Another Question

[Guest guest]

Hi Stacey

I was hyper and went for RAI and am now hypo. Hyper does some very

serious things to your body - my resting heart rate was 160 beats per

min. My eyes are a disaster. I gained when I was supposed to lose. I

gained 35 pounds. I have high cholestral. I had high blood pressure.

Haven't checked it for a while. The bottom line is that hyper is life

threatening.

K

Staceyinsouthfla@... wrote:

>

> Why is it worse??

>

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[Guest guest]

Hi Kozy,

thanks much for the info...I appreciate your taking the time to put it

together for me!

KTenn36117@... wrote:

>

> ,

>

> Here is my version that I got it from a friend who gave me the 3 - Day Diet

> list a couple of years ago. This is the one that I lost 40 lbs on this one.

> I recently found another one just like this but a little similar but it is

> found in the Faddiet.com. This version in the Faddiet.com is the first I've

> seen but I have not yet to try this one. I'm going to try this one out and

> see if I can lose weight on this one than the one I have. Its worth a try.

> Hope this helps ya and understanding what's in this three day diet.

>

> Kozy

>

> 3 - Day Diet

> Remember, do not snack in between meals. Diet must be followed exactly.

>

> 1ST DAY

>

> Breakfast:

> 1/2 grapefruit, 1 slice of dry toast, 2 tbsp. peanut butter, black coffee or

> tea

> Lunch:

> 1/2 cup tuna, 1 slice of dry toast, coffee or tea

> Dinner:

> 2 slices any type of meat (about 3 ounces), 1 cup string beans, 1 cup beets,

> 1 small apple, 1 cup lowfat plain yogurt.

>

> 2ND DAY

>

> Breakfast:

> 1 egg, 1 slice of dry toast, 1/2 banana, black coffee or tea

> Lunch:

> 1 cup of cottage cheese, 5 saltine crackers

> Dinner:

> 1 skinless chicken breast, 1 cup broccoli, 1/2 cup carrots, 1/2 banana, 1/2

> cup lowfat plain yogurt

>

> 3RD DAY

>

> Breakfast:

> 5 saltine crackers, 1 slice of cheddar cheese, 1 small apple, black coffee or

> tea

> Lunch:

> 1 hard boiled egg, 1 slice of toast

> Dinner:

> 1 cup tuna, 1 cup beets, 1 cup cauliflower, 1/2 cantaloupe, 1/2 cup lowfat

> plain yogurt

>

> Diet works on chemical breakdowns and is proven. Do not vary or substitute

> any of the above foods. Salt and pepper may be used but no other seasonings.

> Where no quantity is given there are no restrictions, other than common

> sense. This diet is to be used three days at a time. Fluid consumption is

> important. You may have all the coffee, tea, or water that you like. If

> possible, drink at least eight glasses of water daily. Artificial sweetener

> and lemon maybe used. Please refrain from colas or other carbonated beverages

> during the three day diet because the carbonation will slow down the chemical

> breakdown. In three days, you can lose up to 10 lbs. After three days of

> dieting, you may eat normal food but do not overdo it. After your four days

> of normal eating, start back on your 3-Day diet.

>

> ------------------------------------------------------------------------

> Remember four years of good friends, bad clothes, explosive chemistry

> experiments.

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> ------------------------------------------------------------------------

[Guest guest]

Please remove me from this e-mail list.

Thanks,

[Guest guest]

God Bless you . That was alot of really wonderful information. I printed

it out so I can refer back to it. Funny you mentioned Weight Watchers -- I

tried that this year -- chalk it up to another money waster that only has helped

a tiny bit.

I cant wait to ask my new doctor for the T3. I am currently on 200mcg of

synthroid and I feel exhausted all the time. I am also on estrogen based birth

control -- any comments about that. pro or con?

--kathleen

In a message dated Wed, 7 Jun 2000 3:05:04 PM Eastern Daylight Time, M Shomon

<mshomon@...> writes:

<< Kathleen,

Re: weight loss, believe me, I commiserate! Losing weight can be tough

with thyroid disease.

