Re: Steve

[Guest guest]

Steve,

sorry to hear it didn’t work for you. But you did the best thing to

could to give it a shot (pun intended). I’m proud of you. It’s a

generous offer to pass your meds on to someone else. I hope someone here can

use them.

Hugs,

De

RE:

Good Day Everyone and We are 2 -- Thank You

!!!!!!!

Deb,

I have recently ended my Pegysis and COPEGUS

treatment. I was a

non-responder and the quality of my life and my

relationship was being

severely compromised.

That being said, I recently received 90 day

supplies of both medications.

The meds have been refrigerated since they

arrived. Please advise if you can

think a way that I can dispose of these expensive

medications.

Thanks..

Steve Mullis

[Guest guest]

I can;t explain it, but my gut reaction from the food lists..................what are the chances of you removing the ornage juice and Corromega for a couple of days?

I had a firend who's kid was up half the night and poor appetite, removed the Coromega and she was a different kid, worth a shot?

Mandi x

[Guest guest]

Mandi,

Could be worth a try (thanks - we'll give it a go), but he's been on

Coromega for ages (and his diet / eating was awful way before that

:-(, before that he was on Eye-Q (with and without EPO). The EPO

version one made him go crazy :-(

If we take the orange juice from him we'll not get Nystatin or

Nu-Thera down him either :-(

Dr Usman did want us to get him off OJ (back in Feb 2005), but it was

about the only thing he'd drink that didn't have anything added at all

- even though it is high in Phenol :-(

His allergy test didn't highlight orange as a major problem (just +1 I

think) - so Dr Usman cut us some slack with that - since found the

organic pear juice ;-)

Thanks,

Steve, et-al.

> I can;t explain it, but my gut reaction from the food

> lists..................what are the chances of you removing the

ornage juice and Corromega for a

> couple of days?

>

> I had a firend who's kid was up half the night and poor appetite,

removed

> the Coromega and she was a different kid, worth a shot?

>

> Mandi x

[Guest guest]

Teddy takes her nystatin with pear juice in her bottle. Alasdair takes it with pear puree we get from Dietary Needs Direct - we call it his pear dessert. Seems to disguise the taste pretty well.

Out of curiosity, how many foods did Callum show up as intolerant to? Teddy had 27 food intolerances, most only in the +1 range, and Dr Heard said this indicated a leaky gut rather than true food intolerances. She reacted more strongly to things like wheat and buckwheat.

Steph

Re: Steve

Mandi,Could be worth a try (thanks - we'll give it a go), but he's been onCoromega for ages (and his diet / eating was awful way before that:-(, before that he was on Eye-Q (with and without EPO). The EPOversion one made him go crazy :-(If we take the orange juice from him we'll not get Nystatin orNu-Thera down him either :-(Dr Usman did want us to get him off OJ (back in Feb 2005), but it wasabout the only thing he'd drink that didn't have anything added at all- even though it is high in Phenol :-( His allergy test didn't highlight orange as a major problem (just +1 Ithink) - so Dr Usman cut us some slack with that - since found theorganic pear juice ;-)Thanks,Steve, et-al.> I can;t explain it, but my gut reaction from the food > lists..................what are the chances of you removing theornage juice and Corromega for a > couple of days?> > I had a firend who's kid was up half the night and poor appetite,removed > the Coromega and she was a different kid, worth a shot?> > Mandi x

[Guest guest]

So grim and scary when you have to consider cutting the few things

he likes. But I am sure Mandy is right. We're weaning TOm off OJ -

perhaps not completely but much more dilute than he likes it. He

craves sugar - if he doesn't get refined he'll settle for fruit. It

keeps his sugar tank topped up and doesn't help him in large doses.

Is there anything at all you can give him that he likes as a treat

that you could reward him for just taking his SNT off a spoon?

Nystatin tastes vile but TOm would rather have one big vile spoon

than make good OJ taste bad. We're clearly very lucky with him on

that score. fWIW we mix Nystatin with Nordic Naturals peach flavour

CLO. Still tastes vile but slihgtly nicer than with water.

Good luck - I hope it helps that parents all over are wracking their

brains for help for you. And it will get better

Steph, Mark, Tom and Nedxx

> > I can;t explain it, but my gut reaction from the food

> > lists..................what are the chances of you removing the

> ornage juice and Corromega for a

> > couple of days?

> >

> > I had a firend who's kid was up half the night and poor appetite,

> removed

> > the Coromega and she was a different kid, worth a shot?

> >

> > Mandi x

[Guest guest]

My son Luke would only eat cereal, toast, crackers, biscuits and pizza. It

was so hard to try and encourage him to eat more foods. I found sometimes he

would only eat toast and cereal for breakfast and if we offered him other

stuf for lunch and dinner he could hold out to next day for his toast and

cereal.

