Re: Re: BJ & Amy THINGS I {HAVE} BEEN DIAGNOSED WITH

[Guest guest]

Dear Amy and BJ, BJ first let me answer Amy then I want to thank you dear for your phone call.

Amy, you're right to ask many questions: My answer to the reaction to latex is unknown. However, I do know that an autoimmune response can happen from any foreign object in the body. the body wants to reject a foreign object. this is a definate point and has been used in the arguement: why are women's bodies rejecting implants. what I'm saying is, the body can have such a bad reaction to any foreign object that an autoimmune response can occur. Amy, I'm happy you are still with us. what ahppened concerning you UTI postponing surgery. Honey, I'm really sick right now and can't riht much, so need to respond to BJ now, I do like what colleen said aoubt we may be your sign from God not to get implants. I've got numerous articles for you, did you read the one by Dr. Kennedy I posted a couple days ago? May God and a host of angels gather round you and protect you, Peace,

Dearest BJ:

I heard what you said on the ansewring machine. Honey, honestly I was in bed and couldn't make out who it was. when I awoke I checked it and realized it was you. I wish I could have talked to you. And I do not have your phone number. Maybe we can talk tonight. I have a little time on my phone card. this time when you call please leave you ph. number. I took the article into dr. today. since my headache was so severe he ordered me a Cat Scan of brain. This morning the welts/hives/?? on my neck and face were so bad he gave me a shot of benedryl and a script of xanax. For the extreme edema and severe headache he gave me prednisone, the medrol pack. the lesion on my buttocks looks like the one I had on my face. I'm going to dermatologist tomorrow and have him biopsy it. Its shameful but I think he misdiagnosed the one on my face the last time I was so severe. I think I have the Human

Adjuvant Disease, otherwise known under many names for the new disease implants give us: siliconistis, silicon toxicity, etc. I'll be able to see a toxocologist as soon as PCP gets it sceduled. I see Ear Nose and throst specialist May 10th. Doctors, doctors doctors... He also put me on a strong antibiotic. Hopefull this time they can kill this ear infection. Funny thing is, I think its a very bad ear infection that keeps cropping up because they never actually get rid of it. Wow, I though I could nip it in the bud my getting on the antibiotic before it got real bad, nope it went full tilt. I'm sure I have siliconitis disease. Its just like Lupus, so that's why I need you. I know you've struggles with the same symptoms. I have never had such a migraine in my life! they past two episodes. I would like to try to track the dates I've been at the doctors in the last month or so on account to this.

Say it is a Lupus headache in combination with an ear infection. would that make our reactions so much more extreme that others due to the chronic inflammation state, associated with Lupus/siliconitis disease? I do. I think there is a direct correlation. And the total body flare. I really couldn't stand or walk today. I love you, and we can always be friends. and I feel the same way at times. I'll talk to you when you call. Leave your phone number this time. Should be home most fo the night. Its obvious you've really been through the war. I think you're a beautiful Lady and have a beautiful family. don't you feel isolated from the world sometimes, that people get tired of hearing our problems. I do beleave in God and really depend on Him. but some of my religous friends really kind of dismiss my illness too. Know one really can bare to hear it all. They say, okay now we pryaed

now beleave you'll be healed on the spot. Oh, no dobut God is giving me the answers to be healed but it dosne't mean over night. Know one wants to let you vent about how it feels. Oh don't claim that, I get so irritated with that too I just want to isolate. I'm so sick of having to call somewhere saying I can't be there because I sick with this or that. And you know these people are listening with only half an ear. Oh I'll pray for you and then what, Your healed, now stop talking about it. I've been seriously considering to write a diary to vent to. thanks for listening. By the way the lesion that is now appearing on buttoucks loos like the one on my face the last time I flared, approximately 2 weeks ago. I think it is discoid Lupus, or siliconistis. I feel like I have to educate drs. becauxe this is a new disease and it will never totaly fit into the older categories. God Bless you sweetheart. Your're too

