Tina

[Guest guest]

That's ok ! I hear ya about constant Whirlwind! I wish

Chase could've gotten started in therapy sooner, how did you

manage it?? I'd been nagging his dr.'s since he was 4 months

old, and they just kept blowing me off saying " Oh it's too early for

that, let's just wait and see " , so by 9 months when he was sitting

himself up, then they got concerned, but with all the channels

you have to go through, he's only been in therapy for a month and

he just turned a year old on Friday. What is Lucas, doing/not

doing? I'm just curious. It just breaks my heart everyday seeing

babies his age or younger walking. I can tell you that that is all

my husband and I want for Christmas.

Thanks for listening,

Tina

[Guest guest]

Tina,

It sounds like Zander's tort may be severe enough that the tilt is causing the band to dig into his shoulder- very tough situation. I don't agree with sleeping him only on his right, this type of information is what caused some children to develop tort, last thing you need is to get his other side tight from non-movement. I hope that CT is working with you on addressing this problem. The only thing I can recommend that worked for us in terms of comfort, would be to find a small pillow (we even used one of those hot dog shaped pillows that came with a tummy time kit)- and place it right in between that tort shoulder and neck to prop the tilt opposite of what its wanting to do. This will help stretch the muscle, and hopefully keep from digging the band into his shoulder. You'll probably have to monitor that while he's napping, but this will help on that tort as well, so I hope with repeated stretches and propping, Zander's muscle will be stretched enough where he is gaining more slack to move away from closing in on that shoulder- and away from the band too. Good luck and keep us posted!

' mom

[Guest guest]

My son has progressed a lot in the last 8 months. He is now 4 years old and has

been in therapy since age 22 months (Speech and OT). We spent almost a year in

what was not appropriate therapy. He is now on an oral motor plan and it has

been slow but we are progressing very nicely now. He was tongue tied and that

was fixed. We use the book Oral Motor Activites for Young Children from

linguisystems and then our therapist has wonderful ideas and works with things

like: whistles, blowing cotton balls with a straw, beckman exercises, bite

blocks, peanut butter/marshmallow creme on the lips (especially upper), " waking

up " his mouth with a oral vibrator and many others. It is essential that he be

able to use these muscles to speak. He is diagnosed severe oral and verbal

apraxia, dysarthria, Sensory Integration Disorder, and Hypotonia. He now has

probably a hundred words and is putting ball up and school bus together (these

do not sound perfect- but I am just thrilled he is trying). He was completely

nonverbal up to age 3yrs 4 months except for the two sounds ah and eh.

Daphne

RE: [ ] Need your Help - Services From School

District

My son 2.8 has just been diagnosed with dysarthria. I haven't gotten the

therapies for him yet because of the hospital waiting lists (8 months plus).

I was just wondering if parents with dysarthric kids might be able to tell

me what progress their kids have made after intervention began.

If anybody can provide some feedback, I would be greatful.

[Guest guest]

It does sound like Progess!!!! Your son must be so happy to be able to

express himself!!! It is alot. I look foward to this kind of progress.

Thanks for the info and input Daphne.

tina

>From: Steve & Daphne Hardison <5hardison@...>

>Reply-

>

>Subject: Re: [ ]Tina

>Date: Tue, 20 May 2003 11:07:52 -0500

>

>My son has progressed a lot in the last 8 months. He is now 4 years old

>and has been in therapy since age 22 months (Speech and OT). We spent

>almost a year in what was not appropriate therapy. He is now on an oral

>motor plan and it has been slow but we are progressing very nicely now. He

>was tongue tied and that was fixed. We use the book Oral Motor Activites

>for Young Children from linguisystems and then our therapist has wonderful

>ideas and works with things like: whistles, blowing cotton balls with a

>straw, beckman exercises, bite blocks, peanut butter/marshmallow creme on

>the lips (especially upper), " waking up " his mouth with a oral vibrator and

>many others. It is essential that he be able to use these muscles to

>speak. He is diagnosed severe oral and verbal apraxia, dysarthria,

>Sensory Integration Disorder, and Hypotonia. He now has probably a hundred

>words and is putting ball up and school bus together (these do not sound

>perfect- but I am just thrilled he is trying). He was completely nonverbal

>up to age 3yrs 4 months except for the two sounds ah and eh.

>

>Daphne

[Guest guest]

hi tina,

Regarding my energy...

My energy started coming back when my endo added T3.

When I was just taking T4, I felt better but not

myself. I told my endo I felt like the real me was

lost somewhere. I told him I want to feel like myself

again. After I started taking T3, I " found " myself. I

felt like the way I used to before this stupid disease

came crashing down on me.

For many years of my life, I've been an extremely high

energy person. I know so many times it's been really

hard to sit still--especially in class. Sometimes I've

just had to get out and run, go walking, play tennis,

dance...whatever (this is after I lost over 150

pounds). Jobs where I have to sit down drive me crazy.

Now when I was 300 pounds, I wasn't physically active

at all. But I was very creative during this time,

using a lot of mental energy. I was in therapy for

over a decade, using my energy to try to make changes

in myself. I also used my creative energy...I was

painting, doing stained glass, using charcoals and

other mediums to express my energy. I was also writing

and even got some things published.

