Guest guest Posted August 27, 2001 Report Share Posted August 27, 2001 Ann, take dandelion root capsules 500mg. It is a mild diuretic. It has potassium in it and it won't leave your system flushed bare. Uva Ursi can be used but you have to take you potassium and probably magnesium also. Protect your electrolytes. This herb is strong so take it in small amounts. Your symptoms doesn't sound crazy at all. LIZ D Another question I hope I don't ask too many questions! Just wondering if anyone knows whether drinking the sea salt flush in the morning(with the lemonade diet) will cause me to retain water? I have always had a problem with this and sometimes it is very painful. I almost had to have surgery because I couldn't use my hands, wrists hurt so much and the doctor thought it might be Carpel Tunnel but luckily he tried a diuretic first (I also had the symptom that my brain felt like it was floating..I know sounds crazy) and that worked. I am just afraid of the pain returning. Well thanks for all the help!!!!!!!! Ann _________________________________________________________________ --- rabbitbrain@... bUcKsNdOeS Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 28, 2001 Report Share Posted August 28, 2001 Thanks Liz D ~ I think I will try the dandelion root first....I tend to be potassium deficient and I don't get enough in my diet. Any foods you know of,besides bananas, that have a lot of potassium? I like bananas alright but I don't eat them enough. Thanks again Ann >From: Rabbitbrain@... >Reply-bowel cleanse >bowel cleanse >Subject: RE: Another question >Date: Mon, 27 Aug 2001 17:43:11 -0400 > > >Ann, take dandelion root capsules 500mg. It is a mild diuretic. > >It has potassium in it and it won't leave your system flushed > >bare. > > > >Uva Ursi can be used but you have to take you potassium and > >probably magnesium also. Protect your electrolytes. This >herb > >is strong so take it in small amounts. > > > >Your symptoms doesn't sound crazy at all. > > > >LIZ D > > > Another >question > > > > > >I hope I don't ask too many questions! Just wondering if anyone knows > > >whether drinking the sea salt flush in the morning(with the lemonade diet) > > >will cause me to retain water? I have always had a problem with this and > > >sometimes it is very painful. I almost had to have surgery because I > >couldn't use my hands, wrists hurt so much and the doctor thought it might > > >be Carpel Tunnel but luckily he tried a diuretic first (I also had the > > >symptom that my brain felt like it was floating..I know sounds crazy) and > > >that worked. I am just afraid of the pain returning. > > > >Well thanks for all the help!!!!!!!! > > > >Ann > > > >_________________________________________________________________ > >--- rabbitbrain@... > >bUcKsNdOeS > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 28, 2001 Report Share Posted August 28, 2001 >Any foods you know of,besides bananas, that have a lot of potassium? >I like bananas alright but I don't eat them enough. > Potato peelings have potassium in them. In the book " Nourishing Traditions " there is a recipe for potassium broth made with potato peelings. Book should be easy enough to find at the library. I even found it here in Holland (was very shocked!) Can't remember the recipe offhand or I'd type it up for you. Barbara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2001 Report Share Posted August 31, 2001 Riba the pills and interferon the shots used to be " bundled " and the FDA or whatever, maybe just the drug maker, didn't allow separation of the pills and the shots. Maybe so you couldn't do another drug maker brand of interferon and do the riba, who knows, a marketing strategy for sure. So, Schering, the drug maker, had to get permission from FDA I think to separate the two and allow the riba to " come with " the PEG interferon, or be sent separately. When the doc wriote a script, before peg, it was for rebetron, which meant combination of interferon and ribavirin. It was a big deal for my doc to be able to write a script for more interferon, according to my ins company, who already had their " packaged " together and shipped from their own pharmacy/warehouse. luckily it wasn't a hassle with my ins company, but I can imagine with some it could be quite a hassle. Pat mailto:alleypat@... andromedagurl@... note: alleypat@... will be disconnected at the end of August --------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2001 Report Share Posted August 31, 2001 << " well, that just goes with it " I'll bet u on that one. Just seems that way.