Re: Re: 3 and a half yrs post explant and STILL loosing hair

[Guest guest]

:

Hi. I have nuero problems now too, still trying to determine the cause. I have a tumor in my head behind my inner ear, so hopefully that is the only thing causing my pain. My ENT surgeon thinks I have tringeminal (sp) neuralgia.I have an appintment with a neurologist. Symtoms began over a year ago--mild, but more severe now. It is painful. I hope I did not offend you with my statement. I was just expressing how I feel anout my situation, I don't expect anyone to agree. We're all different.

I'm so glad you're feeling better and have hair regrowth! How bad did your hair loss get? I lost about 75% and had to wear a scarf on my head for 99-2000. It's better now, I look normal to the casual observer (except since I took the HGH my widow's peak is see through). Last summer it looked much better.naturalbeauty38 <naturalbeauty38@...> wrote:

Having been through both I would say other than my neurological symptoms the hair loss was probably the worse thing I have ever been through. THE NEUROLOGICAL ILLNESS I HAD WAS WORSE THAN ANYTHING I HAVE EVER EXPERIENCED IN MY LIFE, there is nothing worse than the feeling of dying from somthing toxic in your body! i was close to death and at that time would have given away my hair just to be able to have one day without being dizzy and numb and spinning out of control. The pain and all that, yeah that could be treated, the neuro stuff was the worse thing, then the hair loss. THose two things are more than any one should ever have to endure.HAIR LOSS SUCKS BIG TIME, it is torture to be female and lose your hair, while I am sure it is hard for me, it is much harder for women, and having boob envy is nothing next to hair

envy!-Cwrote:> Dimond:> I hear you. > Today I had a particularly bad day.I have had hair loss after surgery and from hormone meds. I thought my hair was getting better, but evidently it not. I had run errands today and caught a glimpse of myself in the mirror (in the bright light) at the makeup counter at Nordstroms and it horrified me because I saw my scalp and the spacing between my follicles. I hurried home and cried all day.I have lived this way for four years since after my implant/ explant surgery and all reconstructive surgeries to follow. It looked my better 6 months ago but after the HGH injections I can once again see through my front hair line. The endo I saw at UVA told me it was because the HGH screwing up system. Just when I though things would get better.....> > Also, my scalp has a "crawly" feeling. It's awful. I too take Xanax on those "bad" days.>

As difficult as this is for some of you to hear, (I apologise if I offend you) the hair loss for me is much worse than butchery of my breasts and the whole implant thing (although that's another form of hell too).My hair was my pride and joy the type of hair that people on the street or in the mall, or at school would stop me and tell me how pretty it was.Now to see my scalp, is just awful.> The loss of hair on my scalp is evenly distributed, no pattern. I have body hair loss too.I fear I'll never get my hair back.> > dimonds68 wrote:> Gotta keep venting on this subject. I dont' understand it. It is 3 > and a half yrs post explant, and I am still loosing hair like crazy. > I am only taking .5mg of xanax per day at nite. I started taking saw > pametto 2 months ago, with no help. it is pissing me off. anyone > else? thanks for the vent. Terry p.s all my tests are neg. I have

no > weight gain. > > > > >

[Guest guest]

Hi Dimonds and :

I've been to both dermatologists and endos about my hair loss. These are the tests they all give you(if the know female hair loss):

Serum Ferritin, CBC, TIBC,TSH, free T 3, ANA, Androsteindione, DHEAS,DHEA,Estrodial,Progesterone, Free Testosterone, Total Testosterone, SHBG,Prolactin, B vitamins,TBG(thyroxine binding globulin),biotin, zinc, Cortisol.

Hope this helps.

