newbie

March 20, 2009

Thanks Liz, I have tried the enzymes so many times, and so far, haven't

experienced any relief. Just trying to swallow a pill that smells like

vomit-always fun isn't it? It is news to me that pancreatin is healing though. I

am 'alternative' unless something in the 'regular department' looks good. Maybe

I'll try that one again. My problems are life long, and I was tested for stomach

acid levels as a 15 year old, and they were very very low then. That was the

first time I was given hydrochloride tablets, and I couldn't tell the

difference. Meanwhile my thyroid " went out " . So these things appear to me to be

autoimmune and irreversible, these changes. I hope the CRON diet will put a halt

to the premature self destruction and arthritis I'm suffering. I'm too young to

be so old-know what I mean?

I've recently lost the ability to digest fructose altogether, and am waving

goodbye to fruit. Bananas are deadly-fortunately they are too fatty anyway!

Kiwis, blueberries, my old friends. There is research underway for replacements

for those enzymes lost in the small intestine, but it will be a while before

anything is on the market. For some reason milk doesn't bug me as much as soy,

so I'm keeping my nonfat yoghurt & cheese, in tiny amts, for now. There's

something up with my liver, has been for years, and my eyeballs are dry &

yellowish around the edges, but I passed the Dr's liver sonogram, so status quo.

Tons of dandelion root tea. I really have to treat myself!

I'm doing quite well keeping between 1200 & 1800 calories for now, and backing

it down slowly. No unnecessary gak, even when it is enticing. As long as I do

not taste vanilla icecream, I remain under control!! The thing that concerns me

about practicing CRON correctly, is that I eat everything in tiny amts,

including the veggies and salads, and will be depending on my multivit to help.

Those enormous salad bowls that cronies often use that occupy half the table so

that complete nutrition can be achieved in a meal are daunting to my shrivelled

stomach...

Thank you so much for your kind suggestions, that are helping me down my CRON

path. I have already slimmed down a lot, and feel very good when not in pain.

-

> >

> > I have a suggestion that may be worth trying. I know of several people

> > who had similar difficulties with digestion, experiencing severe

> > stomach pain after eating certain foods, or too much of any food, etc.

> > They all had success taking digestive enzymes with their meals...for a

> > few it was a 'miraculous cure' after many years of suffering as you

> > have. They are over the counter and available in health food stores.

> >

> > Again, this may be old news to you or totally not related to your

> > issue. Good luck!

> >

> > .__,_._,__

>

> As an aside, there are a few kinds of digestive enzyme products

> I've seen on the market

>

> * Papain

> * Bromelain

> * Pancreatin

>

> There's quite a lot of research that Bromelain is helpful for a number

> of conditions

>

> http://www.ncbi.nlm.nih.gov/pubmed/11577981

> http://www.ncbi.nlm.nih.gov/pubmed/1548991

>

> in particular soft-tissue injuries. Personally I've tried them all and

> have had very good luck with Pancreatin: I had severe back pain (that

> I'd had for about 6 months) abate within two weeks of taking Pancreatin

> daily. Bromelain never seemed to do much for me. Of course, that's

> just the experience of one mouse, so take it with a grain of salt.

>

> One issue is that Pancreatin is a slaughterhouse byproduct while the

> others are plant-based... That's a big concern for many of the people

> that are into 'alternative health'.

>

June 13, 2009

Hi everyone,

My name is Odile. My husband has recently been diagnosed with gallstones, after

having a couple of very painful gallbladder attack. He is not interested in

surgery. we are now exploring alternatives. He is in the midst of a

liver/gallbladder cleanse.

He is doing apple juice for 5 days and then olive oil and epsom salts for a day.

The amount of information and the amount of contradictions on the net is

overwhelming.

Here is a question he has: has anyone here have had 2 ultrasounds, one before a

cleanse and one after a cleanse, showing improvements?

As you can tell, he is an engineer.

Regards

Odile

June 14, 2009

Don't know if that question has ever been answered. I had ultrasound 2/07 that

showed stones, one being fairly large. The flushes will help no matter what.

Suggest at least 3 spaced out over 3 months.I was going to have follow-up

ultrasound, but the symptoms are gone now ( after 3 flushes } and changing diet.

I still get some discomfort from chicken, turkey and processed cheese which are

hard to digest anyway. use of high quality digestive enzymes help in the

interem. Garden Of Life brand is excellent. Before my last flush I did the

" Lemonade Diet " for 12 days. The Lemonade Diet is a cleanse consisting of pure

water, fresh-squeezed organic lemon juice, organic grade B maple syrup, and

organic cayenne pepper powder. The recipe is published in a little yellow book

available at health food stores.I would close by saying " good luck " , but luck is

not a factor. Best Wishes, .

