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Dear Colleen,

Wow! I didn't realize I had asked that many questions. Thanks for

answering all of them.

I don't think there is a test for Fibromyalgia. It's a diagnosis based on

symptoms and examination. There is a wonderful support group at

called -fibromyalgia - the little dash before the name is part of the name.

There's also a really good website on fibro - I sent it to someone recently,

and will see if I can find it for you. But the main determination is based on

whether you have tender points (or maybe trigger points - I get them confused

because to me they are the same thing). There are certain places that if you or

someone else puts pressure on, you just about hit the ceiling - and you may

never had noticed pain there. The website shows a diagram of the body and the

sites.

I paid no attention to my doc when he said I might have it. But when he

pushed those points, I knew he was right!

Painless hugs sounds good.

Hugs back - very soft, gentle ones.

Jo

Re: [ ] COLLEEN Welcome

Well Jo, I think I answered some of the questions already. I am an Aries and

my birthday is April 19. I have one brother who lives in TX with his wife (Ed

and ) and my niece (Kylie). To manage my pain, besides over the counter

meds, I also just relax and listen to soft music. If it becomes really bad, I

try to work my way into a warm bath. During this summer, swimming felt good.

Just not overdoing it.Other medical conditions: GERD, hypertension and a high

cholestrol. . . . .

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Yeah that is what my doctor had wanted to do and I had scheduled an

appointment for the trigger points but then lost the insurance and had to

cancel the appointment. I can still go back since technically I wasn't

diagnosed with fibro yet. Once I get into a routine with school and stuff, I

may schedule the appointment.

Hugs with a little pain tonight,

Colleen

Check out my website at: http://www.geocities.com/callyanne21/

>From: " jowicklund " <jowicklund@...>

>Reply-

>< >

>Subject: Re: [ ] COLLEEN

>Date: Tue, 4 Sep 2001 17:24:59 -0500

>

>Dear Colleen,

> Wow! I didn't realize I had asked that many questions. Thanks for

>answering all of them.

> I don't think there is a test for Fibromyalgia. It's a diagnosis

>based on symptoms and examination. There is a wonderful support group at

> called -fibromyalgia - the little dash before the name is

>part of the name.

> There's also a really good website on fibro - I sent it to someone

>recently, and will see if I can find it for you. But the main

>determination is based on whether you have tender points (or maybe trigger

>points - I get them confused because to me they are the same thing). There

>are certain places that if you or someone else puts pressure on, you just

>about hit the ceiling - and you may never had noticed pain there. The

>website shows a diagram of the body and the sites.

> I paid no attention to my doc when he said I might have it. But when

>he pushed those points, I knew he was right!

> Painless hugs sounds good.

> Hugs back - very soft, gentle ones.

>Jo

> Re: [ ] COLLEEN Welcome

>

>

> Well Jo, I think I answered some of the questions already. I am an Aries

>and my birthday is April 19. I have one brother who lives in TX with his

>wife (Ed and ) and my niece (Kylie). To manage my pain, besides over

>the counter meds, I also just relax and listen to soft music. If it becomes

>really bad, I try to work my way into a warm bath. During this summer,

>swimming felt good. Just not overdoing it.Other medical conditions: GERD,

>hypertension and a high cholestrol. . . . .

>

>

>

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a,

No I have never tried paraffin. That might be something for me to try. I

will have to look into that. Thank you for the suggestion.

I promise you, I am going to stay on the list. :)

The pain is a little better today. Hopefully I will make it through work

tonight becasue I can't call in, we are so short right now.

Talk to you later

Colleen

Check out my website at: http://www.geocities.com/callyanne21/

>From: " a " <paula54@...>

>Reply-

>< >

>Subject: [ ] Colleen

>Date: Mon, 10 Sep 2001 00:42:29 -0400

>

>Colleen,

>I hope you decide to stay and see what kind of a group we

>are. I can assure you that

>this is a very rare occurrence here. Many of our members

>have been together for several years and are very nice. I'm

>sorry you're in pain tonight. The emotional trauma of

>loosing your father probably caused a flare. Have you ever

>tried a paraffin bath for your hands? It really helps with

>painful hands, and some even put their feet in. I hope you

>feel better.

>hugs,

>a

>

> Re: [ ] Jo

>

>

> Thank you a. I was about ready to get off this list

>because I don't need

> to read e-mail's like the ones I have been receiving from

>this group. I

> joined this group because I thought the people seemed

>nice, many dealing

> with the same thing I do and I could get alot of info...