Thyroid disease can change the way your body handles sugar and

carbohydrates. And losing weight with thyroid

disease is a slow process, due to a fundamental change in your

metabolism.

First, I'd ask, what is your doctor's definition of " normal range. " At

my lab, the blood range is .5 to 5.5 TSH.

But my endo, who has treated women for 15 years, says she's found

anecodtally that most people do NOT

feel well and can't lose weight unless TSH is between 1 and 2. So high

normal range can impede weight loss

and feeling well for some people. (Note: Thyroid cancer survivors are

usually kept at low or nearly undetectable

TSH levels in the hyperthyroid range in order to prevent thyroid cancer

recurrence.)

Second, there is just out February 11, 1999 in the New England Journal

of Medicine a research report that says that many patients feel

better on a combination of T4 and T3, not T4 (i.e., Synthroid) alone.

The addition of T3 helped relieve depression, brain fog, fatigue and

other symptoms. This information about T3 is groundbreaking and

has major implications for people who don't feel well on their current

thyroid

therapies!!! For more info, see:

http://thyroid.about.com/library/weekly/aa021199.htm

Third, as for diet, what I've found is that it may be necessary to eat a

different way than traditional low-fat.

I GAIN weight on Weight Watchers standard program, and I'm not alone.

Start by reading " Larrian Gillespie on the Menopause Diet. " Dont' be

daunted by the title...Larrian's approach

is applicable for almost any women who is having hormonal imbalances

such as with thyroid problems.

http://thyroid.about.com/library/weekly/aa102499.htm and

http://thyroid.about.com/library/weekly/aa102599.htm

In this two-part interview with Larrian Gillespie, MD., author of the

popular 'Menopause Diet, " and

several other groundbreaking health books, talks about the ways women

should eat in order to

lose weight with hypothyroidism, during and even prior to menopause. The

Menopause Diet is a

really smart, hormonally sensitive way to eat. You can find out more

about it at http://www.thyroid-info.com/larrianbooks.htm

Larrian has a new book out that I am following, with a lot of success.

It's called the Goddess Diet,

basically the Menopause Diet for pre-menopausal women with hormonal

issues! It's a really healthy, smart way to eat.

You can find out more about it at

http://www.thyroid-info.com/larrianbooks.htm

Everyone's exchanging info and support about weight loss, diet, and the

various approaches, including Larrian herself,

at the new thyroid weight loss and diet forum! It's located at

http://www.delphi.com/ab-thyroiddiet Hope to see you there!

Also, check out:

How to Lose Weight With Hypothyroidism --

http://thyroid.about.com/library/howto/htloseweight.htm

A starting point with links to lots of good information.

Losing Weight with Hypothyroidism:

http://thyroid.about.com/library/weekly/aa101199.htm and

http://thyroid.about.com/library/weekly/aa101299.htm

A look at the surprising reasons why it's so difficult to lose weight

with hypothyroidism -- including metabolic set point,

changes in brain chemistry, and insulin resistance. Also, an indepth

look at insulin resistance

and thyroid disease, how to lose weight and fight insulin resistance,

and the essential books to help you in your fight.

Hypothyroidism and the Zone Way of Eating / Part One

http://thyroid.about.com/library/weekly/aa061697.htm

Part One of a two-part look at hypothyroidism and the popular " Zone "

way of eating discussed in Barry Sears' books

Enter the Zone and Mastering the Zone.

Part Two

http://thyroid.about.com/library/weekly/aa062397.htm

Weekly updates on the latest thyroid news and developments are featured

in the About.com Weekly Thyroid Newsletter,

offering information about the thyroid site, new features, news, web

links, chats and much more. To sign up, visit:

http://thyroid.about.com/gi/pages/mmail.htm

The latest developments in thyroid disease are reported on in my free

Thyroid Disease email news report.

This monthly report is filled with the latest conventional and

alternative news from around the world related

to thyroid disease. To sign up, send an email to:

ThyroidNews-subscribeegroups

Also, my new book has a chapter devoted to weight loss. You can read a

chapter and table of contents from the

book, " Living Well With Hypothyroidism: What Your Doctors Don't Tell

You...That You Need to Know, "

at http://www.thyroid-info.com/booktoc.htm

Live well,

KBM271@... wrote:

>

> KOZY,

>

> Any good diet tips for us HYPOs? I lose weight so very slowly and keep

gaining back anything I lose.