From: gregbrowneyedgirl <odile_wolf@...>

Subject: newbie

gallstones

Date: Saturday, June 13, 2009, 10:27 AM

Hi everyone,

My name is Odile. My husband has recently been diagnosed with gallstones, after

having a couple of very painful gallbladder attack. He is not interested in

surgery. we are now exploring alternatives. He is in the midst of a

liver/gallbladder cleanse.

He is doing apple juice for 5 days and then olive oil and epsom salts for a day.

The amount of information and the amount of contradictions on the net is

overwhelming.

Here is a question he has: has anyone here have had 2 ultrasounds, one before a

cleanse and one after a cleanse, showing improvements?

As you can tell, he is an engineer.

Regards

Odile

June 14, 2009

I did not lose much weight, probably because I am lean to begin with. All the

questions are answered in the book. You can stay on the " diet " for weeks if you

need to. I was a little sluggish the first couple of days, but was fine after

that. I work on a drillship in the middle of the Gulf of Mexico 14 days at a

time. I did the cleanse offshore.......how much protein do you need. I'm quite

sure your hair and folicles will only benefit. Cheers.

From: gregbrowneyedgirl <odile_wolfhotmail (DOT) com>

Subject: newbie

gallstones@gro ups.com

Date: Saturday, June 13, 2009, 10:27 AM

Hi everyone,

My name is Odile. My husband has recently been diagnosed with gallstones, after

having a couple of very painful gallbladder attack. He is not interested in

surgery. we are now exploring alternatives. He is in the midst of a

liver/gallbladder cleanse.

He is doing apple juice for 5 days and then olive oil and epsom salts for a day.

The amount of information and the amount of contradictions on the net is

overwhelming.

Here is a question he has: has anyone here have had 2 ultrasounds, one before a

cleanse and one after a cleanse, showing improvements?

As you can tell, he is an engineer.

Regards

Odile

June 14, 2009

The next older stones cannot move forward into the gallbladder. The physiology

is not linear. There are liver stones and they would be expelled directly.

When you expel stones we assume they are gallstones but in fact may not be,

being liver stones instead. When a gallstone is expelled it would take the

formation of a new one within the gallbladder to " reshow " a stone. The nature

of the gallbladder makes it far more likely to form stones than the liver. some

but not all of the bile produced by the liver travels up the gallbladder duct

into the gallbladder where aqueous portions are absorbed to concentrate the bile

for the big surge when you ingest fat. This absorbing/concentrating feature is

what gives the gallbladder a propensity for " stones " . As pointed out

though, who cares? The question is if you do the flush or other lifestyle

changes/therapy do your symptoms diminish? Does your quality of life improve?

Do you end up in an incredible mind pool of the likes of Jay, , Elan,

, etc (left way too many out but for illustration purposes only)? Welcome

Newbie. These people have not only done their homework but you get to copy it;

and it is not against the rules.... -D

newbie

gallstones@gro ups.com

Date: Saturday, June 13, 2009, 10:27 AM

Hi everyone,

My name is Odile. My husband has recently been diagnosed with gallstones,

after having a couple of very painful gallbladder attack. He is not interested

in surgery. we are now exploring alternatives. He is in the midst of a

liver/gallbladder cleanse.

He is doing apple juice for 5 days and then olive oil and epsom salts for a

day. The amount of information and the amount of contradictions on the net is

overwhelming.

Here is a question he has: has anyone here have had 2 ultrasounds, one before

a cleanse and one after a cleanse, showing improvements?

As you can tell, he is an engineer.

Regards

Odile

June 14, 2009

Don't worry about protein. If anything people are getting too much protein in

their diets. Research into condensed proteins is supporting this.

I have to try the lemonade diet, it does take some will power to do it and say

no to foods that I love to eat.

all the best,

Brad

>

> From: gregbrowneyedgirl <odile_wolf@...>

> Subject: newbie

> gallstones

> Date: Saturday, June 13, 2009, 10:27 AM

>

> Hi everyone,

> My name is Odile. My husband has recently been diagnosed with gallstones,

after having a couple of very painful gallbladder attack. He is not interested

in surgery. we are now exploring alternatives. He is in the midst of a

liver/gallbladder cleanse.

> He is doing apple juice for 5 days and then olive oil and epsom salts for a

day. The amount of information and the amount of contradictions on the net is

overwhelming.

>

> Here is a question he has: has anyone here have had 2 ultrasounds, one before

a cleanse and one after a cleanse, showing improvements?

> As you can tell, he is an engineer.

> Regards

> Odile

>

June 14, 2009

I would be concerned with my doctor...

From: gregbrowneyedgirl <odile_wolf@ hotmail. com>

Subject: newbie

gallstones@gro ups.com

Date: Saturday, June 13, 2009, 10:27 AM

Hi everyone,

My name is Odile. My husband has recently been diagnosed with gallstones, after

having a couple of very painful gallbladder attack. He is not interested in

surgery. we are now exploring alternatives. He is in the midst of a

liver/gallbladder cleanse.

He is doing apple juice for 5 days and then olive oil and epsom salts for a day.

