuing to share, Leah. I'd love to meet you sometime. Your posts always lift my spritis! Thanks. P.S. How is Cameron's health? Do I remember that he recently had heart surgery? Forgive me if I'm wrong - memory not too good these days. Take care. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2005 Report Share Posted May 4, 2005 great book Hi All I just started reading " Songs of the Gorilla Nation " . It is a great book but very emotional. The author is a PhD in anthropology and also has aspergers. It is a very vivid account of her life and growing up with aspergers. I say it is emotional because there are some things she describes, like the first day of school, that make me think of my dd and how hard that day must have been for her. It made my heart ache. Has anyone else read this book? If not, you should. It is helping me to understand my dd a lot better. I'd love to know what you all think. **********************Hi Carol, I read it and loved it. I’ve been going to mention it, just hadn’t. Out of the dozens of books I’ve read, I would say it was one of my favorites. Also, her book called ‘Aquamarine Blue’ with exerts written by college students about their lives. I am going to re-read these both soon….Gail Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 5, 2005 Report Share Posted May 5, 2005 Did it make you at all sad, Gail? I can't help but thinnk about my dd. I really don't want her to suffer as much as the author did. I know that her life turned out good but it was so hard on the way there. I truly think dh has aspergers too. He went to a good college, got married, has a good job that he really likes and has 3 great kids but life was tough and lonely. Although he was glad to be left alone. This book is really making me think.Gail Africa <lilies@...> wrote: **********************Hi Carol, I read it and loved it. I’ve been going to mention it, just hadn’t. Out of the dozens of books I’ve read, I would say it was one of my favorites. Also, her book called ‘Aquamarine Blue’ with exerts written by college students about their lives. I am going to re-read these both soon….Gail Carol, mom to , 3/14/94 , 2/18/97 Lily, 9/7/04__________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2006 Report Share Posted July 17, 2006 In a message dated 7/17/2006 9:34:54 A.M. Eastern Standard Time, dr_ark@... writes: It then goes on to say " that almost 2/3 in both the CBT alone and combination group had few or no symptoms after 12 weeks of treatment " Lauri Hmmmm.... those doctors surely weren't using the same CBT treatment that my daughter was getting.... it hasn't worked for her at all so far. LT Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2006 Report Share Posted July 17, 2006 LT as you may have read our therapy was useless as far as I'm concerned - she was getting " comfy " ,talking things through - getting to the heart of why etc - I really believe as heart-wrenching as it is sometimes - exposure gets results - at least for us Eileen Quoting jtlt@...: > > In a message dated 7/17/2006 9:34:54 A.M. Eastern Standard Time, > dr_ark@... writes: > > It then > goes on to say " that almost 2/3 in both the CBT alone and combination > group had few or no symptoms after 12 weeks of treatment " > > > > Lauri > > Hmmmm.... those doctors surely weren't using the same CBT treatment that my > daughter was getting.... it hasn't worked for her at all so far. > LT > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2008 Report Share Posted November 7, 2008 I just wanted to pass on this great book I just read about autoimmune disorders. I got it from my local library. It certainly is NOT anti-vaccine, yet there is a whole chapter devoted to the research linking vaccines to autoimmune disorders and the " benefits " of vaccines are then questioned. It also discusses the influence of our environment and food on our bodies. VERY INTERESTING. It discusses MS, diabetes type 1, lupus, autism, etc...The book is The AutoImmune Epidemic: Bodies Gone Haywire in a World Out of Balance and the Cutting-Edge Science that Promises Hope by Donna Nakazawa. It's copyrighted 2008, so the information is current. Here's an excerpt: " As one top researcher who prefers to speak off the record puts it, " If you are looking for what the big 'ahas' in autoimmune research are going to be in the next few years, you have to look at vaccines. " Since our understanding of autoimmunity in general is still relatively young compared to national research campaigns into so many other diseases, and our epidemiological data linking autoimmune disease to standard vaccination programs is even newer, it's easy enough to dismiss most of what we do know as speculative. The frequently long time frame between getting a vaccine and developing autoantibodies as a result can make it hard to cast such associations as cause and effect. Still, the data we do have clearly shows that certain autoimmune diseases such as Guillain-Barre sundrome and type 1 diabetes can be triggered by vaccines. Is it so surprsing then to consider that others can be as well? " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2008 Report Share Posted November 7, 2008 Thank you for the suggestion, I’m very interested in Auto Immune disease and the link with vaccines. Interesting, my Mom has relayed a story on several occasions of when her father (who passed away some 12 or 13 years ago) came down with Guillain-Barre syndrome. His doctor asked about his vaccine history, with a particular interest in the flu vaccine. His doctor flat-out told her that it was directly caused by vaccines (that was probably 20 years ago). My dog recently passed away from a long battle with Auto-Immune Hemolytic Anemia; it was corroborated by three independent veterinarians that this disease was caused by a single vaccine that he received at 12 weeks of age. After that, he didn’t have a chance; rest in peace, Gussy. The autoimmune disease epidemic spans multiple species…it is sad and maddening. ~Chris _____ From: Vaccinations [mailto:Vaccinations ] On Behalf Of Red San Sent: Friday, November 07, 2008 10:22 AM Vaccinations Subject: great book I just wanted to pass on this great book I just read about autoimmune disorders. I got it from my local library. It certainly is NOT anti-vaccine, yet there is a whole chapter devoted to the research linking vaccines to autoimmune disorders and the " benefits " of vaccines are then questioned. It also discusses the influence of our environment and food on our bodies. VERY INTERESTING. It discusses MS, diabetes type 1, lupus, autism, etc...The book is The AutoImmune Epidemic: Bodies Gone Haywire in a World Out of Balance and the Cutting-Edge Science that Promises Hope by Donna Nakazawa. It's copyrighted 2008, so the information is current. Here's an excerpt: " As one top researcher who prefers to speak off the record puts it, " If you are looking for what the big 'ahas' in autoimmune research are going to be in the next few years, you have to look at vaccines. " Since our understanding of autoimmunity in general is still relatively young compared to national research campaigns into so many other diseases, and our epidemiological data linking autoimmune disease to standard vaccination programs is even newer, it's easy enough to dismiss most of what we do know as speculative. The frequently long time frame between getting a vaccine and developing autoantibodies as a result can make it hard to cast such associations as cause and effect. Still, the data we do have clearly shows that certain autoimmune diseases such as Guillain-Barre sundrome and type 1 diabetes can be triggered by vaccines. Is it so surprsing then to consider that others can be as well? " Quote Link to comment Share on other sites More sharing options...
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