Anyone

[Guest guest]

Does anyone have any tips, supplements or whatever works on

stimulating libido/sex drive? Thanks!

Ann

[Guest guest]

Hello,

I have not been on in some time. We are in the process of making some very

hard choices. Our pediatrician and neurologist told us we should not keep

our son the protocol. They had very strong opinions about doctor G and the

treatment. At this point we are unsure. We did remove all but the

OCD(Celexa) medication. The positives were almost immediate. He looked

healthier

started eating again and was much less tired. He even seemed happier. Around

one month with no medication the OCD joined us again. Speaking to his

pediatrician we put him back on Celexa. Things are now much better. Now we

have

ADD. However putting him back on Tenex seems unthinkable be that he lost

weight and had such flat affect. Dr. G. had us try so many things. It seemed

like everytime we spoke it was the same old same old (We have to educated, have

to change the way things are, something is in the works on and on) However

now I wonder if I should have waited. We tired for two years. Yes, he

made gains but was it really the medication? Also the side effects were

not good. Our son has always moved forward and even now with the new

behaviors is still learning. Just not in the way I hoped. Everything you read

everyone you talk to is opposed to the amount of medication he gives. I am

afraid to tell my family I am even thinking about starting up again. I don't

even know why I would when he is moving forward. I guess I just want more then

he can give.

If anyone has felt this way I would love to hear from you.

Thank

Al

************************************** AOL now offers free email to everyone.

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[Guest guest]

Hi,

I'm afraid only you can make this very tough decision. I've had my son on the

protocol for about 4 years now. We've seen great gains, but he is still

distinguishable in his peer group. The medications aren't perfect. There are

side effects. My son wets the bed almost every night because of the deep sleep

that the medications (SSRI and tenex) cause, but on the other hand he is getting

deep sleep which is something he did not have before starting the protocol. The

SSRIs can causes moodiness or other undesireable side effects while the right

med and dosage are being determined, which can take some time. And even once my

son has settled into a medication well, inevitably Dr. G calls for a change of

some kind. Usually it works out for the better, sometimes not and we have to

backtrack. It is not an easy road. For us it is the right one because I trust

Dr. G. His judgements are, as I mentioned, usually right. This is very

impressive to me considering that he is treating our son long distance and only

sees him face to face once per year.

As I said before, only you can make this choice and I know it is a heavy weight.

Neither family nor other " experts " will bear the responsibility of the decision

regarding your son's treatment. You have to do what You think is right. No

" expert " knows your son like you do.

Best of luck while you figure things out. That you think and rethink your son's

treatment just indicates that you are a good parent; one that wants to do the

best thing for your son.

April

Re: Re:Anyone

Hello,

I have not been on in some time. We are in the process of making some very

hard choices. Our pediatrician and neurologist told us we should not keep

our son the protocol. They had very strong opinions about doctor G and the

treatment. At this point we are unsure. We did remove all but the

OCD(Celexa) medication. The positives were almost immediate. He looked

healthier

started eating again and was much less tired. He even seemed happier. Around

one month with no medication the OCD joined us again. Speaking to his

pediatrician we put him back on Celexa. Things are now much better. Now we

have

ADD. However putting him back on Tenex seems unthinkable be that he lost

weight and had such flat affect. Dr. G. had us try so many things. It seemed

like everytime we spoke it was the same old same old (We have to educated,

have

to change the way things are, something is in the works on and on) However

now I wonder if I should have waited. We tired for two years. Yes, he

made gains but was it really the medication? Also the side effects were

not good. Our son has always moved forward and even now with the new

behaviors is still learning. Just not in the way I hoped. Everything you read

everyone you talk to is opposed to the amount of medication he gives. I am

afraid to tell my family I am even thinking about starting up again. I don't

even know why I would when he is moving forward. I guess I just want more then

he can give.

If anyone has felt this way I would love to hear from you.

Thank

Al

************************************** AOL now offers free email to everyone.

Find out more about what's free from AOL at http://www.aol.com.

[Guest guest]

April

What a wonderful response. Al, best wishes in this very tough

decision.