> Thanks for your e-mail

> Tonight is more painful than ever. I was up at my parents

>camper with my mom

> and fiance this weekend trying to clean up and get rid of

>some of my

> father's clothes and stuff. Too much working so now I am

>suffering. Hard to

> type tonight so I will go

> Painful hugs tonight,

> colleen

>

> Check out my website at:

>http://www.geocities.com/callyanne21/

>

>

>

>

>

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  • 2 weeks later...

Thanks . I haven't heard from him since him and I talked and I don't

know what he is planing on doing. Really it is his decision. He is a big boy

and can make up his own mind. And I told him that.

I think a lot of the stress and emotional things going on are making me have

flares. I felt like crap the other day...just that icky feeling I get before

and during a flare.

Anyways..I love ya all...you make me feel better when I read your e-mails.

Colleen

Check out my website at: http://www.geocities.com/callyanne21/

>From: " " <Matsumura_Clan@...>

>Reply-

>< >

>Subject: [ ] Colleen

>Date: Sun, 23 Sep 2001 10:42:32 -0500

>

>Sorry that you are feeling worse than usual, Colleen. Try to turn off the

>TV

>for as long as possible and do something or think about something that

>makes

>you happy. I should follow my own advice because I'm half-watching CNN

>right

>now.

>

>Maybe try to convince your brother that there are many ways that he can

>help

>to make us a safer and better country and work to preserve our freedoms

>without re-enlisting.

>

>Rest and try not to worry.

>

>

>

>

>

> RE: [ ] As I held my candle

>

>

> > I know. I have been glued to MSNBC. They have 24 hour coverage. Tonight

>I

>am

> > going to watch the tribute special. I have watched 3 slideshows and read

>the

> > newspaper everyday. My brother wants to re-enlist and go to help out. I

> > toldhim it is his choice but I also said, we lost a father, I really

>don't

> > want to lose a brother too.

> > I hope this all ends soon. But it doesn't seem to. With all the

>emotional

> > stress, it has caused me to have flare-ups more than usual. I could

>hardly

> > get myself out of bed this morning. It ook me an hour and a half.

>Usually

> > the most is like 30-45 min.

> > Hope you all are doing ok

> > gentle hugs,

> > Colleen

>

>

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Thanks . Yeah a's word did help me through it. Everyday I wait and

hope that someway they are just missing and not dead. But then reality hits

me when I see pictures of the wreck.

hope everyone has a painfree weekend. I have to work all weekend. In fact, I

am getting ready to work the 11pm-7:30am shift right now.

Colleen

Check out my website at: http://www.geocities.com/callyanne21/

>From: " " <Matsumura_Clan@...>

>Reply-

>< >

>Subject: [ ] Colleen

>Date: Fri, 28 Sep 2001 20:39:03 -0500

>

>Colleen,

>

>I'm very sorry that you have three friends who are missing in the World

>Trade Center. That is awful. It's horrible not to know where they are or

>what happened to them, I'm sure. I'll pray that you learn something very

>soon.

>

>I hope a's words encouraged you and gave you hope. She helped me.

>

>

>

> RE: [ ] hello

>

>

> > Don't mean to barge in on your conversation ladies but you made a

>comment

> > a about if we will ever feel safe again. I don't think I will. I

>still

> > have 3 friends missing in the WTC. Presumed dead. It has affected me

>more

> > than I thought.

> > And now I was watching the news today and they had said that Bin Laden

>may

> > do more harm. That is even more scary. But I guess we have to live each

>day

> > and pray for the best.

> > hugs,

> > Colleen

>

>

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  • 2 weeks later...

Hi Colleen

Thank you...it is nice to know people give a darn..I couldn't sleep until 4

am...just feeling sorry for myself...time to get dressed even if I am going

nowhere HAHAHA...and thanks for being so sweet!!

Joanne

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your welcome Joanne. That is one thing people say about me, and I am not

trying to be big headed or anything but people always tell me I am friendly

and sweet. I guess I have to be since I am a nursing assistant for

Alzheimers residents. And going to nursing school to work with the elderly.

I am sorry to hear you were up so long last night. I was too but because I

was in pain.

hugs,

Colleen

Check out my website at: http://www.geocities.com/callyanne21/

>From: " boop " <boop@...>

>Reply-

>< >

>Subject: Re: [ ]Colleen

>Date: Fri, 12 Oct 2001 09:25:10 -0700

>

>Hi Colleen

>

>Thank you...it is nice to know people give a darn..I couldn't sleep until 4

>am...just feeling sorry for myself...time to get dressed even if I am going

>nowhere HAHAHA...and thanks for being so sweet!!

