newbie

March 14, 2002

, welcome to our group. It's so kind of you to be here on Jean's

behalf.

If you feel you can disclose where specifically in Canada you are, maybe

some of our Canadian members can recommend a different rheumatologist

for Jean. A second opinion may be in order.

I'm quite concerned that you report that Remicade " almost killed her "

yet her doctor is thinking of giving her Enbrel. Enbrel and Remicade

work in very similar ways, and I'm not sure that is the best idea. Of

course, I don't know the details about what the nature of her adverse

reaction was, but getting another doctor's input on this issue may be a

wise idea. In addition, use of Remicade and Enbrel in lupus is

controversial.

It also disturbs me that she is suffering from so much pain. Are

Celebrex and methotrexate her only two meds? If she is in a lot of pain,

the doctor should be trying something else and certainly not waiting

until she gets the OK for Enbrel. Opioids (narcotics) are taken by

several of our members and offer substantial pain relief for many people

and for various conditions. Unfortunately, many physicians shy away from

prescribing opioids for a myriad of reasons, not many of which center

around concern for the patient. If her current doctor will not treat her

pain immediately, that is another reason to seek another opinion or go

to a pain clinic.

Re: [ ] Newbie

> Hi there,

> I'm not writing for myself, but for a very dear friend. I thought I'd

try to find something to help her with her suffering. My friend,

is 61 years old. She's had RA since her late 30's. Jean's had one elbow

replaced, twice; a knee replacement 14 years ago, and which they have

tentatively scheduled for next month to redo; both wrists are fused; she

has rods in her toes, and she's been in a terrible flare for 9 months

now. Her whole body is inflammed and just eating away at her joints.

> She also has Lupus and Sjorgren's Disease, which brings along it's own

set of problems. Nothing the drs have been giving her has been able to

help her with this flare. Her stomach is very sensitive and she can't

take a lot of medications anymore. She takes Celebrex and Meth....sorry,

I don't know how to spell that one She had cortisone shots, again,

just before Christmas, and has been on prednisone, more than she should,

over the last few months. It seems to be the only thing to give her

relief.

> Last August she was placed in the test trial for Remicade (we're in

Canada), and it almost killed her. She had a very severe reaction to it,

which really upset her because she wanted so badly for something to

work.

> I'm so sorry for going on so long about this, but I'm desperately

trying to find something, anything, that may help my friend get some

relief from her constant pain. She's at the point where she can do very

little anymore. has always been a VERY strong person and has never

let her condition get her down or slow her down. She's always amazed me

at how much she could do, so it's terrible to see her suffer so. She

just saw her specialist yesterday and he's going to fill in the paper

work for her to start using Enbrel (sp). If anyone has anything that

they know could possibly help, please let me know. I really hate to see

her suffer so. Thanks

>

> Take care

>

March 14, 2002

Hi ,

Thanks for the quick reply

If you feel you can disclose where specifically in Canada you are,

Sudbury is the closest/largest city around. The next closest rheumy would be

Toronto...a 5 hour car drive for us. Neither nor her husband are up to

that kind of trip. I drove her down to Toronto to see an eye specialist in

January and that just about did both of us in. I have Fibromyalgia and Graves

disease, so we make quite the pair She's been seeing her dr for many, many

years and is quite happy with him. He's just at a loss at what to do for her

that won't make her sicker.

I'm quite concerned that you report that Remicade " almost killed her "

yet her doctor is thinking of giving her Enbrel.

I went to the " trial " treatment with her and within 40 minutes she started to

cough and choke and couldn't stop...couldn't get her breath. She sounded like

she was going to choke...almost like convulsions. Her BP was affected too, but

i'm not sure how. I had to fight with the nurse to stop the IV until the dr

could check out. After 30 minutes the dr arrived and called Montreal, the

head office where the Remicade was being distributed, and they said to take her

off the drip, immediately, and to not put her back on.

Enbrel and Remicade

work in very similar ways, and I'm not sure that is the best idea.

In addition, use of Remicade and Enbrel in lupus is

controversial.

Thanks for this information. I'll make sure to call her and tell her about it.

I think she's so tired of fighting, that she's not thinking straight.

It also disturbs me that she is suffering from so much pain. Are

Celebrex and methotrexate her only two meds?

The only " pain " meds she can stomach are plain old Tylenol...which does

nothing. Everything else upsets her stomach and she vomits. He gave her some new

pain meds last week. said they were some kind of narcotic. She had to stop

after three days because she was so sick. She has to be very careful about

taking anything that will make her vomit because she has " rheumatoid cysts " ...I

think that's what she called it. Her bones are so very " thin " that they break

easily, and the wretching has the possiblity of doing a lot of damage.

