Re: 3 and a half yrs post explant and STILL loosing hair

[Guest guest]

Dimond:

I hear you.

Today I had a particularly bad day.I have had hair loss after surgery and from hormone meds. I thought my hair was getting better, but evidently it not. I had run errands today and caught a glimpse of myself in the mirror (in the bright light) at the makeup counter at Nordstroms and it horrified me because I saw my scalp and the spacing between my follicles. I hurried home and cried all day.I have lived this way for four years since after my implant/ explant surgery and all reconstructive surgeries to follow. It looked my better 6 months ago but after the HGH injections I can once again see through my front hair line. The endo I saw at UVA told me it was because the HGH screwing up system. Just when I though things would get better.....

Also, my scalp has a "crawly" feeling. It's awful. I too take Xanax on those "bad" days.

As difficult as this is for some of you to hear, (I apologise if I offend you) the hair loss for me is much worse than butchery of my breasts and the whole implant thing (although that's another form of hell too).My hair was my pride and joy the type of hair that people on the street or in the mall, or at school would stop me and tell me how pretty it was.Now to see my scalp, is just awful.

The loss of hair on my scalp is evenly distributed, no pattern. I have body hair loss too.I fear I'll never get my hair back.dimonds68 <Dimonds6881@...> wrote:

Gotta keep venting on this subject. I dont' understand it. It is 3 and a half yrs post explant, and I am still loosing hair like crazy. I am only taking .5mg of xanax per day at nite. I started taking saw pametto 2 months ago, with no help. it is pissing me off. anyone else? thanks for the vent. Terry p.s all my tests are neg. I have no weight gain.

[Guest guest]

Dimonds girl I know how much it sucks, i mean my hair is still not as

thick as it was but it has stopped totally shedding, I think I still

lose more than I should but my hair stylist says it looks normal to

her. I guess I have to believe her. It is def thicker than it was a

year ago, but not as thick as it was my entire life. Who knows, for

me it could be age too as I am going to be 40 in just about 4 months,

EEK!

I still think it has to be something hormonal, I dont know what the

hell else it could be.

Have you seen any specialist or homeopaths who have any ideas?

I wish I had a magic potion to help, I know that shound stupid , but

as I learned when I went through this BS my self, there really are

not allot of people out there trying to do anything about it are

there?

I love you and pray for you everyday sweetie.

Hugs

-C

In , " dimonds68 " <Dimonds6881@h...>

wrote:

> Gotta keep venting on this subject. I dont' understand it. It is 3

> and a half yrs post explant, and I am still loosing hair like

crazy.

> I am only taking .5mg of xanax per day at nite. I started taking

saw

> pametto 2 months ago, with no help. it is pissing me off. anyone

> else? thanks for the vent. Terry p.s all my tests are neg. I have

no

> weight gain.

[Guest guest]

Having been through both I would say other than my neurological

symptoms the hair loss was probably the worse thing I have ever been

through. THE NEUROLOGICAL ILLNESS I HAD WAS WORSE THAN ANYTHING I

HAVE EVER EXPERIENCED IN MY LIFE, there is nothing worse than the

feeling of dying from somthing toxic in your body! i was close to

death and at that time would have given away my hair just to be able

to have one day without being dizzy and numb and spinning out of

control. The pain and all that, yeah that could be treated, the neuro

stuff was the worse thing, then the hair loss. THose two things are

more than any one should ever have to endure.HAIR LOSS SUCKS BIG

TIME, it is torture to be female and lose your hair, while I am sure

it is hard for me, it is much harder for women, and having boob envy

is nothing next to hair envy!

-C

wrote:

> Dimond:

> I hear you.