>> Hope you dont' own a gun haaaaaaaaaaaaaaaaaaa Hey I let my combo rage loose when my doc did something I didn't agree with!!!!! I'm always one to utilize my weaknesses into strengths hahahahaha. What antidepressant are you on? And that attitude by your doc WON " T be acceptable when you are hurting. Try to clear a path of understanding with your doc now, before you need help that he may not provide. I wonder if a court would rule it insanity if I'd have beheaded my gastro while on combo? (Can just see Doc shivering! Just kidding!!!... sorta Gengis Alley Combo Kahn Pat mailto:alleypat@... andromedagurl@... note: alleypat@... will be disconnected at the end of August --------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2001 Report Share Posted August 31, 2001 --- cher_002@... wrote: > Wait a min--what do do u mean " packaged " together. R > u saying u can > get them separate or what... Before, the only way you could get ribavirin was to buy the Schering brand of interferon, Intron-A, pre-packaged with the ribavirin (Rebetol), the combo packaging being called 'Rebetron'. You could buy the interferon by itself, but not the ribavirin. Now however, you can get the ribavirin separately or prepackaged with the Peg-Intron. (You see, the FDA has to approve each of these ways it can be sold). The benefit is that now a doctor can legally prescribe ribavirin so you can use it with another brand of interferon, and NOT just Schering's brand. Soon (early 2002?) there will be another brand of pegylated interferon available, made by Hoffeman-La Roche, called Pegasys, and by the FDA approving the sale of ribavirin 'unbundled' from the interferon, a doctor could prescribe Pegasys and write a separate prescription for ribavirin. A person will have more options now. Not all interferons are the same! >Ummmmm maybe I should > " mail " some print > outs to his office Good idea - mail now, but take along copies anyway at your next appt. date. > I'll bet u dollar to doughnuts when I mention how he > wd handle the > sides with me he will say something like " well, that > just goes with > it " I'll bet u on that one. Just seems that way. Try to ask some really specific questions and be persistant. If it doesn't work, then try talking to your primary care doctor about your concerns. Try to get his help, take him info if he's open to it. The worst side effects are usually in the first few weeks, so it's right there in the beginning you need the most help! Try to prepare for it now. I guess you can say, prepare for the worst, but expect the best. Some people have very few side effects, and you could be one of them! Claudine PS: If your already not drinking enough, get in the habit NOW! The treatment medications really dehydrate you and dehydration can/will make everything much worse - fatigue, nausea, headaches, etc. DRINK lots of water! __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2001 Report Share Posted August 31, 2001 Hi Alley....I hope this becomes available in Canada soon. I met a woman today who's 50 and has had HCV for 30 years. She has been to a gastro but NEVER has had a liver biopsy!! Sheeesh, Canada is so far behind....we'll never catch up. I bet Canada has never heard of interferon either....I'll find out at next Dr. appt. Sheeeeesh. Carol Pat wrote: > Riba the pills and interferon the shots used to be " bundled " and the FDA or whatever, maybe just the drug maker, didn't allow separation of the pills and the shots. Maybe so you couldn't do another drug maker brand of interferon and do the riba, who knows, a marketing strategy for sure. > > So, Schering, the drug maker, had to get permission from FDA I think to separate the two and allow the riba to " come with " the PEG interferon, or be sent separately. > > When the doc wriote a script, before peg, it was for rebetron, which meant combination of interferon and ribavirin. It was a big deal for my doc to be able to write a script for more interferon, according to my ins company, who already had their " packaged " together and shipped from their own pharmacy/warehouse. > > luckily it wasn't a hassle with my ins company, but I can imagine with some it could be quite a hassle. > > Pat > > mailto:alleypat@... andromedagurl@... > > note: alleypat@... will be disconnected at the end of August > > --------------------------------- > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2001 Report Share Posted August 31, 2001 Hmmmm, I'd like to see you make a " test " case of this....would rival the OJ trial. lol Alley. Pat wrote: > << " well, that just goes with it " I'll bet u on that one. Just seems that way.