>

> --kathleen

>

> In a message dated Wed, 7 Jun 2000 12:22:34 AM Eastern Daylight Time,

KTenn36117@... writes:

>

> << Stacie,

>

> People who are gaining weight is Hypothyroidism which is slow metabolism and

> those who are Hyperthyroidism that loses weight which they have fast

> metabolism. I have been hypo for 3 or 4 years. I've been overweight for

> years and I have had a hard time losing the weight. Its tough but I have

> tried to find a diet that works for me but it has been slow. I also have

> been hyper for a while but trust me you don't want to be hyper because it is

> worst than being hypo. UGH!!! Don't be afraid to go to the website.....

> www.ithyroid.com and you will find lots, lots of information on this disease.

> Hope this helps.

>

> Best to you,

> Kozy

>

> ------------------------------------------------------------------------

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> >>

>

> ------------------------------------------------------------------------

> Remember four years of good friends, bad clothes, explosive chemistry

> experiments.

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Remember four years of good friends, bad clothes, explosive chemistry

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>>

[Guest guest]

In a message dated 6/6/00 7:56:53 PM Pacific Daylight Time,

Staceyinsouthfla@... writes:

<< Do overweight people get hyperthyroidism or do they mainly get

hypothyroidism? >>

I haven't seen any studies on this, but it seems that being overweight

doesn't protect you from hyperT and being underweight doesn't protect you

from hypoT. I would think that if there were a great disposition one way or

the other we would see that people have studied it. Overweight people who

get hyperthyroidism lose weight but then gain it back.

[Guest guest]

rheumatic another question

>From: meekrseekr@...

>

>I see there are a lot of people who are on minocycline and are still taking

>other medicines like methotrexate and plaquinil. I was hoping to not have

to

>go there if I take minocycline...is this just wishful thinking??????

>

>Thank you for sharing,

>

>

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do not send anymore messages>

[Guest guest]

Judy,

I just heard this morning on Dr. Pensanti's televison show that tea tree oil

is a good natural alternative for toe fungus.

It sounds really bad if it has turned color like that. My wasn't nearly that

bad and I had to go on medication (diflucan). It helped. I needed some of

it anyway for systemic. yeast. The doctor this morning also said that

usually when there is toe fungus it is always elsewhere in the body

(systemic).

Carol

[Guest guest]

Hi Bev...as I mentioned, I've already started applying Tea tree oil, and I

doubt it can do anything harmful, hopefully help. Glad yours disappeared

after discontinuing the minocycline, but I have a feeling I'm going to be on

minocycline for a LONG time, so I better try other solutions.

Thanks for your imput

Judy

[Guest guest]

Aumesh,

I doubt that the antibiotics had anything to do with it. AIH is usually

present for months or years prior to being evident enough to diagnose.

GINGER

[Guest guest]

Ginger,

Have you ever heard that over use of antiboitics can lead to autoimmune

disease? I seem to recall over use of anti. leading to something...I'm

not sure why I think it's that.

Joan Claffey

NJ

gehud119@... wrote:

>

> Aumesh,

> I doubt that the antibiotics had anything to do with it. AIH is usually

> present for months or years prior to being evident enough to diagnose.

>

> GINGER

>

>

[Guest guest]

In a message dated 10/7/00 4:50:06 PM Eastern Daylight Time,

mclaffey@... writes:

<<

Have you ever heard that over use of antiboitics can lead to autoimmune

disease? I seem to recall over use of anti. leading to something...I'm

not sure why I think it's that.

Joan Claffey >>

I will check it out tomorrow when my brain might work better.lol

GINGER

[Guest guest]

,

I so don't want to scare you, but my lymes affected my

eyes more than anything. I lost all of my right eye,

most of my left, and it took them 10 years to put all

the symptoms together and test for Lymes. I would have

it checked ASAP if I were you, just given my

experience.

