Guest guest Posted June 18, 2001 Report Share Posted June 18, 2001 Hi Artie! I'm Judi, mom to Sam & , 4 year old identical twins. It's always nice to have parents of older kids in the group because we learn a lot from your experiences. Glad you found us and I look forward to hearing more about your family. Judi __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2001 Report Share Posted June 18, 2001 Welcome Aboard Artie!! It's good to have you! I look forward to hearing more about your twins. So, Branden has DS?? And Benjamen does not have DS? I'm Sara... the list owner. 21year old medical (maybe changing to law) student at the University at Buffalo... in Buffalo NY. I have no kids yet.. just a wonderful fiance, Aref, who is a PhD student here as well. If you have any tech questions concerning the list... shoot them on over to me! Cheers! Sara --On Monday, June 18, 2001, 4:09 PM +0000 ayersfamily@... wrote: > I have just joined this group and would like to introduce myself. > I am Artie, I am married and have 3 beautiful, God sent, children. > Benjamen and Braden are 10 years old and is 7 years old. > Braden loves to run, walk, skip, jump, swing, swim and ride his > bike. He is a happy and healthy 10 year boy. > > I have joined this group to communicate with other parents that are > in the same unique situation that I am. I hope to make friends, learn > much and support when I can. > > I look forward to my involvement with this group. > Artie > > > http://DSyndrome.com/Multiples > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2001 Report Share Posted June 18, 2001 Hi Artie, Welcome to our Multiples Group. I am Marcia. My husband, Rand and I, have twins Sara, who has Down Syndrome and , who doesn't. They are six. We also have a son, Lucas, who is 10. We live in Sisters, Oregon. I look forward to hearing more about you and your family--you've joined a very supportive group, who understands your situation and also looks forward to the wisdom and knowledge you have acquired in your journey with your boys. Marcia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2001 Report Share Posted June 18, 2001 This is a great group. Welcome. Our family includes Amy 13, Kelsey 11, Davey (DS) 16 months, and Will 16 months. We have a happy crazy home near Reno, NV. Looking forward to hearing more about your family. New Member Introduction I have just joined this group and would like to introduce myself.I am Artie, I am married and have 3 beautiful, God sent, children.Benjamen and Braden are 10 years old and is 7 years old.Braden loves to run, walk, skip, jump, swing, swim and ride hisbike. He is a happy and healthy 10 year boy.I have joined this group to communicate with other parents that arein the same unique situation that I am. I hope to make friends, learnmuch and support when I can.I look forward to my involvement with this group.Artiehttp://DSyndrome.com/Multiples Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2001 Report Share Posted June 18, 2001 Hi Artie and welcome to the list! You couldn't have found a more caring and helpful group! I'm Carolyn and we live in Auckland New Zealand (just to the right of Australia!). Tony and I have 4 children and our youngest 2 girls both have Ds. Emma is 5 and a real dynamo and Nicki is 4 and also a real dynamo! Just a coincidence that we have 2 with Ds and they are our biological kids. Nice to have you here. Carolyn Mum to on 9, 7, Emma (Ds) 5 and Nicki (Ds) 4 http://www.geocities.com/nz_mom/sykesfamily.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2001 Report Share Posted October 16, 2001 Penny: My 6 year old son did this same thing.....it was hard to explain this behavior...........he would get wound up and start just being silly and wouldn't quit........it was very annoying. The last six months or so I noticed a decrease in this behavior, and I am not sure that I did a whole lot about it .........just ignored him when he got that way, and just kept redirecting him to something else......but I sure know, when we did homework he would say... " Isnt that funny " ...and I would have a hard time getting his attention back..... Debbie in Pa who also just loves this list!!!!!!!!!!!!!!!!!!!!!!!!! nospam@... wrote: > Hi All. > > I am new here and glad I found this list. > > I am going to read all the past postings and hopefully we can all > share experiences. > > My daughter is 6 1/2 years old and in full-inclusion 1st grade. > She does NOT have a 1:1 aide, although she SHOULD and we are still > working thru the bueracracy on this. > > One of the behaviors that is becoming a problem is > uncontrolled " silliness " ... I know that sounds, well, silly, but I > fear it is going to cost her a chance at social acceptance. > > She has a dx of Autism, and is very high-functioning. > > The latest issue is calling a twin by his brother's name. At first > this was cute, but now the boy is extremely annoyed with this. How > do I make her understand? She's not making fun of him, of course, > she just thinks it's so funny that they look