Re: Advice required

January 16, 2006

Hi Mick, I live near Oxford & have had PPMS since Dec 2003 I went on 3.0mgs LDN in Feb 2004. All was well for 1 Year then I deteriorated in 2 seperate occasions. I asked around as you are doing & was advised not to use the Prescription Centre in Wisconnsin.( they are off the official list of suppliers due to bad compounding ) I changed to Dr Balahi's compounder in June & have stayed stable since. I am now going to try 4.0mgs for the first time. I try to cycle at least 20mls a week even though this is difficult. also walk as much as I can. Dr Lawrence maintains you should eat a no fat diet, wheat & diary free diet with suppliments to streghthen the immune system ( LDN on its own is not the answer ) Please see the attatchments Dr Lawrence sent

me. Cheers Eddie mickmac1uk <mickmac1uk@...> wrote: Could do with any advice that is going.My daughter is PP MS 29 years of age and on LDN(4.5mg).Been on 4.5mg for 6 months, after the first month on 3mg.Her stiffness has reduced but her numbness,leg weakness and general fatigue seem to be worsening. We are getting desperate and losing confidence.Any help will be appreciated.Regards:-Mick(in UK)

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<TD vAlign=top noWrap

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<TD width= " 100% " ><SMALL> " Eddie Yarker "

& lt;yarkere@... & gt;</SMALL> & nbsp; & nbsp;<A

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<TD width= " 100% " ><SMALL><A

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<TD vAlign=top noWrap

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<TD width= " 100% " ><SMALL>Sat, 07 Feb 2004 14:01:54

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& gt;From: " Dr Bob Lawrence " & lt;<A

href= " http://uk.f860.mail./ym/Compose?To=bob.lawrencentlworld & amp;\

YY=37156 & amp;order=down & amp;sort=date & amp;pos=0 " >http://uk.f860.mail./y\

m/Compose?To=bob.lawrencentlworld & amp;YY=37156 & amp;order=down & amp;sort=date\

& amp;pos=0</A> & gt;

& gt; " Eddie Yarker " & lt;<A

href= " http://uk.f860.mail./ym/Compose?To=yarkerehotmail & amp;YY=371\

56 & amp;order=down & amp;sort=date & amp;pos=0 " >http://uk.f860.mail./ym/Comp\

ose?To=yarkerehotmail & amp;YY=37156 & amp;order=down & amp;sort=date & amp;pos=0</\

A> & gt;

& gt;Subject: RE: Supply of LDN.

& gt;Date: Thu, 5 Feb 2004 02:45:29 -0000

& gt;

& gt;Ref: 04/YE01/01/MS (04YE01 is your personal reference number. Please

quote

& gt;it in any future correspondence)

& gt;

& gt;3rd January 2004

& gt;

& gt;Dear Mr Yarker,

& gt;

& gt;As an athlete I am sure it must be particularly tragic to be afflicted

with

& gt;MS. I am very sorry for any problems that you now experience.

& gt;

& gt;Without a doubt, I am sure that LDN represents the very best of all

the

& gt;treatments available for MS. Although the diet and nutrient

supplement

& gt;therapy also remain of prime importance, it is the LDN that will keep

you

& gt;stable and prevent any further progression of the disease.

& gt;

& gt;With diet and nutrient therapy I have remained almost completely

stable for

& gt;the last 16 years (I have had MS for 26 years). In the last two years

LDN

& gt;has added an additional dimension to my progress. My stamina and

stability

& gt;are now greatly improved (although I have been walking with crutches

for

& gt;the

& gt;last 15 years - mainly due to a severe leg injury rather than the

MS)and I

& gt;am now intent on getting this method accepted and adopted by the NHS,

by

& gt;one

& gt;means or another!

& gt;

& gt;Sadly, your consultant will almost certainly know nothing about the

LDN

& gt;method. Although this method of treatment has been used in the US

since

& gt;1985, most UK neurologists are shockingly ignorant of the science and

the

& gt;clear logic behind it.

& gt;

& gt;The primary problem is that the British Medical Establishment relies

& gt;entirely on the drug industry to tell them what is available and what

can

& gt;be

& gt;prescribed. I find it difficult to believe that a consultant never

ever

& gt;looks up research on his supposed speciality, on the internet. Most

& gt;neurologists have never even heard of LDN!

& gt;

& gt;You will find that GPs are often far more open-minded and will

consider and

& gt;think about the options that are presented to them. There are many

that

& gt;are

& gt;now openly prescribing LDN for their MS patients. Neurologists simply

& gt;dismiss LDN without even learning what it is all about.

& gt;

& gt;Despite the fact that the Swank diet has repeatedly demonstrated the

& gt;benefits of a low saturated fat diet in MS over the LAST 56 YEARS

(since

& gt;the

& gt;study started in 1948)you have probably already discovered that

& gt;neurologists

& gt;neither acknowledge nor offer advice on any aspect of dietary or

& gt;nutritional

& gt;therapy. If fact, if you suffer a relapse or exacerbation of the MS

you

& gt;will be invariably offered steroids, which, by suppressing both immune

and

& gt;adrenal function, we clearly know will actually accelerate the rate of

& gt;progression of the disease.