>

> Hi,

>

> I'm afraid only you can make this very tough decision. I've had my

son on the protocol for about 4 years now. We've seen great

gains, but he is still distinguishable in his peer group. The

medications aren't perfect. There are side effects. My son wets the

bed almost every night because of the deep sleep that the medications

(SSRI and tenex) cause, but on the other hand he is getting deep

sleep which is something he did not have before starting the

protocol. The SSRIs can causes moodiness or other undesireable side

effects while the right med and dosage are being determined, which

can take some time. And even once my son has settled into a

medication well, inevitably Dr. G calls for a change of some kind.

Usually it works out for the better, sometimes not and we have to

backtrack. It is not an easy road. For us it is the right one

because I trust Dr. G. His judgements are, as I mentioned, usually

right. This is very impressive to me considering that he is treating

our son long distance and only sees him face to face once per year.

>

> As I said before, only you can make this choice and I know it is a

heavy weight. Neither family nor other " experts " will bear the

responsibility of the decision regarding your son's treatment. You

have to do what You think is right. No " expert " knows your son like

you do.

>

> Best of luck while you figure things out. That you think and

rethink your son's treatment just indicates that you are a good

parent; one that wants to do the best thing for your son.

>

> April

>

> Re: Re:Anyone

>

>

> Hello,

>

> I have not been on in some time. We are in the process of making

some very

> hard choices. Our pediatrician and neurologist told us we should

not keep

> our son the protocol. They had very strong opinions about doctor

G and the

> treatment. At this point we are unsure. We did remove all

but the

> OCD(Celexa) medication. The positives were almost immediate. He

looked healthier

> started eating again and was much less tired. He even seemed

happier. Around

> one month with no medication the OCD joined us again. Speaking to

his

> pediatrician we put him back on Celexa. Things are now much

better. Now we have

> ADD. However putting him back on Tenex seems unthinkable be that

he lost

> weight and had such flat affect. Dr. G. had us try so many

things. It seemed

> like everytime we spoke it was the same old same old (We have to

educated, have

> to change the way things are, something is in the works on and

on) However

> now I wonder if I should have waited. We tired for two

years. Yes, he

> made gains but was it really the medication? Also the side

effects were

> not good. Our son has always moved forward and even now with the

new

> behaviors is still learning. Just not in the way I hoped.

Everything you read

> everyone you talk to is opposed to the amount of medication he

gives. I am

> afraid to tell my family I am even thinking about starting up

again. I don't

> even know why I would when he is moving forward. I guess I just

want more then

> he can give.

> If anyone has felt this way I would love to hear from you.

>

> Thank

> Al

>

> ************************************** AOL now offers free email

to everyone.

> Find out more about what's free from AOL at http://www.aol.com.

>

>

[Guest guest]

It's so tough!! When we first met Dr. G, I instantly " bought " his arguments

because they fell right into my beliefs about my son and his 'symptoms'. He

was a micropreemie and has cerebral palsy (even though he did really, really

well at birth and all through the NICU) in addition to ASD. There is a study

that 30-something % of micropreemies with CP were actually exposed to a

herpes-related virus around the time of birth, and not a hypoxic event. My

son has always had delays; he wasn't the kid that got one vaccination and

regressed from there. So, Dr. G's theories really fit with me. I still do

not like that my son is on a handful of meds and still not distinguishable

from his peers after 1.5 years on protocol. What are the options? Is

there really no other hope?

Kristy

Re:Anyone

April

What a wonderful response. Al, best wishes in this very tough

decision.

>

> Hi,

>

> I'm afraid only you can make this very tough decision. I've had my

son on the protocol for about 4 years now. We've seen great

gains, but he is still distinguishable in his peer group. The

medications aren't perfect. There are side effects. My son wets the

bed almost every night because of the deep sleep that the medications

(SSRI and tenex) cause, but on the other hand he is getting deep

sleep which is something he did not have before starting the

protocol. The SSRIs can causes moodiness or other undesireable side

effects while the right med and dosage are being determined, which

can take some time. And even once my son has settled into a

medication well, inevitably Dr. G calls for a change of some kind.

Usually it works out for the better, sometimes not and we have to

backtrack. It is not an easy road. For us it is the right one

because I trust Dr. G. His judgements are, as I mentioned, usually

right. This is very impressive to me considering that he is treating

our son long distance and only sees him face to face once per year.