When I was in elementary school and junior high, I

don't remember feeling like this. High school was

different; I had more energy.

Anyway, when this disease hit me, I was lying on the

sofa all the time or in bed.

So, I attribute my high energy to being back to

normal--to my thyroid meds working--because that's how

I was before.

My doctor is keeping my TSH in the HYPER ranger. My

last TSH was 0.006.

I am not experiencing HYPER symptoms that I'm aware

of.

Back in Dec, Jan, Feb., before I was diagnosed, I was

swinging my HYPO to HYPER. When I was HYPER, I was

having diarrhea, going to the bathroom all the time,

was hot all the time, sweating, felt like everything

inside of me was racing. I was VERY irritable. I am

normally a very happy, outgoing person...very nice to

people. During this time I was so impatient,

grumbling, angry, rude, and just not happy at all. I

didn't know what was going on. My thoughts were so

disorganized I couldn't focus on anything. I was a

supervisor in the dietary dept. at a local hospital at

this time, and I was still in training. This was VERY

stressful for me because I was trying to absorb so

much new information during a time I couldn't think

straight.

During the hypo part of it, I had all the usual

symptoms. What's weird is I was having really bad

chest pains. One would think I would have the chest

pains during the HYPER phase, but not me. Some other

folks in my Hashi group are the same way.

Anyway, even though my doc is keeping my TSH in the

HYPER range, I'm not having the symptoms. I'm just how

I used to be as far as energy is concerned.

I do have problems with constipation from time to

time (like when my neuro put me on that steroid) and

during vacation. I'm not cold all the time, but when I

shower, I still use all hot water because I can't

stand the water to be cold. My skin is dry and my

nails are brittle. My biggest problem has been

cognitive problems...problems with memory, brain fog,

etc. my body temp is still low.

My neuro says I may do better if I switch to Armour.

He says despite the fact that my TSH is in the low

range, I may not be getting enough thyroid hormone to

my brain & may need more meds despite my TSH being in

the HYPER range. Now he told me this last week & does

not have info about me just being diagnosed with

asthma & allergies.

so, it might be I'm just not getting enough oxygen to

my brain. it might be the allergies are triggering the

migraines.

For the most part, I feel pretty good. If the

cognitive issues would clear up, I would feel a lot

better. If the migraines would ease up, I think I

would feel awesome!

you were asking if I am indeed hypo. on my superbill

where they check off the diagnoses, he marked off not

only the thyroiditis, but also iodine hypothyroidism.

I don't know what my antibodies were. I don't have a

copy of that test.

In Jan., when my PCP ordered blood work, my TSH was

5.61. I don't remember what my TSH was after that when

my endo ordered tests--don't have copies of those

labs. I was losing weight during this time. I can't

explain that but maybe because I was flip-flopping

back and forth between HYPER and HYPO. I wasn't losing

a lot of weight, but I was losing. I was glad because

I felt like in Dec. I gained weight--from 150 to 157 I

think.

In June, while on just Levoxyl, my TSH was 0.041. At

this point, my endo decreased my Levoxyl & added

Cytomel because I was complaining I still had a lot of

symptoms and felt bad. I was losing weight

continuously since Jan.

In Aug, my TSH was 0.006. Weight loss continues,

slowly. I'm not thin...130 pounds when I got weighed

at the allergiest's on Wed.

I guess now maybe I am hyper with Hashi's...at least

according to my TSH. But why don't I have hyper

symptoms? I'm confused?

yes, I have a goiter. My endo says it has shrunk so

much he can barely feel it now. He ordered a thyroid

ultrasound (at my insistence) because I was having

problems breathing and wondered if it might have

something to do with my goiter.

I haven't seen the radiologist's report, but I was

told the test came back normal.

I'm still feeling like I'm in some kind of denial

regarding my allergies and asthma. I mean, i have the

results right in front of me, but it doesn't seem

real...maybe because I don't want it to be real.

When I was describing my symptoms to my sister, she

said her asthma attacks are almost exactly the same. I

found out it runs rampant in our family (just found it

out yesterday).

My doctor even told me the breathing test I did came

back as someone with classic asthma--so much so he was

showing the nurses/M.A.s. He showed me a computer

print-out of what was going on with my lungs before

and after they gave me the breathing treatment. He

even showed me on the print-out all 3 sections of my

lungs and how they were affected. weird. I still am in

denial. but I'm taking my meds anyway.

Well, Tina, I need to run. take care. maybe you can

make some sense of this. thanks for your caring and

concern!!! Sheila

--- tina83862 <tina8386@...> wrote:

> Right now Shelia has to breathe and she is not

> getting in enough

> oxygen, I do agree that if she was properly treated

> for her thyroid

> condtion possible adreanl she may not be asthmatic

> at all. But she is

> doing too many things and won't change them right

> now.

>

> One is working in a resturant that sells a lot of

> fish---with Hashi's

> she could be totally overloaded with iodine?? We do

> not know but that

> would make sense of her now asthma (allergic

> condition) sometimes the

> allergy is so servere because it's been left

> untreated for so long

> that she really has no choice but to treat it with

> inhalers.

>

> I would never tell her not to use them, my

> suggestion is to go on

> disability asap and then get well, get a new job

> after you figure out

> what is going on. She already had some kind of super

> migraine attack

> a few weeks ago--this can happen again.