absolutely identical. > > She doesn't understand that she is annoying him and hurting his > feelings. > > What would you all do? > > Thanks in advance...and thanks for the list! > > Penny > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2001 Report Share Posted October 16, 2001 Hi everyone, I'm new to the list. My son is 9 years old and a mixed diagnosis of Aspergers and HFA. His behaviors are so bad, we've put him in a school for Emotionally Impaired kids. I know the " experts " usually tell you not to put A.I. in with E.I. but so far they are helping Ben. I'll post more later. I look forward to talking to other parents who have extremely difficult children in the Autism Spectrum. Sincerely, -Eleanor Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2001 Report Share Posted October 16, 2001 Penny: Have you ever used Social Stories? This would be a perfect situation to teach your daughter not only not to call the twin his brother's name, but to teach her social understanding behind why she shouldn't do it. They work really well for us. My daughter, 9 1/2, is also HFA. Missy -----Original Message-----From: nospam@... [mailto:nospam@...]Sent: Monday, October 15, 2001 7:09 PMautism Subject: [autism] New member introductionHi All.I am new here and glad I found this list.I am going to read all the past postings and hopefully we can all share experiences.My daughter is 6 1/2 years old and in full-inclusion 1st grade.She does NOT have a 1:1 aide, although she SHOULD and we are still working thru the bueracracy on this.One of the behaviors that is becoming a problem is uncontrolled "silliness"... I know that sounds, well, silly, but I fear it is going to cost her a chance at social acceptance.She has a dx of Autism, and is very high-functioning. The latest issue is calling a twin by his brother's name. At first this was cute, but now the boy is extremely annoyed with this. How do I make her understand? She's not making fun of him, of course, she just thinks it's so funny that they look absolutely identical. She doesn't understand that she is annoying him and hurting his feelings. What would you all do?Thanks in advance...and thanks for the list!Penny Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2004 Report Share Posted April 6, 2004 Hi, My name is and I am new to this group. My son, Ian was diagnosed with idiopathic infantile scoliosis at the age of 7 months. He is a twin and his brother is fine. He got his first cast on when he was 17 months old. He had a total of 3 casts. He now is wearing a TLSO brace for 22 hours per day. We are getting our treatment at the University of Michigan Hospital. Ian's curve is a left thoracic curve, which initially mesaured 38 degrees. By the time we got his first cast on, he was in the upper 50's. AFter his last cast, he measured 22 degrees. Two weeks later in his brace, he measured 40 degrees again. We go back and see our Dr. in June for another Xray to see what the next step is. Our dr. mentioned that we may have to put him back in a cast-just in time for summer! I'm hoping by joining this group I can learn as much as possible about this condition and how we can further assist our son in his treatment. I'm looking for anyone who might have a similar situation and can help provide any information. Looking for a pen pal to share info. Thanks - Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2004 Report Share Posted April 6, 2004 Hi , My name is Bridgette Welcome to the group I have a little girl that will be 3 in July her name is I don't know if you had a chance to go on to the pictures on the group her pic is on thier and it showa her in her cast and some x-rays before and after she has been doing the casting.Why did your sons doc stop the casting and go back to the brace when he was getting good results with casting. If I were you I would see if you can get in sooner to see him and ask for him to do the cast again. Hyatt has a video you can buy or she will let you borrow it it is a wounder video on plaster casting.Just post a message to and she will be in touch with you about the video and any questions you might have she is a woulderful person who cares about all of our little Angels and to get them the best treatment. just got her 3rd cast on March 31st and she is having wounderful results. How old is your son now? I will keep him in our prayers If you need anymore information on what has been through and the treatment she is getting now just let me know. Bridgette,(s mommy) Re: New Member Introduction > Hi, > > My name is and I am new to this group. My son, Ian was diagnosed > with idiopathic infantile scoliosis at the age of 7 months. He is a twin > and his brother is fine. He got his first cast on when he was 17 months > old. He had a total of 3 casts. He now is wearing a TLSO brace for 22 > hours per day. We are getting our treatment at the University of Michigan > Hospital. > > Ian's curve is a left thoracic curve, which initially mesaured 38 degrees. > By the time we got his first cast on, he was in the upper 50's. AFter