sweet to loose. Remmeber some of us are sicker than others and some have been able to return to a more normal life style. Some of us are sick too. I guess we'll kinda pull together as some of what we're going through is more similar. so please hang in there. It's hard to answer all the posts too, because my computer is very slow. You know Patty is the moderator of the group. You can always go to her for advice. I think she must read every post. and I know she tries to answer them. she's so far ahead of us now recovery-wise, but she is a caring person. She's very holistic, and I know I'm not where she is yet, but sometimes I think I still need pharmecuticals because I'm much sorse off now. I am going more and more natural all the time. And am convinced of its long term effects. Please call again and I love you dearly and will always be here for you. I read my email, 1 to 3 times a day. My

computer is very slow and can't read or respond to all the messages I'd like to. I know the more I respond to the greater responses I have. My last question: When and how our we going to get yours removed? God loving arms and protection around you, Hugs & Love,

Amy & Dale <aevans2@...> wrote:

Can I ask you ladies one thing? Could you possibly had/have a reaction to the latex holding the saline and silicone?

Just asking,

Amy

Re: BJ: THINGS I {HAVE} BEEN DIAGNOSED WITH

Dear BJ:

Remember we talked about me having Lupus. I don't think I'm out of the woods yet. I'm so sick AGAIN with same stuff and breaking out with a humounguous patch of rash on face that goes to neck. A huge blistery rash on buttucks. I'm going to show them the Human Adjuvant Disease. a document I copied for everyone off internet. My headache is so severe I had to use ice [ack all night. The swelling over my face, eyelids and glands, neck is extreme. they can't get htis right. I have swollen glands in pelvic area. I can't barely see, my ears are so sore. Girl, I wonder if I'm getting such sever pressure on my brain, my brain will be affected. Remember I had the implnats al ong time too, 15 years. I'm going back again in three days. This has been going on for months. they're calling it sinusitis but theres' nothing coming out of my nose. And these rashes. I know its

autoimmune, siliconitis. Even though my ANA was neg. you can still have it without those numbers. I feel itchy all over. Please respond. I think I need cortisone, or prednisone to reduce sweeliling. Feel like taking a gun to my head. I'm paniced, no where to turn. Under my arms hurts so bad too. I know you understand. and they wonder why I get so upset. Love and Hugs. I read your symptoms, you poor girl. I love you, Hope you can giet yours out soon. Please give me some guidance on this disease. I cna't write today. Love

Baboola57@... wrote:

In a message dated 4/25/2004 1:02:44 AM Eastern Standard Time, coss@... writes:

Most of us all had saline implants too, and we got sick or sicker>than the gel ladies. I was ill within 2 months of getting saline>implants. Your PS wants your money, of course he is going to tell you>it is all hype. Why do you think we are all here? What have we to>gain by this? We are here to help others not to suffer the way we>have.>it is sad that your not looking seriously at both sides of the issue>before you make a decision that will permanently alter your life and>probably all those around you .>>Sad

I have silicone in me and i got sick very soon after implant and its not a coincidence either...........people should think twice about getting this surgery.....listed is everything i have been diagnosed with and on top of that i have had a total of 33 surgeries on my entire body...

Systemic lupus, Fibromyalgis, kidney disease, mitral valve prolapse, panic/anxiety, GERD, bronchial asthma, hiatal hernia, lactose intolerance, Irritable bowel syndrome, sjrogrens, Chronic fatigue, colitis, bursitis, tendinitis, brain fog, migraines, epstein barr, arrhythmia, sinusitis, hypotension, and just recently diabetes 2, and i don;t know if anyone can get as sick as i am right now, trying to think if there is something i left out......mind you i have 15 brothers and sisters and not one suffer from any of these......coincidence of getting implants....i think not.........i suggest anyone thinking implants to think again....33 surgeries is a lot of surgeries to endure, i have steffi plates and screws in my back, neck and feet.....hysterectomy when i was 36, 3 sinuses sugeries, my rectum, bladder and uterus prior to hysterectomy prolapsed and had to surgically fix...that is just some of the fun i endured..! ..

NOT.......... I don't care what anyone says, silicone/saline to me its all the same thing....and they are dangerous...silicone has slowly destroyed my life....love to you all BJ sorry for venting so bad, just having a really super duper bad day.....