>

> What is so confusing with Shelia is she has all this

> energy so I am

> suspecious of what kind of thyroid condition she

> really has??? She

> really needs a very good doctor to figure it all

> out, not just

> medically but nutritional and environmental. If she

> is allergic to

> iodine and here she is ingesting it everyday--well

> that will kill you

> at some point the satuation level is way too

> much--which is showing

> up in her lungs right now.

>

> Shelia this is no joke being now asthmatic with a

> thyroid condition--

> the strain on your heart is something to really

> think about!!!! A

> doctor may not tell you straight out--they try but

> very few will put

> all the pieces together and tell you what is really

> the utmost best

> thing for you.

>

> And it maybe that armour is good for you--but you

> have hashi's right--

> when is the last time they did an antibody count on

> you?? do you have

> any test we can all look at???

>

> if your antibody are rising this is also not a good

> sign--with an

> allergic condition now --they probably are rising.

> What is so amazing

> here is that you have any energy at all??? This is

> why I am confused

> are you sure you are hypo with hashi's and have not

> crossed over to

> hyper with hashi's-----????????

>

> A hypo person would be not able to work as hard as

> you--and how is

> your weight, you are thin right??? so you have been

> losing weight---

> and any goiter??? do you have one and what size is

> it.

>

> You have to treat the asthma until you can get away

> from what is

> causing it. You have way too many things going on

> with you---your

> body can only take so much---so please write

> everything down and

> don't forget to take it with you to your doctors and

> explain your

> life. Even take this letter with you---you have to

> find someone who

> will treat all of you----not just pieces of

> you---the patch job is

> not going to work forever!!!!!!!!!!!!!

>

> tina

>

>

>

>

>

>

> -- In hypothyroidism , " Gracia "

> <circe@g...> wrote:

> >

> > if you got low dose cortisol (cortef), you

> wouldn't need an

> inhaler, not the

> > other way around!!

> > Gracia

> >

> > > Hi Tina,

> > >

> > > Here's a link I found about corticosteroids and

> adrenals. It looks

> > > like if you take corticosteroids it should help

> with adrenal

> fatigue.

> > >

> > > http://www.adrenalfatigue.org/conditions.php

> > >

> > > I just called GlaxoKline, the manufacturers

> of my inhaler

> > > (Advair Diskus).

> > >

> > > I asked if I was having problems with adrenal

> fatigue, would using

> > > this inhaler for my asthma also help with the

> adrenal fatigue. She

> > > said probably not because almost all of it goes

> directly into the

> > > lungs. She said only 18% of is swallowed.

> > >

> > > She said the corticosteroid in my inhaler is not

> the same as a

> > > systemic corticosteroid.

> > >

> > > Who knows though. You figure if you use that

> inhaler twice a day

> and

> > > get 18% of in other parts of your body twice a

> day...well it might

> > > help a little. I don't know though. Sheila

> > >

> > >

> > >

> > >

[Guest guest]

HAPPY HALLOWEEN...EVERYONE!!!!!!!

[Guest guest]

there are several Broda docs there, I have heard. Also

Langley who wrote Solved: the Riddle of Illness.

Gracia

> I live up in the Bay area and my daughter goes to school down at UCLA-

> -and no so far we have not had much luck--but as soon as I find a

> good doctor for her I'll let you all know!!!!!!!!!

>

[Guest guest]

Yes I know of him, a friend went to him---he is supposed to be very

good, but difficult ----but you never know???

- In hypothyroidism , " Gracia " <circe@g...> wrote:

>

> there are several Broda docs there, I have heard. Also

> Langley who wrote Solved: the Riddle of Illness.

> Gracia

>

>

> > I live up in the Bay area and my daughter goes to school down at

UCLA-

> > -and no so far we have not had much luck--but as soon as I find a

> > good doctor for her I'll let you all know!!!!!!!!!

> >

[Guest guest]

Hi Tina, Books are always great. I know for me, with all my brain fog issues,

books are really good because I can take my time and really try to understand

something if I'm confused. Also, I can go back and reread. I really DON'T like

having all these favorites files. Even though they're organized, they're hard to

find. It's much easier for me to print them out. Weird. Anyway, I think the book

is great. Probably michaella will like it too!

I don't believe any of what you've done has been a waste of time. You've done so

much to help your daughter, and I think that's wonderful! She is obviously

better, so you know what you're doing. Too bad your physician relatives couldn't

be more helpful!!!

Interesting you have a relative doing stem cell studies. I have a friend who's

doing the same thing. She was at our condo for about 5 days while we were

vacationing for several weeks this summer. she's working in Florida.

I am still trying to figure out if I can avoid spending several hundred dollars

on adrenal testing. I would like to take some glandular but don't know am I too

high/too low & in what. I guess there's no other way around it than to do the

tests is there?