>> > > Hope you dont' own a gun haaaaaaaaaaaaaaaaaaa > > Hey I let my combo rage loose when my doc did something I didn't agree with!!!!! I'm always one to utilize my weaknesses into strengths hahahahaha. > > What antidepressant are you on? > > And that attitude by your doc WON " T be acceptable when you are hurting. Try to clear a path of understanding with your doc now, before you need help that he may not provide. > > I wonder if a court would rule it insanity if I'd have beheaded my gastro while on combo? > > (Can just see Doc shivering! Just kidding!!!... sorta > > Gengis Alley Combo Kahn > > Pat > > mailto:alleypat@... andromedagurl@... > > note: alleypat@... will be disconnected at the end of August > > --------------------------------- > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2001 Report Share Posted September 1, 2001 They have heard of it Carol, they have had a class action suit against Blood Banks there......13 Million? Come on guys if I am stating the wrong thing, TC...C -- Carol <csean@...> wrote: > Hi Alley....I hope this becomes available in Canada > soon __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2001 Report Share Posted September 1, 2001 They have heard of it Carol, they have had a class action suit against Blood Banks there......13 Million? Come on guys if I am stating the wrong thing, TC...C -- Carol <csean@...> wrote: > Hi Alley....I hope this becomes available in Canada > soon __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2001 Report Share Posted September 1, 2001 Rebetron should be available in Canada. I know a fellow hepper who lived in Newfoundland (closest town was St. s) who fought to get on treatment when they first approved it to be part of their socialized medicine. She succeeded in getting tx and that was probalby one and a half years ago. She has now left this earth walk so I can't get any additional details for you. Now, she wasn't always honest with me but I seriously doubt she would have lied about that. And she had a real legal battle to be approved for treatment because they had just approved it and she was fairly advanced in liver fibrosis. Just thought I'd toss that out.. Tatezi Carol wrote: > Hi Alley....I hope this becomes available in Canada soon. I met a > woman today who's 50 and has had HCV for 30 years. She has been to a > gastro but NEVER has had a liver biopsy!! Sheeesh, Canada is so far > behind....we'll never catch up. I bet Canada has never heard of > interferon either....I'll find out at next > Dr. appt. Sheeeeesh. > > Carol > > Pat wrote: > > > Riba the pills and interferon the shots used to be " bundled " and the > FDA or whatever, maybe just the drug maker, didn't allow separation of > the pills and the shots. Maybe so you couldn't do another drug maker > brand of interferon and do the riba, who knows, a marketing strategy > for sure. > > > > So, Schering, the drug maker, had to get permission from FDA I think > to separate the two and allow the riba to " come with " the PEG > interferon, or be sent separately. > > > > When the doc wriote a script, before peg, it was for rebetron, which > meant combination of interferon and ribavirin. It was a big deal for > my doc to be able to write a script for more interferon, according to > my ins company, who already had their " packaged " together and shipped > from their own pharmacy/warehouse. > > > > luckily it wasn't a hassle with my ins company, but I can imagine > with some it could be quite a hassle. > > > > Pat > > > > mailto:alleypat@... andromedagurl@... > > > > note: alleypat@... will be disconnected at the end of August > > > > --------------------------------- > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2001 Report Share Posted September 1, 2001 Rebetron should be available in Canada. I know a fellow hepper who lived in Newfoundland (closest town was St. s) who fought to get on treatment when they first approved it to be part of their socialized medicine. She succeeded in getting tx and that was probalby one and a half years ago. She has now left this earth walk so I can't get any additional details for you. Now, she wasn't always honest with me but I seriously doubt she would have lied about that. And she had a real legal battle to be approved for treatment because they had just approved it and she was fairly advanced in liver fibrosis. Just thought I'd toss that out.. Tatezi Carol wrote: > Hi Alley....I hope this becomes available in Canada soon. I met a > woman today who's 50 and has had HCV for 30 years. She has been to a > gastro but NEVER has had a liver biopsy!! Sheeesh, Canada is so far > behind....we'll never catch up. I bet Canada has never heard of > interferon either....I'll find out at next > Dr. appt. Sheeeeesh. > > Carol > > Pat wrote: > > > Riba the pills and