A week ago we tried to implement SCD diet so for 3-4 days he hardly ate a

thing - then he ended up with a nasty stomach bug for a few days - again

didn't eat anything. After a week he looked so ill - dark rings under his

eyes, more pale than usual (he's very low on iron) and had lost over 2kg.

Anyway - once he was better - I was determined to get him to eat better

food (gave up on SCD for now) - so we only offered food he used to eat - all

soups and veg mixes etc - he has completely gone for it, because I think he

realises his old foods are gone. His diet is still limited and I am working

on that - but at least he is eating healthly food. He has been getting

excited when I give him green potato.

Food for me has been the hardest thing for Luke. Gotta just keep trying!

Nicola

Re: Steve

> So grim and scary when you have to consider cutting the few things

> he likes. But I am sure Mandy is right. We're weaning TOm off OJ -

> perhaps not completely but much more dilute than he likes it. He

> craves sugar - if he doesn't get refined he'll settle for fruit. It

> keeps his sugar tank topped up and doesn't help him in large doses.

>

> Is there anything at all you can give him that he likes as a treat

> that you could reward him for just taking his SNT off a spoon?

> Nystatin tastes vile but TOm would rather have one big vile spoon

> than make good OJ taste bad. We're clearly very lucky with him on

> that score. fWIW we mix Nystatin with Nordic Naturals peach flavour

> CLO. Still tastes vile but slihgtly nicer than with water.

>

> Good luck - I hope it helps that parents all over are wracking their

> brains for help for you. And it will get better

>

> Steph, Mark, Tom and Nedxx

>

>

>

>

> > > I can;t explain it, but my gut reaction from the food

> > > lists..................what are the chances of you removing the

> > ornage juice and Corromega for a

> > > couple of days?

> > >

> > > I had a firend who's kid was up half the night and poor appetite,

> > removed

> > > the Coromega and she was a different kid, worth a shot?

> > >

> > > Mandi x

>

>

>

>

>

>

>

[Guest guest]

Oral Magnesium chloride is very well tolerated and get absorbed very quickly

and is much, much less expensive. It can even be spread on your skin in a

liquid. You can buy 100 pounds for $350 of the highest quality. That would

last for many, many life times.

Mark Schauss, MBA, DB

www.carbonbased.com

There are a lot of people on this list who should without doubt be getting

this magnesium oil. That company is a good company with good people and

oral magnesium does not cut the mustard.

Mark Sircus Ac., OMD

Director International Medical Veritas Association

[Guest guest]

> Your comments about Dr. Rashid Buttar are well below the kind of

decency that was supposed to be held to on this or any list.

-- I never made any comments about Dr Buttar. I have never criticsed

him, even though I have questioned hsi protocol. But I did comment

on your advocacy of his protocol and product

>you making a comparisson between dmps and magnesium

well..........seems like your mind left for mars.

-- Nor did I compare DMPS and magnesium. That would be silly, a bit

like comparing spirulina with chelators. I said your posts indicated

you were pursuing your own interests re Buttar and the magnesium

oil. I stand by that comment

> That you would turn people away from this oil for any reason tells

me a lot about the paradigm you live with when it comes to all of

this.

-- I said this oil could well be a good product. Other people on

this list said it was an expensive rip-off. I never said anything of

the sort. But if they are right, you could simply be offering people

in Brazil or wherever straight magnesium chloride for a fraction fo

the price. I have no idea if they are right. I do not pretend to

have expertise on this matter.

> Yes you are correct in my ignorance of the BBB but I still thank

you for the impulse to dive into it deeply.

-- You need to explain why a person with your " qualifications " lacks

such fundamental knowledge

>Why don't you show your deep knowledge about it and write a summary

to the group?

-- I do not have deep knowledge and I would not presume to publish

tracts to exhibit my basic knowledge. My posts re autism are very

much limited to questions and to discussions of supplements,

chelators and their outcomes for our family. I avoid theory as I am

unwilling to pretend to a knowledge I do not have. It is easier to

refer people to the files section (which you have obviously failed

to read) than it is to reinvent the wheel.

> And I have been here two years on and off. Actually two years and

about two months

-- yet you have learned very little. I learned about the BBB in the

first few months. You could try listening more. I knew more about

autism after a few months on this list than you know now. this

indiates you are here to push your own fixed ideas rather than to

learn

>and yes I mostly hear stories on this list during this time like

yours...about working long and hard with the ALA and DMSA protocol

with more or less results.

-- according to another listmate you said you had heard no success

stories at all.

And, for your information, I never said we were geting bad results

with chelation. I said it was a slow process. Andy is upfront about

that right from the start and this list does not push any other

message.

As a matter of fact, our son is doing very well right now, largely

due to chelation. We have good results from two recent rounds of TD-

DMPS (straight DMPS, not Buttar formula, i wanted oral but couldn't

get script). Last night he kissed his teddy bear goodnight. Last

week I posted on some good language and encouraging cheekiness. We

have reached a point where his ADHD is a bigger problem than the

autism and that is a pretty good place to be in.