his > last cast, he measured 22 degrees. Two weeks later in his brace, he > measured 40 degrees again. We go back and see our Dr. in June for another > Xray to see what the next step is. Our dr. mentioned that we may have to > put him back in a cast-just in time for summer! > > I'm hoping by joining this group I can learn as much as possible about this > condition and how we can further assist our son in his treatment. I'm > looking for anyone who might have a similar situation and can help provide > any information. Looking for a pen pal to share info. Thanks - > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2004 Report Share Posted April 21, 2004 Okay, super small world here... I'm in Macedon too. :) My husband and I moved here from Seattle about a year and a half ago.. Kirstin > Hi, everyone. I am new to the group. (I actually found out about you > guys from Katy whom I met through another group.) I've been making CP > soap for three years, only using EOs, but I'm wanting to try some FOs > now, too. I live in Macedon, outside the Rochester area. I'm excited > to find an active group of local soapers Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2004 Report Share Posted April 21, 2004 In a message dated 4/21/2004 9:46:06 AM Eastern Daylight Time, juliak@... writes: I've been making CP soap for three years, only using EOs, but I'm wanting to try some FOs now, too. I live in Macedon, outside the Rochester area. I'm excited to find an active group of local soapers!!!!! ~~~~~~~~~~~ Hi , Welcome! I'm new here too, but everyone's been very nice. :-) I also homeschool, only I have 6 kids, 3 of whom have graduated. I just started this winter making cp/hp, and have been making toiletries for maybe 4 years. It's great fun! Beth Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2004 Report Share Posted April 21, 2004 Welcome to our group. I just read that there's another member in the same town as you. What a small world. I live about 13 miles east of Utica in a small town called Ilion. I only do M & P and other toiletries. I have a 28 yr old daughter who gave birth to our first grandchild 8 months ago and I also have a soon-to-be 16 yr old daughter. I hope you enjoy our little group. new member introduction Hi, everyone. I am new to the group. (I actually found out about you guys from Katy whom I met through another group.) I've been making CP soap for three years, only using EOs, but I'm wanting to try some FOs now, too. I live in Macedon, outside the Rochester area. I'm excited to find an active group of local soapers!!!!! So far I've only been soaping for ourselves and mostly gifts, but I do have some friends and friends of friends who have bought soaps on occasion. I'm thinking about taking the jump to expand on the " business " side, but I'm still looking into paperwork, etc. that needs to be done. On a personal note, I am mostly a stay-at-home mom to a high energy 6 year old boy, and we homeschool. I'm very interested in alternative healing and Waldorf education, I like to knit and sew, and I want to think that I will have a decent garden this year, but we'll have to see about that. Oh, and I'm trying to get back onto my raw fruits & veggies diet. I think that about sums me up! :-) Would someone please send me information about the gathering. Thanks so much! I am excited to be here!! K. (I take it there are several s here, but are there any other s?) " The quality of our thoughts is bordered on all sides by our facility with language. " -J. Straczynski Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2004 Report Share Posted April 21, 2004 Welcome to the group . Hope you enjoy it! I'm Shaye and I live north of you (in Ontario). The gathering is on July 10 and it will be near Albany (south I think). Stay tuned for more info. Welcome! Shaye new member introduction Hi, everyone. I am new to the group. (I actually found out about you guys from Katy whom I met through another group.) I've been making CP soap for three years, only using EOs, but I'm wanting to try some FOs now, too. I live in Macedon, outside the Rochester area. I'm excited to find an active group of local soapers!!!!! So far I've only been soaping for ourselves and mostly gifts, but I do have some friends and friends of friends who have bought soaps on occasion. I'm thinking about taking the jump to expand on the " business " side, but I'm still looking into paperwork, etc. that needs to be done. On a personal note, I am mostly a stay-at-home mom to a high energy 6 year old boy, and we homeschool. I'm very interested in alternative healing and Waldorf education, I like to knit and sew, and I want to think that I will have a decent garden this year, but we'll have to see about that. Oh, and I'm trying to get back onto my raw fruits & veggies diet. I think that about sums me up! :-) Would someone please send me information about the gathering. Thanks so much! I am excited to be here!! K. (I take it there are several s here, but are there any other s?) " The quality of our thoughts is bordered