> Today I had a particularly bad day.I have had hair loss after

surgery and from hormone meds. I thought my hair was getting better,

but evidently it not. I had run errands today and caught a glimpse of

myself in the mirror (in the bright light) at the makeup counter at

Nordstroms and it horrified me because I saw my scalp and the spacing

between my follicles. I hurried home and cried all day.I have lived

this way for four years since after my implant/ explant surgery and

all reconstructive surgeries to follow. It looked my better 6 months

ago but after the HGH injections I can once again see through my

front hair line. The endo I saw at UVA told me it was because the HGH

screwing up system. Just when I though things would get better.....

>

> Also, my scalp has a " crawly " feeling. It's awful. I too take Xanax

on those " bad " days.

> As difficult as this is for some of you to hear, (I apologise if I

offend you) the hair loss for me is much worse than butchery of my

breasts and the whole implant thing (although that's another form of

hell too).My hair was my pride and joy the type of hair that people

on the street or in the mall, or at school would stop me and tell me

how pretty it was.Now to see my scalp, is just awful.

> The loss of hair on my scalp is evenly distributed, no pattern. I

have body hair loss too.I fear I'll never get my hair back.

>

> dimonds68 <Dimonds6881@h...> wrote:

> Gotta keep venting on this subject. I dont' understand it. It is 3

> and a half yrs post explant, and I am still loosing hair like

crazy.

> I am only taking .5mg of xanax per day at nite. I started taking

saw

> pametto 2 months ago, with no help. it is pissing me off. anyone

> else? thanks for the vent. Terry p.s all my tests are neg. I have

no

> weight gain.

>

>

>

>

>

[Guest guest]

No you did not offend me, people that did not have that toxic illness

that implants create don't quite understand it and hopefully that

does not offend you either. It is so hard to say things and know what

is going to be interpreted by whom, etc. Anyhow I just feel that Hair

loss is one of the hardest and worse things I have ever been through

other than the implant illness.

My hair was never really thin, to where it looked bad, just thinner

than it usually was. I wuld guess I lost about half of it. SO being

that I had thick hair it still looked normal to most poeple just not

super thick like it had been,

it is getting there and yes my hair stylist said she could see tons

of new growth, I can see it too now, it is curly too wich is funny!

Hugs

-C

In , Jane Doe <oceanlilly_csu@y...>

wrote:

>

> :

> Hi. I have nuero problems now too, still trying to determine the

cause. I have a tumor in my head behind my inner ear, so hopefully

that is the only thing causing my pain. My ENT surgeon thinks I have

tringeminal (sp) neuralgia.I have an appintment with a neurologist.

Symtoms began over a year ago--mild, but more severe now. It is

painful. I hope I did not offend you with my statement. I was just

expressing how I feel anout my situation, I don't expect anyone to

agree. We're all different.

>

> I'm so glad you're feeling better and have hair regrowth! How bad

did your hair loss get? I lost about 75% and had to wear a scarf on

my head for 99-2000. It's better now, I look normal to the casual

observer (except since I took the HGH my widow's peak is see

through). Last summer it looked much better.

> naturalbeauty38 <naturalbeauty38@y...> wrote:

> Having been through both I would say other than my neurological

> symptoms the hair loss was probably the worse thing I have ever

been

> through. THE NEUROLOGICAL ILLNESS I HAD WAS WORSE THAN ANYTHING I

> HAVE EVER EXPERIENCED IN MY LIFE, there is nothing worse than the

> feeling of dying from somthing toxic in your body! i was close to

> death and at that time would have given away my hair just to be

able

> to have one day without being dizzy and numb and spinning out of

> control. The pain and all that, yeah that could be treated, the

neuro

> stuff was the worse thing, then the hair loss. THose two things are

> more than any one should ever have to endure.HAIR LOSS SUCKS BIG

> TIME, it is torture to be female and lose your hair, while I am

sure

> it is hard for me, it is much harder for women, and having boob

envy

> is nothing next to hair envy!

> -C

>

>

>

>

>

>

> wrote:

> > Dimond:

> > I hear you.