Take care, Tina, and keep doing what your doing! Your pal, Sheila

tina83862 <tina8386@...> wrote:

You know I bought this book for M hoping it would explain somethings

to her that I could not. I have found that because of her memory

being impaired that I just could not get through to her at times so I

just had to start buying her books to read on the subject. Thanks so

much for making me feel like all I have done has not been a waste of

time. I wish I could thank a doctor for doing it for me, but that is

not the story for us. Even with doctors in my family and one of them

a guru in medicine--he was off in Mexico doing stem cells studies at

the time I really needed him. But that is the case when you are a

relative, you usually are on the backburner!!! ha!!! And now today he

says to me why didn't you come and see me---well you were in Mexico

for goodness sakes.

anyway today I can breathe a little bit, funny at this point nothing

matters but her feeling better. Hopefully her story has helped

others too!!!

thank you everyone for your support--you too !!! tina

> >

> > Hi Tina, glad your daughter is doing well, but I don't think

nutri-

> meds is

> > worth the money. Most people need real medicine.

> > Gracia

> >

> > You see this and you many of you may wonder why I treat my

daughter

> > myself. She would be in the same situation on the pill and we

would

> > never know she had a thyroid problem. They are still pushing it

down

> > her throat(she won't take it until she finds out why she does not

> > have her period).

> >

> > but some good news-- she is on new meds from nutrimed, bought

these

> a

> > month ago. She is taking one thyroid med a day at 130mg ---but her

> > temp is up to 97.4 now. She is off adrenals (they need to start

> > working on their own now) and so far so good. Still taking in the

> > vitamins and she got a A in her math mid-term and a B in organic

> chem-

> > --so we are very happy (the average for the chem class was a C-D)

so

> > she did very well. Still no word on the MRI---waiting!!! ugggg

> >

> > here is the info on the meds.---

> >

> > http://www.nutri-meds.com/thyroid.htm#Thyroid Glandular

> >

> > Thyroid Glandular...

>

>

>

[Guest guest]

I understand how you feel about the continuing spending on testing.

M's MRI was 6k (the school's insurance will pick up most of it) (we

hope) and that is not the doctor bill just the test. But I am glad we

did it because now I don't have to keep on wondering if she has a

pituitary tumor.

I would suggest you get the salvia test that is pretty cheap and see

what you are for cortisol. If the numbers come back low you could try

isocort and see how you do on that. It worked for M. But it's not

easy to balance yourself the way we are going about it because we

don't have doctor support. I have to rely on her telling me

everything and testing herself.

But in some ways we are more in tuned with her health. Which seems to

be about the same for everyone with this illness.

-- In hypothyroidism , Kemal Kalajdzic

<kemalandsheila@y...> wrote:

> Hi Tina, Books are always great. I know for me, with all my brain

fog issues, books are really good because I can take my time and

really try to understand something if I'm confused. Also, I can go

back and reread. I really DON'T like having all these favorites

files. Even though they're organized, they're hard to find. It's much

easier for me to print them out. Weird. Anyway, I think the book is

great. Probably michaella will like it too!

>

> I don't believe any of what you've done has been a waste of time.

You've done so much to help your daughter, and I think that's

wonderful! She is obviously better, so you know what you're doing.

Too bad your physician relatives couldn't be more helpful!!!

>

> Interesting you have a relative doing stem cell studies. I have a

friend who's doing the same thing. She was at our condo for about 5

days while we were vacationing for several weeks this summer. she's

working in Florida.

>

> I am still trying to figure out if I can avoid spending several

hundred dollars on adrenal testing. I would like to take some

glandular but don't know am I too high/too low & in what. I guess

there's no other way around it than to do the tests is there?

>

> Take care, Tina, and keep doing what your doing! Your pal, Sheila

>

>

> tina83862 <tina8386@a...> wrote:

> You know I bought this book for M hoping it would explain

somethings

> to her that I could not. I have found that because of her memory

> being impaired that I just could not get through to her at times so

I

> just had to start buying her books to read on the subject. Thanks

so

> much for making me feel like all I have done has not been a waste

of

> time. I wish I could thank a doctor for doing it for me, but that

is

> not the story for us. Even with doctors in my family and one of

them

> a guru in medicine--he was off in Mexico doing stem cells studies

at

> the time I really needed him. But that is the case when you are a

> relative, you usually are on the backburner!!! ha!!! And now today

he

> says to me why didn't you come and see me---well you were in Mexico

> for goodness sakes.

>

> anyway today I can breathe a little bit, funny at this point

nothing

> matters but her feeling better. Hopefully her story has helped

> others too!!!

>

> thank you everyone for your support--you too !!! tina

>

> > >

> > > Hi Tina, glad your daughter is doing well, but I don't think

> nutri-

> > meds is

> > > worth the money. Most people need real medicine.

> > > Gracia

> > >

> > > You see this and you many of you may wonder why I treat my

> daughter

> > > myself. She would be in the same situation on the pill and we

> would

> > > never know she had a thyroid problem. They are still pushing it

> down

> > > her throat(she won't take it until she finds out why she does

not

> > > have her period).

> > >

> > > but some good news-- she is on new meds from nutrimed, bought

> these

> > a

> > > month ago. She is taking one thyroid med a day at 130mg ---but

her

> > > temp is up to 97.4 now. She is off adrenals (they need to start

> > > working on their own now) and so far so good. Still taking in

the

> > > vitamins and she got a A in her math mid-term and a B in

organic

> > chem-

> > > --so we are very happy (the average for the chem class was a C-

D)

> so

> > > she did very well. Still no word on the MRI---waiting!!! ugggg

> > >

> > > here is the info on the meds.---

> > >

> > > http://www.nutri-meds.com/thyroid.htm#Thyroid Glandular

> > >

> > > Thyroid Glandular...