Opioids (narcotics) are taken by

several of our members and offer substantial pain relief for many people

and for various conditions.

That must be what she was talking about...said it started with an " O "

If her current doctor will not treat her

pain immediately, that is another reason to seek another opinion or go

to a pain clinic.

Unfortunately, that's easier said than done when living in Northern Ontario

Our dr situation is the pits. I suffered for 10 years with Graves disease and

the drs up here kept saying it was all menopause related!! I had to go to

Toronto for my diagnosis. In order to see a specialist, people are on waiting

lists that are over a year long. I still can't find someone up here that

believes in Fibromyalgia.

Thanks for your help. I'm going to call and tell her about the Enbrel and

Lupus. Anything else you can offer, would be appreciated

Take care

March 14, 2002

..

> The only " pain " meds she can stomach are plain old

Tylenol...which does nothing. Everything else upsets her stomach and

she vomits.

THIS IS MY PROBLEM ALSO, SO THEY SWITCHED ME TO A MORPHINE PATCH...IT

LASTS 3 DAYS, AND REALLY TAKES THE EDGE OFF THE PAIN.

PENNY

March 15, 2002

Hi . I'm sorry is suffering so much. She has a lot to deal with.

Here is some information on Remicade:

More common side effects:

Abdominal pain; cough; dizziness; fainting; headache; muscle pain; nasal

congestion; nausea; runny nose; shortness of

breath; sneezing; sore throat; tightness in chest; unusual tiredness or

weakness; vomiting; wheezing

http://www.nlm.nih.gov/medlineplus/druginfo/infliximabsystemic203667.html#SXX25

This website has a side by side comparison of Enbrel and Remicade.

http://arthritis.about.com/library/weekly/aa060501a.htm

As you see, difficulty breathing is not listed

as a side effect for enbrel. It can make someone more susceptable to infections

and there has been some recent

concerns about it causing nerve damage, but it is in rare cases. I hope if she

tries enbrel, that it helps her.

I'm in my 4th year of using enbrel, and it is the only thing that has controlled

my inflammation. I though

it wasn't working, so I'd stop taking it only to flare and find out it was

working much better than I thought.

I love the fact that it saves my stomach from the side effects of the meds.

Does she take the mtx (methotrexate)

by injection or by pills? I couldn't take the pills becasue they destroyed my

stomach, but the injections

had no effect on my stomach.

I will keep in my prayers. You're such a sweetheart for helping her.

a

..

3/14/02 6:25:06 AM, Kirwan <evergreen@...> wrote:

>

> Date: Thu, 14 Mar 2002 09:25:06 -0500

>

> From: Kirwan <evergreen@...>

> Subject:Re: [ ] Newbie

>

> Hi there,

> I'm not writing for myself, but for a very dear friend. I thought I'd try to

> find something to help her with her suffering. My friend, is 61 years

> old. She's had RA since her late 30's. Jean's had one elbow replaced, twice;

> a knee replacement 14 years ago, and which they have tentatively scheduled

> for next month to redo; both wrists are fused; she has rods in her toes, and

> she's been in a terrible flare for 9 months now. Her whole body is inflammed

> and just eating away at her joints.

> She also has Lupus and Sjorgren's Disease, which brings along it's own set

> of problems. Nothing the drs have been giving her has been able to help her

> with this flare. Her stomach is very sensitive and she can't take a lot of

> medications anymore. She takes Celebrex and Meth....sorry, I don't know how

> to spell that one She had cortisone shots, again, just before Christmas,

> and has been on prednisone, more than she should, over the last few months.

> It seems to be the only thing to give her relief.

> Last August she was placed in the test trial for Remicade (we're in Canada),

> and it almost killed her. She had a very severe reaction to it, which really

> upset her because she wanted so badly for something to work.

> I'm so sorry for going on so long about this, but I'm desperately trying to

> find something, anything, that may help my friend get some relief from her

> constant pain. She's at the point where she can do very little anymore. Jean

> has always been a VERY strong person and has never let her condition get her

> down or slow her down. She's always amazed me at how much she could do, so

> it's terrible to see her suffer so. She just saw her specialist yesterday

> and he's going to fill in the paper work for her to start using Enbrel (sp).