Hillary

__________________________________________________

[Guest guest]

Dear ,

Are you nearsighted? Is that becoming worse? I'm nearsighted, over 40, and I

am

becoming more nearsighted. (Can't see far). It happened to me during my 2 runs

of 30

HBOT treatments apiece, but it has been ~ 11 weeks since my last treatment and I

thought

my eyes had returned to normal. Now they seem to be getting bad again, and I'm

not

having HBOT. It's bad in the day and night. I'm becoming concerned, also; I just

met a

woman with LD who has optic nerve atrophy in both eyes from LD and is losing her

vision.

I'm calling the opthalmologist tomorrow.

Eileen, NJ

[Guest guest]

I began using PB8 about three years ago on the recommendation of my primary doctor because I had some problems with yeast "overflow". Originally I was taking two tablets with each meal. I have been on AP for 6 weeks and am still using this brand but taking a higher dosage. (the doc said to take some every time I think about it). I can''t tell if it makes a difference in preventing yeast overflow since I have also taken diflucan and sporanex.

[Guest guest]

Hi : The PB8 is the probiotic I started taking a month ago,

recommended by (of all things) my eye dr. So far so good. Doesn't upset my

stomache so works for me!

BTW, going to see Dr. Trentham this week for check up on the switch to doxy

from Minocin. After about 1.5 months of herx/flares, things have calmed down

and I'm doing pretty well. Still on 200 mg. day, 7 days week.

Hyperpigmentation is fading (not quick enough for me but nevertheless, now

the blue spots look like smudged dirt on my ankles, but at least it's boots

season now).

Babs

RA 8/98, DX 4/99, AP 11/99

200 mg. Doxycycline

112 mcg. Synthroid

2 mg. Hytrin

Mestinon

Vits. & Misc. Suplmts.

[Guest guest]

Dear Babs, I will be thinking of you on your journey. If I were in your shoes,

I

would probably be concerned about the spots too but with scleraderma, I already

have the dark spots so this is not even an issue. I just love my spotty tan!

If I were not seeing Dr. Sinnott, Dr. Trentham is also who I would choose but

remember to make a longer than usual appontment as he seems to be in such a

hurry. I am sure he is swamped with patients. Here's to your eyes and your

health! Love,

Babs56p@... wrote:

> Hi : The PB8 is the probiotic I started taking a month ago,

> recommended by (of all things) my eye dr. So far so good. Doesn't upset my

> stomache so works for me!

>

> BTW, going to see Dr. Trentham this week for check up on the switch to doxy

> from Minocin. After about 1.5 months of herx/flares, things have calmed down

> and I'm doing pretty well. Still on 200 mg. day, 7 days week.

> Hyperpigmentation is fading (not quick enough for me but nevertheless, now

> the blue spots look like smudged dirt on my ankles, but at least it's boots

> season now).

>

> Babs

> RA 8/98, DX 4/99, AP 11/99

> 200 mg. Doxycycline

> 112 mcg. Synthroid

> 2 mg. Hytrin

> Mestinon

> Vits. & Misc. Suplmts.

[Guest guest]

Dear All, How do you feel physically and emotionally when you have taken or

do take an anti-depressent? If so, which kind is the best? I have heard that

some or a lot of pain is taken away on an anti-depressent. AND...how do you

all feel about the SAMe natural anti-depressent. I studied it on the web and

it really says a lot about helping with FM, and arthritis......m,m,m,,,,,how

do all of you feel about this.

Re: rheumatic Another Question

> Dear Babs, I will be thinking of you on your journey. If I were in your

shoes, I

> would probably be concerned about the spots too but with scleraderma, I

already

> have the dark spots so this is not even an issue. I just love my spotty

tan!

> If I were not seeing Dr. Sinnott, Dr. Trentham is also who I would choose

but

> remember to make a longer than usual appontment as he seems to be in such

a

> hurry. I am sure he is swamped with patients. Here's to your eyes and

your

> health! Love,

>

> Babs56p@... wrote:

>

> > Hi : The PB8 is the probiotic I started taking a month ago,

> > recommended by (of all things) my eye dr. So far so good. Doesn't

upset my

> > stomache so works for me!