My dx: drug(anesthesia),shock,anemia, inappropriate hormone usage induced telogen effluvium. Scary thing about telogen effluvium is that hair USUALLY grows back, but not always. That's why I take a hard line on hormone misuse--not everyone gets their hair back, or some have partial recovery and the majority (according to med journals)"usually" have complete recovery. naturalbeauty38 <naturalbeauty38@...> wrote:

Dimonds girl I know how much it sucks, i mean my hair is still not as thick as it was but it has stopped totally shedding, I think I still lose more than I should but my hair stylist says it looks normal to her. I guess I have to believe her. It is def thicker than it was a year ago, but not as thick as it was my entire life. Who knows, for me it could be age too as I am going to be 40 in just about 4 months, EEK!I still think it has to be something hormonal, I dont know what the hell else it could be.Have you seen any specialist or homeopaths who have any ideas?I wish I had a magic potion to help, I know that shound stupid , but as I learned when I went through this BS my self, there really are not allot of people out there trying to do anything about it are there?I love you and pray for you everyday

sweetie.Hugs-CIn , "dimonds68" wrote:> Gotta keep venting on this subject. I dont' understand it. It is 3 > and a half yrs post explant, and I am still loosing hair like crazy. > I am only taking .5mg of xanax per day at nite. I started taking saw > pametto 2 months ago, with no help. it is pissing me off. anyone > else? thanks for the vent. Terry p.s all my tests are neg. I have no > weight gain.

[Guest guest]

I began to see regrowth too until two months after going on HGH it feel like snow

I'm so mad at myself for trusting that stupid endos. My current endo doc suggested I turn them into the Board of Medicine. I'm going to do just that.

God only knows what the crap did to my endocrine system. I only pray the damage is not permanent.I sometimes wonder if it caused my granuloma tumor, that's just speculation, nothing to back it up with. naturalbeauty38 <naturalbeauty38@...> wrote:

No you did not offend me, people that did not have that toxic illness that implants create don't quite understand it and hopefully that does not offend you either. It is so hard to say things and know what is going to be interpreted by whom, etc. Anyhow I just feel that Hair loss is one of the hardest and worse things I have ever been through other than the implant illness.My hair was never really thin, to where it looked bad, just thinner than it usually was. I wuld guess I lost about half of it. SO being that I had thick hair it still looked normal to most poeple just not super thick like it had been,it is getting there and yes my hair stylist said she could see tons of new growth, I can see it too now, it is curly too wich is funny!Hugs-CIn , Jane Doe

wrote:> > :> Hi. I have nuero problems now too, still trying to determine the cause. I have a tumor in my head behind my inner ear, so hopefully that is the only thing causing my pain. My ENT surgeon thinks I have tringeminal (sp) neuralgia.I have an appintment with a neurologist. Symtoms began over a year ago--mild, but more severe now. It is painful. I hope I did not offend you with my statement. I was just expressing how I feel anout my situation, I don't expect anyone to agree. We're all different.> > I'm so glad you're feeling better and have hair regrowth! How bad did your hair loss get? I lost about 75% and had to wear a scarf on my head for 99-2000. It's better now, I look normal to the casual observer (except since I took the HGH my widow's peak is see through). Last summer it looked much better.> naturalbeauty38 wrote:> Having

been through both I would say other than my neurological > symptoms the hair loss was probably the worse thing I have ever been > through. THE NEUROLOGICAL ILLNESS I HAD WAS WORSE THAN ANYTHING I > HAVE EVER EXPERIENCED IN MY LIFE, there is nothing worse than the > feeling of dying from somthing toxic in your body! i was close to > death and at that time would have given away my hair just to be able > to have one day without being dizzy and numb and spinning out of > control. The pain and all that, yeah that could be treated, the neuro > stuff was the worse thing, then the hair loss. THose two things are > more than any one should ever have to endure.HAIR LOSS SUCKS BIG > TIME, it is torture to be female and lose your hair, while I am sure > it is hard for me, it is much harder for women, and having boob envy > is nothing next to hair envy!> -C> > >

