Hi All!

[Guest guest]

hey carol. good to hear from you and thanks. well i did get a paycheck

yesterday. i took it to their bank and just my luck.....the funds haven't

cleared

yet. i hope your ebay business does well. i've never bought or sold anything

online yet. kathy in il

[Guest guest]

Nice to hear from you, Carol!

Sorry about the clinical trial, but I can understand why you wouldn't

want to do it. I hope your ebay venture is successful and that you can

obtain insurance soon.

[ ] Hi All!

> Hello to my RA-Support Family!

>

> I've missed you all so much. Tess, I'm really excited for you this

> weekend, but sorry to hear of your fall. I'm glad it wasn't worse,

> though, and I hope your soreness eases by tomorrow.

>

> Kathy in IL, I'm saddened so much that you have to fight to get paid.

> I'm so proud of you that you've been fighting the disease and got your

> job and are living your life. I know it's not easy. Nobody deserves

to

> get paid for their work more than you. That is one of the problems

with

> working for a small business. I didn't think a medical office would

be

> that way, though. I guess we all assume doctors have money coming up

> the wazoo.

>

> Kathi, congratulations on being published!!! That's very cool. I

hope

> we get an opportunity to read your story.

>

> I've been working hard at getting things off the ground with my little

> ebay venture. I've sold 16 items in the past two weeks. Not enough

to

> make a living, but I'm starting conservatively. I just published a

> website, and I'd love to get some input: Platinum Trends Website

> <http://www.canplat.com/platinumtrends.htm> . I've found a few

> wholesale sources, one that I'm going to be seeing and hopefully

> purchasing from soon. He said he has new with the tags 's

> Secret nightgowns that retail between $35 and $40, liquidation from

the

> mfr, for $3.50. I have to visually inspect the merchandise, though.

> Other than that I've been immersing myself in fashion, which seems so

> shallow but if it will get me health insurance and help me to make

> money, so be it. I've gotten some incredible items for myself for a

> steal, too. I guess that's a perk.

>

> This weekend Stan and I are headed to a wedding, and hopefully that

will

> go well. I'm on a diet and I've lost 2 lbs so far. I've only been

> dieting a week, though. Tess, if you have any diet hints - or anyone-

> I'd love to hear. I know losing a little weight will help my joints.

> I'm not overweight, but I'm toward the higher end of normal for my ht.

> I want to lose it now before it gets out of hand.

>

> My arthritis is about the same as always. After discussions with my

MD

> and my husband, I've decided to pass on the clinical trial. It's

really

> early in the clinical trial process, and I'm just not brave enough. I

> went on the oral MTX for the trial (have been on the injectible) last

> week, and I was vomiting for 2 days. I just don't have time to do

that

> right now. And if just the oral mtx makes me that sick, how sick will

> the two chemo type drugs make me? I've also realized that the oral

mtx

> doesn't work half as well as the injectible form. My MD said just

stick

> with it, and increase the injectible maybe. Besides, I'm working

toward

> health insurance. Hopefully I'll have it soon and won't need to do

any

> more clinical trials. I can't wait to hear how a does on the

> antibiotic therapy. I want to do it very much, but my rheumy keeps

> stalling when I ask.

>

> One thing I have to say is that it's good to have something I can do

> that is physically feasible and keeps my mind off my RA for a little

> while. I'm so sick of thinking about (and resenting) the RA most of

my

> waking hours. I just hope I stay healthy long enough to get this off

> the ground.

>

> I love you all, and I'm so grateful for the help, information and

> support you offer. If anyone ever needs me and I'm not online, just

> email me at carol@.... I'm on digest version right now, and

> some things seem to get lost.

>

> I did get the photos from when I saw Iris in TX. I'll post two to the

> files section soon.

>

> Love to all,

> Carol

[Guest guest]

hi jill i understand exactly about the dream thing..I just can't believe this is

happening..like you I am new to R A. Welcome back to posting. We will make it

through this.

Faith (california)

-------------- Original message --------------

Ok- I admit- I havent been posting- just reading. Remember me- I am

Jill. A relative newbie to RA and to the group.

Quick recap- found out I had RA back in Nov. I have been having issues

with finding a Rheumy but Praise God- finally found one who will

accept my insurance- and I have an appointment for June 20th. In the

meantime, my doctor has finally put me on Plaquinil-200 mg. She upped

me to 600mg of Celebrex daily ( it is helping and I will take my

chances until they pull it off the market) and still on the 5mg of

prednisone a day. We also added 600mg of Neurontin 3x per day. The

combo seems to be working. I am doing a little better. Physically,

anyway. I have not had to miss a work day- I can make it through the

day and deal with the pain.