> >

> > BTW, going to see Dr. Trentham this week for check up on the switch to

doxy

> > from Minocin. After about 1.5 months of herx/flares, things have calmed

down

> > and I'm doing pretty well. Still on 200 mg. day, 7 days week.

> > Hyperpigmentation is fading (not quick enough for me but nevertheless,

now

> > the blue spots look like smudged dirt on my ankles, but at least it's

boots

> > season now).

> >

> > Babs

> > RA 8/98, DX 4/99, AP 11/99

> > 200 mg. Doxycycline

> > 112 mcg. Synthroid

> > 2 mg. Hytrin

> > Mestinon

> > Vits. & Misc. Suplmts.

>

>

>

> To unsubscribe, email: rheumatic-unsubscribeegroups

>

>

>

[Guest guest]

I felt much like a robot. I know that is probably what you don't want to hear

but I am a very creative person. My creativity just dried up when I was on the

zoloft. My friend describes the same thing on Paxil. My daughter was on Prozak

for a short period of time and she is an artist and was pretty dry. That said,

even though there were no highs, there were no terrible lows either. I do not

know your sex but antidepressants definitely hinder a male's sexuality. I have

a son who was on antidepressants for a while and he hated them because of

inability even though desire was still present. I think even after all of that,

if you need the net until you feel better, I still recommend it. St. 's

Wort is not recommended for certain people. If that is what you are considering,

you might do a Goggle Search and see if you can tell just who is not recommended

for this herb. Someone here might also know.

Randy King wrote:

> Dear All, How do you feel physically and emotionally when you have taken or

> do take an anti-depressent? If so, which kind is the best? I have heard that

> some or a lot of pain is taken away on an anti-depressent. AND...how do you

> all feel about the SAMe natural anti-depressent. I studied it on the web and

> it really says a lot about helping with FM, and arthritis......m,m,m,,,,,how

> do all of you feel about this.

> Re: rheumatic Another Question

>

> > Dear Babs, I will be thinking of you on your journey. If I were in your

> shoes, I

> > would probably be concerned about the spots too but with scleraderma, I

> already

> > have the dark spots so this is not even an issue. I just love my spotty

> tan!

> > If I were not seeing Dr. Sinnott, Dr. Trentham is also who I would choose

> but

> > remember to make a longer than usual appontment as he seems to be in such

> a

> > hurry. I am sure he is swamped with patients. Here's to your eyes and

> your

> > health! Love,

> >

> > Babs56p@... wrote:

> >

> > > Hi : The PB8 is the probiotic I started taking a month ago,

> > > recommended by (of all things) my eye dr. So far so good. Doesn't

> upset my

> > > stomache so works for me!

> > >

> > > BTW, going to see Dr. Trentham this week for check up on the switch to

> doxy

> > > from Minocin. After about 1.5 months of herx/flares, things have calmed

> down

> > > and I'm doing pretty well. Still on 200 mg. day, 7 days week.

> > > Hyperpigmentation is fading (not quick enough for me but nevertheless,

> now

> > > the blue spots look like smudged dirt on my ankles, but at least it's

> boots

> > > season now).

> > >

> > > Babs

> > > RA 8/98, DX 4/99, AP 11/99

> > > 200 mg. Doxycycline

> > > 112 mcg. Synthroid

> > > 2 mg. Hytrin

> > > Mestinon

> > > Vits. & Misc. Suplmts.

> >

> >

> >

> > To unsubscribe, email: rheumatic-unsubscribeegroups

> >

> >

> >

>

>

> To unsubscribe, email: rheumatic-unsubscribeegroups

[Guest guest]

-

Is Dr. Sinnott in the Boston area, too, like Dr. Trentham?

Lyn

=================

>From: Fain <slfain@...>

>Babs56p@...

>CC: rheumaticegroups

>Subject: Re: rheumatic Another Question

>Date: Tue, 05 Dec 2000 09:08:27 -0700

>

>Dear Babs, I will be thinking of you on your journey. If I were in your

>shoes, I

>would probably be concerned about the spots too but with scleraderma, I

>already

>have the dark spots so this is not even an issue. I just love my spotty

>tan!