>Joanne

>

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Hi

I am so sorry you were up last night due to pain...gosh we all can surely

sympathize with that..Don't the nights seem so long when you are up? seems

to me like they are never going to end at times.

When I first received the diagnosis of RA, the rheumatologist said " RA only

happens to nice people " Of course I took that as a compliment only later to

find out it was not. She meant that exceptionally nice people (as I think

many of us with RA are) tend to be too nice and stuff a lot of hurt

inside..and as a result develop diseases such as RA. .At first I was upset

that it was hardly a compliment but then began to think maybe there is

something to that theory and we should toughen up..Only problem is I like

being nice.

You stay that way girl...God Bless you in your work. How we need NICE,

caring people like yourself to help with such a devastating disease.

Joanne

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Sometimes it is hard to be nice when you are in so much pain. Like the other

night, I was in pain and at work. My residents are all sweet and I was

trying to be nice...I think I did a good job under the circumstances. But it

was hard. I couldn't wait to go home that night. I hate being at work when I

have a flare. But I can't always call in because we are short staffed. So I

have to learn to manage.

Colleen

Check out my website at: http://www.geocities.com/callyanne21/

>From: " boop " <boop@...>

>Reply-

>< >

>Subject: Re: [ ]Colleen

>Date: Fri, 12 Oct 2001 11:06:51 -0700

>

>Hi

>I am so sorry you were up last night due to pain...gosh we all can surely

>sympathize with that..Don't the nights seem so long when you are up? seems

>to me like they are never going to end at times.

>

>When I first received the diagnosis of RA, the rheumatologist said " RA only

>happens to nice people " Of course I took that as a compliment only later

>to

>find out it was not. She meant that exceptionally nice people (as I think

>many of us with RA are) tend to be too nice and stuff a lot of hurt

>inside..and as a result develop diseases such as RA. .At first I was upset

>that it was hardly a compliment but then began to think maybe there is

>something to that theory and we should toughen up..Only problem is I like

>being nice.

>

>You stay that way girl...God Bless you in your work. How we need NICE,

>caring people like yourself to help with such a devastating disease.

>

>Joanne

>

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I haven't had such frequent pain until recently. My knees swell and my hips

hurt. My hands even bother me more now. But I have to live to manage it

because I am not giving up my career or my goals. :)

Colleen

Check out my website at: http://www.geocities.com/callyanne21/

>From: June Dixon <juner24@...>

>Reply-

>Arthritis <RA-Support >

>Subject: [ ] Colleen

>Date: Fri, 12 Oct 2001 18:45:16 -0400

>

>I have a gut feeling that you are nice all the time,regardless of pain.

>sorry you have to such frequent pain.

>

>Hugs

>June

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Hang in there Colleen. Is it the weather or what causing the pain to worsen?

I know if I get chilled I can feel my joints and muscles around my elbows

tensing up.

Be Blessed,

Becky

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I think it might be the weather. I am having a flare today...real bad and am

trying to type a paper due tomorrow and my hands hurt. Thanks for the

e-mail..I will manage..I usually do.

hugs,

Colleen

Check out my website at: http://www.geocities.com/callyanne21/

>From: MaBeck742@...

>Reply-

>

>Subject: Re: [ ] Colleen

>Date: Mon, 15 Oct 2001 01:06:04 EDT

>

>Hang in there Colleen. Is it the weather or what causing the pain to

>worsen?

>I know if I get chilled I can feel my joints and muscles around my elbows

>tensing up.

>Be Blessed,

>Becky

>

>

>

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yeah it is a relief in some ways. But I think that is the reason I have been

having flares....all this stress.

Thanks ...

hugs,

Colleen

Check out my website at: http://www.geocities.com/callyanne21/

>From: " " <Matsumura_Clan@...>

>Reply-

>< >

>Subject: [ ] Colleen

>Date: Mon, 15 Oct 2001 09:45:12 -0500

>

>Colleen,

>

>I'm sorry that the death of one of your friends has been confirmed,

>although it must be a relief in many ways. I pray that he or she did not

>suffer and that you will know about your other two friends soon.

>

>Hugs,

>

>

>

> Re: [ ] Calling all friends

>

>

> > Sylvia:

> > Wow. Sounds like you are busy. I am glad you like your new place.

>It is

> > sad about the WTC. Actually to update everyone, I received a phone

>call

> > yesterday morning. I had had 3 friends still missing. Well one of

>their

> > bodies was found. They are having a memorial mass this weekend. I can

>not

> > attend because of work but they know I will be there in spirit. Now I

>am

> > just waiting for the other 2. It is very depressing not knowing.

>Everyone

> > says, presume they are dead. It is hard to do with no closure.