Mentally- I am still shaky. I keep waiting for this whole thing to go

away. And its not happening. But I am still waiting. Maybe someday it

will- or I will wake up and it will all be a dream. It happened on

Dallas- it can happen to me, cant it?

Thanks for being here everyone. Even if I dont post much- I am here.

Jill

[Guest guest]

Hi there, Jill. I know the feeling. Even if I feel " ok "

physically, mentally I am just waiting for it all to just fall

apart. I know it will come, I just don't know when. I hope you

post more and good luck with you appointment. It's just too bad you

have to wait so long....Marina in Ohio-

-- In , Jill Watkins <jill.watkins@g...>

wrote:

>

> Ok- I admit- I havent been posting- just reading. Remember me- I am

> Jill. A relative newbie to RA and to the group.

>

> Quick recap- found out I had RA back in Nov. I have been having

issues

> with finding a Rheumy but Praise God- finally found one who will

> accept my insurance- and I have an appointment for June 20th. In

the

> meantime, my doctor has finally put me on Plaquinil-200 mg. She

upped

> me to 600mg of Celebrex daily ( it is helping and I will take my

> chances until they pull it off the market) and still on the 5mg of

> prednisone a day. We also added 600mg of Neurontin 3x per day. The

> combo seems to be working. I am doing a little better. Physically,

> anyway. I have not had to miss a work day- I can make it through

the

> day and deal with the pain.

>

> Mentally- I am still shaky. I keep waiting for this whole thing to

go

> away. And its not happening. But I am still waiting. Maybe someday

it

> will- or I will wake up and it will all be a dream. It happened on

> Dallas- it can happen to me, cant it?

>

> Thanks for being here everyone. Even if I dont post much- I am

here.

>

> Jill

[Guest guest]

Great news, Rogene!

Get plenty of rest and take care of yourself!

Kenda

> I'm BaaaaaaaaaaaaaaaK! . . . Everything went well . .

> . Not even any stitches . . . Just held together with

> a little glue. No dressing either, just a sports bra.

> I'll see what it looks like when I shower tomorrow

> (wash with soap)! . . Sentinal lymph node was free of

> cancer.

>

> I don't think I could have asked for better results,

> unless it's to be told that pathology doesn't think I

> need further treatment! I'll learn more on March 1 at

> my post-op visit.

>

> We went out for dinner (Italian) on the way home. Then

> I took a long nap.

>

> My biggest complaint was how cold I got - even with

> extra blankets.

>

> Thank for all the love and prayers,

>

> Love,

>

> Rogene

>

>

>

> Opinions expressed are NOT meant to take the place of advice given by licensed

> health care professionals. Consult your physician or licensed health care

> professional before commencing any medical treatment.

>

> " Do not let either the medical authorities or the politicians mislead you.

> Find out what the facts are, and make your own decisions about how to live a

> happy life and how to work for a better world. " - Linus ing, two-time

> Nobel Prize Winner (1954, Chemistry; 1963, Peace)

>

> See our photos website! Enter " implants " for access at this link:

> http://.shutterfly.com/action/

>

>

[Guest guest]

Rogene,

I am thrilled that you breezed through this, although I knew you would.

Lynda

At 07:43 PM 2/21/2006, you wrote:

>I'm BaaaaaaaaaaaaaaaK! . . . Everything went well . .

>. Not even any stitches . . . Just held together with

>a little glue. No dressing either, just a sports bra.

>I'll see what it looks like when I shower tomorrow

>(wash with soap)! . . Sentinal lymph node was free of

>cancer.

>

>I don't think I could have asked for better results,

>unless it's to be told that pathology doesn't think I

>need further treatment! I'll learn more on March 1 at

>my post-op visit.

>

>We went out for dinner (Italian) on the way home. Then

>I took a long nap.

>

>My biggest complaint was how cold I got - even with

>extra blankets.

>

>Thank for all the love and prayers,

>

>Love,

>

>Rogene

>

>

>

>Opinions expressed are NOT meant to take the place of advice given

>by licensed health care professionals. Consult your physician or

>licensed health care professional before commencing any medical treatment.