>If I were not seeing Dr. Sinnott, Dr. Trentham is also who I would choose

>but

>remember to make a longer than usual appontment as he seems to be in such a

>hurry. I am sure he is swamped with patients. Here's to your eyes and

>your

>health! Love,

>

>Babs56p@... wrote:

>

> > Hi : The PB8 is the probiotic I started taking a month ago,

> > recommended by (of all things) my eye dr. So far so good. Doesn't

>upset my

> > stomache so works for me!

> >

> > BTW, going to see Dr. Trentham this week for check up on the switch to

>doxy

> > from Minocin. After about 1.5 months of herx/flares, things have calmed

>down

> > and I'm doing pretty well. Still on 200 mg. day, 7 days week.

> > Hyperpigmentation is fading (not quick enough for me but nevertheless,

>now

> > the blue spots look like smudged dirt on my ankles, but at least it's

>boots

> > season now).

> >

> > Babs

> > RA 8/98, DX 4/99, AP 11/99

> > 200 mg. Doxycycline

> > 112 mcg. Synthroid

> > 2 mg. Hytrin

> > Mestinon

> > Vits. & Misc. Suplmts.

>

>

>

>To unsubscribe, email: rheumatic-unsubscribeegroups

>

>

________________________________________________________________________________\

_____

Get more from the Web. FREE MSN Explorer download : http://explorer.msn.com

[Guest guest]

No. Dr.Sinnott is in a very small town in Ida Grove, Iowa. I had been going to

go to

Boston to see Dr. Trentham; however, when I corresponded with Henry Scammell,

who wrote

THE NEW ARTHRITIS BREAKTHROUGH, he told me that Dr. Sinnott had been trained by

Dr. Brown

in order to fill a need for the many arthritics in that part of the country.

And Mr.

Scammel explained to me that Boston would be far, far more expensive a place to

stay a

week than this small town. Dr. Sinnott's office fee is only $35.00! And he

spends as

long as you have questions to ask. Pretty good deal. Are you thinking of going

to see

him? Love,

Lyn B wrote:

> -

> Is Dr. Sinnott in the Boston area, too, like Dr. Trentham?

>

> Lyn

>

> =================

> >From: Fain <slfain@...>

> >Babs56p@...

> >CC: rheumaticegroups

> >Subject: Re: rheumatic Another Question

> >Date: Tue, 05 Dec 2000 09:08:27 -0700

> >

> >Dear Babs, I will be thinking of you on your journey. If I were in your

> >shoes, I

> >would probably be concerned about the spots too but with scleraderma, I

> >already

> >have the dark spots so this is not even an issue. I just love my spotty

> >tan!

> >If I were not seeing Dr. Sinnott, Dr. Trentham is also who I would choose

> >but

> >remember to make a longer than usual appontment as he seems to be in such a

> >hurry. I am sure he is swamped with patients. Here's to your eyes and

> >your

> >health! Love,

> >

> >Babs56p@... wrote:

> >

> > > Hi : The PB8 is the probiotic I started taking a month ago,

> > > recommended by (of all things) my eye dr. So far so good. Doesn't

> >upset my

> > > stomache so works for me!

> > >

> > > BTW, going to see Dr. Trentham this week for check up on the switch to

> >doxy

> > > from Minocin. After about 1.5 months of herx/flares, things have calmed

> >down

> > > and I'm doing pretty well. Still on 200 mg. day, 7 days week.

> > > Hyperpigmentation is fading (not quick enough for me but nevertheless,

> >now

> > > the blue spots look like smudged dirt on my ankles, but at least it's

> >boots

> > > season now).

> > >

> > > Babs

> > > RA 8/98, DX 4/99, AP 11/99

> > > 200 mg. Doxycycline

> > > 112 mcg. Synthroid

> > > 2 mg. Hytrin

> > > Mestinon

> > > Vits. & Misc. Suplmts.