> If anyone has anything that they know could possibly help, please let me

> know. I really hate to see her suffer so. Thanks

>

> Take care

>

March 15, 2002

I also wanted to ask if they gave benedryl with the Remicade. I've read

that taking benedryl with

the Remicade helps with the breathing side effects. Also if they slow down the

rate of the infusion, it also

helps.

a

March 15, 2002

Date: Thu, 14 Mar 2002 16:04:08 -0800

From: a <paula54@...>

Subject:Re: [ ] Newbie

Hi . I'm sorry is suffering so much. She has a lot to deal

with. Here is some information on Remicade:

More common side effects:

Abdominal pain; cough; dizziness; fainting; headache; muscle pain; nasal

congestion; nausea; runny nose; shortness of

breath; sneezing; sore throat; tightness in chest; unusual tiredness or

weakness; vomiting; wheezing

http://www.nlm.nih.gov/medlineplus/druginfo/

infliximabsystemic203667.html#SXX25

This website has a side by side comparison of Enbrel and Remicade.

http://arthritis.about.com/library/weekly/aa060501a.htm

As you see, difficulty breathing is not listed

as a side effect for enbrel. It can make someone more susceptable to

infections and there has been some recent

concerns about it causing nerve damage, but it is in rare cases. I hope if

she tries enbrel, that it helps her.

I'm in my 4th year of using enbrel, and it is the only thing that has

controlled my inflammation. I though

it wasn't working, so I'd stop taking it only to flare and find out it was

working much better than I thought.

I love the fact that it saves my stomach from the side effects of the meds.

Does she take the mtx (methotrexate)

by injection or by pills? I couldn't take the pills becasue they destroyed

my stomach, but the injections

had no effect on my stomach.

I will keep in my prayers. You're such a sweetheart for helping her.

a

.

3/14/02 6:25:06 AM, Kirwan <evergreen@...> wrote:

>

> Date: Thu, 14 Mar 2002 09:25:06 -0500

>

> From: Kirwan <evergreen@...>

> Subject:Re: [ ] Newbie

>

> Hi there,

> I'm not writing for myself, but for a very dear friend. I thought I'd try

to

> find something to help her with her suffering. My friend, is 61

years

> old. She's had RA since her late 30's. Jean's had one elbow replaced,

twice;

> a knee replacement 14 years ago, and which they have tentatively

scheduled

> for next month to redo; both wrists are fused; she has rods in her toes,

and

> she's been in a terrible flare for 9 months now. Her whole body is

inflammed

> and just eating away at her joints.

> She also has Lupus and Sjorgren's Disease, which brings along it's own

set

> of problems. Nothing the drs have been giving her has been able to help

her

> with this flare. Her stomach is very sensitive and she can't take a lot

of

> medications anymore. She takes Celebrex and Meth....sorry, I don't know

how

> to spell that one She had cortisone shots, again, just before

Christmas,

> and has been on prednisone, more than she should, over the last few

months.

> It seems to be the only thing to give her relief.

> Last August she was placed in the test trial for Remicade (we're in

Canada),

> and it almost killed her. She had a very severe reaction to it, which

really

> upset her because she wanted so badly for something to work.

> I'm so sorry for going on so long about this, but I'm desperately trying

to

> find something, anything, that may help my friend get some relief from

her

> constant pain. She's at the point where she can do very little anymore.

Jean

> has always been a VERY strong person and has never let her condition get

her

> down or slow her down. She's always amazed me at how much she could do,

so

> it's terrible to see her suffer so. She just saw her specialist yesterday

> and he's going to fill in the paper work for her to start using Enbrel

(sp).

> If anyone has anything that they know could possibly help, please let me

> know. I really hate to see her suffer so. Thanks

>

> Take care

>

April 1, 2002

i had a case of irritable bowel in my 20's. i felt i knew where every

bathroom in northern il is located. also during that time i contracted

giardia (parasite) from my son's daycare center. that was awful.boy was i

sick!!! they basically told me it was stress related, but my rheumi always

asks me about it. so they must be related. i took librax and then years

later weaned myself off. i have been fortunate not to experience this in i'd

say about 10 years. we should trade places jenn!! my parents live in fl and i

am in il!!! i hope you are able to find your " cocktail " and a job that you

can manage. kathy in il

April 1, 2002

Welcome, Jenn!

I am so sorry that you are having such a difficult time. It's terrible

that it is so hard to get to a rheumatologist when you need to, too.

Did the physician rule out fibromyalgia for you? Fibromyalgia can exist

in an individual alone or in combination with disorders such as lupus

and rheumatoid arthritis. Many of the symptoms you describe sound like

fibromyalgia could be a possibility.

I can imagine that is not easy for you to do your current job. Sorry. I

hope you find something that would be easier on your body.

Before I started aggressive treatment, I would want to know if it is

lupus or RA. I guess it would depend, too, what the doc means by

" aggressive. "

Yes, I do get fevers and a sore throat when I am worn down. I don't have

a solid diagnosis yet, so I'm not sure if that revelation will help you!

And I'm here in Naperville, Illinois. Maybe your parents live near me.

Sorry that you are so far from them. Do you have anyone else to support

you there?