on all sides by our facility with language. " -J. Straczynski Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 10, 2004 Report Share Posted November 10, 2004 Wow, what an introduction - I didn't see any mention of Down syndrome - only some type of things I have no clue about, nor do I want to know. Sounds like a spammer to me and I removed that person. Anytime someone puts initials that aren't readily recognizable after their name is a red flag for me. Some of you will remember the BNA title someone used years ago when pushing a product. I saw several things that were red flags and obviously Rick called it on the person. Honestly, I quickly read the post last night, but had to email Mathew's teacher and then attend to things here (Tim was out of town) and crashed when I put to sleep- I wondered who would reply before I did..lol! Moderators can moderate (meaning they have to approve the message before it's sent out) any individual if they suspect something is up - I rarely have to do this, but in this case, it would have been called for- and removal, too. If you all see something in the future, you can alert one of us - it would be best to forward the email to me or another moderator with something in the subject area to get our attention. I know it's hard to ignore spammers, but do try and let us take care of it. Imagine their frustration when no one responds...lol! Kathy has my work email address and cell phone number just in case I need to see something quickly. Ok, gotta run to the pharmacy and pick up another prescription..... --- Outgoing mail is certified Virus Free. Checked by AVG anti-virus system (http://www.grisoft.com). Version: 6.0.792 / Virus Database: 536 - Release Date: 11/10/2004 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2005 Report Share Posted February 13, 2005 Hi Lorna, It sounds like these fevers are a frightening experience for you and Penelope. I can understand why you have a hesitation with the diagnosis. Sudden spiking fevers and severe headache are NOT symptoms of . I would definitely investigate further. There is a lot of information in the FILEs section of this website and there is a LOT of info on the internet in general. There is a condition called NOMID/CINCA you may want to look into. Sudden spiking fevers, rashes and neurological disorders are part of that disorder. There are many other things it could be too, so start your own research. Please be strong with the doctors. We saw 16 doctors and specialists before one took us seriously. We then were seen at the NIH and got the diagnosis we had suspected all along. Hyper IgD syndrome (HIDS) and BOTH our daughters have it. It's very rare- only about 200 people have been diagnosed with it so far. None of our local doctors had even heard of periodic fevers, much less HIDs. Good luck and welcome to the group, Wilke Vancouver BC Canada Mom to Hana 4 and Georgia 2 > > Hi Everyone, > > My name is Lorna Rodgers, we moved to Atlanta from Seattle about 5 > months ago. My daughter Penelope who is now 4.5 was diagnosed with > 1 year ago after many tests and visits to more specialists > than I knew existed. The infectious disease center at Children's > Hospital in Seattle said that they couldn't find any other cause for > what is going on and they diagnosed her with . I am hesitant to > end my search for a diagnosis because I feel that I have too many > hesitations about the diagnosis. > > Since we have been in Atlanta her fevers have begun to spike and > drop at alarming rates (to me). On Thursday my daughter had her > first febrile seizure (15 days to the hour after her last fever.) > She went to bed with no fever, then approximately 1 hour 20 minutes > later I heard her screaming and I ran in to see what had happened. > She was grabbing her head and screaming that it hurt and that her > leg hurt, her face and body were red and she was very hot. I took > her out of her bed to try to cool her down and as soon as we were in > the living room she started to seize. I didn't even have a chance > to check her temp. I was so scared that it was difficult to think > straight! After the seizure (I think it may have only last less than > a minute, but it seemed like it lasted a lot longer) she was > completely unresponsive for about 10 minutes and then for > approximately 20 minutes she was holding her head screaming that her > head hurt. At that point we took her temp and it was 103.8. Three > hours later her fever was GONE! > > Then the next day at about 3:00 PM her fever started to spike again > and she went from 99.7 to 102.9 in 20 minutes, an hour later it was > 104. Then it went back to normal before bed time and she had a fever > free night. On Friday, late morning, her fever was 102.8 and then > went back to normal and spiked 3 times throughout the day but never > higher than 102.8. This morning she is fever free. > > To complicate matters a bit, she was adopted from China at age 2 and > I have very little medical history and no family history. Some of > the muscles in her left leg are