> >

> >

> >

[Guest guest]

Thanks, Tina. Actually, I just came across some information about a doctor here

in town (an endocrinologist). Next to his name it said thyroid/adrenals. So I

called and have an appt. set up for Dec. 4th I think. He does prescribe

Armour...only other endo in town who RX's it is my current endo. So I'm gonna

give it a shot...see what happens. Take care, Sheila

tina83862 <tina8386@...> wrote:

I understand how you feel about the continuing spending on testing.

M's MRI was 6k (the school's insurance will pick up most of it) (we

hope) and that is not the doctor bill just the test. But I am glad we

did it because now I don't have to keep on wondering if she has a

pituitary tumor.

I would suggest you get the salvia test that is pretty cheap and see

what you are for cortisol. If the numbers come back low you could try

isocort and see how you do on that. It worked for M. But it's not

easy to balance yourself the way we are going about it because we

don't have doctor support. I have to rely on her telling me

everything and testing herself.

But in some ways we are more in tuned with her health. Which seems to

be about the same for everyone with this illness.

-- In hypothyroidism , Kemal Kalajdzic

<kemalandsheila@y...> wrote:

> Hi Tina, Books are always great. I know for me, with all my brain

fog issues, books are really good because I can take my time and

really try to understand something if I'm confused. Also, I can go

back and reread. I really DON'T like having all these favorites

files. Even though they're organized, they're hard to find. It's much

easier for me to print them out. Weird. Anyway, I think the book is

great. Probably michaella will like it too!

>

> I don't believe any of what you've done has been a waste of time.

You've done so much to help your daughter, and I think that's

wonderful! She is obviously better, so you know what you're doing.

Too bad your physician relatives couldn't be more helpful!!!

>

> Interesting you have a relative doing stem cell studies. I have a

friend who's doing the same thing. She was at our condo for about 5

days while we were vacationing for several weeks this summer. she's

working in Florida.

>

> I am still trying to figure out if I can avoid spending several

hundred dollars on adrenal testing. I would like to take some

glandular but don't know am I too high/too low & in what. I guess

there's no other way around it than to do the tests is there?

>

> Take care, Tina, and keep doing what your doing! Your pal, Sheila

>

>

> tina83862 <tina8386@a...> wrote:

> You know I bought this book for M hoping it would explain

somethings

> to her that I could not. I have found that because of her memory

> being impaired that I just could not get through to her at times so

I

> just had to start buying her books to read on the subject. Thanks

so

> much for making me feel like all I have done has not been a waste

of

> time. I wish I could thank a doctor for doing it for me, but that

is

> not the story for us. Even with doctors in my family and one of

them

> a guru in medicine--he was off in Mexico doing stem cells studies

at

> the time I really needed him. But that is the case when you are a

> relative, you usually are on the backburner!!! ha!!! And now today

he

> says to me why didn't you come and see me---well you were in Mexico

> for goodness sakes.

>

> anyway today I can breathe a little bit, funny at this point

nothing

> matters but her feeling better. Hopefully her story has helped

> others too!!!

>

> thank you everyone for your support--you too !!! tina

>

> > >

> > > Hi Tina, glad your daughter is doing well, but I don't think

> nutri-

> > meds is

> > > worth the money. Most people need real medicine.

> > > Gracia

> > >

> > > You see this and you many of you may wonder why I treat my

> daughter

> > > myself. She would be in the same situation on the pill and we

> would

> > > never know she had a thyroid problem. They are still pushing it

> down

> > > her throat(she won't take it until she finds out why she does

not

> > > have her period).

> > >

> > > but some good news-- she is on new meds from nutrimed, bought

> these

> > a

> > > month ago. She is taking one thyroid med a day at 130mg ---but

her

> > > temp is up to 97.4 now. She is off adrenals (they need to start

> > > working on their own now) and so far so good. Still taking in

the

> > > vitamins and she got a A in her math mid-term and a B in

organic

> > chem-

> > > --so we are very happy (the average for the chem class was a C-

D)

> so

> > > she did very well. Still no word on the MRI---waiting!!! ugggg

> > >

> > > here is the info on the meds.---

> > >

> > > http://www.nutri-meds.com/thyroid.htm#Thyroid Glandular

> > >

> > > Thyroid Glandular...

> >

> >

> >

[Guest guest]

A saliva adrenal test costs $95 from ZRT, Great Smokies or DiagnosTechs.

If you find a good doc he will treat you based on symptoms and not the test.

Gracia

> I am still trying to figure out if I can avoid spending several hundred

dollars on adrenal testing. I would like to take some glandular but don't

know am I too high/too low & in what. I guess there's no other way around it

than to do the tests is there?

>

> Take care, Tina, and keep doing what your doing! Your pal, Sheila

>

>

>

[Guest guest]

thanks! sheila

Gracia <circe@...> wrote:

A saliva adrenal test costs $95 from ZRT, Great Smokies or DiagnosTechs.

If you find a good doc he will treat you based on symptoms and not the test.