& gt;

& gt;As an athlete you will already realise that steroids also cause

& gt;osteoporosis, hypertension (high blood pressure) and diabetes.

& gt;

& gt;If you have the opportunity to talk to others with MS on the internet

you

& gt;will soon learn that most people receiving steroids are fully aware

that it

& gt;makes the condition worse.

& gt;

& gt;It is by now obvious, I am sure, that I am not only constantly

astounded,

& gt;but angry and frustrated by this insane attitude that such drugs will

help

& gt;MS. Steroids will initially appear to diminish some symptoms but the

& gt;penalty comes when they begin to wear off, leaving you in a state of

immune

& gt;and adrenal suppression, when even minor degrees of stress will

instantly

& gt;promote further deterioration of the MS.

& gt;

& gt;Please attend your appointment with your neurologist as you must.

Prepare

& gt;your questions beforehand from the knowledge that you have already

& gt;acquired.

& gt;Ask about diet, nutrient therapy and LDN; ask about beta interferon

and the

& gt;other, often lethal drugs that are used.

& gt;

& gt;Rememeber the answers that are given, then ask as many people actually

with

& gt;MS if they agree.

& gt;

& gt;Please let me know the results of the subsequent discussion.

& gt;

& gt;If you are already convinced of the potential benefits of LDN and your

GP

& gt;is

& gt;unwilling to provide it, as soon as you acknowledge the absence of any

& gt;contra-indicated drugs (see below), I will include your name at the

& gt;earliest

& gt;opportunity.

& gt;

& gt;As explained in the accompanying information sheets, LDN is a method

that

& gt;offers great benefits in stabilizing MS and preventing further

progression

& gt;of the disease. In use, it also appears to be effective in improving

some

& gt;specific symptoms, such as fatigue, muscle spasm, muscle strength, and

& gt;bladder function.

& gt;

& gt;Despite the fact that naltrexone has been in use in the US, in the

& gt;treatment

& gt;of MS, since 1985, and that the dose of the drug is extremely low with

& gt;minimal side-effects, it is important that you realize it must still

be

& gt;considered as experimental, and that the absence of side-effects and

the

& gt;occurrence of benefits cannot be guaranteed.

& gt;

& gt;With access to the Internet you can contact Dr Bihari & #8217;s website

directly on

& gt;www.low dose naltrexone.org for your convenience, a copy of the website

& gt;information on MS is also attached.

& gt;

& gt;In addition, because LDN stimulates the immune system and many of the

drugs

& gt;routinely used in the treatment of MS further suppress the immune

system,

& gt;LDN cannot be used in company with, beta interferon, methotrexate,

& gt;azathioprine, mitozantrone, steroids, or any other immune suppressant

drug.

& gt;If there is any doubt, please submit a full list of the drugs you are

& gt;presently taking so that their compatibility may be assessed

& gt;

& gt;Also, because LDN will also block the analgesic effects of any opiate

drugs

& gt;(includes codeine, dihydrocodeine, Tramadol, morphine, pethidine or

& gt;diamorphine) presently being taken the use of LDN will initially

greatly

& gt;increase the level of pain experienced. It is therefore advisable that

any

& gt;opiate-like drugs be discontinued at least two weeks before this

treatment

& gt;is initiated.

& gt;

& gt;LDN will have no adverse effects on any nutritional therapy that you

are

& gt;taking. I personally take both LDN and a vast range of nutritional

& gt;supplements.

& gt;

& gt;You may also find interest in some of the other treatment methods

& gt;available.

& gt;Information sheets, describing these, are attached

& gt;

& gt;Some of these methods, such as diet, zinc supplements, or the

& gt;anthocyanidins, I have found to be greatly beneficial. Others, such as

& gt;thalidomide or cannabis, both of which have been suggested as

treatments

& gt;for

& gt;MS, I am inclined to advise against.

& gt;

& gt;Also attached is a complete list of other available information sheets

(See

& gt;second E-mail). Please let me know if you would also like copies of

any of

& gt;these.

& gt;

& gt;Please allow yourself plenty of time to read and consider these

various

& gt;methods and, if you have any further questions or needs, I shall be

pleased

& gt;to advise you.

& gt;

& gt;I would also be grateful to know a brief history of your MS, what

drugs or

& gt;nutritional supplements that you take (include doses), your full home

& gt;address and telephone number, and your date of birth.

& gt;

& gt;Please let me know of any further needs.

& gt;

& gt;Yours sincerely,

& gt;

& gt;Bob Lawrence

& gt;

& gt;(Dr M R Lawrence)

& gt;

& gt; Minutes

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January 16, 2006

>

> Could do with any advice that is going.My daughter is PP MS 29 years

of

> age and on LDN(4.5mg).Been on 4.5mg for 6 months, after the first

month

> on 3mg.Her stiffness has reduced but her numbness,leg weakness and

> general fatigue seem to be worsening. We are getting desperate and

> losing confidence.Any help will be appreciated.

> Regards:-Mick(in UK)

>

============

Mick I responded to your same question on my forum...I hope my

suggestions help.