Leave autism to the people who really care. Take your ego and your

commerce somewhere else.

Steve

[Guest guest]

-Good point Steve. It was late at night and I could not get my head

around it. I get so tired since surgery. I must admit that I am

trying to push the boundaries a little.

-- In achalasia , steve <stevenakamichi@y...> wrote:

>

> :

>

> you did spell " gastroenterologist " right!! If you see as many as

we have, spelling becomes easier.

>

>

> steve

>

> ykosworks <ykosworks@y...> wrote:

> -Like you I thought I had symptoms from another disease (also

quite

> rare) that was discovered when I was always sick. Thinking this was

> my problem, I continued on trying to manage it. My friendly

> haematologist is not the people type to explain how this disease

> really affected me. So, all along I thought the loosing weight,

> feeling sick, not eating, swallowing, belching, spasms,

> urking,embarrasing moments everywhere must have been associated or

> stress induced which seemed to effect it pretty bad.

> It was only when I stopped eating all together that the doctor said

> hey you need to see a gastroenterologist (think I spelt that one

> wrong too). The diagnosis was quick and I now have had the myotomy.

> I now find that symptoms like loosing hair etc is most likely being

> so sick from A and not the other disease and medication which I was

> blaming everything on. Maybe A is opportunistic disease and is a

way

> of the body saying hey we can't cope this stress any more and here

we

> go lets cause some trouble. Seeing it is the nerves that are out

of

> control. Many of us seem to have other health problems and stress'

as

> well.Just a thought going through my head.

> Well got to go to work now.

> Regards

>

>

>

> -- In achalasia , " michelle " <michelle.mcnair@p...>

> wrote:

> >

> > OK - here's my 2 cents and experience for what it's worth.

> > I had a hellers in 1989 (phew- the dark ages!!) for the first

year

> or

> > two, I couldn't vomit at all. Now I can - I don't know if it's

> time,

> > maybe it changed after my one post-op dilation or what. It's not

at

> > all easy - hurts like hell actually. But I can.

> >

> > On another note, for any who may be interested...

> > I had my gallbladder removed back in July, so it's been about 4

> > months now and wow!! What I thought were spasms for many years

were

> > really gallbladder attacks.

> > I used to read about people who were going to work and

functioning

> > through their spasms and I couldn't believe it. Mine were so

> terribly

> > painful and very often accompanied by vomiting. Well, that was

> wrong

> > too apparently. I've had a few spasms since surgery but for the

> most

> > part have been able to function through them. Still not fun but -

> > mother of god!- so very different. And now with the NuLev, I can

> get

> > through my day (cue angels singing!)

> > I guess my point here is that this is a type of pain that could

so

> be

> > mis-interpreted. I'm sorry I can't further define the difference

in

> > attacks for you all so that you'd know which was which. I even

> > theorize that maybe my gall attacks were triggering spasms or

vice

> > versa. Even getting an ultrasound for stones is not difinitive

> > because something like (Notan -help us out here) 30-40% of all

> adults

> > have stones with no symptoms. The surgeon wasn't convinced that

my

> GB

> > needed to be removed - other than my very extensive family hx of

GB

> > disease- but then found that it showed signs of chronic

> inflammation

> > (little bugger definately needed to go)

> > So here's a question - anyone else here have their GB removed

AFTER

> > surgery and/or the onset of A - and - what were the changes in

your

> > sypmtoms??

> > Not sure how much that will help but always looking to all the

> > different angles.

> >

> > happy Swallowing!

> > in Va.

> >

>

>

>

>

>

>

>

[Guest guest]

Steve,

Good luck to you...

Mukesh

Steve

We will be thinking of you and looking forward to hearing about your

progress. I also wonder if there is someone that can let us know how

you are while you are unable to post.

Jo

[Guest guest]

Steve,

The best of luck to you on Tuesday. Very glad to hear you're in

good spirits and a fine idea to have been getting your fill of

Champagne in advance – at least that's one positive thing the French

gave the world (to the non-Brits in the group, sorry but the Anglo-

French love/hate relationship runs deep but it is all in jest, well

almost!).

I guess it's unfortunately a given that you'll have some hard days

ahead but just keep focusing on the light at the end of the tunnel

and an end to your reliance on Ensure.

All the very best and once again good luck,

(London, UK)

>

> Steve,

> Good luck to you...

> Mukesh

>

>

> Steve

>

> We will be thinking of you and looking forward to hearing about

your

> progress. I also wonder if there is someone that can let us know

how

> you are while you are unable to post.

>

> Jo

>

[Guest guest]

Ann

thanks for the info! that's really interesting - i had all of those

symptoms

at the time of my worst heart episode. but i had my feratin levels

checked recently

(stored iron) and it was normal. i wonder if it's possible to have

anemia despite this?

also my RBC count is ALWAYS low. i'll bring this up with my doc.