atrophied, her left leg is slightly > shorter, her hip bone is smaller and the muscles are weak in the > front of her neck. Her neurologist, Dr. Glass in Seattle, diagnosed > her with having had a possible stroke and Dr. Bledsoe, an adoption > specialist in Seattle, thinks that she may have had polio from the > live virus vaccine before she was adopted. > > Her fevers are frequently accompanied by a rash over most or part of > her body, but they are not consistent; the last time she had a > significant rash was Christmas last year. The fevers are also > followed by 1 to 3 days fatigue and irritability. > > The first time I took her to the doctor here in Atlanta, Penelope > was so exhausted and just laying on my shoulder and not interacting > with the doctor. (She is normally very extroverted and loves people) > I told him about the fever she had just had and how she was always > lethargic after an episode. The doctor didn't ask ANY questions and > the first thing he said was: " well you know that these adopted > children will have lifelong emotional issues " I was so angry I just > wanted to walk out of the office. I had her medical file in hand and > I didn't even let him look at it. > > When I took her to a different pediatrician here on Thursday she > referred me to a neurologist Dr. Goldstein and to an infectious > disease specialist Dr. Balcarek. Are there other parents in the > Atlanta area who can give me a recommendation for a good doctor in > the area who has experience with or one whom you felt took the > situation seriously and listened to your concerns? I loved our > pediatrician Dr. Bledsoe in Seattle and I miss her expertise > terribly. > > Thanks for reading my post. I welcome any insight or suggestions > regarding our situation. > Lorna > Mom to Penelope age 4.5(and Matilde age 8) > > P.S. My good friend , (McKenzie's mom) from the list and I were > college roommates. She told me about the list about a year ago. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2005 Report Share Posted February 16, 2005 My daughter had and had spikes in temperatures from 98 - 102 degrees and had leg pains. The leg pains could be part of the , or normal growth spurt. Had her tonsils out hasn't had a or fever since. I would look at all the posts here and nail your doctor down with a diagnosis. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2005 Report Share Posted August 10, 2005 At 10:08 PM 8/8/2005, you wrote: >I am surprised to find a group of this size devoted to my favorite >topic. I don't know anyone else who makes perfume and most people >think I'm kind of wacky when I tell them it is my number one >hobby. :-) Oh, all you had to do was stick your nose in the air and get a whiff of the fragrant breeze ;-) Glad you found us, Jodi, and welcome to the group. >I just finished " Scents and Sensibilities " by Aftel and I am having >a great time searching for little tins, boxes, lockets, etc. for my >solid perfumes at garage sales and thrift stores. I had done mostly >perfume oils or perfumes diluted in alcohol before, so the solid >perfume is a whole new kick. Solids are wonderful, and marketing research shows they are incredibly popular among young girls and women, due to their portability and ease-of-use. Just jump in with any questions -- I'll bet you have a bunch after reading the message archives and Files sections. Don't forget to check out the links to our own natural perfumers and suppliers in the Links section. Anya http://.com The premier site on the Web to discover the beauty of Natural Perfume " The Age of the Foodie is passé. It is now the Age of the Scentie. " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 14, 2005 Report Share Posted September 14, 2005 I want to incorporate unique indigenous plant EO's, thus making them truly 'Alaskan', so have been learning the art of distilling several select plants in my area, with the small distiller sold on ebay. I want each fragrance to incorporate at least one indigenous plant. That is the key to the success of such a line as mine in a gift-type store. I have been searching for a group such as this I could learn from, and share with. I've been going through the archives a little bit the last two days to get a feel for this group, and I must say, I'm both very happy to be a part of it, and impressed. I think I may have to sit at the feet of the masters here a little bit, which is an apprenticeship I've been looking for. Kathy Flathorn Lake, AK Hi Kathy and welcome to the group. I think your ideas of marketing 'Alaskan' fragrances is wonderful. People love this sort of thing.I do. It can be really challenging to come up with a finished all-natural fragrance that one is happy with. The challenge for natural perfumers is that most of our ingredients, eos, abs, etc.are very complex. Every time we add a single ingredient we are really adding many ingredients. Some of these essences, like rose, have several hundred molecular constituents. The most important thing I've learned is that a good perfume is a balance between simplicity and complexity. Our ingredients are complex, so we must use them in a way that reflects this. So, regarding simple 3-5 note eo blends.remember that 3-5 note accords can provide a necessary structure for a perfume, an underlying accord (simplicity) that a more complex composition can be built on. This structure provides the essential character of a scent and can be embellished by judiciously adding smaller amounts of other ingredients. There is beauty in simplicity and sometimes 3 ingredients can be composed to create a most striking fragrance. Ah, but who stops there? Not I ! Happy perfuming Terry www.dragonflyaromatics.