>

> As I said before, only you can make this choice and I know it is a

heavy weight. Neither family nor other " experts " will bear the

responsibility of the decision regarding your son's treatment. You

have to do what You think is right. No " expert " knows your son like

you do.

>

> Best of luck while you figure things out. That you think and

rethink your son's treatment just indicates that you are a good

parent; one that wants to do the best thing for your son.

>

> April

>

> Re: Re:Anyone

>

>

> Hello,

>

> I have not been on in some time. We are in the process of making

some very

> hard choices. Our pediatrician and neurologist told us we should

not keep

> our son the protocol. They had very strong opinions about doctor

G and the

> treatment. At this point we are unsure. We did remove all

but the

> OCD(Celexa) medication. The positives were almost immediate. He

looked healthier

> started eating again and was much less tired. He even seemed

happier. Around

> one month with no medication the OCD joined us again. Speaking to

his

> pediatrician we put him back on Celexa. Things are now much

better. Now we have

> ADD. However putting him back on Tenex seems unthinkable be that

he lost

> weight and had such flat affect. Dr. G. had us try so many

things. It seemed

> like everytime we spoke it was the same old same old (We have to

educated, have

> to change the way things are, something is in the works on and

on) However

> now I wonder if I should have waited. We tired for two

years. Yes, he

> made gains but was it really the medication? Also the side

effects were

> not good. Our son has always moved forward and even now with the

new

> behaviors is still learning. Just not in the way I hoped.

Everything you read

> everyone you talk to is opposed to the amount of medication he

gives. I am

> afraid to tell my family I am even thinking about starting up

again. I don't

> even know why I would when he is moving forward. I guess I just

want more then

> he can give.

> If anyone has felt this way I would love to hear from you.

>

> Thank

> Al

>

> ************************************** AOL now offers free email

to everyone.

> Find out more about what's free from AOL at http://www.aol.com.

>

>

[Guest guest]

I don't believe there is no other hope. What other protocols have

you tried? Are you considering other protocols? For me, this is the

first protocol. I chose Dr. G as, like you, he fell right in with

our beliefs about our son. And the fact that he took insurance was

just another " sign " that he was the one I needed to see! I

always told myself, though, that if I didn't see enough improvement

within 6 months I would move on to Yasko or DAN!. We haven't been

with Dr. G long but in the time we've been with him, we've seen great

improvements so at the moment, I'm happy. This isn't to say that I'm

going to stay with it forever. The gains may stop and I may have to

rethink things and I'm okay with that. I think that for any person

entering into a protocol, you really have to be aware of where your

limits lie. We have to continually reevaluate and if you think the

person you are seeing is missing something and not trying to address

it, then it may be time to move on to another approach. I don't know

if my son is a heavy metals kid and obviously Dr. G doesn't address

that so if we get to a point where we aren't going any further with

progress, I will probably address it and see if that's where the next

step takes me and move on. I do know that right now, Gryffin is

making progress and I want to take this one step at a time. If I see

him healthy but his improvement stops, then I will have to wonder

what I'm missing. I'm much more methodical about my approach with

ASD than many others so I can see how a lot of the DAN! people would

freak out over the fact that I haven't tested heavy metals but like I

said, for me, it's one step at a time. When I see we need to move

on, I will. I think about this a lot, actually. Gryffin is doing so

well and improving so much that sometimes I start to think that I

struck gold and I have to reel myself in and continually tell myself,

one day at a time. Let's see how much he continues to improve before

I jump on that bandwagon that I only need one protocol. Some

protocols work for some kids and some don't. Some need a mixture of

protocols. We have to keep looking for what helps our kids and never

sit back and think that someone knows exactly what's best for our

kids better than we do. I like Dr. G. but I will never let his views

on other protocols cloud my judgement when I think that something

needs to be addressed and he isn't doing it or giving me a lot of his

" talks " about how this or that isn't relevant. If I think it's

relevant then by God, it's relevant and I will go there, with or

without him, if I think he's gone as far as he can go with Dr. G.