> > Anyways...no pain-free days for me lately. My hips have been giving me

> > problems alot lately. I just hope the RA is not getting worse because

>I

> > thought I had it so good.

> > Well gotta go do some studying.

> > hugs,

> > Colleen

>

>

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  • 1 month later...

Thanks . Somedays it takes me forever just get out of bed. This is bad

if I have clinical that morning. Lately it has been good because no clinical

and I don't have class until the afternoon. Nights, I come home so tired

from work. But I am managing.

I love being able to check my mail and hear all the stories from my RA

friends...:)

Colleen

Check out my website at: http://www.geocities.com/callyanne21/

>From: " " <Matsumura_Clan@...>

>Reply-

>< >

>Subject: [ ] Colleen

>Date: Thu, 29 Nov 2001 09:11:23 -0600

>

>Sorry that you've been feeling out of sorts lately, Colleen. Try not to

>worry about school. You will finish one day. I'm proud of you for working

>so

>hard with your patients and at school. It can't be easy when you aren't

>feeling well. Keep up the good work!

>

>

>

> Re: [ ] saw primary

>

>

> > Well I am still a junior. I ended up failing 1 class last semester

>because

>I

> > was having problems (when I was first diagnosed with RA). So it put me

> > behind a whole year...for one class. So I will be graduating in 2003 and

> > then getting married either that year or 2004. It's exciting but

>tiring...

> > Good luck with school.

> > Today is going a little bit better...still VERY tired...

> > Colleen

>

>

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Thanks June...I am working on it and trying to manage my RA

Colleen

Check out my website at: http://www.geocities.com/callyanne21/

>From: June Dixon <juner24@...>

>Reply-

>Arthritis <RA-Support >

>Subject: [ ] Colleen

>Date: Fri, 30 Nov 2001 19:20:54 -0500

>

>Hi Colleen,sorry you have been having so much pain lately. Don't concern

>yourself too much about school,you will get there eventually. You have a

>great attitude.

>

>Hugs

>June

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  • 1 month later...

Heidi:

No I have not gotten any meds yet. Still using Ibuprophen. But it seems

to work.

Exams went well. I passed all my classes. (A, 2 B's, B+ and C).

Thanks for your sympathy. I just hope everything goes well for me now on. I

can't take anymore bad news.

Colleen

>From: " Heidi Steppe-Hoareau " <steps122@...>

>Reply-

>

>Subject: [ ] Colleen

>Date: Wed, 09 Jan 2002 13:56:26 +0400

>

>Hi there Colleen, I am so sorry to hear that you lost your aunt, you are

>really having a rough time. I hope that your RA starts feeling better

>soon,

>it must be hard to deal with this plus the pain. Did you manage to get

>some

>medication for the RA? How did your exams go? I will keep you in my

>thoughts and prayers. Hugs

>Heidi

>

>

>

>

>_________________________________________________________________

>Chat with friends online, try MSN Messenger: http://messenger.msn.com

>

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Thank you Heidi....I just keeping working and working....and I

manage...sometimes it is good for me to keep busy...

Colleen

>From: " Heidi Steppe-Hoareau " <steps122@...>

>Reply-

>

>Subject: [ ] Colleen

>Date: Thu, 10 Jan 2002 17:09:14 +0400

>

>Colleen, well done for your exams! It's wonderful that you have managed to

>do so well after all you went through last year. Congratulations! You

>should be really proud of yourself. Take it easy, be kind to yourself and

>let yourself heal. I will keep you in my prayers. Hugs

>Heidi

>

>

>

>_________________________________________________________________

>Send and receive Hotmail on your mobile device: http://mobile.msn.com

>

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Thanks ...yeah I am doing better...I would be much better if I could get

rid of this stupid cold I have. I just hate NY weather...it makes me sick.

Colleen

>From: " " <Matsumura_Clan@...>

>Reply-

>< >

>Subject: [ ] Colleen

>Date: Sun, 13 Jan 2002 19:28:12 -0600

>

>I'm very sorry to read that your dear aunt died without warning,

>Colleen. It seems so unfair that you've had so many losses to bear over

>the last few months.

>

>I hope you are OK.

>

>

>

> Re: [ ] RA flares and pain

>

>

> > I get real bad flares in my hands and feet. Especially under

>stress...like

> > now..my favorite aunt died this weekend, unexpectedly. I have major

>flares

> > and it hurts to type. I was the same way this summer when , as some of

>you

> > might remember, my father passed away.

> > My whole family is slowly going and it aggrevates my RA

> > Painful hugs!