>

> " Do not let either the medical authorities or the politicians

>mislead you. Find out what the facts are, and make your own

>decisions about how to live a happy life and how to work for a

>better world. " - Linus ing, two-time Nobel Prize Winner (1954,

>Chemistry; 1963, Peace)

>

>See our photos website! Enter " implants " for access at this link:

><http://.shutterfly.com/action/>http://.shutterfly.co\

m/action/

>

>

[Guest guest]

Hi Rogene!

It's great to hear that things went well for you! I had every

confidence that your surgery would go perfectly and that there would

be nothing alarming. We will all be interested to hear the results

of pathology on March 1.

Take care of yourself, rest up, but if I know you, you'll be back at

full speed in no time flat!

Hugs,

Patty

>

> I'm BaaaaaaaaaaaaaaaK! . . . Everything went well . .

> . Not even any stitches . . . Just held together with

> a little glue. No dressing either, just a sports bra.

> I'll see what it looks like when I shower tomorrow

> (wash with soap)! . . Sentinal lymph node was free of

> cancer.

>

> I don't think I could have asked for better results,

> unless it's to be told that pathology doesn't think I

> need further treatment! I'll learn more on March 1 at

> my post-op visit.

>

> We went out for dinner (Italian) on the way home. Then

> I took a long nap.

>

> My biggest complaint was how cold I got - even with

> extra blankets.

>

> Thank for all the love and prayers,

>

> Love,

>

> Rogene

>

[Guest guest]

Hi Rogene, I'm so glad to hear that everything went well, and that

the lymph node was clear.

Sis

>

> I'm BaaaaaaaaaaaaaaaK! . . . Everything went well . .

> . Not even any stitches . . . Just held together with

> a little glue. No dressing either, just a sports bra.

> I'll see what it looks like when I shower tomorrow

> (wash with soap)! . . Sentinal lymph node was free of

> cancer.

>

> I don't think I could have asked for better results,

> unless it's to be told that pathology doesn't think I

> need further treatment! I'll learn more on March 1 at

> my post-op visit.

>

> We went out for dinner (Italian) on the way home. Then

> I took a long nap.

>

> My biggest complaint was how cold I got - even with

> extra blankets.

>

> Thank for all the love and prayers,

>

> Love,

>

> Rogene

>

[Guest guest]

Hi Lea,

Don't worry about what the lawyers think, my guess is that they believe your

story and are afraid but they have to act like they are not because they

have to. Just keep in mind that everyone gets a defense, whether they are

innocent or guilty and their lawyers act like they are innocent. Keep doing

what you're doing. If they know you aren't backing down, that will surely

worry them.

Kenda

> Darling Rogene:

>

> This is the best news. Thank god that you do not have cancer, all day

> yesterday while I was going through legal surgery, I would think of you.

> When we got home last night, I went straight to bed because I felt like I

> had been beaten up. There is no way that these lawyers will ever admit that

> these devices are deadly. How will we ever win this war? I guess the best

> way is to take them to trial and I will.

>

> Honey, please do something special to celebrate your good news. I'm sure

> that your husband is happy and it must have been a very stressful time for

> him.

>

> Sending tons of love........Lea and

> ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~```

> Hi all!

>

>

>> I'm BaaaaaaaaaaaaaaaK! . . . Everything went well . .

>> . Not even any stitches . . . Just held together with

>> a little glue. No dressing either, just a sports bra.

>> I'll see what it looks like when I shower tomorrow

>> (wash with soap)! . . Sentinal lymph node was free of

>> cancer.

>>

>> I don't think I could have asked for better results,

>> unless it's to be told that pathology doesn't think I

>> need further treatment! I'll learn more on March 1 at

>> my post-op visit.

>>

>> We went out for dinner (Italian) on the way home. Then

>> I took a long nap.

>>

>> My biggest complaint was how cold I got - even with

>> extra blankets.

>>

>> Thank for all the love and prayers,

>>

>> Love,

>>

>> Rogene

>>

>>

>>

>> Opinions expressed are NOT meant to take the place of advice given by

>> licensed health care professionals. Consult your physician or licensed

>> health care professional before commencing any medical treatment.

>>

>> " Do not let either the medical authorities or the politicians mislead you.

>> Find out what the facts are, and make your own decisions about how to live

>> a happy life and how to work for a better world. " - Linus ing,

>> two-time Nobel Prize Winner (1954, Chemistry; 1963, Peace)

>>

>> See our photos website! Enter " implants " for access at this link:

>> http://.shutterfly.com/action/

>>

>>

[Guest guest]

Rogene

I am so happy things went so well! I am sure your follow up visit

will go good too! Are you going to continue on your same protocol

for awhile or take a break from it? When will you get a chance to

go to arizona now? Take care

love, kathy

>

> I'm BaaaaaaaaaaaaaaaK! . . . Everything went well . .