interferon the shots used to be " bundled " and the > FDA or whatever, maybe just the drug maker, didn't allow separation of > the pills and the shots. Maybe so you couldn't do another drug maker > brand of interferon and do the riba, who knows, a marketing strategy > for sure. > > > > So, Schering, the drug maker, had to get permission from FDA I think > to separate the two and allow the riba to " come with " the PEG > interferon, or be sent separately. > > > > When the doc wriote a script, before peg, it was for rebetron, which > meant combination of interferon and ribavirin. It was a big deal for > my doc to be able to write a script for more interferon, according to > my ins company, who already had their " packaged " together and shipped > from their own pharmacy/warehouse. > > > > luckily it wasn't a hassle with my ins company, but I can imagine > with some it could be quite a hassle. > > > > Pat > > > > mailto:alleypat@... andromedagurl@... > > > > note: alleypat@... will be disconnected at the end of August > > > > --------------------------------- > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2001 Report Share Posted September 1, 2001 Dear Carol, Please be advised that when Bill Clinton was governor of the state of Arkansas, he sold blood to Canada. This blood came from prisoners in the state prison. No tessts for HCV or HIV were preformed beforehand. There has been a book written about this. I don't have all the literature, but it was my understanding that Cananda had sued him and the state of Arkansas. You might want to check into this. When I finish up with my own mess, I will help you. Right now, I can't. LOL, Anne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2001 Report Share Posted September 1, 2001 Dear Carol, Please be advised that when Bill Clinton was governor of the state of Arkansas, he sold blood to Canada. This blood came from prisoners in the state prison. No tessts for HCV or HIV were preformed beforehand. There has been a book written about this. I don't have all the literature, but it was my understanding that Cananda had sued him and the state of Arkansas. You might want to check into this. When I finish up with my own mess, I will help you. Right now, I can't. LOL, Anne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2001 Report Share Posted September 1, 2001 Thanks Connie....I was just getting so disgusted with Canada and the fact that they haven't even done a biopsy on a friend who's had HCV for 30 years. I was being sarcastic me thinks lol. I know about the class action suit for anyone infected through blood banks. What I didn't know, was that Canada bought blood from USA. Since blood donations here are not for monetary reward but strictly from compassion I guess a lot of people fell under the false impression that the blood was safer. Of course it isn't if it's not screened. Carol Constance Dickson wrote: > They have heard of it Carol, they have had a class > action suit against Blood Banks there......13 Million? > > Come on guys if I am stating the wrong thing, TC...C > > -- Carol <csean@...> wrote: > > Hi Alley....I hope this becomes available in Canada > > soon > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2001 Report Share Posted September 1, 2001 Thanks Connie....I was just getting so disgusted with Canada and the fact that they haven't even done a biopsy on a friend who's had HCV for 30 years. I was being sarcastic me thinks lol. I know about the class action suit for anyone infected through blood banks. What I didn't know, was that Canada bought blood from USA. Since blood donations here are not for monetary reward but strictly from compassion I guess a lot of people fell under the false impression that the blood was safer. Of course it isn't if it's not screened. Carol Constance Dickson wrote: > They have heard of it Carol, they have had a class > action suit against Blood Banks there......13 Million? > > Come on guys if I am stating the wrong thing, TC...C > > -- Carol <csean@...