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 14, 2005 Report Share Posted September 14, 2005 From: [mailto: ] On Behalf Of Kathy C Sent: Tuesday, September 13, 2005 8:40 AM Subject: New Member Introduction I want to introduce myself as a new member. My name is Kathy, I hail from Alaska, and have been interested in natural perfumery for a few years, the last year seriously. Presently, I'm trying to come up with a line of natural 'Alaskan' fragrances to market to the local gift shops. There is real interest in a product such as this, but coming up with the finished fragrances has been more difficult than I envisioned, #1 because I've set my standards high, and #2 because it is more difficult than it seems to make something other than a simple 3-5 note EO fragrance. I want to incorporate unique indigenous plant EO's, thus making them truly 'Alaskan', so have been learning the art of distilling several select plants in my area, with the small distiller sold on ebay. I want each fragrance to incorporate at least one indigenous plant. That is the key to the success of such a line as mine in a gift-type store. I have been searching for a group such as this I could learn from, and share with. I've been going through the archives a little bit the last two days to get a feel for this group, and I must say, I'm both very happy to be a part of it, and impressed. I think I may have to sit at the feet of the masters here a little bit, which is an apprenticeship I've been looking for. Kathy Flathorn Lake, AK Hi Kathy, Happy to see you here. Wow, someone who is up-close-and-personal to the famed Iditarod! I know it crosses Flathorn Lake. I am down here in WA state and I've long worked with indigenous plants of the greater Pacific NW (including Rainforest). A colleague of mine, Carol Biggs has photographed and published two great little pocketbooks of wild edible and medicinal plants in AK/CA, (easily carried when wildcrafting/researching) that would be helpful to you and may introduce you to new species you haven't thought of. We carry these little pocket guides if you are interested. There are a growing number of distillers in Canada producing unusual indigenous essential oils and hydrosols from our beautiful part of the world, that you may wish to connect with. http://www.anhan.org/about_us.jsp is one of the organizations in Alberta, funded by the Canadian government for new crops, including aromatic. I've purchased lovely unusual oils and hydrosols from several of their members, including fireweed and (swoon) sweetgrass. Don't forget that some of the fragrances are best captured by tincturing, so if you are disappointed in the results of distillation, try other methods like tincturing or enfleurage. I've had the Sitka valerian (Valeriana sitchensis) herb, but I've often wondered about the flower. Other valerian spp. flowers have a heady sweetness that would be wonderful in perfumes if we can capture it. Have you worked with this one? There are a lot of species indigenous to AK named as such . . . For instance, most of us in the northern climes are familiar with Mountain Ash (also with a lovely fragrant flower, btw)and perhaps not many here know that there is a variety specific to your area, Sorbus Sitchensis. Another flower I'm interested in is Ocean Spray or Creambush and sometimes called Ironwood (Holodiscus discolor) from the Rose (ceae) family with a sweet-smelling flower that may give unique fragrance to perfumes. This bush grows in open areas, clearings and coastal bluffs all over AK. Can you describe the distillation equipment you got from E-Bay? Or send url to view it? I know that there is a little gin distiller on E-Bay that was once advertised in airline catalogs . . . Years ago, before I knew about the complexities of essential oil distillation, I bought one of those, but quickly became discouraged with it, especially after seeing and purchasing better equipment that had actual cooling coils and sep funnels. I am still looking for the small glass alembic unit used at the turn of the century (i.e.,last one) in 'lady's still rooms'. Sigh. One of these days I'll find it and find a glass blower to replicate it. In case you have missed the information, Jeanne Rose is teaching a wonderful natural perfume intensive here in Snohomish, WA the 23-25th of this month. Still room for one more and it's really not that far for you; check my website. Be well, Marcia Elston, Samara Botane, http://www.wingedseed.com/katrina.htm " First of all, cultivate a contented spirit; a garden is a good place to begin. " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2005 Report Share Posted September 18, 2005 Welcome to the list, you will love it here. The picture of the keyboard on the seat of your bike cracked me up, that is WAY funny! YOU look fabulous, and I wish you much success on your weight loss journey. Pam --- bfl_pianolady <bfl_pianolady@...