> > > > wrote:> > Dimond:> > I hear you. > > Today I had a particularly bad day.I have had hair loss after > surgery and from hormone meds. I thought my hair was getting better, > but evidently it not. I had run errands today and caught a glimpse of > myself in the mirror (in the bright light) at the makeup counter at > Nordstroms and it horrified me because I saw my scalp and the spacing > between my follicles. I hurried home and cried all day.I have lived > this way for four years since after my implant/ explant surgery and > all reconstructive surgeries to follow. It looked my better 6 months > ago but after the HGH injections I can once again see through my > front hair line. The endo I saw at UVA told me it was because the HGH > screwing up system. Just when I though things would get better.....> > > > Also, my

scalp has a "crawly" feeling. It's awful. I too take Xanax > on those "bad" days.> > As difficult as this is for some of you to hear, (I apologise if I > offend you) the hair loss for me is much worse than butchery of my > breasts and the whole implant thing (although that's another form of > hell too).My hair was my pride and joy the type of hair that people > on the street or in the mall, or at school would stop me and tell me > how pretty it was.Now to see my scalp, is just awful.> > The loss of hair on my scalp is evenly distributed, no pattern. I > have body hair loss too.I fear I'll never get my hair back.> > > > dimonds68 wrote:> > Gotta keep venting on this subject. I dont' understand it. It is 3 > > and a half yrs post explant, and I am still loosing hair like > crazy. > > I am only taking .5mg of xanax per day at nite. I started

taking > saw > > pametto 2 months ago, with no help. it is pissing me off. anyone > > else? thanks for the vent. Terry p.s all my tests are neg. I have > no > > weight gain. > > > > > > > > > >

[Guest guest]

Hi :

Thanks for your kind words.

I had been having severe headaches and at first thought it was only the HGH causing benign intercranial pressure, but the my headaches persisted and my eyesight blurred and I got vertigo. I went to the doc and they ordered an MRI and it showed I have a tumor (cholesteral granuloma) on my right pertrous apex (inner skull behind the inner ear). Anyway, I went to an otolaryngoloy onocolgist a couple weeks ago and his thought (then) was if the tumor remains as is(does not show an increase in growth or fluid accumulation) when they do a CAT SCAN to drain the tumor rather than removing it.Apparently, going in to remove the darn thing is too risky as it can leave me deaf in my right ear as well as other risks.

Since a couple weeks ago, things have apparenly changed.I had the CATscan last week and the the nurse called me this monring and left a message for me to call the office straight away, so I did. They won't discuss the results with me but told me to come in. So I'm assuming from the results of the CAT scan, the sucker needs to be removed or at least drained. I hope they just need to drain it and that they can do this through the sinus with an IV sedative and local anesthetic not general anesthesia--I don't want more hair loss especially since this HGH has already put me back more than a few steps.

Oh well, I'll just have to hope.......

Take Care.naturalbeauty38 <naturalbeauty38@...> wrote:

JD:I agree with your new Dr if your other endo did something bad to you then you should turn them in or whatever it is you need to do, report them or whatever. It may save others from going through whatever happened to you. What kind of tumor is a granuloma tumor? Did you say it was in your ear? Anyhow please know we will all keep you in our thoughts and prayers! it seems like you have been through allot of health crisis's over the years, that totally sucks and is somethine we all can relate to.Sorry for your hair loss issues. It is terrible.hugs'-CIn , Jane Doe wrote:> I began to see regrowth too until two months after going on HGH it feel like snow > I'm so mad at myself for trusting that stupid endos. My current endo doc suggested