> wrote: > > Hi Alley....I hope this becomes available in Canada > > soon > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2001 Report Share Posted September 1, 2001 Thanks Anne....but I wasn't infected through a blood transfusion so I'm not in the litigation process, thank God....I don't think I could handle that right now. I was simply interested in the fact that it happened. I was quite shocked. I think if there was more publicity over this a lot of Canadians would be up in arms, so to speak. Thanks anyway Anne Happy moving Carol AVansi7465@... wrote: > Dear Carol, > Please be advised that when Bill Clinton was governor of the state of > Arkansas, he sold blood to Canada. This blood came from prisoners in the > state prison. No tessts for HCV or HIV were preformed beforehand. There has > been a book written about this. I don't have all the literature, but it was > my understanding that Cananda had sued him and the state of Arkansas. You > might want to check into this. When I finish up with my own mess, I will > help you. Right now, I can't. > LOL, > Anne > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2002 Report Share Posted January 6, 2002 It's great if you are able to have a psychiatrist prescribe your anitdepressant medications! They are the experts when it comes to those meds. And yes, you can take both of them with no problem. As for the print out of Rebetol, the reason you have been unable to get one is because until now it was never sold alone, just in combination with the Intron-A as " Rebetron " . If you go to that web site page I told you about you can print the info out from there. The info on the Intron-A is just mixed in with the info about the Rebetol, so you kind of have to sort it out - but it is there. C --- runabout_104 <runabout104@...> wrote: > Gosh, I hope I am not being a nusiance to the group with my endless > questions. I am required to see a psch while on this medication and > as i hv stated to the group b4, I hv more emotional symtons and > emotional turmoil and depression-more than I expected. Of course, I > do hv some physical symtons also (headaches, loss of appetite, the > usual things. Anyway, psch wants me to start on paxil again and he > also put me on xanax. What about the xanax in regards to the > interferon and rebetol. Oh, and by the way, each time I hv got the > rebetol filled @ the pharmacy I hv asked for a print out on the > rebetol and for some reason, " they can't give me one " . Keep telling > me they will try and get me one next month! Hvn't figured that one > out either as I thought these dys u cd get a print out on any > medication u get from a pharmacy. Oh, this rinky dink town I live in - > -u just wdn't belive the medical care or rather lack of medical care > and now even the pharmacies are showing their true colors!!. > cher > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2002 Report Share Posted January 6, 2002 It's great if you are able to have a psychiatrist prescribe your anitdepressant medications! They are the experts when it comes to those meds. And yes, you can take both of them with no problem. As for the print out of Rebetol, the reason you have been unable to get one is because until now it was never sold alone, just in combination with the Intron-A as " Rebetron " . If you go to that web site page I told you about you can print the info out from there. The info on the Intron-A is just mixed in with the info about the Rebetol, so you kind of have to sort it out - but it is there. C --- runabout_104 <runabout104@...> wrote: > Gosh, I hope I am not being a nusiance to the group with my endless > questions. I am required to see a psch while on this medication and > as i hv stated to the group b4, I hv more emotional symtons and > emotional turmoil and depression-more than I expected. Of course, I > do hv some physical symtons also (headaches, loss of appetite, the > usual things. Anyway, psch wants me to start on paxil again and he > also put me on xanax. What about the xanax in regards to the > interferon and rebetol. Oh, and by the way, each time I hv got the > rebetol filled @ the pharmacy I hv asked for a print out on the > rebetol and for some reason, " they can't give me one " . Keep telling > me they will try and get me one next month! Hvn't figured that one > out either as I thought these dys u cd get a print out on any > medication u get from a pharmacy. Oh, this rinky dink town I live in - > -u just wdn't belive the medical care or rather lack of medical care > and now even the pharmacies are showing their true colors!!. > cher > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2002 Report Share Posted January 15, 2002 This is just my personal opinion, but if it were me, if I could get the doctor to prescribe it, and the insurance would pay for it, I would stay on for a year. I think early cirrhosis does decrease your chances of a SVR some, so longer treatment may be better, but it also gives the interferon more chance to have an anti-fibrotic affect on your liver, and maybe give it more time to heal. Claudine --- runabout_104 <runabout104@...