> wrote: > Hi everyone, > > I'm so glad to find this forum. After several months without access > to my weight room (due to home renovation), I'm just itching to get > back into the BFL lifetstyle. Hope it's ok to post my webpage about > my background. I don't sell anything, just info that's easier to > link to than retype here. LOL > > http://www.bondpiano.com/weightloss/ > > > __________________________________ - PC Magazine Editors' Choice 2005 http://mail. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2005 Report Share Posted September 18, 2005 Hello, I loved looking at your new exercise room. We just converted our garage into a weight room/family room and I love it soooo much, I don't have to wait for dh to get so I can lift weights and now can play my music loud since the treadmill isn't in the dining room. I also noticed someone in your family is a HotWheels collector, my dad is too! HUGE! It's nice to have you here! -- New Member Introduction Hi everyone, I'm so glad to find this forum. After several months without access to my weight room (due to home renovation), I'm just itching to get back into the BFL lifetstyle. Hope it's ok to post my webpage about my background. I don't sell anything, just info that's easier to link to than retype here. LOL http://www.bondpiano.com/weightloss/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2005 Report Share Posted September 19, 2005 The support you get from this site is amazing, and the knowledge is wonderful as well. I too have followed weight watchers, which is a great program for a beginner, and someone new to diet and exercise. But if you are ready to stop following a diet, and make a lifestyle change to have it become part of your life, and move your exercise to the next level. Then welcome to BFL. You will love the program, it has transformed my life, and I am so happy that I took the steps, followed the program and joined this awesome support group. It has made such a difference, in my attitude toward fitness, and my life in general. Good Luck, and welcome to our group! ~ clovermillie <chmurphy@...> wrote: Hello All, Just wanted to take a moment to introduce myself. I'm Clover, married, age 42, with two ds's(13 and 16). I'm new to BFL after doing Weight Watchers for many years but not new to exercise as I've been working out in one form or another since I was 16. My trainer has encouraged me to follow BFL for about a year now and I'm finally ready to commit. I've read the book and also BFL for Women but feel like I will need the support of this group to help me on my way. cm Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2005 Report Share Posted September 24, 2005 --- Marcia Elston <samara@...> wrote: > Hi Kathy, > > Happy to see you here. Wow, someone who is up-close -and-personal to the famed Iditarod! I know it crosses Flathorn Lake. I am down here in WA state and I've long worked with indigenous plants of the greater Pacific NW > (including Rainforest). A colleague of mine, Carol Biggs > has photographed and published two great little pocketbooks of wild edible and medicinal plants in AK/CA, (easily carried when wildcrafting/researching) that would > be helpful to you and may introduce you to new species > you haven't thought of. We carry these little pocket guides if you are interested. There are a growing number of distillers in Canada producing unusual indigenous > essential oils and hydrosols from our beautiful part of > the world, that you may wish to connect with. > http://www.anhan.org/about_us.jsp is one of the > organizations in Alberta, funded by the Canadian > government for new crops, including aromatic. I've purchased lovely unusual oils and hydrosols from > several of their members, including fireweed and (swoon) > sweetgrass. > > Don't forget that some of the fragrances are best > captured by tincturing, so if you are disappointed in the results of distillation, try other methods like tincturing or enfleurage. I've had the Sitka valerian (Valeriana > sitchensis) herb, but I've often wondered about the > flower. Other valerian spp. flowers have a heady sweetness that would be wonderful in perfumes if we can capture it. Have you worked with this one? There > are a lot of species indigenous to AK named as such . . .. For instance, most of us in the northern climes are familiar with Mountain Ash (also with a lovely fragrant > flower, btw)and perhaps not many here know that there is > a variety specific to your area, Sorbus Sitchensis. Another flower I'm interested in is Ocean Spray