> > Today I had a particularly bad day.I have had hair loss after

> surgery and from hormone meds. I thought my hair was getting

better,

> but evidently it not. I had run errands today and caught a glimpse

of

> myself in the mirror (in the bright light) at the makeup counter at

> Nordstroms and it horrified me because I saw my scalp and the

spacing

> between my follicles. I hurried home and cried all day.I have lived

> this way for four years since after my implant/ explant surgery and

> all reconstructive surgeries to follow. It looked my better 6

months

> ago but after the HGH injections I can once again see through my

> front hair line. The endo I saw at UVA told me it was because the

HGH

> screwing up system. Just when I though things would get better.....

> >

> > Also, my scalp has a " crawly " feeling. It's awful. I too take

Xanax

> on those " bad " days.

> > As difficult as this is for some of you to hear, (I apologise if

I

> offend you) the hair loss for me is much worse than butchery of my

> breasts and the whole implant thing (although that's another form

of

> hell too).My hair was my pride and joy the type of hair that people

> on the street or in the mall, or at school would stop me and tell

me

> how pretty it was.Now to see my scalp, is just awful.

> > The loss of hair on my scalp is evenly distributed, no pattern. I

> have body hair loss too.I fear I'll never get my hair back.

> >

> > dimonds68 wrote:

> > Gotta keep venting on this subject. I dont' understand it. It is

3

> > and a half yrs post explant, and I am still loosing hair like

> crazy.

> > I am only taking .5mg of xanax per day at nite. I started taking

> saw

> > pametto 2 months ago, with no help. it is pissing me off. anyone

> > else? thanks for the vent. Terry p.s all my tests are neg. I have

> no

> > weight gain.

> >

> >

> >

> >

> >

[Guest guest]

JD:

I agree with your new Dr if your other endo did something bad to

you then you should turn them in or whatever it is you need to do,

report them or whatever. It may save others from going through

whatever happened to you. What kind of tumor is a granuloma tumor?

Did you say it was in your ear? Anyhow please know we will all keep

you in our thoughts and prayers! it seems like you have been through

allot of health crisis's over the years, that totally sucks and is

somethine we all can relate to.

Sorry for your hair loss issues. It is terrible.

hugs'

-C

In , Jane Doe <oceanlilly_csu@y...>

wrote:

> I began to see regrowth too until two months after going on HGH it

feel like snow

> I'm so mad at myself for trusting that stupid endos. My current

endo doc suggested I turn them into the Board of Medicine. I'm going

to do just that.

> God only knows what the crap did to my endocrine system. I only

pray the damage is not permanent.I sometimes wonder if it caused my

granuloma tumor, that's just speculation, nothing to back it up with.

>

> naturalbeauty38 <naturalbeauty38@y...> wrote:

> No you did not offend me, people that did not have that toxic

illness

> that implants create don't quite understand it and hopefully that

> does not offend you either. It is so hard to say things and know

what

> is going to be interpreted by whom, etc. Anyhow I just feel that

Hair

> loss is one of the hardest and worse things I have ever been

through

> other than the implant illness.

> My hair was never really thin, to where it looked bad, just thinner

> than it usually was. I wuld guess I lost about half of it. SO being

> that I had thick hair it still looked normal to most poeple just

not

> super thick like it had been,

> it is getting there and yes my hair stylist said she could see tons

> of new growth, I can see it too now, it is curly too wich is funny!

> Hugs

> -C

>

>

>

>

>

> In , Jane Doe

> wrote:

> >

> > :

> > Hi. I have nuero problems now too, still trying to determine the

> cause. I have a tumor in my head behind my inner ear, so hopefully

> that is the only thing causing my pain. My ENT surgeon thinks I

have

> tringeminal (sp) neuralgia.I have an appintment with a neurologist.

> Symtoms began over a year ago--mild, but more severe now. It is

> painful. I hope I did not offend you with my statement. I was just

> expressing how I feel anout my situation, I don't expect anyone to

> agree. We're all different.