> > Colleen

>

>

Check out my website at: http://www.geocities.com/callyanne21/

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Colleen,

That's how I feel about New Jersey's weather.

Hope you feel better.

a

Re: [ ] Colleen

Thanks ...yeah I am doing better...I would be much better if I could get

rid of this stupid cold I have. I just hate NY weather...it makes me sick.

Colleen

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a:

Is NJ as cold as NY???

Colleen

>From: " a " <paulap-54@...>

>Reply-

>< >

>Subject: Re: [ ] Colleen

>Date: Thu, 17 Jan 2002 09:36:10 -0800

>

>Colleen,

>That's how I feel about New Jersey's weather.

>Hope you feel better.

>a

>

>

> Re: [ ] Colleen

>

>

> Thanks ...yeah I am doing better...I would be much better if I could

>get

> rid of this stupid cold I have. I just hate NY weather...it makes me

>sick.

> Colleen

>

>

>

>

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It took me a week to get over the cold and I am still working on it.

I lost 11 pounds in the past month. I feel good about it.

Well did upstate NY get alot of snow too?? We were only supposed to get 1-2

inches and instead got a foot.

Colleen

>From: " a " <paulap-54@...>

>Reply-

>< >

>Subject: Re: [ ] Colleen

>Date: Mon, 21 Jan 2002 19:10:24 -0800

>

>Colleen,

>NY is probably much colder, especially upstate NY. Today feels like

>Alaska.

>The wind and dampness are brutal. I hope you're recouping from that cold.

>a

>

> Re: [ ] Colleen

> > >Date: Thu, 17 Jan 2002 09:36:10 -0800

> > >

> > >Colleen,

> > >That's how I feel about New Jersey's weather.

> > >Hope you feel better.

> > >a

> > >

> > >

>

>

Check out my website at: http://www.geocities.com/callyanne21/

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Yeah they are already thanking me for it...:)

Colleen

>From: " a " <paulap-54@...>

>Reply-

>< >

>Subject: Re: [ ] Colleen

>Date: Mon, 21 Jan 2002 21:00:54 -0800

>

>Good work Colleen. You should feel really good about it. Your

>feet and knees will appreciate your efforts.

>a

>

> Re: [ ] Colleen

> >Date: Mon, 21 Jan 2002 19:10:24 -0800

> >

> >Colleen,

> >NY is probably much colder, especially upstate NY. Today feels like

> >Alaska.

> >The wind and dampness are brutal. I hope you're recouping from that

>cold.

> >a

>

>

>

>

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Colleen,

NY is probably much colder, especially upstate NY. Today feels like Alaska.

The wind and dampness are brutal. I hope you're recouping from that cold.

a

Re: [ ] Colleen

> >Date: Thu, 17 Jan 2002 09:36:10 -0800

> >

> >Colleen,

> >That's how I feel about New Jersey's weather.

> >Hope you feel better.

> >a

> >

> >

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Good work Colleen. You should feel really good about it. Your

feet and knees will appreciate your efforts.

a

Re: [ ] Colleen

>Date: Mon, 21 Jan 2002 19:10:24 -0800

>

>Colleen,

>NY is probably much colder, especially upstate NY. Today feels like

>Alaska.

>The wind and dampness are brutal. I hope you're recouping from that cold.

>a

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  • 2 months later...
Guest guest

Well I have been having blackout episodes and they want to check me for a

seizure disorder. It lasts for about a minute and I just lose track of the

time.

Then to top it off, my fiance left me for another younger girl...like

19...(he is 21 and I am 24).

Not good...

And my hands are getting worse. Can hardly type some days. Very stiff...I

always thought I was lucky to have it under control but probably the

emotional stress is the problem.

Colleen

>From: " " <Matsumura_Clan@...>

>Reply-

>< >

>Subject: [ ] Colleen

>Date: Sun, 7 Apr 2002 19:41:51 -0500

>

>What is going on, Colleen? Are you OK? What are your symptoms?

>

>

>

> Re: [ ] New to group

>

>

> > Welcome Stacey. Glad you could join us. Sorry to hear about all of

>your

> > problems with the RA. Most of us know what it is like and we are there

>for

> > you.

> > On a side note to everyone...I am going to a neurologist on April 15th

>to

> > rule out a seizure disorder. Wish me luck. I don't know if this is

>related

> > to my RA. But we will soon find out.

> > Colleen

>

================================================

Secretary of Zeta of NY

Student Advocate of the NSA at Decker School of Nursing

Catch me online!!!!

AOL screen name: Cally671

I also use MSN messenger

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MSN Photos is the easiest way to share and print your photos:

http://photos.msn.com/support/worldwide.aspx

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