The amount of information and the amount of contradictions on the net is

overwhelming.

Here is a question he has: has anyone here have had 2 ultrasounds, one before a

cleanse and one after a cleanse, showing improvements?

As you can tell, he is an engineer.

Regards

Odile

June 15, 2009

The whole lack of protein thing is really overplayed and doesn't even discuss

whether or not the protein is high quality in terms of digestability.

But, if your really concerned about protein then take an easily digestible

protein source like Chlorella.

It has 19 of the 24 main chain amino acids and numerous vitamins and minerals.

Though the lemonade diet does say not to take anything else during the cleanse,

I think chlorella would be a safe addition inspite of this advice.

primechlorella.com is in Canada, though I haven't tried them out yet I plan too.

Its apparently one of the most pure source, they sell to Biopure another company

which charges more.

Brad

>

> From: gregbrowneyedgirl <odile_wolf@ hotmail. com>

>

> Subject: newbie

>

> gallstones@gro ups.com

>

> Date: Saturday, June 13, 2009, 10:27 AM

>

> Hi everyone,

>

> My name is Odile. My husband has recently been diagnosed with gallstones,

after having a couple of very painful gallbladder attack. He is not interested

in surgery. we are now exploring alternatives. He is in the midst of a

liver/gallbladder cleanse.

>

> He is doing apple juice for 5 days and then olive oil and epsom salts for a

day. The amount of information and the amount of contradictions on the net is

overwhelming.

>

> Here is a question he has: has anyone here have had 2 ultrasounds, one before

a cleanse and one after a cleanse, showing improvements?

>

> As you can tell, he is an engineer.

>

> Regards

>

> Odile

>

October 13, 2009

Oh my!!! I am so so sorry. First of all no one dies of CML now-a-days. Just

bad care.

I do not even know where to start. But there are so many people out there

that can explain it better to you.

I have had CML for almost 6 years. I started on Gleevec and I too had

terrible side effects. After about 9 months I went on to Sprycel and did

much much better but still had some side effects. Then got Plural Effusion

so had to stop that. I was on that for 3 years. Then and now I am on Tasigna

and I am a normal person again. No side effects at all and PCRU. I was PCRU

on Sprycel too.

Quality of live if very important to me and I feel that you should see a CML

specialist as I am sure you will be told. I know Lottie and Zavie are

writing you just as I am.

Take care and please let us help.

Sharon T

_____

From: [mailto: ] On Behalf Of

mswerlein

Sent: Monday, October 12, 2009 3:42 PM

Subject: [ ] newbie

well here i go....i was diagnosed with cml about 2 years ago. i was

devistated as i'm sure most everybody is. i was diagnosed in the

chronic phase thank god and placed on gleevic 400 imediately. it has

worked so far however i have so many of the side effects. first off the

nausea and vomiting. this stays with me for 6 to 8 hrs after each dose.

next is the bone pain. it can make you cry. i'm a big guy and haven't

cried due to physical pain in along time but oh my god. you can't get

away from it. my iron fell from 140 to 14 for wich i have to take iv

iron once a week. my hemaglobin went from 13 to 5.8. i have to have

frequent blood transfusions. i will say my doctor is trying to keep up

on the pain meds although i think it causes him pain to write for the

narcotics. i am on a 50mcg/24hr duragesic patch with vicodin for

breakthrough pain. by the way....my name is mel and i live in bucyrus,

ohio. there is only one other person in this county on gleevic and he

just passed away. i would like to know any ins and outs you have

discovered to help with things like iron, blood counts pain, nausea,

etc. if i've missed anything it wasn't intentional. i'm an open book.

ask me anything and i will do my best to answer. thanks already for

your support. mel []

October 13, 2009

thanks so much for your e-mail. support means so much when some one isn't

feeling well. i believe you folks in the group have so much to give and i stand

in awe of all you have already learned. thanks again.. mel

From: Sharon Teichera <onthewtr@...>

Subject: RE: [ ] newbie

Date: Monday, October 12, 2009, 9:03 PM

Oh my!!! I am so so sorry. First of all no one dies of CML now-a-days. Just

bad care.

I do not even know where to start. But there are so many people out there

that can explain it better to you.

I have had CML for almost 6 years. I started on Gleevec and I too had

terrible side effects. After about 9 months I went on to Sprycel and did

much much better but still had some side effects. Then got Plural Effusion

so had to stop that. I was on that for 3 years. Then and now I am on Tasigna

and I am a normal person again. No side effects at all and PCRU. I was PCRU

on Sprycel too.

Quality of live if very important to me and I feel that you should see a CML

specialist as I am sure you will be told. I know Lottie and Zavie are

writing you just as I am.

Take care and please let us help.

Sharon T

_____

From: groups (DOT) com [mailto:groups (DOT) com] On Behalf Of

mswerlein

Sent: Monday, October 12, 2009 3:42 PM

groups (DOT) com