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My children are young adults (23 and 25) and my neurologist suggested

that they NOT have the DNA test as it might " follow " them and they

could be refused insurance, etc., etc. He said that once the

familial type is known, then a pretty good diagnosis can be made by a

physical and the nerve tests and there does not need to be

an " official " record. Don't know if this helps - it is just my

experience.

Deb

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