> wrote: > Gosh, what would I do without all of you--prob be in looney bin > somewhere. My next question (u know I always hv one) I realize that > > most people with genotype 2b the ususal treatment is 6 months, but > i > wonder if that changes for someone like myself if they hv > cirrochiss. > Say, would they stay on 4 a yr-just to be on the safe side??? Just > wondering about this. Don't get me wrong--wd love to off of it in 6 > > months, but I would hate for them to say 2 months later I would hv > to > go back on.....My ins would be good for an entire yr from the date > I > started but not if they told me 2 months after stopping that i wd > hv > to go on for another 6 months. Hv been on treatment since Nov and > my > ins is only good till next Dec so I cd do a yr, but not if i had a > break in between. Hope this makes some kind of sense > cher > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2002 Report Share Posted January 15, 2002 My gastro had mentioned last year that even with other genotypes, he sees some relapses and gives the option of a year of tx for those who are interested. Just fyi. alley Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2002 Report Share Posted February 21, 2002 liver enzymes and liver damage don't " always " match up, and especially with viral load. My liver enyzmes are normal, my viral load is >850,000 IU, and I have mild liver damage. So altho they can be indicators of a problem happening, if the enzymes aren't up, doesn't mean nothing is happening. Hope that makes sense. Good questions about the cirrhosis. But I don't know I'll let someone else answer that one alley Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2002 Report Share Posted February 21, 2002 Cher, Before I started treatment, my liver enzymes bounced around like crazy. They went up and down like a roller coaster. Then, as treatment went on and on, my doctor noticed that my enzymes pretty much started to stay level. He remarked this to me at about week 18. He told me it was a good sign. Then, at week 24, I found out my viral load was undetectable! I don't know if there is a correlation here. This is just my experience. I had very minimal liver damage to start with. I am a 1a that started with 3.2 million copies. Also, in week 48, my enzymes are still staying in the 20-30 range. Edie Week 48 of Combo Another question > If your enzymes are coming down is there a good chance that your > viral load is too? Or is that a whole different ball game? Also, > someone asked me the other dy if interferon is given to people with > cirochiss. No virus just cirochiss. I didn't think it ws given for > that but I don't want to be giving out any wrong information. If a > person that has severe cirochiss and stops the offending behavior > (alcohol) will the liver start to heal or is it too late. Someone I > know stopped drinking 3 months ago and then built up very badly with > fluid--since she hs stopped the offending behaviour will the liver > start to rejuvinate itself at all?? > cher > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2002 Report Share Posted March 11, 2002 PEACEJ@... writes: << I know that this is not the best answer I have ever given to a question here, but that's the best I can do. >> Actually, KJ, it was a good answer. I appreciate your response and your input. in health, rachel~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2002 Report Share Posted March 11, 2002 Hi , " In the meantime, here is my question for you all. Since Intestinal Formula 2 has in its list of ingredients bentonite clay, which pulls things out along with it, would it also pull out any beneficial herbal formula that's taken? " Here goes: Arise and Shine has a formula where you take fiber (psyillum and bentonite) and alternate with herbs that loosen up junk in the intestines. When I used it, I had to wait at least 1 hour to alternate, but it seemed to work for me. I had very large stools and lost plenty of weight. I know you know all that stuff is from the Cleanse and Purify Thyself book. " I know that many of you have used things that are designed to draw out toxins and it seems that it's normal to also be taking positive herbal formulas, so I was just wondering - how does the " drawing out " formula know what to leave in? That's a pretty elementary way of phrasing the question, but...I didn't know how else to put it. " My homeopathic said that, well you know how fruit has fiber and nutrients, but the body manages to get the nutrients to cells and the fiber manages to get the bad stuff out of the intestines in a reasonable amount of time. I guess it is nature. I know that this is not the best answer I have ever given to a question here, but that's the best I can do. I hope this helps. God bless, KJ Quote Link to comment Share on other sites More sharing options...
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