[ ] Newbie

> Just wanted to introduce myself and for once not remain a lurker. I

> was so glad to find this group as I am definately in need of some

> support as I do not know anyone personally with RA. My name is Jenn,

> I'm 28 and I live in Southwest Florida. I began experiencing

> stiffness and pain in the fingers of my left hand in October 2001.

> My regular doctor couldn't get me into a rheumatologist for three

> months so I obtained an appt. at the Mayo Clinic in ville,

> Fl. Like my doctor but it's been ridiculous for me to have one that

> is 6 hours away. Seems difficult to near impossible to get one down

> here.

>

> Anyway, was initially diagnosed with mild lupus and put on Plaquenil

> and prednisone. Had a somewhat " normal " month from Jan. to Feb. and

> then the pain started getting worse to unbearable. Just got back

> from Mayo and now the doc is leaning more towards a diagnosis of RA.

> He told me that there isn't much difference between lupus and RA in a

> lot of ways including the treatments in the early stages. He feels

> the need to start aggressive treatment but has concerns about my

> irritable bowel issues. Does anyone know if this is a normal side

> effect of either med. or a symptom of RA? Does anyone else

> experience this?

>

> I'm in the middle of a huge flare and am feeling pretty sorry for

> myself. I'm in the process of looking for a new job as I work in

> retail management. Walking on a stone floor for 8.5 hours a day is

> killing me. I've started experiencing joint pain everywhere

> especially feet/toes, fingers/wrists, and hips. Unfortunately today

> I've begun having lower back pain also. Sorry for the long list of

> complaints/symptoms. Just looking to get to know others experiencing

> the same things. My parents live in IL. and I feel so bad telling

> them too much as they worry as it is.

>

> Thanks for letting me share and I have already learned much from this

> group. Looking forward to learning even more.

>

> Jenn:)

>

> P.S. I also seem to experience fevers when I am getting tired and

> also a sore throat. Does anyone else experience these things? How

> about feeling absolutely fatigued and then not sleeping well? I'd

> appreciate any feedback:)

April 1, 2002

Hi Jenn, and welcome! I'm pretty new as well. I live in Orlando, so we're

practically neighbors.

Your situation sounds so much like mine. Although at first there was the

thought of lupus, he's given me an RA diagnosis. I am on Plaquenil and

Methotrexate, and am having more and more good days. Has your

rheumatologist considered starting the Methotrexate? I do have some

queasiness with it, but it's been tolerable. And I have Phenergen in case

it get's too bad.

I'm sorry you're in a huge flare, I was in one for the first two months of

this year and I thought it would never end. Today my hips are unusually

sore, and I hope it isn't the beginning of a new one.

It's nice to hear from you, and I hope you start feeling better soon.

Carol in FL

[ ] Newbie

Just wanted to introduce myself and for once not remain a lurker. I

was so glad to find this group as I am definately in need of some

support as I do not know anyone personally with RA. My name is Jenn,

I'm 28 and I live in Southwest Florida. I began experiencing

stiffness and pain in the fingers of my left hand in October 2001.

My regular doctor couldn't get me into a rheumatologist for three

months so I obtained an appt. at the Mayo Clinic in ville,

Fl. Like my doctor but it's been ridiculous for me to have one that

is 6 hours away. Seems difficult to near impossible to get one down

here.

Anyway, was initially diagnosed with mild lupus and put on Plaquenil

and prednisone. Had a somewhat " normal " month from Jan. to Feb. and

then the pain started getting worse to unbearable. Just got back

from Mayo and now the doc is leaning more towards a diagnosis of RA.

He told me that there isn't much difference between lupus and RA in a

lot of ways including the treatments in the early stages. He feels

the need to start aggressive treatment but has concerns about my

irritable bowel issues. Does anyone know if this is a normal side

effect of either med. or a symptom of RA? Does anyone else

experience this?

I'm in the middle of a huge flare and am feeling pretty sorry for

myself. I'm in the process of looking for a new job as I work in

retail management. Walking on a stone floor for 8.5 hours a day is

killing me. I've started experiencing joint pain everywhere

especially feet/toes, fingers/wrists, and hips. Unfortunately today

I've begun having lower back pain also. Sorry for the long list of

complaints/symptoms. Just looking to get to know others experiencing

the same things. My parents live in IL. and I feel so bad telling

them too much as they worry as it is.

Thanks for letting me share and I have already learned much from this

group. Looking forward to learning even more.