Who knows if I will get to that point. I may never have to leave or

I may have to leave in 6 months. I don't know what is going to

happen but I'm always on the lookout for clues that it's time to move

on. And I would do this with *any* protocol I chose. I think your

child is the best gauge for determining when it's time.

Cheryl

On Mar 22, 2007, at 7:52 AM, Kristy Nardini wrote:

> It's so tough!! When we first met Dr. G, I instantly " bought " his

> arguments

> because they fell right into my beliefs about my son and his

> 'symptoms'. He

> was a micropreemie and has cerebral palsy (even though he did

> really, really

> well at birth and all through the NICU) in addition to ASD. There

> is a study

> that 30-something % of micropreemies with CP were actually exposed

> to a

> herpes-related virus around the time of birth, and not a hypoxic

> event. My

> son has always had delays; he wasn't the kid that got one

> vaccination and

> regressed from there. So, Dr. G's theories really fit with me. I

> still do

> not like that my son is on a handful of meds and still not

> distinguishable

> from his peers after 1.5 years on protocol. What are the

> options? Is

> there really no other hope?

>

> Kristy

>

> Re:Anyone

>

> April

> What a wonderful response. Al, best wishes in this very tough

> decision.

>

>

>

> >

> > Hi,

> >

> > I'm afraid only you can make this very tough decision. I've had my

> son on the protocol for about 4 years now. We've seen great

> gains, but he is still distinguishable in his peer group. The

> medications aren't perfect. There are side effects. My son wets the

> bed almost every night because of the deep sleep that the medications

> (SSRI and tenex) cause, but on the other hand he is getting deep

> sleep which is something he did not have before starting the

> protocol. The SSRIs can causes moodiness or other undesireable side

> effects while the right med and dosage are being determined, which

> can take some time. And even once my son has settled into a

> medication well, inevitably Dr. G calls for a change of some kind.

> Usually it works out for the better, sometimes not and we have to

> backtrack. It is not an easy road. For us it is the right one

> because I trust Dr. G. His judgements are, as I mentioned, usually

> right. This is very impressive to me considering that he is treating

> our son long distance and only sees him face to face once per year.

> >

> > As I said before, only you can make this choice and I know it is a

> heavy weight. Neither family nor other " experts " will bear the

> responsibility of the decision regarding your son's treatment. You

> have to do what You think is right. No " expert " knows your son like

> you do.

> >

> > Best of luck while you figure things out. That you think and

> rethink your son's treatment just indicates that you are a good

> parent; one that wants to do the best thing for your son.

> >

> > April

> >

> > Re: Re:Anyone

> >

> >

> > Hello,

> >

> > I have not been on in some time. We are in the process of making

> some very

> > hard choices. Our pediatrician and neurologist told us we should

> not keep

> > our son the protocol. They had very strong opinions about doctor

> G and the

> > treatment. At this point we are unsure. We did remove all

> but the

> > OCD(Celexa) medication. The positives were almost immediate. He

> looked healthier

> > started eating again and was much less tired. He even seemed

> happier. Around

> > one month with no medication the OCD joined us again. Speaking to

> his

> > pediatrician we put him back on Celexa. Things are now much

> better. Now we have

> > ADD. However putting him back on Tenex seems unthinkable be that

> he lost

> > weight and had such flat affect. Dr. G. had us try so many

> things. It seemed

> > like everytime we spoke it was the same old same old (We have to

> educated, have

> > to change the way things are, something is in the works on and

> on) However

> > now I wonder if I should have waited. We tired for two

> years. Yes, he

> > made gains but was it really the medication? Also the side

> effects were

> > not good. Our son has always moved forward and even now with the

> new

> > behaviors is still learning. Just not in the way I hoped.

> Everything you read

> > everyone you talk to is opposed to the amount of medication he

> gives. I am

> > afraid to tell my family I am even thinking about starting up

> again. I don't

> > even know why I would when he is moving forward. I guess I just

> want more then

> > he can give.

> > If anyone has felt this way I would love to hear from you.

> >

> > Thank

> > Al

> >

> > ************************************** AOL now offers free email

> to everyone.

> > Find out more about what's free from AOL at http://www.aol.com.

> >

> >