Steve

On Nov 8, 2006, at 9:51 AM, catannbol wrote:

> Steve,

>

> I've learned that anemia can cause cardiac symptoms. If you search it

> at MayoClinic.com

> you'll find more info.

> http://www.mayoclinic.com/health/anemia/DS00321/DSECTION=1

>

> A quick excerpt;

> " …anemia can lead to a rapid or irregular heartbeat — an arrhythmia.

> Your heart must

> pump more blood to compensate for the lack of oxygen in the blood

> when you're anemic. "

>

> Other symptoms:

> Fatigue

> Weakness

> Pale skin

> A fast heartbeat

> Shortness of breath

> Chest pain

> Dizziness

> Cognitive problems

> Numbness or coldness in your extremities

> Headache

>

> Somewhere in there it also says anemia can be caused by " certain

> infections, blood

> diseases, and autoimmune disorders. " I don't know if Lyme or any of

> the co-infections

> could cause it.

>

> Ann

>

>

>

> > Thanks, Ann - let's keep each other posted regarding this (in post

> 1142)

>

>

>

[Guest guest]

Well said, Steve!

In a message dated 11/21/2006 11:51:27 AM Eastern Standard Time,

SteveF_MS@... writes:

What I do know is every user should be able to say what they like and

don't like about their own brand, or share good news about it without

those wearing another device taking the opportunity to criticize a

brand they don't wear. At least out of courtesy, don't you think?

[Guest guest]

Pippa,

Of course I don't mind you E-mailing me. I am not up to much at the moment. All I seem to be doing is exploring 100s of boxes of christmas decorations and spending hours and hours hanging just one decoration here and there.

STEVE

Steve

Steve its great to hear from you again how are you doing?I was going to e-mail you personnaly but wanted to give a couple of weeks to get your strength back firstYes I have to say I couldn't belive my luck when they said that they wanted to keep an eye on me I don't think I could have asked for better treatment look forward to your posts.It was me that had to ask though I think if I had kept my mouth shut they would not have suggested itMight e-mail your personal e-mail address later if thats okLovePippa x

All new "The new Interface is stunning in its simplicity and ease of use." - PC Magazine

[Guest guest]

Jo,

Just in case I was not clear. The GP will give you the four choices. I don't think you can pick the four (unless they are Foundation Trusts). But it is excellent that you know what is around you and you know about the various hospitals this should help you considerably when you see your GP.

My Hellers was undertaken by a general surgen with an interest and I was OK. However, if at all possible I would go for an Upper Gi Surgeon if you can find one.

GPs are still trying to asimilate this change in referral pattern so you may find you end up teaching your GP.

Best wishes to you too and have a good Chrsitmas.

STEVE

Steve

Thank you for your message Steve, I've had a quick look at that website and because I've just moved from Warwickshire to Northamptonshire I may have more choices. I've just read a little bit more about the surgeon who is potentially doing my Op. He's a general surgeon with special inteterest is Gastro...If I search under Northamptonshire I do get a large list of hospitals. I will make an appointment with my GP after christmas I think to talk about this and see what other options are available to me - thanks for the info, I'd never have known about it - funny how GP's dont mention things like this.Best Wishes for Christmas Steve.Jo

Send instant messages to your online friends http://uk.messenger.

[Guest guest]

Steve

Thanks for the info. I'll definitely make an appointment in the new year to

go and talk to my GP about it again and see what the options are.

Not had a great week with eating this week and just managed to eat some fish

pie last night so thats my first meal really since last weekend. Anyway,

off work for a 10 day break now so its not all bad .... keep positive hey!!!

Hope you're feeling ok.

Jo

>From: Steve Lennox <lennoxsteve@...>

>Reply-achalasia

>achalasia

>Subject: Re: Steve

>Date: Fri, 22 Dec 2006 22:49:34 +0000 (GMT)

>

>Jo,

>

>Just in case I was not clear. The GP will give you the four choices. I

>don't think you can pick the four (unless they are Foundation Trusts). But

>it is excellent that you know what is around you and you know about the

>various hospitals this should help you considerably when you see your GP.

>

>My Hellers was undertaken by a general surgen with an interest and I was

>OK. However, if at all possible I would go for an Upper Gi Surgeon if you

>can find one.

>

>GPs are still trying to asimilate this change in referral pattern so you

>may find you end up teaching your GP.

>

>Best wishes to you too and have a good Chrsitmas.

>

>STEVE

>

> Steve

>

>Thank you for your message Steve, I've had a quick look at that

>website and because I've just moved from Warwickshire to

>Northamptonshire I may have more choices. I've just read a little bit

>more about the surgeon who is potentially doing my Op. He's a general

>surgeon with special inteterest is Gastro...

>

>If I search under Northamptonshire I do get a large list of

>hospitals. I will make an appointment with my GP after christmas I

>think to talk about this and see what other options are available to

>me - thanks for the info, I'd never have known about it - funny how

>GP's dont mention things like this.

>

>Best Wishes for Christmas Steve.