Jenn:)

P.S. I also seem to experience fevers when I am getting tired and

also a sore throat. Does anyone else experience these things? How

about feeling absolutely fatigued and then not sleeping well? I'd

appreciate any feedback:)

April 1, 2002

Hi Jenn,

I'm new to this group too. I'm in Pennsylvania. My RA was diagnosed about 2

years ago and I had some relief for a while after starting methotrexate and

Enbrel, but it seems like the Enbrel stopped working after about a year so my

rheumie stopped it. We have tried some other meds, but with no luck so far.

Right now my RA is a mess. I also take prednisone, which seems to be my only

relief right now. I do get headaches, fevers and sorethroats with it. I

hope you do find relief with your symptoms. I am lucky that there are many

good rheumatologist close in my area. I am about an hour away from

Pittsburgh, but my rheumie is only about 30 minutes away in Washington. I

contacted the arthritis foundation and they highly reccommended him. I am

happy and comfortable with him as he is very aggressive in treatment. This

is very important to me. I wish you good luck in finding someone closer to

home for you. Traveling can make symptoms worse sometimes.

Stacey

August 23, 2003

I just shipped a book to Australia and it cost $2.50 book rate. But i think

it takes 4-6 weeks to get there that way. Just to let you know it's an

option. I would volunteer to buy you a book and ship it that way if you

can't get one there.

Elaine

--

Natural parenting products for conception through weaning:

www.uniquebabyboutique.com/?elainefawcett

> From: " Hanneke " <blosshan@...>

> Reply-

> Date: Sun, 24 Aug 2003 01:45:31 +0930

> < >

> Subject: newbie

>

> Hi all,

>

> Could someone in Australia tell me where I could purchase a copy of Nourishing

> Traditions locally. Or do I have to get it from USA. ...if possible I would

> like to avoid the incredible postage charges .

>

> Thanks so much

>

> Hanneke~Australia

>

August 23, 2003

You might want to try contacting the WAPF chapter leader closest to you (by

the way, I thought there was one chapter in Austrailia... are these all

new???):

NSW

Bowral: and Sharon Bedford (02) 4862-4848, <A

HREF= " mailto:dewfoods@... " >

dewfoods@...</A>

Stuart Town: Sally (02) 6846 8261, <A

HREF= " mailto:tom_harris@... " >

tom_harris@...</A>

Sydney: Vicki Poulter (02) 996-74229, <A

HREF= " mailto:westonapriceaus@... " >

westonapriceaus@...</A> QLD

Bribie Island: Dr. Herbert H. Nehrlich (07) 3410-7999, <A

HREF= " mailto:DrHHNehrlich@... " >

DrHHNehrlich@...</A>

Brisbane: (07) 3841-8844 <A

HREF= " mailto:foods@... " >foods@...</A>

Buderim, Sunshine Coast: Roslyn Uttleymoore (07) 5456-2060,

<A HREF= " mailto:alohamanaretreat@... " >alohamanaretreat@...</A>

Bundaberg: Jill and Engelmann (07) 4151-1889, <A

HREF= " mailto:dr.jille@... " >

dr.jille@...</A>

Clayfield: Judy (07) 3262-6043, <A

HREF= " mailto:moxie@... " >

moxie@...</A>

Far North QLD (Tully): Bonny Sharon Bauer (07) 4068-6123, <A

HREF= " mailto:bonnyb@... " >

bonnyb@...</A>

Gold Coast: Mr. Abby Eagle (07) 5576-4270, <A

HREF= " mailto:abbyeagle@... " >

abbyeagle@...</A>

North Brisbane: Sven adn Tonnisson (07) 3856-3388, <A

HREF= " mailto:gaia@... " >

gaia@...</A>

Oxenford: Grimshaw- (61) 7-55-332-869, <A

HREF= " mailto:@... " >

@...</A> VIC

East Kew: V. Pope, (03) 9306-3364, <A

HREF= " mailto:maryvpope@... " >

maryvpope@...</A>

Fish Creek: n Organic Dairy Farmers Association (Bev ) (03)

5683-2340, <A

HREF= " mailto:orana@... " >orana@...</A> . Information and teaching

on

Biological and Mineral Rich Farming, Soil, Plant, Animal, Man . A monthly

meeting is

held with guest speakers and or farm walks, we also have an informative

quarterly newsletter.

In a message dated 8/23/03 12:18:31 PM Eastern Daylight Time,

blosshan@... writes:

> Hi all,

>

> Could someone in Australia tell me where I could purchase a copy of

> Nourishing Traditions locally. Or do I have to get it from USA. ...if

possible I

> would like to avoid the incredible postage charges .

>

> Thanks so much

>

> Hanneke~Australia

>

August 24, 2003

Hi Hanneke

We are in Oz too. We are at the Gold Coast. Where are you? Maybe we can

help you. There is a gentleman who directs the Biological Farms Tours

locally who had some copies, not sure if he still does. Email us direct if

you want to hook up.