> >

> >

> >

> >To unsubscribe, email: rheumatic-unsubscribeegroups

> >

> >

>

>

________________________________________________________________________________\

_____

> Get more from the Web. FREE MSN Explorer download : http://explorer.msn.com

[Guest guest]

-

I live in the Boston area, and I've seen Dr. Trentham once already. To be

absolutely honest, I didn't like his abrupt manner - he takes 15 minutes and

that's it! That's after we were misdirected and I had to walk SO FAR.... It

hurt so bad. I ended up bursting in tears AFTER the appt., and the day would

have been a complete loss, were it not for the baked lobster dinner Joe

bought me afterwards... : )

But I don't know of any othe dr in this area that does the AP, so I intended

to go back to him. I missed my second appt because it was right after my

mom's funeral. Now I have to wait til I see a gastroenterologist, due to my

stomach troubles... I had what seemed like an ulcer this past summer, was

fine until my son decided to come back with his leech friend. Now it's

started all over again, and I know he won't start the AP til I'm cleared by

the gastro. dr.

Lord knows, oh, how I wished there was the likes of Dr. Sinnott around here.

He sounds like a God send...

Lyn

--------------------------------

>No. Dr.Sinnott is in a very small town in Ida Grove, Iowa. I had been

>going to go to

>Boston to see Dr. Trentham; however, when I corresponded with Henry

>Scammell, who wrote

>THE NEW ARTHRITIS BREAKTHROUGH, he told me that Dr. Sinnott had been

>trained by Dr. Brown

>in order to fill a need for the many arthritics in that part of the

>country. And Mr.

>Scammel explained to me that Boston would be far, far more expensive a

>place to stay a

>week than this small town. Dr. Sinnott's office fee is only $35.00! And

>he spends as

>long as you have questions to ask. Pretty good deal. Are you thinking of

>going to see

>him? Love,

>

>Lyn B wrote:

>

> > -

> > Is Dr. Sinnott in the Boston area, too, like Dr. Trentham?

> >

> > Lyn

> >

> > =================

> > >From: Fain <slfain@...>

> > >Babs56p@...

> > >CC: rheumaticegroups

> > >Subject: Re: rheumatic Another Question

> > >Date: Tue, 05 Dec 2000 09:08:27 -0700

> > >

> > >Dear Babs, I will be thinking of you on your journey. If I were in

>your

> > >shoes, I

> > >would probably be concerned about the spots too but with scleraderma, I

> > >already

> > >have the dark spots so this is not even an issue. I just love my

>spotty

> > >tan!

> > >If I were not seeing Dr. Sinnott, Dr. Trentham is also who I would

>choose

> > >but

> > >remember to make a longer than usual appontment as he seems to be in

>such a

> > >hurry. I am sure he is swamped with patients. Here's to your eyes and

> > >your

> > >health! Love,

> > >

> > >Babs56p@... wrote:

> > >

> > > > Hi : The PB8 is the probiotic I started taking a month ago,

> > > > recommended by (of all things) my eye dr. So far so good. Doesn't

> > >upset my

> > > > stomache so works for me!

> > > >

> > > > BTW, going to see Dr. Trentham this week for check up on the switch

>to

> > >doxy

> > > > from Minocin. After about 1.5 months of herx/flares, things have

>calmed

> > >down

> > > > and I'm doing pretty well. Still on 200 mg. day, 7 days week.

> > > > Hyperpigmentation is fading (not quick enough for me but

>nevertheless,

> > >now

> > > > the blue spots look like smudged dirt on my ankles, but at least

>it's

> > >boots

> > > > season now).

> > > >

> > > > Babs

> > > > RA 8/98, DX 4/99, AP 11/99

> > > > 200 mg. Doxycycline

> > > > 112 mcg. Synthroid

> > > > 2 mg. Hytrin

> > > > Mestinon

> > > > Vits. & Misc. Suplmts.

> > >

> > >

> > >

> > >To unsubscribe, email: rheumatic-unsubscribeegroups

> > >

> > >

> >

> >

>_______________________________________________________________________________\

______

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>http://explorer.msn.com

>

>

>

>To unsubscribe, email: rheumatic-unsubscribeegroups

>

>

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[Guest guest]

Hi Roni,

>Hello eveyone:

> I returned from the doctor's today keeping the minocin

>at 100 mg. on M-W-F. Since my mycoplasma testing came

>back negative the doctor is pretty sure the insurance

>won't pay for the IV treatment. Did I remember someone

>on the web page mention an oral form of this IV

>antibiotic?

