Guest guest Posted July 12, 1999 Report Share Posted July 12, 1999 Hi Beth, What you could be seeing is a small " relapse. " This happens to Kelsey, too. They seem like they're getting better and then all of a sudden it seems bad again. Evidently the relapses will always continue but happen less frequently and are milder when they do occur. This has definitely been our experience. The first relapse was MAJOR, now we go 2 or 3 weeks until something small comes up, sometimes work on it a day or two until it's OK, or the next day it's magically OK. How long since the bathing suit is a problem again? Kelsey's relapses don't usually have to do with something she's already worked on, but one time they did. In fact, it was interesting that when we first started with the CBT in the very beginning, she could wear things for a half hour. During the relapse, she could only wear the offending bathing suit 1 minute and that was tough! But after three days of 1 minute, she asked if she could just keep it on. Try not to get discouraged. I think you should just start over with the bathing suit. If she can't touch it, can it lay next to her? Try having it near her for a few days for a length of time she can tolerate, then see if she can touch it with a stick, then with her hand, then hold it up to her, then wear it. Anyway, Dr. Hatton tells me that you can never go back to where you were at the beginning once you achieve some success with the CBT...so hold that thought! Good luck to you and e and keep us posted. We're rooting for you!! in San Diego Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 1999 Report Share Posted July 13, 1999 Hi, Beth, Could you have e wash her own clothes so that she sees that they are clean? My son has a real problem with lumpy pockets so I have him iron them...of course I put the iron on low and stand right with him. At least he'll wear the pants then. Just an idea. in california Welcome Home Hi everyone,and welcome home .I'm so happy you all had a good time,I wish I could of gone,but with staying in St. Louis for 2 weeks and just getting home ,we just couldn't,I hope next year.I wish I could see all of your wonderful faces.Could anyone help me . e wore the same bathing suit everyday for 4weeks than all of a sudden it won't work.The E & RP we did in St. Louis with the clothes somehow now doesn't make sense.If she can wear something for that long and should be desensitized to it how can she wake up and it won't work.If you try to get it next to her ,she'll say " don't let it touch me " . There isn't any rules to this thing,it seems whatever OCD tells her for the day it's so CRAZY and of course underpants and sock never work.And you can't lay anything on her bed or get near it if you don't have the right thing on.And the only one who has ever passed the test 100% of the time is the Dog.His fur " works " ! She wants to know if everything has been washed,she'll say " has it been washed? " Is it possible this could be that waxing and waning?Hope you can understand this I am the worlds worst letter writer.Love Beth in IN. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 1999 Report Share Posted July 13, 1999 chris in SD, You are right to point out this behaviour. It IS easier to give in, find ways to make things move smoothly, but ultimatly, it makes the ocd worse. I guess we, as support people, need to also consider: is this action helping deal with ocd? is it allowing the ocd to be in control? is this making my life easier? each of us will have to make our own decisions. take care, wendy in canada ===================== >Since e's already started CBT, I'd recommend that she practice getting >comfortable with the uncertainty of whether something's been washed. >Perhaps this is too high on her hierarchy now so maybe you'll need to wait >to withdraw reassurances about washed clothing, but in the end I'm not sure >that ironing pockets or washing clothing or giving reassurances about >whether clothese are washed helps a child to recover from OCD. It seems >like it would create more rituals and reinforce the obsession. But, for >kids who aren't doing CBT, I can certainly see how this is a coping >mechanism and at least alleviates parental involvement. ........ >I think it's important to make a distinction between how we cope creatively >(doing whatever we have to within the limits of what we're willing to do) >to make life bearable when kids can't/won't/or haven't yet had the >opportunity to get treatment and how we have to consciously begin to >extricate ourselves at the pace our kids can tolerate after starting the >CBT.