>

>Jo

>

>

>

>

>Send instant messages to your online friends http://uk.messenger.

_________________________________________________________________

Be the first to hear what's new at MSN - sign up to our free newsletters!

http://www.msn.co.uk/newsletters

[Guest guest]

Bro Steve, Thanks, doing well, and aren't you still contemplating treating? Happy Holiday's to you and yours! Sheena steve brewer <brewmon2003@...> wrote: Sista Sheena, I'm sending you postive joo, joo! You go girl! Happy Easter and good luck, All is well in our world. SteveLee <leecuatemsn> wrote: I think that today is your start date. Wishing you an uneventful experience. If your anything like me don't expect to feel much effect until 8 or so hours later.GO SHEENA!!!Lee

Be a PS3 game guru.Get your game face on with the latest PS3 news and previews at Games.

[Guest guest]

First off, why did you reply to a post that is over a year old and

more than resolved, but copy a msg I made yesterday. This really

confuses the entire thread of discussion.

Second, my CI surgeon implants as many Nucleus devices as AB devices,

and does research with both.

He's mentioned by Chorost in his book " Rebuilt, " and is very

well respected.

I'm sure He knows more about each device than either of us.

But regardless, have you experienced it? Surely someone here must

have that can tell us something we'd all like to know.

sincerely,

Steve

>

> Steve,

>

> Maybe your CI surgeon needs to study up on all CI's. Or maybe he's

not

> up to par on what the Cochlear strategy has to offer. Maybe he

should

> contact Cochlear Americas himself and learn more on the product.

>

>

> Dixie

>

>

>

> Re: Jim and ''channels''

>

>

> I asked my world-renowned CI surgeon/researcher/instructor about it,

> and he'd never heard of it.

>

> Is there anyone here who has experienced it and can tell us more

> about it?

>

[Guest guest]

,

Let's cut to the chase and define some terms.

This may help clear things up, hopefully

1) A channel is a delivery mechanism, a spectral band is more like a

pitch. The channel is how it gets delivered, but the spectral band

or pitch is what gets delivered.

2) historically each electrode delivered one spectral band, so saying

xx channels was equivalent to saying xx spectral bands.

3) That is no longer true for AB's device.

4) Freedom is capable of something called current shorting (very

different from Current Steering), but it is a method of trying to

deliver additional spectral bands beyone 1/electrode.

However, Freedom is not approved for using current shorting to create

virtual spectral band maps.

5) What's misleading in the statements that have been made is the

idea that Freedom already produces 161 spectral bands for anyone who

has their audie turn it on. This is really misleading, almost

deceptive, even if unintentionally so.

What Freedom and Ace are approved for is a very limited form of

current shorting to work around a disabled electrode.

This (approved) use does employ current shorting, but not for

creating maps with 100s of virtual spectral bands. It is approved

in limited fashion for something quite different than what's being

claimed on this forum.

6) That's not to say it wouldn't be useful. I think Cochlear should

move forward with developing it as a full mapping strategy and

getting the FDA to approve it, but it's misleading to imply they

don't have to develop, perfect and publish more complex software to

create such maps.

7) It seems unlikely that Cochlear reps and audies are telling

customers they can have 161 channels today because, as you say, they

found this method of offering virtual spectral bands didn't improve

hearing or comprehension measurably, and they don't support it.

In addition, it would be illegal for them to do so anyway. The FDA

governs what mfgs can say about their products, and they get pretty

ticked off when claims are made that they haven't been legitimately

approved.

8) Essentially, the FDA has not approved the use of Shorting

electrodes in order create maps with 100s of spectral bands.

9) All you have to do is ask your audie (not your cochlear rep) to

create one for you to try, and they'll tell you they can't - they

don't have the software to do it nor FDA sanctioning of such a use.

10) to put it in perspective, , it would be equivalent to AB

reps telling people that their implants have had current steering

since 1997. All of AB's devices have had the multiple output

circuits necessary for current Steering, but they didn't have

published software or FDA approval to market them for such a use

until recently. It would be deceptive to say or imply otherwise.

I think most of the AB users here would be excited for their Nuke

friends and the future of current shorting on Freedom if they didn't

feel like the information being posted was intentionally misleading,

for the sake of falsely pooh-poohing their own recent exciting

upgrade.

Steve

>

> Hi Steve,

> Let me address your statements as we go along here:

>

> That tells us a lot about what we know:

>

> 1) Freedom hasn't been approved by the FDA for anything more than

22

> channels

> FREEDOM ONLY HAS 22 CHANNELS. THE OTHER TONES OR SOUNDS OR

WHATEVER

> WE ARE CALLING THEM ARE NOT CHANNELS. NOT WITH FREEDOM, NOT WITH

HiRES,

> NOT WITH HARMONY. A CHANNEL IS A CHANNEL. IT IS NOT A TONE OR

ANYTHING

> ELSE.

