Lyme in the gut

[Guest guest]

Interesting how bells palsy of the gut started (numbness and partial paralysis)

then shortly after the bells palsy of the face began. For years I even had

trouble smiling, and just felt awkward when I did try to smile.

I also find it interesting how healers/practitioners work on the face on both

sides of the nose (where Bells Palsy symptoms are experienced) to treat

intestinal problems. When I used an EDTA suppository for the very first time I

felt more parastalsis the next day but also had less numbness in my face! It

will be good to know if all of my bells palsy of the face goes away as I

continue to fix all of my digestive problems.

Dr Klinghardt did talk about neurotoxins traveling up the nerves from the gut

into the brain so maybe thats when the Bells Palsy of the face begins to

manifest?

Brad

ps to get the links to work you have to copy and paste into a web browser then

remove the spaces in the url ( creates those anoying spaces).

Here's a post from the now disbanded Lyme and Rife forum:

Poor motility and the pathogenic/toxin link:

Thank you, Jim for this info. I do have gut problems... no pain left

side, but right side upper which is supposed to be gall bladder. Had

that scanned and am hearing that really only tells if stones, but if

the GB is even functional. I also can have motility issues. I have

pain, but bearable. Just sick of the wrecked digestive tract and

working on probiotics as well as a round of flagyl recently. Thank

you for this very thorough information. How is you gut now? Robin

>

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> Hi Robin,

>

> I don't have a webpage directly relating to Bb living in the myelin

sheath of the nerves of the gut but I will explain how I learned of

it.

>

> In 1991, I came down with unexplained abdominal pain (left side)

and in 1993, it was finally dxd as a " motility disorder of the gut, "

but the reason as to why I had this was a mystery. I was the second

worse case in a large teaching hospital. By 1996, it was so bad, I

went exploratory surgery of my gut, all appeared normal. In 2002, it

worsened to a " 911 " condition and two months later, another

exploratory surgery, again all appeared normal. In 2003, four celiac

plexus nerve blocks with steroids were done on me, the first one

completely eliminated my pain for 6 weeks. The celiac plexus is the

block of nerves going to all the abdominal organs, including the gut,

the positive effect of this block suggested gut nerve damage, but not

the reason why. During this time, my wife contracted Lyme from a tick

bite and in four months she was in the chronic phase. As she was

telling me about her symptoms, I thought I too have some of the same

symptoms since the nerve blocks, but thought nothing of it as I

wasn't bitten be a tick and couldn't have Lyme. In 2005, I was given

four more steroid nerve blocks and during the next four months I was

in the ER 5 times for a lot of different symptoms, the ER offered no

help. Dec 26th, 2005, I awoke with the worst flu, remained in bed for

2 weeks and never recovered. A few20weeks later, I realized a lot of

my symptoms were similar to my wife's, checked a Lyme symptom list, I

had 12 symptoms, eventually 22. Knowing how difficult it was for my

wife to find a LLMD to treat her " confirmed " Lyme, I knew it would be

almost impossible to find one here in Jax to treat chronic Lyme but I

started making appointments. At the same time I joined the Lyme

Strategies group and shortly after, a good friend posted the Dr.

Sherr paper " Bells Palsy of the Gut. " Â When I read " faulty gut

motility " , this was the dx I was given back in 1993 and I knew that

had to be my first Lyme symptom. I had already seen 5 doctors in

early 2006, none knew anything about Lyme, most didn't think it was

in FL. I knew I was in trouble.

>

> http://www.thehumansideoflyme.net/viewarticle.php?aid=62

>

> There's only one LLMD in Jax, previously he refused to see me as I

didn't have a positive Lyme test. Armed with Dr. Sherr's paper, my

PCP convinced this LLMD he needed to see me and so he did. I

presented him her paper and when he read it, he said his group was

familar with Bb living in the myelin sheath of the gut and since I

was dealing with severe abdominal pain, had a positive celiac plexus

block and had over 20 Lyme symptoms then and two exploratory

surgeries that showed no organic problems, he dxd me with Lyme and

and began treatment. This paper was the clincher as he already knew

about Lyme living in the nerves of the gut for a long time without

all the usual Lyme sy

> mptoms, he took me with 2 current negative Lyme tests.

>

> There does not seem to be much info on the 'net about Bb living in

the myelin sheaths, but I do have one site that does reference it,

although not necessarily in the gut, but rather in general.

>

http://74.125. 47.132/search?q=cache:3XNFiLJGy4o J:www.livingnatu rally.com/

PDFDocs/x/ XBQ21NLHC3048G3CLDAM3T2N89L2B0V0. PDF+lyme+ bacteria+ living+Myelin &

hl=en & ct=clnk & cd=8 & g

l=us & client= firefox-a

>

> <<<<Page 3

>

> Where are they likely to be hiding? Apparently, unlike bacteria,

they prefer a

> viscous environment, not a fluid one. They only use the blood as a

highway to get to

> their destination. Some favorite spots are soft tissue in the knee

(feels like arthritis),

> the aqueous humor (eye problems), myelin sheaths (nerve damage,

Bell’s palsy), and

> soft tissue around the heart (carditis).

>

> The reference of " Bells Palsy of the Gut " is very similar to Bells

Palsy on the face. The nerves are damaged, and where the face sags,

so does the gut, it stops working everything south and acutually will

have north, south movements and at times, no movements.

>

> Since joining these groups, I have met others also dealing with

left side abdominal pain, this is very different from the abdominal

pain I researched on the 'net, all of which was on the right side.

Some of these Lymies also said they had abdominal pain before other

symptoms. I actually at the time could find no others on the 'net

with left side abdominal pain and of all Lymies complaining of

abdominal pain, almost all have left side

> pain, which it is almost certain to be a motility disorder of the

gut caused by Lyme. The one's complaining of right side pain felt it

was coming from the liver.

>

> I am not sure if this pain ever goes away, even after all Lyme

symptoms may be gone. I guess the question is does the myelin sheath

ever heal from this? So far, I haven't been able to establish any

kind of of an answer.

>

> Robin, if you have abdominal pain, I really feel for you. There's

just so little info out there for those of use suffering from

abdominal pain caused by Lyme.

>

> Take care,

> Jim