The insurance claims can be a problem - I'm in Australia so ours are different

but similar problems arise. Lincocin can be used for IVs instead of clindamycin

and, in most places, is a lot cheaper (same dose). Oral clindamycin can be used

and is taken as 1200mg in a single dose once a week, on a day you're not taking

minocycline - oral clindamycin is cheap.

>My doctor thinks that the AP calls for

>beginning and staying at 100 mg for the duration of the

>treatment. Is this right?

Not necessarily, but his idea is better than many doctors who think the only

dose is 200mg per day for everyone. Dr. Brown's protocol calls for 100-200mg

on Monday Wednesday and Fridays, starting slowly at about 50mg MWF and working

up. The best dose for a particular person is the dose they tolerate best. The

idea is to take enough antibiotic to start reversing the disease, while not

taking so much that the herxheimer is more than can be tolerated. If you're

on 100mg MWF and doing OK, then you could stay at that dose for a while and

see how you get on. Later you could go up slowly (by about 50mg per week) and

see how you tolerate more.

>I remembber someone else mentioning they had also taken

>another antibiotic on top of the minocin...If I do this

>will this be too much? I am really, really anxious to

>get some positive results here...can you guess I'm not

>very patient?

You do have to be patient as there will be no quick results here. There are

other antibiotics that can be used, but without knowing which disease you have

and what severity, it's hard to comment.

>Some others have mentioned that their mycoplasma testing

>first came back negative and then later positive. Can

>you please e-mail me and let me know how long of

>duration between the testing? Any answers why it comes

>back negative first time and positive second time?

Mycoplasma are very hard to test for, even with PCR. They 'hide' in the joints.

Sometimes they show up on later testing because the antibiotic stirs them up.

Some people never test positive but still respond to the antibiotic approach.

Chris.

[Guest guest]

I heard about the dizzy thing too and so I take my minocycline at night. I

take it with lots of water around an hour before I head for bed.

in Oregon

rheumatic Another question

> I was wondering about something esle. I get very dizzy on minocycline.

> I have read that it can cause vertigo, is this something I should

> worry about.

> Don't think I was very clear, but over the last 5 or so months I have

> taken doxy and minocycline. The doxy doesn't seem to really affect me

> except for nausea and maybe some joint pain, but the mino makes me

> really get a herx and dizzy.

> Anyones info would be helpfull.

> Thanks so much,

> Marti

>

>

>

> To unsubscribe, email: rheumatic-unsubscribeegroups

>

>

>

[Guest guest]

Often reducing the dose of minocycline will help with the dizziness.

Chris.

>I was wondering about something esle. I get very dizzy on minocycline.

>I have read that it can cause vertigo, is this something I should

>worry about.

>Don't think I was very clear, but over the last 5 or so months I have

>taken doxy and minocycline. The doxy doesn't seem to really affect me

>except for nausea and maybe some joint pain, but the mino makes me

>really get a herx and dizzy.

>Anyones info would be helpfull.

>Thanks so much,

>Marti

>

>

>

>To unsubscribe, email: rheumatic-unsubscribeegroups

>

>

>

[Guest guest]

Hi Marti,

I had bad dizziness problems when I first started mino, probably because

I started at the full dosage as opposed to easing into it. In any

event, over the course of a month or two, dizziness eased up until it

went totally away. It's a rather common side effect when first going on

mino and if it gets too bothersome, ease back on your dosage and slowly

work back up. While it should improve with time, be careful in the

meantime not to stand up too quickly or make any sudden turns. I spent

a fair amount of time at first hugging walls to avoid keeling over but,

as I said, the problem went away relatively quickly.

Hugs

a Peden

nrs@... wrote:

>

> I was wondering about something esle. I get very dizzy on minocycline.

> I have read that it can cause vertigo, is this something I should

> worry about...

>