>

> 2) Which means no patient can use it today except in a trial

>

> NOT TRUE, FREEDOM IS FDA APPROVED, IT IS BEING USED BY BOTH ADULTS

AND

> CHILDREN. BECAUSE 22 IS THE NUMBER OF CHANNELS, NOT " SPECTRAL

BANDS " OR

> WHATEVER ELSE IT IS CALLED. YOU ARE CONFUSING CHANNELS (WHICH ARE

> RELATED TO THE NUMBER OF ELECTRODES) WITH SOUNDS THAT THE ELECTRODES

> EMIT. A CHANNEL, IN CONNECTION WITH ANOTHER CHANNEL (BI POLAR)

CAN

> EMIT MORE THAN ONE SOUND TO THE AUDITORY NERVE DEPENDING ON HOW IT

IS

> MAPPED. SO IF ONE CHANNEL CAN EMIT 6 DIFFERENT SOUNDS, THAT MAKES 6

> SOUNDS NOT 6 CHANNELS.

>

> 3) We have also been told the trials have not started, so no one is

> actually experiencing it yet

>

> WHO TOLD YOU THAT? ACE HAS BEEN ABLE TO DO THIS FOR 9 YEARS.

COCHLEAR

> DID TESTING AND FOUND THAT BETTER HEARING AND UNDERSTANDING WAS NOT

> GAINED BY THIS, AND IT WAS A VERY HIGH POWER DRAIN ON THE POWER

SOURCE

> FOR LITTLE INCREASE IN UNDERSTANDING.

>

> 4) The Freedom Implant has only 1 output circuit

>

> 5) With 1 circuit you must use current 'shorting'

>

> 6) Current 'shorting' it is very different than Current 'steering'

WHICH

> HAS BEEN STATED ALL ALONG. DIFFERENT WAYS OF DELIVERING THE

> INFORMATION.

>

> 7) Cochlear has stated previously that they didn't believe there

was

> any benefit to the user with such virtual channeling INDEED, THAT

WAS

> THE OUTCOME OF THEIR RESEARCH.

>

> 8) We can surmise they have changed their opinion (maybe by solving

a

> problem) and are now developing a current shorting solution.

STEVE, THEY

> KNOW HOW TO DELIVER IT ALREADY. THEY JUST DON'T SEE THAT IT MAKES

ANY

> MEASURABLE IMPROVEMENT IN HEARING OR COMPREHENSION.

>

>

>

>

[Guest guest]

,

Let me try to explain the technology so you can understand it more

clearly. It's not quite as simple as portrayed.

First of all, the way cochlear implants work by stimulating regions

of the cochlea in sequences, it happens fast enough that the brain

perceives sequences of pulses simultaneously.

That is true for all brands.

With a single output circuit, you get one pitch at a time, and with

an N-of-M strategy like Ace or SPEAK, you get up to 12-out of-22 in a

pulse train. The faster the stimulation rate, the more pulse trains

you receive in a second, so that HiAce set at 900 could cycle through

all 22 pitches 41 times each second.

At 1200 it would cycle through 22 pitches 54 times/second, but above

1300 is starts repeating itself, so additional speed doesn't increase

how many pitches you could actually hear together.

With multiple output circuits, many pitches can be presented at the

same time.

For instance, with HiRes F120 Paired, you get 2 pitches at a time and

15-of-120 in each pulse train. Since it doesn't repeat itself, the

fast 5200 stimulation rate means it could cycle through all 120

pitches 43 times each second.

With Cochlear's upcoming shorting strategy, the pallete of available

pitches would increase to 161 if they implement it that way.

Yielding 12-of-161 in a pulse train, at 900pps it could cycle through

all 161 pitches almost 6 times/second.

At 1200 it would would do so 7.5 times/second.

That's one reason I say the two are not really comparable.

It's not a slam, it's just communicating that oversimplified

conclusions misrepresents both product's capabilities and where

Cochlear is likely investing research.

I have little doubt Cochlear will introduce a multiple output array

soon, because people here are absolutely correct in saying they

continue to develop new technologies for better hearing.

And there's no reason to believe they won't do a fine job at it as

well.

They are a good company, but we don't have to diminish the exciting

stuff coming from elsewhere to establish that.

MedEl's got some great new stuff too that will give AB a run for it's

money. That's what keeps the advancements going, healthy respectful

competition.

Steve

>

> Hi Steve,

> You really do know how to write a run-on sentence. LOL.

> I have no clue what FDA approved or didn't approve. Not even

sure

> FDA has to approve mapping strategies. I don't personally use ACE

at

> all, so have to take someone else's word on how it works, and what

it

> does. But, if you find that someone is able to understand more

tones

> than you thought, that would be a bonus. And if you can measure

those

> tones, that would be good too. BUT none of the devices is going to

> deliver more than the maximum allowed by the electrodes. My

> understanding is that one hears a tone at the electrode, or off to

the

> side of the electrode, or somewhere between the electrodes (current

> steering or current shorting or whatever it is called) But you do

not

> hear BOTH at the same time.