Gracia

> I am still trying to figure out if I can avoid spending several hundred

dollars on adrenal testing. I would like to take some glandular but don't

know am I too high/too low & in what. I guess there's no other way around it

than to do the tests is there?

>

> Take care, Tina, and keep doing what your doing! Your pal, Sheila

>

>

>

[Guest guest]

yeah, this is a very extensive site...great! thanks, sheila

tina83862 <tina8386@...>

wrote:http://www.drlam.com/A3R_brief_in_doc_format/Estrogen_Dominance.cfm

Extensive site on info---

[Guest guest]

yep! so if I increase my Armour and still feel bad, then i need to do some

adrenal testing. hugs, sheila

tina83862 <tina83862@...> wrote: " We talked about the adrenal issue. She

said she has been diagnosed

with adrenal problems...interesting. Anyway, she said I don't seem

to look like someone with adrenal problems. Granted, thyroid &

adrenal problems do run hand in hand and look a lot alike. "

you have a lot of allergies and asthma???

[Guest guest]

This could be the same thing with Cher--adrenal problems interfere

with thyroid problems--so many here have found that out the hard way

when their meds don't work. M really needs her isocort and adrenal

glandulars, she says she can tell if she doesn't take enough of them

throughout the day. She also takes all the supplements for the

adrenal gland. Seems to work.

I think you are going to feel better when you go to two grains and

your adrenals may need just some supplements and maybe isocort if you

want to try it--many use it and like it, if you don't want to go

through the doctor, it's a alternative choice. Especially if your

doctor is against testing.

could always try the vitamins for it first---this is the one I like

the most http://www.immunesupport.com/shop/product.cfm?

Product__Code=P203

-- In hypothyroidism , Kemal Kalajdzic

<kemalandsheila@y...> wrote:

> yep! so if I increase my Armour and still feel bad, then i need to

do some adrenal testing. hugs, sheila

>

> tina83862 <tina83862@y...> wrote: " We talked about the adrenal

issue. She said she has been diagnosed

> with adrenal problems...interesting. Anyway, she said I don't seem

> to look like someone with adrenal problems. Granted, thyroid &

> adrenal problems do run hand in hand and look a lot alike. "

>

>

> you have a lot of allergies and asthma???

>

>

>

>

[Guest guest]

I posted a reply to you but forgot to change the subject...the subject was

" sheila. " Sorry! Me. (sheila)

tina83862 <tina83862@...> wrote: Hashimoto's disease may rarely be

associated with other endocrine

disorders caused by the immune system. When Hashimoto's disease

occurs with adrenal insufficiency and type 1 diabetes mellitus, the

condition is called type 2 polyglandular autoimmune syndrome (PGA II).

http://www.nlm.nih.gov/medlineplus/ency/article/000371.htm

[Guest guest]

<<go back a few posts and get the digestive enzymes and also all the friendly

bacteria----all from immunesupport.com>>

Hi Tina,

I'm going to do a cleanse and will order this stuff. I've never tried any of

these before so it could very well be what I need???!!! Worth a shot!!!!!

Just have to find an easy cleanse..... & I'd like to do some juicing - so I'll

need a juicer!

[Guest guest]

I don't know much about a cleanse but I do know you will be sending

all the junk back into the body if you do one---that die off (they

call it this when cells die off (yeast can have a die off) as well as

when you use antibotics you kill off good bacteria which dies off---

this can make you sicker---so you may just want to do milk thistel---

do the juicing--buy the digestive and bacteria aids---she uses only

distilled water--something to look into---clean out your body but

slowly and more carefully---Add in extra C as well---I did this when

I was sick about 13 years ago or so. I juiced and it does work--whole

pineapple skin and all--except the top---really works!!!! bromamin I

think if I spelled it right--anti-inflammatory---ginger root--apple,

carrot, kale were my big juicers---book " Juicing for life " ---get

it!!!!

really look into this area and get back to us---has anyone else done

this with some success?????

-- In hypothyroidism , <suser@a...> wrote:

> <<go back a few posts and get the digestive enzymes and also all

the friendly bacteria----all from immunesupport.com>>

>

> Hi Tina,

> I'm going to do a cleanse and will order this stuff. I've never

tried any of these before so it could very well be what I need???!!!

Worth a shot!!!!!

>

> Just have to find an easy cleanse..... & I'd like to do some

juicing - so I'll need a juicer!

>

>

>

>

>

>

[Guest guest]

<<I don't know much about a cleanse but I do know you will be sending all the

junk back into the body if you do one---that die off >>>

Really? Ewwwwwe! I don't want to do that - I'd hate to end up worse....I was

figuring better out than in - I'll look into this further before I do anything!

Thanks!

>

> From: " tina83862 " <tina83862@...>

> Date: 2004/03/05 Fri PM 03:04:54 EST

> hypothyroidism

> Subject: Re: tina

>

>

[Guest guest]

hi tina, I'm sure it must be hard for you worrying about a. She is so

young, and of course she wants to work at the summer camp instead of staying

home and resting. she is lucky that she at least has the opportunity to stay and

home and recoup. so many of us don't have that opportunity.

