Burning feet

[Guest guest]

,

I remember when I was a child my feet would burn. I never really told

anyone about the burning, but the callouse's were horrible. I can bend my ankles

somewhat. I have an elevated board I use to stretch the tendons. Because I can't

really bend my ankles I can't get down on my hands and knees to clean my

bathtubs, etc. My husband is a God send, he helps me in every way with the

house. I no longer drive, because there is virtually no feeling in the bottoms

of my feet and occasionally I will get a sharp pain in one of my feet and that

sends me to " the Moon " for a few seconds.

Doesn't happen often, but often enough. My feet look so horrible because of the

surgeries I wouldn't want a pedicure, the technition would run away screaming.

How long have you had CMT? I was diagnosed in 1997.

I remember when I was a kid one of my uncles had feet problems, as well

as a cousin. Back then no one knew what CMT was.

Good old white vinegar. I used to use it to rinse my hair. Talk about

squeeky clean !

[Guest guest]

,

To answer the questions about how long I've had it . . . all my life. How

long I've known, different story. ; ) My mom was adopted so we didn't know any

history. She had a lot of foot problems that were attributed to other

things. Although she took me to a bunch of doctors for the way I walked, none

of

them said anything but it was all in my head. The podiatrist I mentioned before

suggested the CMT to me in 1999. I was officially diagnosed by the blood

test through the MDA clinic in 2001.

Just a little FYI . . . I took those postings about ascorbic acid to my

herbalist today. He tested me with a few different vitamin C things. One

tested

huge and I'm beginning taking them tonight. Why wait . . . it tested that I

was deficient and that it would be of strong benefit to me so we will see. I'll

keep you all posted.

[Guest guest]

Burning Feet yup -- I had 'em! thought I had athlete's foot--2 months later, my right foot got a big numb spot in the arch--that's how I got diagnosed. As my feet got more numb, the burning stopped. Now that my feeling is coming back, on LDN, I've had a bit of burning again, from time to time but it goes away in a few hours or a day.

daphne