< >in San Diego< Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 1999 Report Share Posted July 13, 1999 >Hi, Beth, Could you have e wash her own clothes so that she sees that >they are clean? My son has a real problem with lumpy pockets so I have >him iron them...of course I put the iron on low and stand right with him. >At least he'll wear the pants then. Just an idea. in california Beth and , Since e's already started CBT, I'd recommend that she practice getting comfortable with the uncertainty of whether something's been washed. Perhaps this is too high on her hierarchy now so maybe you'll need to wait to withdraw reassurances about washed clothing, but in the end I'm not sure that ironing pockets or washing clothing or giving reassurances about whether clothese are washed helps a child to recover from OCD. It seems like it would create more rituals and reinforce the obsession. But, for kids who aren't doing CBT, I can certainly see how this is a coping mechanism and at least alleviates parental involvement. (When you need your kid to wear clothes, you need your kid to wear clothes!) I myself was quite emeshed in clothing washing rituals back when Kelsey had a single dress that she would wear. I would even wake up at 2 am one night panicked because I'd forgotten to remove the only dress she'd wear from the dryer, knowing that that would mean she would not get dressed that day! (They had to be in the dresser drawer for at least a day before wearing.) I think it's important to make a distinction between how we cope creatively (doing whatever we have to within the limits of what we're willing to do) to make life bearable when kids can't/won't/or haven't yet had the opportunity to get treatment and how we have to consciously begin to extricate ourselves at the pace our kids can tolerate after starting the CBT. Just a thought, in San Diego > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 1999 Report Share Posted July 13, 1999 Hi Beth, How wonderful that e has the dog. Are they great friends? Take care, Lesli Wayt wrote: > Hi everyone,and welcome home .I'm so happy you all had a good time,I > wish I could of gone,but with staying in St. Louis for 2 weeks and > just getting home ,we just couldn't,I hope next year.I wish I could > see all of your wonderful faces.Could anyone help me . e wore the > same bathing suit everyday for 4weeks than all of a sudden it won't > work.The E & RP we did in St. Louis with the clothes somehow now doesn't > make sense.If she can wear something for that long and should be > desensitized to it how can she wake up and it won't work.If you try to > get it next to her ,she'll say " don't let it touch me " . There isn't > any rules to this thing,it seems whatever OCD tells her for the day > it's so CRAZY and of course underpants and sock never work.And you > can't lay anything on her bed or get near it if you don't have the > right thing on.And the only one who has ever passed the test 100% of > the time is the Dog.His fur " works " ! She wants to know if everything > has been washed,she'll say " has it been washed? " Is it possible this > could be that waxing and waning?Hope you can understand this I am the > worlds worst letter writer.Love Beth in IN. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 1999 Report Share Posted July 13, 1999 Hi ,and Thank you to all who wrote concerning e's clothes having to be clean.In St.. Louis they told me not to ask her questions about shaking,wetting and the other things she does to her clothes to make them " work " .I think they think this could be a germ thing.I don't know what to think sometimes I guess time will tell,this last year was a eye opener. The doctor ask her today if she thought she could wear underpants or a nightgown to bed for 3 nights so she could have her friend stay over night.( I told her when she could wear something to bed she could have a friend over night;she told him " maybe in nanny's bed but not mine,no clothes in my bed. " There is just something about that bed! Yes Lesli , e and Norman are the best of friends,like I said Norman is always aloud on the bed,buteven if I just came from the bathroom clean and smelling wonderful and have the wrong nightgown on I can't get near her bed. Love Beth in IN> Re: Welcome Home Hi Beth, How wonderful that e has the dog. Are they great friends? Take care, Lesli Wayt wrote: Hi everyone,and welcome home .I'm so happy you all had a good time,I wish I could of gone,but with staying in St. Louis for 2 weeks and just getting home ,we just couldn't,I hope next year.I wish I could see all of your wonderful faces.Could anyone help me . e wore the same bathing suit everyday for 4weeks than all of a sudden it won't work.The E & RP we did in St. Louis with the clothes somehow now doesn't make sense.If she can wear something for that long and should be desensitized to it how can she wake up and it won't work.If you try to get it next to her ,she'll say " don't let it touch me " . There isn't any rules to this thing,it seems whatever OCD tells her for the day it's so CRAZY and of course underpants and sock never work.And you can't lay anything on her bed or get near it if you don't have the right thing on.And the only one who has ever passed the test 100% of the time is the Dog.His fur " works " ! She wants to know if everything has been washed,she'll say " has it been washed? " Is it possible this could be that waxing and waning?Hope you can understand this I am the worlds worst letter writer.Love Beth in IN. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 1999 Report Share Posted July 13, 1999 " she told him " maybe in nanny's bed but not mine,no clothes in my bed. " There is just something about that bed! " Hi Beth, Sounds like e's bed is her " safe place " ...where she doesn't want any contaminated items. It's good she has somewhere she feels safe. We all need a safe place! Did they tell you in St. Louis about doing visualizations with her in her safe place? This is something we learned from Dr. Hatton that helped quell Kelsey's anxiety. Kelsey's safe place is her room. So before doing the visualizations I had her describe to me exactly how it would be when she was feeling most relaxed in her safe place. For instance, the window and door are closed, there is sun streaming in, the cat is stretching and purring in a patch of sunlight on the floor, it is very quiet and she is dressing her dolls on her bed. Then when she had an OCD attack, I'd sit with her-wherever we were-and verbalize all these things about her safe place while she did some deep breathing. She would try to vividly imagine she was there. This process started to bring the general anxiety level down in our house, along with the nightly relaxation exercises. It shouldn't be done though during the E & RP because they need to learn to tolerate the anxiety at those times to de-sensitize. Take care, in S.D. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 1999 Report Share Posted July 14, 1999 Hi Beth & : A possible problem that can come up, particularly with washers, is that this is another form of reassurance. Instead of saying yes the clothes are clean, they get reassurance from washing their clothes and it becomes another ritual. What they need to do is learn to live with the uncertainty about whether their clothes are clean or not. Of course this has to be done in a graduated way. You can discuss this with your CBT therapist and they should have some good suggestions about moving in this direction. Good luck, take care, aloha, Kathy (Ha) kathyh@... At 08:16 AM 7/13/99 -0700, you wrote: > Hi, Beth, Could you have e wash her own clothes so that she sees >that they are clean? My son has a real problem with lumpy pockets so I >have him iron them...of course I put the iron on low and stand right with >him. At least he'll wear the pants then. Just an idea. in california > Welcome Home > > & " " " " " " Is it possible this could be that waxing and waning?Hope you > can understand this I am the worlds worst letter writer.Love Beth in > IN. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2005 Report Share Posted May 1, 2005 , First thing to do is probably to go to the brain-trainer website, download and install the files from there for the TLC Assess BE (not the Pro version yet, since your sample files were produced--I believe--on Francois's computer using the older version of the assessment done as a sample by Didier of Though Tech). In the package there are a file called TLC.xls, which must be placed properly (there is a Word document with installation instructions that should step you through it) in order for the worksheet to find the macro files it needs to actually input the data into the form. The TLC Assess will only work with files coming out of the assessment script, since it expects there to be 3 minutes of data arranged 1. eyes closed, 2. eyes open and 3. task. It also expects the frequency bands and statistics to come in a specific order. Pete > > From: " Wasserman CRNA APRN CCHT " <advantageanesthesia@...> > Date: 2005/05/01 Sun PM 06:19:27 EDT > > Subject: Welcome home > > I just got back from Montreal and was trying to transfer the sample data file that I have into the excel sheet and am having trouble. Could you walk me through it. Also I am not sure which of the scripted files will be acceptable to the excel file. Is it only the ones labeled TLC asses or can I use other 2EEG channel sets? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2007 Report Share Posted October 20, 2007 Hi : I'm Ellen, diagnosed in 1995 in NY, now live in South FL with my husband and son. I'm one of the lucky ones. I still take prednisone (during hurricane season I have to) and pain killers but that's about it. I was in remission for a couple of years, had a flare up back in June/July and it has yet to either become a full blown flare or go away. I still work part time as a cashier at a local supermarket (15 to 20 hours a week) and craft to my heart's content. Although maintaining a clean home is tough, which you will learn to do, I've gotten it down to a room a day and it works for us. Learning to cope/deal with daily chores and other things is paramount; that's where we come in. Ask questions, make comments, jump in with both feet (if you're not hurting to badly). Don't forget, however, your doctor(s) are there for your medical advice, you pay for that so use them. Personal emails show up on posts, use them as well. We are now your family. Welcome home. Take care and be well. Ellen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2008 Report Share Posted October 30, 2008 So glad you're back Sheri! Quote Link to comment Share on other sites More sharing options...
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