She is young though, and she may choose to follow her heart rather than listen

to her wise mother. I guess that's how young people are; I know I was. It

certainly does make it difficult for you though. I know you want to protect her

and help her get well.

hang in there! hugs, sheila

tina83862 <tina83862@...> wrote:

Yes I did remember you mentioning the nasty part--it's takes such a

toll on you and the kids!! I am very sorry for this! You must find

some fun things to do in life for your kids as well--- if every night

(when it's warm you both can take a walk--something just the two of

you can do)

I am home alone a lot with my son--we both sit at Pc's together---I

feel that at least we are in the same room!! HA!! But we do eat

together when hubby is away. Dinner is one thing we make sure we do

this way we feel connected.

The daughter is much better compared what she could have become---

there are more things I want to try with her as well. The longer you

learn about all of this the more you can do.

We just discovered she has yeast and she eats mushrooms every morning

in eggs--so now that is out. I tell her stop eating the same things

you have to switch things around everyday. She gets hooked on the

same foods and it just is not good because you miss out on other food

groups that you may need.

Another example she was hooked on soy foods--and broccoli--eating it

raw everyday--both were terrible for her and no salt---so no iodine--

what a mess.

She never eats fast food so she does not get in any iodine. The fast

food market is what protects most of us here in the states. M never

drinks soda either (full of sodium). Even though these fast foods are

high in bad things--the salt and iodine in them are giving most

Americans what they need. Too weird huh.

anyway I am rambling along---I am very happy you are looking into all

of this--I started this way and it did help a great deal. I needed to

see proof before I could continue on. So I totally understand how you

feel.

tina

-- In hypothyroidism , Aprilcupcake@a... wrote:

> Thanks Tina,

>

> I ordered the isocort and Thyrodine today... ready to try

anything.

> I will go slow, and most likely keep coming back for info.

> It's comforting to know you have 'been there " .

> I'm so glad your daughter is doing better!

>

> My children have also been part of a very nasty divorce,

> and I'm sure that the stress of that has taken its toll

> on all of us...

>

> I REALLY appreciate all of your help!

> take care...

> Chriss.

>

>

>

[Guest guest]

yes you are! sheila

kimc <kckim@...> wrote:your a good mom and daughter tina

Re: excess cortisol

> I was really missing your help here and thought can the few of us do

> it all? I know many can help as well but it's a difficult situation

> you put yourself in giving any kind of advice. I am well aware of

> this because I do it with money all the time--equally as stressful.

>

>

> Funny my daughter finally said to me, mom I understand it took me a

> long time but I understand. And I thought wow--must be the illness I

> think.

>

> After an entire year the endo at her school is finally doing

> extensive testing. In a way this is good so we know exactly what her

> problem is. He finally has given in and will do major testing that

> many patients never have the chance to recieve.

>

> M is not your typical hypo patient, so I'll let everyone know what

> goes on. But it won't be for another 3 weeks, we are cleaning out her

> system first.

>

> So far she is handling it much better than I expected, no crash. So I

> told her we may have healed her adrenals with all the glandulars.

> Only sign that is coming back is the dry skin right now.

>

> Greenwillow tree has a dhea cream you might want to get for your mom--

> when no one is bothering you--you can rub it into her arm. We have it

> here at home for hubby. I wish I could convience my Uncles to use it

> on my grandmother.

>

> Makes you laugh when no one will try something---like how much longer

> do they have anyway?? And wouldn't it be better to keep on trying

> things than let the person's quality of life disappear?

>

> well keep on trying that is all we can do!!!! tina

>

>

>

>

>

>

> >

> > Hi Tina, I am just way behind on emails b/c of work, sick mother

> (she moved

> > into an asisted living place and her GP gave orders to take away her

> > vitamins, DHEA and a tiny bit of cortef, but keep her on klonopin,

> busbar,

> > risperodal and paxil). My mother is in an almost vegetative state

> now.

> > Plus I am taking a class. I am stressed! There is something

> going on

> > with the adrenal tests b/c everyone is told they are fine or have

> too much

> > cortisol. Well my saliva test was that way too.

> > Glad you are so proactive and knowledgeable, without these groups I

> would

> > truly feel hopeless.

> > XXXX

> > Gracia

> >

> > > I was going to write to you today and see where you have

> disappeared

> > > too!!! I figured maybe a vacation. Glad you see you back--

> > >

> > >

>

>

>

>

>

[Guest guest]

Hi Tina, and hi again to everyone else............

please excuse my brief " absence " , as I've been studying and preparing myself for

a new adventure. As many of you know, I run an ADHD parenting program at a

local hospital here in PA. My son's eye doctor who has a practice for LD

children, has asked me to become their ADHD/LD specialist, working with parents,

and assisting them in many ways. It will be quite a challenge, but one I'm

looking forward to. :-)

Im really both miffed and amazed at some of the information lately, and thought

I'd throw my two cents in.

Tina, I'm really confused here. A 10 year old, non verbal....seems to be have

like a 2 year old......someone is suspecting Syndrome????? One post

lists him as non verbal, then another says he's very outgoing and

friendly....especially with adults. Wow......seems like you typed that right off

the website!!! I cannot in ANY way see a child who was suspected of

autism/PDD-NOS having any tendencies of syndrome.