January 16, 2006

Sorry to hear it, but this is the reality of progressive MS that many of us

are dealing with. LDN appears not to work for everyone... Only those with

RRMS, from what I see.

Rae

[low dose naltrexone] Advice required

Could do with any advice that is going.My daughter is PP MS 29 years of age

and on LDN(4.5mg).Been on 4.5mg for 6 months, after the first month on

3mg.Her stiffness has reduced but her numbness,leg weakness and general

fatigue seem to be worsening. We are getting desperate and losing

confidence.Any help will be appreciated.

Regards:-Mick(in UK)

January 16, 2006

Mick,

I agree, try a different supplier.

> Could do with any advice that is going.My daughter is PP MS 29

years of

> age and on LDN(4.5mg).Been on 4.5mg for 6 months, after the first

month

> on 3mg.Her stiffness has reduced but her numbness,leg weakness and

> general fatigue seem to be worsening. We are getting desperate and

> losing confidence.Any help will be appreciated.

> Regards:-Mick(in UK)

>

January 16, 2006

--- In low dose naltrexone , " RaeAndDoug Bower " <radbower@c...>

wrote:

>

> Sorry to hear it, but this is the reality of progressive MS that many of us

> are dealing with. LDN appears not to work for everyone... Only those with

> RRMS, from what I see.

> Rae

>

> [low dose naltrexone] Advice required

>

> Could do with any advice that is going.My daughter is PP MS 29 years of age

> and on LDN(4.5mg).Been on 4.5mg for 6 months, after the first month on

> 3mg.Her stiffness has reduced but her numbness,leg weakness and general

> fatigue seem to be worsening. We are getting desperate and losing

> confidence.Any help will be appreciated.

> Regards:-Mick(in UK)

>

=======

I'm progressive-relapsing MS and LDN works just fine for me. Has had my

progression halted for 2 1/2 years now.

January 18, 2006

Rae, I have PPMS and LDN had stopped my progression for the past 2 1/2 yrs. It does work for us also. I watch my diet, take supplements, excersie the best I can. LDN needs some self help too. I know my 3 MS friends also have PP and SP and they have stabalized in the past 2 yrs also.

I am not saying it works for all, but please don't say it only works for RR MS. KIKI

October 20, 2007

Go to our FILES ON OUR WEBSITE AND YOU WILL SEE A FILE THERE CALLED nptECH sERVICES. sHE CAN GET ALL HER TESTS DONE THERE - BUT FIRST AND FOREMOST, i WOULD ASK HER TO ASK HER gp TO GIVE HER A FULL THYROID FUNCTION TESTS. iF SHE WRITES DOWN ALL HER SYMPTOMS FOR THE DOCTOR, HER gp WOULD UNDERSTAND WHY SHE IS REQUESTING THIS. Sorry for the caps.

The other thiong you could do is to get her to join this Forum.

Luv - Sheila

Advice required

Hi allI have a friend at work who has been suffering badly for the last couple of years. Her doctor has put her on anti depressents because thats all he can think it might be, but the more I experience and read about hypothyroidism the more convinced I am that that's what she has. I know that she would pay privately for tests and to see a doctor if only she could be diagnosed and treated. So my question is if she pays for tests where do you suggest she goes to get them done and what does she ask for?Thanks

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May 26, 2009

Hi Chantal,

80% of all gallstones are " silent " . the difference between experience

excruciating pain and no symptoms is just that but the situation is the same.

Gallstones are a sign of compromised function. So those that experience the

pain are coaxed to immediate measures; Those that do not get to continue as

" normal " ... Your mild symptoms are classic gallbladder. Removing the organ is

rarely the the best option though... Changing diet, lifestyle and becoming

pro-active before you experience worse is what this group is about. Welcome

back. All the best. Dive into the archives. Life is about (to) change... -D

Advice required

I posted to this site a while back because I had some episodes of pain under

my right breast bone. Both times it happened it was after eating pizza late at

night. I went to the doctor. She had me get an ultrasound. They found my

gallbladder wall thickening and my gallbladder full of stones. I knew about the

stones because I had tests done about 4 years back for other issues but since I

didn't have gallbladder symptoms I was not recommended for surgery. My doctor

referred me to a surgeon and he suggested I remove my gallbladder while I am

healthy so the procedure would be simple. If I get a stone lodged in a duct etc.

it could lead to emergency surgery and more complications.

I haven't had an " attack " if indeed it was a gallbladder attack for several

weeks now. I have been super careful and have really tried to eat healthier and

exercise more and I have managed to lose a few pounds as a result.

I have had more nausea due to a feeling of fullness in my throat though after

eating. I can't tie it to certain foods at this point but I am wondering if I

have GERD. I don't have chest pain along with in, no sour taste in my mouth etc.

Is it possible the GERD is caused by my gallbladder not functioning well?

Also there have been a few times that I have eaten what I wanted just to see

if I would have an attack(not convinced I need surgery) and I haven't had an

attack. I have eaten pizza and fries and no problem. I have made a point of

eating them earlier in the day though when I have done it.

Anyway sorry for the long post just so many questions....

Thank you for your time.

Chantal

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