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Hi,

Thanks for the good wishes for my birthday today...This group means a lot to

me and I feel that we are a family of our own...Wouldn't you know that the

first Happy Birthday I received today was from our group..thank you for

being a big part of my life!!!

Good Lord...how did I get to age 52? eeegads!!

With Love

Joanne

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  • 1 year later...
Guest guest

Tess, don't worry about anything but getting better.

What about a second opinion?

[ ] To All

> Dear Ones...I know I have not been as actively supportive as I was,

and

> I do feel so sorry about that. Please know I love each & every one of

> you, and you are in my prayers daily, if not more so. My arms feel

like

> they weigh 100 pounds each, and I can't seem to do nearly what I'd

like.

> First thing each morning I do my exercise regimine, then I am ready to

> sleep again. My Dr's think that's ok, but it hurts my heart to be so

> limited in functioning right now and so #^%!@ tired. I get worried

> about having MS or Myestenia Gravis as they once thought, or some

> cancer. But I really try to hand those worries to the Lord. My Dr's

> have run SO many tests. Please pray that this resolves. And never

> forget my deep love for you all, and prayers that we all will see

> brighter days ahead.

>

> Always....

>

> Tess

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Guest guest

Tess,

I know I speak for everyone here when I say that your love and

support never goes unnoticed or unappreciated. You need to take care

of yourself and let us pray for you to get better.

I will continue to have you in my thoughts and prayers every single

day.

All my love,

Alan

> Dear Ones...I know I have not been as actively supportive as I was,

and

> I do feel so sorry about that. Please know I love each & every one

of

> you, and you are in my prayers daily, if not more so. My arms feel

like

> they weigh 100 pounds each, and I can't seem to do nearly what I'd

like.

> First thing each morning I do my exercise regimine, then I am ready

to

> sleep again. My Dr's think that's ok, but it hurts my heart to be

so

> limited in functioning right now and so #^%!@ tired. I get worried

> about having MS or Myestenia Gravis as they once thought, or some

> cancer. But I really try to hand those worries to the Lord. My

Dr's

> have run SO many tests. Please pray that this resolves. And never

> forget my deep love for you all, and prayers that we all will see

> brighter days ahead.

>

> Always....

>

> Tess

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Guest guest

Tess,

I'm sorry you're feeling so bad right now. Please don¹t beat yourself up

for not being able to be supportive. You have always given so much of

yourself to the group. We understand when you feel so bad that everything

is such an effort. If all you can do is read and pray, that is a lot.

With all the tests that have been run and are negative, I'm thinking that

the pneumonia took a lot out of you and it will take time to get your

strength back. It's good that you are continuing to exercise, and I hope

each day brings a little more stamina.

Please keep giving your worries to the good Lord. Sometimes just worrying

about having a serious health problem can make you feel down and depressed

and then you feel even worse. When those negative and scary thoughts creep

in, try to think of something pleasant and cheery. You're carrying to many

burdens that are just extra baggage.

I can't forget the love you feel for this group. It shows in everything you

write.

I pray for you every day Tess.

a

> Dear Ones...I know I have not been as actively supportive as I was, and

> I do feel so sorry about that. Please know I love each & every one of

> you, and you are in my prayers daily, if not more so. My arms feel like

> they weigh 100 pounds each, and I can't seem to do nearly what I'd like.

> First thing each morning I do my exercise regimine, then I am ready to

> sleep again. My Dr's think that's ok, but it hurts my heart to be so

> limited in functioning right now and so #^%!@ tired. I get worried

> about having MS or Myestenia Gravis as they once thought, or some

> cancer. But I really try to hand those worries to the Lord. My Dr's

> have run SO many tests. Please pray that this resolves. And never

> forget my deep love for you all, and prayers that we all will see

> brighter days ahead.

>

> Always....

>

> Tess

>

>

>

>

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  • 5 months later...

Tess,

My prayers are with you in your tough times.

Remember that your family loves you and this family is here for you. If you

need to vent, we're all ears.

Noreen

[ ] to all

Dearest RA Family...I am having a really difficult time. Emotionally I

feel like I am 'under seige', and sometimes in this beautiful, colorful

time of year I have a real struggle because of past occurences. Not

feeling well physically doesn't help. I am doing many things that are

positive, and I know I'll get through this 'bad patch' with the love of

my family and the Lord. But the sadness, and painful rememberances are

pretty strong.

I'm sorry if I haven't been as supportive as I could be. I do love you

all and pray for you everyday. The desire to want to run down a bunny

hole and hide is very strong, but that is NOT a healthy thing to do.

So, here I am. Prayers requested.

(((((((((((((((My RA Family))))))))))))))))

All my love....

Tess

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I can really relate Tess, Oct thru Dec are very difficult for me

too. It seems as if my whole world fell apart starting in Oct ~ 2

years ago. If it helps any, you can reflect on how far you have

come since then... you aren't the same person... you are a stronger,

more compassionate, kinder person than the woman those painful

things happened to. We can't undo the past, but we can celebrate the

priceless wisdom that we have gained.

(((Tess)))

> Dearest RA Family...I am having a really difficult time.

Emotionally I

> feel like I am 'under seige', and sometimes in this beautiful,

colorful

> time of year I have a real struggle because of past occurences.

Not

> feeling well physically doesn't help. I am doing many things that

are

> positive, and I know I'll get through this 'bad patch' with the

love of

> my family and the Lord. But the sadness, and painful

rememberances are

> pretty strong.

>

> I'm sorry if I haven't been as supportive as I could be. I do

love you

> all and pray for you everyday. The desire to want to run down a

bunny

> hole and hide is very strong, but that is NOT a healthy thing to

do.

> So, here I am. Prayers requested.

>

> (((((((((((((((My RA Family))))))))))))))))

>

> All my love....

>

> Tess

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  • 7 months later...
Guest guest

Do you all remember when I told you about my son's girl friend

getting silicone implants, even after knowing what I went through.

Well two days ago. Its been what 3 weeks or so since she got them.

Her whole chest and face broke out in hives. She has never had hives

before.?????????????

Of course it has NOTHING to do with the implants.

I told my son that I'm going to start keeping a medical jornal on

her. See if anything else just pops up.

Only time will tell.

Love Cricket

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  • 6 years later...

I agree with you, Kathy.  Please reconsider whether you need to leave; all

voices are important!

I am already indebted to many on this site.  Again, some of the newer posts

reveal a seemingly long-standing conflict, but even with more recent posts that

indicate that it has nothing to do with the science, I don't know what it is all

about.  I do know that any new arena/field causes ripple reactions, and

sometimes leaders in advocacy have to mingle with the system in order to change

it.  Is that what is going on?  I have no more clarity than I did days ago

about

the origin of this rift.  Is it just personalities or is it a

connection/collaboration with other entities that is causing the issue?   I

won't belabor this beyond this message, but those who are in disagreement (about

something) are the very leaders of the site to whom I look for advice, and it's

unsettling to witness this break.  I'll now let go of my " need to know, " as

I've

asked several times for more information, and the answers I've been given are

vague at best.

Gratitude to all of you who have come before the " newbies " and created this home

for information and direction.  We need you all!

sally

________________________________

From: KathyB <calicocat477@...>

Sent: Thu, August 19, 2010 2:34:57 PM

Subject: [] To all

 

I'm more of a newbie since April. I understand many are in conflict over private

issues.  I wasn't going to comment but have to say this.

We appreciate all you have done & continue to. I'm very sorry to see respected,

generous good people leave.  We hope you'll reconsider.

Blessings, Kathy

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