Joanne

newbie

> Hi all,

>

> Could someone in Australia tell me where I could purchase a copy of

Nourishing Traditions locally. Or do I have to get it from USA. ...if

possible I would like to avoid the incredible postage charges .

>

> Thanks so much

>

> Hanneke~Australia

>

May 30, 2007

Monika Szumilak wrote:

> I am a Mac

I am a PC. no I am a Mac too.

> (Mac OsX operating system) user and I am having trouble

> downloading the DWIDP software from www.walford.com. I would love to try it

out to

> support my first steps in CR, and I was wondering if there are any Mac users

with suggestions

> about this? Many thanks!

Upgrade to Intel Mac and use parallels or boot camp to run windows programs

Positive Dennis

May 30, 2007

Hello Monika,

You can download CRON-o-Meter at

http://spaz.ca/cronometer/

It is a Java-based nutrition analysis program that runs on Mac, Linux,

and Windows.

Tony

CR Calculator

http://www.scientificpsychic.com/health/cron1.html

==

>

> Hello!

>

> My name is Monika and I am 32. I am new to this group and new to

CR. I am absolutely

> excited to have discovered research that supports my intuitive ideas

about food and eating. I

> am in the process of reading and researching all-things CRON. In

the meantime I just have

> one technical question. I am a Mac (Mac OsX operating system) user

and I am having trouble

> downloading the DWIDP software from www.walford.com. I would love

to try it out to

> support my first steps in CR, and I was wondering if there are any

Mac users with suggestions

> about this? Many thanks!

>

May 30, 2007

citpeks wrote:

> Hello Monika,

>

> You can download CRON-o-Meter at

> http://spaz.ca/cronometer/

>

> It is a Java-based nutrition analysis program that runs on Mac, Linux,

> and Windows.

>

> Tony

> CR Calculator

> http://www.scientificpsychic.com/health/cron1.html

>

Doesn't work; file empty.

Positive Dennis

> ==

>

>> Hello!

>>

>> My name is Monika and I am 32. I am new to this group and new to

>>

> CR. I am absolutely

>

>> excited to have discovered research that supports my intuitive ideas

>>

> about food and eating. I

>

>> am in the process of reading and researching all-things CRON. In

>>

> the meantime I just have

>

>> one technical question. I am a Mac (Mac OsX operating system) user

>>

> and I am having trouble

>

>> downloading the DWIDP software from www.walford.com. I would love

>>

> to try it out to

>

>> support my first steps in CR, and I was wondering if there are any

>>

> Mac users with suggestions

>

>> about this? Many thanks!

>>

>

May 30, 2007

I did finally get it to download. My problem not the site's.

Positive Dennis

March 16, 2009

We need some more info. How much do you weigh? How tall are you?

What is your typical current diet? (i.e. give us a sample day) You say you already eat a limited diet but we need to hear exactly what what an average day’s eating is like.

From: squaag <robertstorres@...>

Reply-< >

Date: Mon, 16 Mar 2009 02:35:06 -0000

< >

Subject: [ ] newbie

Hi

I have been reading about CRON for a year, during which I have read the books and watched a lot of videos. I have been paring empty calories off my diet and struggling to overcome compulsive/emotional eating habits that Roy Walford didn't mention-it seems that most CRONies seem to be able to make the decision and stick with it in a scientific and consistent manner. I already eat a somewhat limited and reduced calorie diet, simply because I have severe IBS-I cannot put much in my stomach at any one time, and have to avoid fructose, fats, fried food, soy, oil, insoluble fiber, etc etc.

Having read his books, I foolishly made myself a Walford's salad, and it was delicious! But it absolutely killed me for 2 days, as I had forgotten that I can't handle raw veggies at ALL. Furthermore, my attempts to further reduce caloric intake, even slightly, have resulted in feeling shaky, irritable, starving hungry, and frantic during the afternoon and evenings, when I have always eaten the bulk of my calories. The " hungry " I can take-it's not a bad feeling. I feel alert. I can understand how cronies say they've never felt as good. But from 2:30 on, (when the kids get home hungry) I am preparing food almost nonstop for my family, (toasted cheese sandwiches, or homemade bean burritos, fruit, even spaghetti-the kids NEED calories!) until 9:30 pm when my husband comes home, (he likes his calories too) and it's pure torture! By then I feel vicious & weak with hunger. I am afraid to eat anything at all at this point, for fear I won't stop. When the emotional eating! thing kicks in-as it does when I get very very hungry or agitated, I have no sensations of fullness at all, then the IBS flares up. I must always be vigilant about avoiding getting too hungry.