> Like a TV set that has 22 channels. If you are in a broadcast

area

> where 195 channels are being broadcast at the same time, you can

still

> only pick up the 22 that you're TV is programmed for. So, if you

send

> off 195 sounds to the implant, but it can only handle 22 sounds at

the

> same time, that's what you're gonna get. 22. MAX. At a time. It

could

> be any 22 of the 161 with ACE on the Freedom, or any 15 of the 121

with

> Harmony and HiRes. But it's ONLY going to be the 15 or 22 at a

time.

> With Freedom and ACE, the processor will pick the BEST of the 22 to

> stimulate because ACE is a roving strategy. If you are using a CIS

> strategy, you will get the SAME electrodes stimulated each time,

because

> that's the way the CIS strategy is designed. Much faster, but

always the

> same electrodes stimulated.

> As I explained to Jim S above, more is not better. Too much

> stimulation at the same time does not give you better hearing or

> understanding. To the contrary it is confusing and

incomprehensible.

> This in clinical studies with a cochlear implant. Might not be

true with

> normal hearing, but sure is with an implant. I've participated in

those

> clinical studies for 3 years, and the results show more input does

not

> make for easier understanding. Imagine if you will having typical

> (normal) hearing and trying to understand speech, while an airplane

flies

> overhead, a baby cries, a lawnmower is running and someone is

playing

> rap music on a boom box. That's the kind of overkill input that

makes

> even hearing people wish they had hearing they could turn off.

>

>

> ,

>

> This doesn't really make sense.

> The FDA has not approved any virtual channeling option for Ace.

> If people running Ace are able to take advantage of it, then it had

> to be FDA approved and there would be a record in the FDA database

> and they wouldn't need to do an FDA trial now, and all the people

> talking about FDA trials would already know how to turn it on and

> report on the difference.

>

> Are you confusing it with something else maybe?

>

> Steve

>

>

[Guest guest]

Nothing is wrong. You may not PB without a fill...I never did. Not everyone is hungry after they get their band put in. The band, even when not filled, provides some people with a bit of restriction where other people don't necessarily feel it until they get a fill. Count yourself lucky if you are restricted enough to not feel hungry. It sounds to me like you are doing quite well with your band. Don't worry just because you haven't PBd. What about the weight loss? Is it coming off? Jennirenoalaska <renoalaska@...> wrote: Is this something that usually happens after you get your first fill? My surgery was 5/22/07 & I have never as you say PB-ed. I was not hungry any time after surgery & don't seem to ever be real hungry. Drink a high protein shake in the AM with skim milk & have dinner in PM of usually salmon or ground turkey with a little salad. Could it be my band has slipped? I eat, I feel full, don't think I eat more than 1,000 calories of low fat, low carb stuff.Do you think something is wrong?Steve

Moody friends. Drama queens. Your life? Nope! - their life, your story. Play Sims Stories at Games.

[Guest guest]

How good to hear you are at week 12, way to go! Okay here, you hang in! Does anyone know what Steve can use for that issue, I bypassed that one! Sheena steve brewer <brewmon2003@...> wrote: Sheena

how are you doing? I hadn't seen any mail from you and was a bit concerned. I do shot #12 tomorrow night. I'm hanging in there ok except for the riba "runs" I hope all is well Steve Sheena <mom4possums2002 > wrote: It was pretty eye opening. I am doing okay, hubby some better and I am up to my eyeballs in infant orphaned wildlife again.. Real busy tends to keep one out of trouble.. ;-) Jackie on <redjaxjm > wrote: wow,

thats amazing,, lots of really sad things they keep track of! How are you doing Sheena? Feeling better?Sheena <mom4possums2002 > wrote: Especially check out the world clock, it's suppose to keep track of new Hep C cases among much more.. http://www.poodwaddle.com/clocks.htm Pinpoint customers who are looking for what you sell. Jackie Park yourself in front of a world of choices in alternative vehicles.Visit the Auto Green Center.

Park yourself in front of a world of choices in alternative vehicles.Visit the Auto Green Center.

[Guest guest]

I especially liked the "life is very good" part. I always enjoy your posts. This one was especially kind, Thanks, Steve! Blessings, Sheena steve brewer <brewmon2003@...> wrote: Congrat's! Sheena I could always tell you had good energy and

are a very positive person. You are a welcomed moderator and will fit right in with the other caring , informative moderators. Well done. Thanks everyone for your positve support and priceless information and wisdom .............. Life is very good, SteveSheena <mom4possums2002 > wrote: Steph is my very dear, kindest hearted buddy, for those of you who don't know. She called and e-mailed me all the time, through the worst, when she was also going through the worst.. You are the best, , thank you, my friend, and perhaps you will also be willing to share, since we are basically both in the same boat... All sides need to be told at times..There are so many hurting out there, so many different stories.. Love, Hugs and Prayers, Sheena Ruggio <thestephanier > wrote: Sheena you are perfect for the job!!!!!!! Steph Park yourself in front of a world of choices in alternative vehicles.Visit the Auto Green Center. Got a little couch potato? Check out fun summer activities for kids.