or Creambush and sometimes called Ironwood (Holodiscus discolor) from the Rose (ceae) family with a sweet-smelling flower that may give unique fragrance to perfumes. This bush grows in open areas, clearings and coastal bluffs all over AK. > Can you describe the distillation equipment you got from > E-Bay? Or send url to view it? I know that there is a little gin distiller on E-Bay that was once advertised in airline catalogs . . . Years ago, before I knew about the > complexities of essential oil distillation, I bought one > of those, but quickly became discouraged with it, especially after seeing and purchasing > better equipment that had actual cooling coils and sep > funnels. I am still looking for the small glass alembic unit used at the turn of the century (i.e.,last one) in 'lady's still rooms'. Sigh. One of these days I'll find > it and find a glass blower to replicate it. There's much information in your response - I'm still working through it, but am glad to have it. Just to let you, and everyone, know - if I don't respond to queries for a long time, it's because my homestead is off the road/power grid, and I have internet access only when I come to Anchorage. My non-responsiveness just means I'm at Flathorn. I'm also surprised you recognized it as an Iditarod waypoint - you must have been up here during the race to know that. Actually, the father of the Iditarod was my neighbor growing up, a true dyed-in-the-wool character - part scoundrel, part snake-charmer, part genius, as befits the category. The ebay distiller is this one: http://cgi.ebay.com/ESSENTIAL-OIL-STEAM-DISTILLATION-EXTRACTION_W0QQitemZ5617835\ 402QQcategoryZ11776QQssPageNameZWDVWQQrdZ1QQcmdZViewItem This seller makes his own, and always has one or two up for sale. Your indigenous plants information was most interesting. The ones I've been focusing on are Oplapanax horridus " Devil's Club " , which I believe also grows locally in Washington, and the flower of the Silverberry, Elaeagnus commutata. The Devil's Club had medicinal and spiritual uses in the indigenous people's culture, and possesses in addition, a wonderfully deep, earthy fragrance. I have been trying to steam distill it, with mixed results. I am making a tincture with Everclear at the moment, as my sister, a shaman, prepares it in that manner for her ceremonies. Its fragrance also comes true in oil maceration, but the maceration tends to keep bubbling from the active agents leached from the bark, which won't work for a commercial fragrance. To date, I have used the maceration as a base for my experimental fragrances. I'm also experimenting with its ancient usage as a treatment for infections of all sorts, both external and internal. Though marketing this as a therapeutic fragrance oil is more legally formidable than simply as a fragrance, I still like the idea that such a product can also be healing. The Silverberry flower is one of the most fragrant wildflowers I've smelled here, a sort of soapy Gardenia or Osmanthus fragrance up close. The soapiness disappears when dispersed. The EO yield was pitifully small, which came as no surprise. I wish I'd thought of your suggestion to make a tincture of them in June, when they bloom. I now have to wait until next summer to proceed with this plant. Thanks for the URL for the Canadian distiller's group. I'm sure they have a similar mix of flora available to them as here. I'm familiar with some of the plants you mentioned, and not with others. I know the mountain ash you speak of - it is a coastal shrub - but had not considered working with it as a fragrance. I will look into the valerians. The Cream Bush, Holodiscus discolor, did not ring a bell. I suspect it may be most predominant in the Southeast. I looked it up on the internet, and it doesn't look familiar, but the fragrance sounds lovely. Labrador Tea and Sweetgale are two other local plants I'm interested in incorporating. After an internet search I see at least sweet gale is available in an eo. These two make up the primary fragrance of the dry bogs in my area, and it's a smell I would dearly love to be able to bottle. Kathy Flathorn Lake, AK __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 27, 2005 Report Share Posted September 27, 2005 Welcome Kristi, We are nearly neighbors! I live in Andover near 161st and Hanson. Kimi ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ Check out Amber's site: www.Jremedies.com " I do not ask that Thou should give me some high or noble task. Give me little hands to fold in mine. Give me little children to point Thy way, over the strange, sweet path that leads to You. Give me little voices to teach to pray. Give me shining eyes Thy face to see. The only crown I ask to wear is this, that I may teach my children. I do not ask that I may stand among the wise, the worthy, or the great; I only ask that softly, hand in hand my children and I may enter at the gate. " -Anonymous Quote Link to comment Share on other sites More sharing options...
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