This is not healthy for me or the kids, but I really want to practice calorie restriction for myself successfully, I know it is right for me and will keep trying, so does anyone have any tips on 1) how to handle the blood sugar/irritability/deprivation issues, get through everyone else's dinner hour(s), and 2) how to be sure to get the ON when you can't eat fruit, or raw veggies or soy. I have tried toasting the salad greens with a sliver of nonfat cheese, onion, mustard and salsa in a sandwich between 2 pieces of hemp bread (200 calories in bread, 90 in cheese) and do much better digestion-wise-but that's hardly the tons of veggies a cronie eats for nutritional requirements.

I would appreciate any help, and if you haven't the time, who could help me get started? Is there something I could read on CRON for IBS/hypoglycemic people?

-Thanks

CRT

March 16, 2009

Thanks for your prompt reply. I used the Cron-o-meter to take a good honest look

at what I normally eat-and it is whatever doesn't upset my IBS. My daily diet

was heavy on the carbs and fat. I am 5' 7, and 140 lbs, and exercise quite a

bit, including weight training, so I have some muscle Still, 5-10 lbs is clearly

extra fat. First thing in the morning, with coffee, I have 1 wheat free waffle

(60 calories) with 1 Tbs of peanut butter and a tsp of blackberry jam. Then I

exercise, typically for an hour to an hour and a half, 4-5 times a week. Then

between 1 and 4 pm I have 2 crackers with cheese, or a cheese and spinach

sandwich. I am never very hungry til afternoon. Then I typically graze all

evening, mostly bread, peanut butter, a little cheese, a saucerful of whatever I

make for the kids. Not nearly enough veggies, no fresh fruit. Far far too much

salt. I hadn't realized how much I was actually eating, since I am sensitive to

it and try to avoid salty foods. I don't know how many calories, since some

things I can't measure.

Over the last couple of weeks I've cut the evening gak (bread, cheese, chocolate

milk, etc) and tried to eat salads, steamed veggies, and have suffered nonstop

agonizing cramps bloating and gas. (Sorry, but I don't know what to do about

it). Without the fattening gak-I've begun to lose fat, already, but feel shaky

and starved without the gak carbs. My husband complains I look gaunt and drawn.

I feel weak. No cronie that I've read has complained of feeling weak. Maybe

it'll just take some time. Protein is a problem-I don't eat meat or chicken, but

I eat salmon or sardines 1-2x a week. Bad reactions to soy. I love chickpeas but

they hurt me too. I take a good quality multi-vit, and extra b vitamins and

cal/mag. Because of the IBS I know I have malabsorption of nutrients-but don't

know which ones.

Thanks

CRT

>

> We need some more info. How much do you weigh? How tall are you?

>

> What is your typical current diet? (i.e. give us a sample day) You say you

> already eat a limited diet but we need to hear exactly what what an average

> day¹s eating is like.

>

> From: squaag <robertstorres@...>

> Reply-< >

> Date: Mon, 16 Mar 2009 02:35:06 -0000

> < >

> Subject: [ ] newbie

>

> Hi

>

> I have been reading about CRON for a year, during which I have read the

> books and watched a lot of videos. I have been paring empty calories off my

> diet and struggling to overcome compulsive/emotional eating habits that Roy

> Walford didn't mention-it seems that most CRONies seem to be able to make

> the decision and stick with it in a scientific and consistent manner. I

> already eat a somewhat limited and reduced calorie diet, simply because I

> have severe IBS-I cannot put much in my stomach at any one time, and have to

> avoid fructose, fats, fried food, soy, oil, insoluble fiber, etc etc.

>

> Having read his books, I foolishly made myself a Walford's salad, and it was

> delicious! But it absolutely killed me for 2 days, as I had forgotten that I

> can't handle raw veggies at ALL. Furthermore, my attempts to further reduce

> caloric intake, even slightly, have resulted in feeling shaky, irritable,

> starving hungry, and frantic during the afternoon and evenings, when I have

> always eaten the bulk of my calories. The " hungry " I can take-it's not a bad

> feeling. I feel alert. I can understand how cronies say they've never felt

> as good. But from 2:30 on, (when the kids get home hungry) I am preparing

> food almost nonstop for my family, (toasted cheese sandwiches, or homemade

> bean burritos, fruit, even spaghetti-the kids NEED calories!) until 9:30 pm

> when my husband comes home, (he likes his calories too) and it's pure

> torture! By then I feel vicious & weak with hunger. I am afraid to eat

> anything at all at this point, for fear I won't stop. When the emotional

> eating! thing kicks in-as it does when I get very very hungry or agitated, I

> have no sensations of fullness at all, then the IBS flares up. I must always

> be vigilant about avoiding getting too hungry.