> . Not even any stitches . . . Just held together with

> a little glue. No dressing either, just a sports bra.

> I'll see what it looks like when I shower tomorrow

> (wash with soap)! . . Sentinal lymph node was free of

> cancer.

>

> I don't think I could have asked for better results,

> unless it's to be told that pathology doesn't think I

> need further treatment! I'll learn more on March 1 at

> my post-op visit.

>

> We went out for dinner (Italian) on the way home. Then

> I took a long nap.

>

> My biggest complaint was how cold I got - even with

> extra blankets.

>

> Thank for all the love and prayers,

>

> Love,

>

> Rogene

>

[Guest guest]

Thanks Kathy,

I'm staying on the same protocol . . . The woman who

recommended NCD to me suggested continuing NCD at

maximum dose for six to eight weeks before dropping

down to maintenance levels.

Diet wise, I'm putting more grains back in my diet,

but staying off sugar! I'll continue to use the

infrared sauna regularly.

We're not going to Arizona this year . . . The season,

for square dancing, is almost over. I won't be ready

to square dance much for a week or so . . . We're

hoping next year will be a better year! We'll likely

take a fall trip to Colorado instead.

I slept ten hours straight last night . . . Incredible

for me! But, woke up with a little swelling, so I'm

using ice today. Still no pain though, so I'm very

pleased!

Hugs,

Rogene

[Guest guest]

Wow, it sounds like your body really needed the rest. Please make

sure to take it easy the next few days until everything settles back

down. I am sure you will love a trip to colorado in the fall!

Love, kathy

>

> Thanks Kathy,

>

> I'm staying on the same protocol . . . The woman who

> recommended NCD to me suggested continuing NCD at

> maximum dose for six to eight weeks before dropping

> down to maintenance levels.

>

> Diet wise, I'm putting more grains back in my diet,

> but staying off sugar! I'll continue to use the

> infrared sauna regularly.

>

> We're not going to Arizona this year . . . The season,

> for square dancing, is almost over. I won't be ready

> to square dance much for a week or so . . . We're

> hoping next year will be a better year! We'll likely

> take a fall trip to Colorado instead.

>

> I slept ten hours straight last night . . . Incredible

> for me! But, woke up with a little swelling, so I'm

> using ice today. Still no pain though, so I'm very

> pleased!

>

> Hugs,

>

> Rogene

>

[Guest guest]

Cherie,

I won't know what the next step is for a while . . .

Next week I'll find out what the pathology report on

the cancer says, then I'll see an oncologist and see

what's recommended. The surgeon who removed it is not

a cancer specialists.

I have an infrared sauna . . . I should have been

using it more while I was feeling so stressed! . . . I

had kind of gotten out of the habit when it got so hot

last summer.

I'll really be watching the acid thing though . . .

The Natural Cellular Defense I'm taking is supposed to

balance the body Ph and so is Miracle II Neutralizer.

.. . I won't be without one or the other from now on! I

know if I ever see my skin turn dark when I put my

rings on to really get on it! The ND I saw said that

cancer cannot survive in an alkaline body. People with

cancer are always acidic. . . The surgeon said our

bodies automatically maintain the right balance -

unless we are really sick! ???

I really let the dental surgery get to me . . . It

felt like a response beyond my control . ..

conditioning of sorts. I really wish I had asked for

help with the anxiety while it was going on. It didn't

occur to me and the dentist didn't offer anything.

They were taken back at how stressed I was over the

procedures. Maybe it wasn't the dental surgery that

caused the cancer - but since it wasn't there the year

before, I'm sure it contributed to it. It was almost

five months of having a sore to painful mouth. The

stress of the dental procedures was many times what

this lumpectomy has been. . . Kinda strange I guess.

Hugs,

Rogene

[Guest guest]

I had my gallbladder removed! It was a curse and a blessing! I am trying

to see the positive in it because I am being forced to eat a certain

way. I am 3 years post surgery. It has been a roller coster ride. I am

hoping to get some information on this site!

[Guest guest]

> I had my gallbladder removed! It was a curse and a blessing! I am trying

> to see the positive in it because I am being forced to eat a certain

> way. I am 3 years post surgery. It has been a roller coster ride. I am

> hoping to get some information on this site!