> >

> > I'm so glad you're feeling better and have hair regrowth! How bad

> did your hair loss get? I lost about 75% and had to wear a scarf on

> my head for 99-2000. It's better now, I look normal to the casual

> observer (except since I took the HGH my widow's peak is see

> through). Last summer it looked much better.

> > naturalbeauty38 wrote:

> > Having been through both I would say other than my neurological

> > symptoms the hair loss was probably the worse thing I have ever

> been

> > through. THE NEUROLOGICAL ILLNESS I HAD WAS WORSE THAN ANYTHING I

> > HAVE EVER EXPERIENCED IN MY LIFE, there is nothing worse than the

> > feeling of dying from somthing toxic in your body! i was close to

> > death and at that time would have given away my hair just to be

> able

> > to have one day without being dizzy and numb and spinning out of

> > control. The pain and all that, yeah that could be treated, the

> neuro

> > stuff was the worse thing, then the hair loss. THose two things

are

> > more than any one should ever have to endure.HAIR LOSS SUCKS BIG

> > TIME, it is torture to be female and lose your hair, while I am

> sure

> > it is hard for me, it is much harder for women, and having boob

> envy

> > is nothing next to hair envy!

> > -C

> >

> >

> >

> >

> >

> >

> > wrote:

> > > Dimond:

> > > I hear you.

> > > Today I had a particularly bad day.I have had hair loss after

> > surgery and from hormone meds. I thought my hair was getting

> better,

> > but evidently it not. I had run errands today and caught a

glimpse

> of

> > myself in the mirror (in the bright light) at the makeup counter

at

> > Nordstroms and it horrified me because I saw my scalp and the

> spacing

> > between my follicles. I hurried home and cried all day.I have

lived

> > this way for four years since after my implant/ explant surgery

and

> > all reconstructive surgeries to follow. It looked my better 6

> months

> > ago but after the HGH injections I can once again see through my

> > front hair line. The endo I saw at UVA told me it was because the

> HGH

> > screwing up system. Just when I though things would get

better.....

> > >

> > > Also, my scalp has a " crawly " feeling. It's awful. I too take

> Xanax

> > on those " bad " days.

> > > As difficult as this is for some of you to hear, (I apologise

if

> I

> > offend you) the hair loss for me is much worse than butchery of

my

> > breasts and the whole implant thing (although that's another form

> of

> > hell too).My hair was my pride and joy the type of hair that

people

> > on the street or in the mall, or at school would stop me and tell

> me

> > how pretty it was.Now to see my scalp, is just awful.

> > > The loss of hair on my scalp is evenly distributed, no pattern.

I

> > have body hair loss too.I fear I'll never get my hair back.

> > >

> > > dimonds68 wrote:

> > > Gotta keep venting on this subject. I dont' understand it. It

is

> 3

> > > and a half yrs post explant, and I am still loosing hair like

> > crazy.

> > > I am only taking .5mg of xanax per day at nite. I started

taking

> > saw

> > > pametto 2 months ago, with no help. it is pissing me off.

anyone

> > > else? thanks for the vent. Terry p.s all my tests are neg. I

have

> > no

> > > weight gain.

> > >

> > >

> > >

> > >

> > >

[Guest guest]

me too girl. my hair is still falling out like crazy and my thyroid checks out okay too. pretty sick of it myself!

From: " dimonds68 " <Dimonds6881@...>

Reply-

Date: Sun, 09 May 2004 18:46:57 -0000

Subject: 3 and a half yrs post explant and STILL loosing hair

Gotta keep venting on this subject. I dont' understand it. It is 3

and a half yrs post explant, and I am still loosing hair like crazy.

I am only taking .5mg of xanax per day at nite. I started taking saw

pametto 2 months ago, with no help. it is pissing me off. anyone

else? thanks for the vent. Terry p.s all my tests are neg. I have no

weight gain.