>

> This is not healthy for me or the kids, but I really want to practice

> calorie restriction for myself successfully, I know it is right for me and

> will keep trying, so does anyone have any tips on 1) how to handle the blood

> sugar/irritability/deprivation issues, get through everyone else's dinner

> hour(s), and 2) how to be sure to get the ON when you can't eat fruit, or

> raw veggies or soy. I have tried toasting the salad greens with a sliver of

> nonfat cheese, onion, mustard and salsa in a sandwich between 2 pieces of

> hemp bread (200 calories in bread, 90 in cheese) and do much better

> digestion-wise-but that's hardly the tons of veggies a cronie eats for

> nutritional requirements.

>

> I would appreciate any help, and if you haven't the time, who could help me

> get started? Is there something I could read on CRON for IBS/hypoglycemic

> people?

>

> -Thanks

> CRT

>

March 16, 2009

If I were you I’d forget about CRON for the time being and concentrate on getting well. You are not overweight and there’s no hurry. You don’t mention any medical care for your problem. I would get the best specialist I could find, and have her recommend an excellent nutritionist (most of them are awful so you need to find one that knows what he/she is doing). Perhaps Jeff Novick or someone else in the group knows a good medical specialist/nutritionist in your part of the world that could help you.

Apparently you can tolerate fruit in the way of jam. There are “allfruit” jams (nothing but fruit in them). Also you note below that you eat spinach – a very healthy vegetable. If you’re eating the commonly sold peanut butter, ditch that and get the healthy (no salt, no sugar, just peanuts) nut butter from a health food store. Also one can buy no salt, water based, canned tuna and salmon.

If you can tolerate cooked vegetables, you can eat legume based soups, such as lentil and split pea. It’s simple to make your own without salt. Add to it in what you can easily eat (spinach, mushrooms?, nori, tomatoes, or whatever you can easily tolerate).

Oatmeal is a good breakfast food. I eat it almost daily. You can buy whole grain breads without wheat or gluten – usually oat based. You can also buy rice based pastas at health food stores and Trader Joes.

It sounds like you eat way too much cheese/dairy (a bad source of fat and calories). And dairy causes allergies in many people.

They are doing fabulous things with allergies these days. Apparently peanut allergies are being conquered by introducing minute amounts slowly in children. I conquered my own Brazil nut allergy this way on my own.

Get the best medical help you can and worry about the CRON later.

From: squaag <robertstorres@...>

Reply-< >

Date: Mon, 16 Mar 2009 03:46:16 -0000

< >

Subject: [ ] Re: newbie

Thanks for your prompt reply. I used the Cron-o-meter to take a good honest look at what I normally eat-and it is whatever doesn't upset my IBS. My daily diet was heavy on the carbs and fat. I am 5' 7, and 140 lbs, and exercise quite a bit, including weight training, so I have some muscle Still, 5-10 lbs is clearly extra fat. First thing in the morning, with coffee, I have 1 wheat free waffle (60 calories) with 1 Tbs of peanut butter and a tsp of blackberry jam. Then I exercise, typically for an hour to an hour and a half, 4-5 times a week. Then between 1 and 4 pm I have 2 crackers with cheese, or a cheese and spinach sandwich. I am never very hungry til afternoon. Then I typically graze all evening, mostly bread, peanut butter, a little cheese, a saucerful of whatever I make for the kids. Not nearly enough veggies, no fresh fruit. Far far too much salt. I hadn't realized how much I was actually eating, since I am sensitive to it and try to avoid salty foods. I don't know how many calories, since some things I can't measure.

Over the last couple of weeks I've cut the evening gak (bread, cheese, chocolate milk, etc) and tried to eat salads, steamed veggies, and have suffered nonstop agonizing cramps bloating and gas. (Sorry, but I don't know what to do about it). Without the fattening gak-I've begun to lose fat, already, but feel shaky and starved without the gak carbs. My husband complains I look gaunt and drawn. I feel weak. No cronie that I've read has complained of feeling weak. Maybe it'll just take some time. Protein is a problem-I don't eat meat or chicken, but I eat salmon or sardines 1-2x a week. Bad reactions to soy. I love chickpeas but they hurt me too. I take a good quality multi-vit, and extra b vitamins and cal/mag. Because of the IBS I know I have malabsorption of nutrients-but don't know which ones.

Thanks

CRT

>

> We need some more info. How much do you weigh? How tall are you?

>

> What is your typical current diet? (i.e. give us a sample day) You say you

> already eat a limited diet but we need to hear exactly what what an average

> day’s eating is like.

>

> From: squaag <robertstorres@...>

> Reply-< <mailto: %40> >

> Date: Mon, 16 Mar 2009 02:35:06 -0000

> < <mailto: %40> >