I turn them into the Board of Medicine. I'm going to do just that.> God only knows what the crap did to my endocrine system. I only pray the damage is not permanent.I sometimes wonder if it caused my granuloma tumor, that's just speculation, nothing to back it up with. > > naturalbeauty38 wrote:> No you did not offend me, people that did not have that toxic illness > that implants create don't quite understand it and hopefully that > does not offend you either. It is so hard to say things and know what > is going to be interpreted by whom, etc. Anyhow I just feel that Hair > loss is one of the hardest and worse things I have ever been through > other than the implant illness.> My hair was never really thin, to where it looked bad, just thinner > than it usually was. I wuld guess I lost about half of it. SO being > that I had thick hair it still looked

normal to most poeple just not > super thick like it had been,> it is getting there and yes my hair stylist said she could see tons > of new growth, I can see it too now, it is curly too wich is funny!> Hugs> -C> > > > > > In , Jane Doe > wrote:> > > > :> > Hi. I have nuero problems now too, still trying to determine the > cause. I have a tumor in my head behind my inner ear, so hopefully > that is the only thing causing my pain. My ENT surgeon thinks I have > tringeminal (sp) neuralgia.I have an appintment with a neurologist. > Symtoms began over a year ago--mild, but more severe now. It is > painful. I hope I did not offend you with my statement. I was just > expressing how I feel anout my situation, I don't expect anyone to > agree. We're all different.> > >

> I'm so glad you're feeling better and have hair regrowth! How bad > did your hair loss get? I lost about 75% and had to wear a scarf on > my head for 99-2000. It's better now, I look normal to the casual > observer (except since I took the HGH my widow's peak is see > through). Last summer it looked much better.> > naturalbeauty38 wrote:> > Having been through both I would say other than my neurological > > symptoms the hair loss was probably the worse thing I have ever > been > > through. THE NEUROLOGICAL ILLNESS I HAD WAS WORSE THAN ANYTHING I > > HAVE EVER EXPERIENCED IN MY LIFE, there is nothing worse than the > > feeling of dying from somthing toxic in your body! i was close to > > death and at that time would have given away my hair just to be > able > > to have one day without being dizzy and numb and spinning out of > > control. The pain

and all that, yeah that could be treated, the > neuro > > stuff was the worse thing, then the hair loss. THose two things are > > more than any one should ever have to endure.HAIR LOSS SUCKS BIG > > TIME, it is torture to be female and lose your hair, while I am > sure > > it is hard for me, it is much harder for women, and having boob > envy > > is nothing next to hair envy!> > -C> > > > > > > > > > > > > > wrote:> > > Dimond:> > > I hear you. > > > Today I had a particularly bad day.I have had hair loss after > > surgery and from hormone meds. I thought my hair was getting > better, > > but evidently it not. I had run errands today and caught a glimpse > of > > myself in the mirror (in the bright light) at the makeup counter at >

> Nordstroms and it horrified me because I saw my scalp and the > spacing > > between my follicles. I hurried home and cried all day.I have lived > > this way for four years since after my implant/ explant surgery and > > all reconstructive surgeries to follow. It looked my better 6 > months > > ago but after the HGH injections I can once again see through my > > front hair line. The endo I saw at UVA told me it was because the > HGH > > screwing up system. Just when I though things would get better.....> > > > > > Also, my scalp has a "crawly" feeling. It's awful. I too take > Xanax > > on those "bad" days.> > > As difficult as this is for some of you to hear, (I apologise if > I > > offend you) the hair loss for me is much worse than butchery of my > > breasts and the whole implant thing (although

that's another form > of > > hell too).My hair was my pride and joy the type of hair that people > > on the street or in the mall, or at school would stop me and tell > me > > how pretty it was.Now to see my scalp, is just awful.> > > The loss of hair on my scalp is evenly distributed, no pattern. I > > have body hair loss too.I fear I'll never get my hair back.> > > > > > dimonds68 wrote:> > > Gotta keep venting on this subject. I dont' understand it. It is > 3 > > > and a half yrs post explant, and I am still loosing hair like > > crazy. > > > I am only taking .5mg of xanax per day at nite. I started taking > > saw > > > pametto 2 months ago, with no help. it is pissing me off. anyone > > > else? thanks for the vent. Terry p.s all my tests are neg. I have > > no

> > > weight gain. > > > > > > > > > > > > > > >