In fact, Syndrome children behave completely OPPOSITE.......very

outgoing, friendly, and quite talkative at that. Usually not speech OR language

impairment here... facial features and teeth are usually a visual give

away......I'm working with a family now, with a 6 year old little girl, she's

the most endearing child I've met. So I don't even see a connection between the

two.....

My new husband AND my sister are both Physicians. In reading some of these

posts, both of them are quite confused and very disturbed. Why would someone

wait 10 years to do genetic testing? Corticosteroids???? Adrenal fatigue????

not unless there's Pheochromacytoma, and that's quite serious......surely not

something genetic in nature.......and nothing that could or would cause the

symptoms you're discussing about your child. Only very severe hypothyroidism

would cause adrenal fatigue, and it's a very RARE condition, almost never seen

in a child. I sense someone is giving you some very bad, and dangerous

information and advice. Or.................hmmmmmmmmm

How funny, my cousin who is in law enforcement is convinced you're tracking my

internet activity, because just recently I've been brushing up on my

studies......and in fact reading about all of these very same disorders.....HOW

FUNNY!!!!!!!!!!!!!!!!!!!!!!!!!!!! Well a good thing, I guess, because I can

point out all of the discrepancies here..... :-)

I guess my message is this. If someone is being hurt by false information,

that's quite sad. Probably a crime in most states, too. And if misinformation

is being given, well I think anyone in their right mind would want to get to the

bottom of that and take action .......QUICKLY.

So in brief, Tina.....my message to you is this. If you are being given

misinformation, I think I'd choose one professional in your area, and get a

rapport or trusted bond with that person, and have your child tested from head

to toe, in a fashion you're comfortable with. You know well of social services

so I'd take advantage of them...and I'd do it pronto. At 10, you really don't

have time to mess around. Genetics are really not that complicated.....a vial

of blood or a mouth swab will tell a real professional a great deal, if in fact

what a child has, is genetic in nature. So if someone has done genetic testing,

I'm sure it would have been COMPLETE AND CONCLUSIVE....most doctors don't like

to put a child, or his family through that, to come up with inconclusive

information that leads to a dead end. And insurance companies, well.....they

really aren't too fond of that , etiher. I think it would be in your child's

best interest to get some resolve to all of this fairly immediately. The lovely

parents on this list, as well as our list owner, has offered you a myraid of

information and resources. I hope they are helpful to you, and you are

successful in your search.

And as far as the wonderful people on this list......well they are, in fact,

WONDERFUL. And I'd really hate to see mis information hurt them. And I'd hate

to see someone " pulling their chain. " They are kind and honest people, who are,

as most parents are, looking out for the very best interests of their children.

As always, our children are our first priority.

~K

[ ] Re: New member/Chris

It was the genetics department at the University of Michigan. They

said he has a long arm translocation between chromosme 12 and 16. I

got the impresion that they didn`t know what that would mean as far

as his development. They all thought he had syndrome thats

why they were testing his chromosomes. Tina

[Guest guest]

and are those aids more expensive than any other set of aids you would buy?

that is what scares me the most and my dad is going ahead i think with th CI

VERY COOL! He apparently went to a meeting today and is thinking about

taking it further no date set though. I think when I'd talked with the

surgeon he said he'd had 1 of the last 800 like yours and that you could

wear some type of other aid but that he thought the chance was very small.

Were they doing yours with the laser and did you try it on your other side?

Did they have an idea why you didn't respond when the packing came out? So

are you a double ci user right now?

re: conductive hearing loss

>

> Hi . Do you have otosclerosis too? how was your stappedectomy

> experience and do you know what someone's options are if the

> stappedectomy doesn't work? That's what I haven't figured out and do you

> know the chances of that? I think it's really low. And did your

> stappedectomy just stop after a while? how long did it work for you and

> could you have had a revision? I'm a little scared still just because I

> don't know my options should it fail. oh, it by the way, my dad is

> thinking

> of surgery in early October and I once again referred him here.

>

> ________________________________________________________________

> The best thing to hit the Internet in years - Juno SpeedBand!

> Surf the Web up to FIVE TIMES FASTER!

> Only $14.95/ month - visit www.juno.com to sign up today!

>

>

>

>

[Guest guest]

how were those bicros aids do you rally feel like you are hearing from both

sides/? i think that is what he said i could use if mine didn'twork. have

you talked with people having it done today? and doyou have otosclerosis on

both sides? i do and some times think the surgery would just make things so

much easier! but then there is that small what if tand the doctor said i had

to realluy be sure before he'd do it.

re: conductive hearing loss

>

> Hi . Do you have otosclerosis too? how was your stappedectomy

> experience and do you know what someone's options are if the

> stappedectomy doesn't work? That's what I haven't figured out and do you

> know the chances of that? I think it's really low. And did your

> stappedectomy just stop after a while? how long did it work for you and

> could you have had a revision? I'm a little scared still just because I

> don't know my options should it fail. oh, it by the way, my dad is

> thinking

> of surgery in early October and I once again referred him here.

>

> ________________________________________________________________

> The best thing to hit the Internet in years - Juno SpeedBand!

> Surf the Web up to FIVE TIMES FASTER!

> Only $14.95/ month - visit www.juno.com to sign up today!

>

>

>

>