This is a group for people who do not want surgery. You could probably do a

Google search and find a group of people who have had the surgery and you

might be able to get better info from them. Of course, stay here, too,

because some people here may also be able to advise you. I hope you do

well.

Amber

[Guest guest]

Meaning My body doesn't tolerate fatty foods well. I am forced to eat

the way Ishould have a long time ago. Veggies and fibers. I am 31 and

I have two daughters. I suspect that my Gallbladder was giving me

trouble in my pregnacies. I just assumed it was apart of the pregnancy.

Looking back now it was my Gallbladder. I thought getting my

Gallbladder remved meant I could go back to eating the way I did before

the trouble and that is so not the case!

> >

> > I had my gallbladder removed! It was a curse and a blessing! I am

> trying

> > to see the positive in it because I am being forced to eat a certain

> > way. I am 3 years post surgery. It has been a roller coster ride. I

am

> > hoping to get some information on this site!

> >

>

[Guest guest]

From: sea_shell81@...Subject: hi all!Date: Tue, 13 Jan 2009 04:56:47 +0000

HI everybody! It has been awhile since i have posted.I have been busy and alittle tired .With the holidays i had some things i should have stayed away from. Im doing a detox perfect cleanse and fasting and feeling like myself again.I wanted to pass some info along that has helped me in the healing.There is a book im reading Herbal antibiotics By harrod buhner. This book has so much info.I pick it up from the library.It talks about grape seed extract it says gse and garlic are the 2 most powerful broad-spectrum antibiotics avaiable for use.It can kill anything from a fungi infection to strep,ear infection ,e coli,candida,helicobactor pylori,herpes,the flu and on and on.I put it in my tea in the morning.I even clean with at times. You have to mix water with it i use 3 or 4 drop in tea and give to my husband everyday and he has not gotten sick once.It is easy to hide and he didnt know at first but he knows i always sneak something in his tea.He found out because one day i decided to put more and it had a after taste. i put 10 drops and that was to much it settled to the bottom. hehe another great book it The detox miracle sourcebook By morse N.d. I love bernard jensen to. i think alot of you know im into alot of natural alternative and finding ways we can heal with foods and herbs.I know we can .I have healed myself naturally.Im amazed by myself. I get frustrated at times and think why did i eat that or why did i do this to myself.All i can do it start over and try again. i know we can all get down on are selfs. I have learned so much about myself and what i can do when i thought i couldnt. I know if i didnt have God it would be even harder.I know everybody will do different things and that is how we learn. One thing i learned is i have to questions doctor and ask question if you dont feel right about something. research yourself or ask other people. Ive learned when my gut tells me this is wrong then i should trust it. I know my body better then anybody else. Ive learned to let go of the angry ,hurt and the things that have happen to me. What good is it going to do me to be anger it only hurts me not the other person and people that have done me harm.also we reap what we sow. For me all i can do is forgive and trust God will answer my prayers.I pray we all will find answers and know there is hope.I felt by starting with myself and changing my heart things will change and they are . We can only control are selfs not others . I wanted to let know all know my girls 6yrs and 4yrs old are still doing great! I still watch the foods they eat and still do organic .They have so much energy.i can tell sometime when there bodys are getting out of balance.The teas i make help and probiotics are really helping and rescue remedy really helps and catnip. I gave my 4yrs old a massage tonight with castor oil and put catnip oil with it she loved .It will make her sleep great.I have given in and let them eat birthday cake and they both said after ward my stomach hurt so .They didnt like that. I still make there own snacks and it so much cheaper.We even are on a budget and only spend $100 a week at health food store.Planning it what makes it work.I give them and myself this tea.This tea really make me feel great and then i add alittle honey and the grape seed extract.I drink in summer time to it keeps me cool.Better then any sports drink.Herbal recipes for vibrant health By Rosemary GladstarI get my herbs at www.moutainroseherbs.com high calcium tea/nourishing tea 3 parts rose hips (high in vitamin c)2 parts lemon balm2 parts lemongrass2 parts oats straw1 part red raspberry 3 parts hibiscus2 parts nettles1 part alfafa2 parts peppermint or catnipI then sometime add catnip or called catmint very calming to the child and great for adults to. good for stomach aches,headaches,fevers,anxiety,cold and flu,inflammation,pain ,stress,digestion and sleep.I love it for the kids it is safe and really works fast.Easy to grow to.God bless you allHugs michele

Windows Live™ Hotmail®: Chat. Store. Share. Do more with mail. Check it out.Windows Live™: Keep your life in sync. Check it out.