Be a better Globetrotter. Get better travel answers from someone who knows. Answers - Check it out.

[Guest guest]

Hey Steve, Sure hoping that your doc addresses your low reds and whites quickly if they get TOO low.. It helps to have a heads up from the Lab, then perhaps you can give him a call.. Your viral load is plenty low, you may soon become undetectable! One question, in regards to the probiotics, why is it preferred to take one that does not have to be refrigerated? Sheena steve brewer <brewmon2003@...> wrote: Hey guys, I'm taking NAC which is a antioxidant and Glutathione precursor its supposed to work well with Vit. C. My doc told me to take Borage Oil which plays a major role in maintaining heart, skin, cell membrane and nerve health. You should probably take a good probiotic (that does not have to be kept in the fridge) it should contain both Lactobacillus and Bifidobacteria. The probiotics help you absorb your nutrients from your food a lot better and helps with your digestion overall and keeps the good flora in our digestive tract. I go in for my 12 week

lab results Wed.I already know I'm down to 1800 viral load and my white and red blood counts are low. I have a friend at the lab so she gives me the fyi on my test results. I think I have anemia. All is well in my world SteveSheena <mom4possums2002 > wrote: I am also looking for something better.. What I read on the Enerex: http://www.enerex.ca/products/wild_fish_oil.htm <The fish oils come from cold water ocean salmon. The encapsulated product contains fish oil, not fish liver oil. This distinction is important since fish

liver oils contain fat-soluble vitamins A and D, which if taken excessively, have the slight potential of being toxic.> Crossing fingers and toes with you that test results are good.. Sheena Lee <leecuatemsn> wrote: The Azithromycin seems to be clearing my ear infection, but after reading some of these posts I've been wondering what supplements to take to boost your immune system. I take a B-complex, C, Milk Thistle, E, and the Fish oil. The link that Jackie posted for the Enerex looks good but none of the links on that site show that exact Wild Fish variety available. The Fish oil that I'm taking says derived

from sardines, mackeral and anchovy.What do others take?Thursday I get my PCR results.Lee Building a website is a piece of cake. Small Business gives you all the tools to get online.

Looking for a deal? Find great prices on flights and hotels with FareChase.

[Guest guest]

Sheena, The article I read from "Integrative Interventions" says if there's no date stamped on the bottle,or has to be refridgerated don't buy it. Find one that guarantees that the bacteria is alive and will stay alive until an expiration date. And eat lots of yogurt if you can! They have lots of very informative health articles that can be downloaded at no charge. I'm sending all of us good thoughts and strength. Steve Sheena <mom4possums2002@...> wrote: Hey Steve, Sure hoping that your doc addresses your low reds and whites quickly if they get TOO low.. It helps to have a heads up from the Lab, then perhaps you can give him a call.. Your viral load is plenty low, you may soon become undetectable! One question, in regards to the probiotics, why is it preferred to take one that does not have to be refrigerated? Sheena steve brewer <brewmon2003 > wrote: Hey guys, I'm taking NAC which is a antioxidant and Glutathione precursor its supposed to work well with Vit. C. My doc told me to take Borage Oil which plays a major role in maintaining heart, skin, cell membrane and nerve health. You should probably take a good probiotic (that does not have to be kept in the fridge) it should contain both Lactobacillus and Bifidobacteria. The probiotics help you absorb your nutrients from your food a lot better and helps with your digestion overall and keeps the good flora in our digestive tract. I go in for my 12 week lab results Wed.I already know I'm down to 1800 viral load and my white and red blood counts are low. I have a friend at the lab so she gives me the fyi on my test results. I think I have anemia. All is

well in my world SteveSheena <mom4possums2002 > wrote: I am also looking for something better.. What I read on the Enerex: http://www.enerex.ca/products/wild_fish_oil.htm <The fish oils come from cold water ocean salmon. The encapsulated product contains fish oil, not fish liver oil. This distinction is important since fish liver oils contain fat-soluble vitamins A and D, which if taken excessively, have the slight potential of being toxic.> Crossing fingers and toes with you that test results are

good.. Sheena Lee <leecuatemsn> wrote: The Azithromycin seems to be clearing my ear infection, but after reading some of these posts I've been wondering what supplements to take to boost your immune system. I take a B-complex, C, Milk Thistle, E, and the Fish oil. The link that Jackie posted for the Enerex looks good but none of the links on that site show that exact Wild Fish variety available. The Fish oil that I'm taking says derived from sardines, mackeral and anchovy.What do others take?Thursday I get my PCR results.Lee Building a website is a piece of cake.

Small Business gives you all the tools to get online. Looking for a deal? Find great prices on flights and hotels with FareChase.