I'm New

[Guest guest]

tammyu18 wrote:

> Hey all i'm new to this juust thought Id write and tell ya a lil bit

> about me. Im 22, in college majoring in business admin. I live in

> Colorado Springs, CO. I love swimming and playing volleyball and most

> other sports. Anyway I really dont know what else to say so ill take

> my leave.

Welcome to the group, Tammy!

Serenity

--

http://www.theonion.com

[Guest guest]

Hi Jeannie,

I am on the same day as you...as far as I can tell that veggies are

fine just as long as they arent listed as carbs such as potatoes,

corn etc. I try to eat alot of brocolli (I love brocolli), green

beans etc. We just have to make sure of what we put on them...skip

that margerine and cheese sauce...LOL

> I just joined the group today. I'm on day 5 week 1 and very

excited,

> but I have to admit I am looking forward to my free day. My

biggest

> question is what about veggies. I love veggies and I have read

that

> I should add " a serving " of veggies at 2 meals. Is it bad to eat

> more? And pile them on when I do eat them. I don't think my idea

of

> a serving of veggies is the same as everyone elses.

[Guest guest]

I LOVE broccoli also, I eat it EVERY night with dinner and I have a

HUGE bowl of it.

I believe it was Serenity (one of the others on this board) who told

me not to complain if I start turning green.

Broccoli is VERY good for you.

> > I just joined the group today. I'm on day 5 week 1 and very

> excited,

> > but I have to admit I am looking forward to my free day. My

> biggest

> > question is what about veggies. I love veggies and I have read

> that

> > I should add " a serving " of veggies at 2 meals. Is it bad to eat

> > more? And pile them on when I do eat them. I don't think my

idea

> of

> > a serving of veggies is the same as everyone elses.

[Guest guest]

The only other thing I'd say is just watch what you put on them or

cook them with. The " added " things may add up in the long run, but

for the most part veggies are our friends!!

Colleen

>

> > > I just joined the group today. I'm on day 5 week 1 and very

> > excited,

> > > but I have to admit I am looking forward to my free day. My

> > biggest

> > > question is what about veggies. I love veggies and I have read

> > that

> > > I should add " a serving " of veggies at 2 meals. Is it bad to

eat

> > > more? And pile them on when I do eat them. I don't think my

> idea

> > of

> > > a serving of veggies is the same as everyone elses.

[Guest guest]

Welcome! I'm Bev, mom to Danny, 11, DS, and his three older sisters. You

are in good company here, especially for escape artists/runners. C.

(originator of this list) and I both have boys who run off in search of

adventure, so we can swap stories with you. There are others who have had

run-offs from time to time, also.

Danny's oldest sister seems to finally have him on the right path for

toileting, but that is a very recent development.

Does Carla also pour gallons of milk down the sink, turn on all the

lights, and line up all her toys?

Bev

[Guest guest]

Welcome !! This is a great group, full of support, ideas, and humor!

Your asking for a baby who would stay a baby for awhile really hit me. When

my first child became " mobile " , she never wanted to be held. I remember

asking God for another baby, one that I could rock longer. Wow, He did

answer my prayers with Karrie!

Sue mom to Kate 13 and Karrie 6 w/ds

[Guest guest]

<<Your asking for a baby who would stay a baby for awhile really hit me. When

my first child became " mobile " , she never wanted to be held. I remember

asking God for another baby, one that I could rock longer. Wow, He did

answer my prayers with Karrie!

Sue mom to Kate 13 and Karrie 6 w/ds>>

Same here! This really is something that I have thought often! I did ask God

for this and he did bless me!

Gail, mom to Ted (11)

[Guest guest]

Hi and welcome . I just wanted to say I'm sorry you decided to join on the

weekend Timbo was bored...hehehe it isn't always like this here..

Di

RE: I'm New

Welcome! I'm Bev, mom to Danny, 11, DS, and his three older sisters. You

are in good company here, especially for escape artists/runners. C.

(originator of this list) and I both have boys who run off in search of

adventure, so we can swap stories with you. There are others who have had

run-offs from time to time, also.

Danny's oldest sister seems to finally have him on the right path for

toileting, but that is a very recent development.

Does Carla also pour gallons of milk down the sink, turn on all the

lights, and line up all her toys?

Bev

[Guest guest]

In a message dated 2/1/03 6:13:57 PM Central Standard Time,

karriemom@... writes:

> When I first found out that I was pregnant with Karrie, I remember praying

> for another little girl, one with blue eyes. And I got her! She also has ds,

> but that part was an added bonus!

> Sue mom to Kate 13 and Karrie 6 w/ds

>

> Yes, Sue, I think we are all the luckiest parents in the world. I have

> always felt so lucky to have .

[Guest guest]

This thread reminded me of when I was younger ( about 12yrs old or so) ,

we used to spend a few weeks each year with family friends. They also

have a ds girl. I recall one xmas after spending 3-4 weeks with her, I

asked God to give me a ds child. Well, many years later I got one. The

phrase " you must be careful what you wish for " ran thru my head several

times over the next few months. Some days I though that God had cursed

me, and allot of the days I know I had been given a blessing. I thank

God every day for my little man, and my wonderful hubby- who helped

create our miracle. I am very glad that I asked God for BJ.

When we told our family friends that we had a ds baby, Janice said to me

" God only g ives special kids to special mums. " Everytime I get down in

the dumps over anything, DS related or not, I think of that statement,

and I then look at BJ and think how wonderfully blessed I am.....and

then I thank God again ( we don't get to church much )

And when someone would make a statement like " oh it must be hard having

a disabled child " I would usually answer " well mine is a baby for much

longer than yours, so no I don't mind at all " .

Gail wrote:

> <<Your asking for a baby who would stay a baby for awhile really hit

> me. When

> my first child became " mobile " , she never wanted to be held. I remember

> asking God for another baby, one that I could rock longer. Wow, He did

> answer my prayers with Karrie!

> Sue mom to Kate 13 and Karrie 6 w/ds>>

> Same here! This really is something that I have thought often! I did

> ask God for this and he did bless me!

> Gail, mom to Ted (11)

>

--

Leis....mum to 5 & Natasha 11 months

The time you enjoy wasting is not wasted time.

Bertrand (1872 - 1970)

[Guest guest]

When I first found out that I was pregnant with Karrie, I remember praying

for another little girl, one with blue eyes. And I got her! She also has ds,

but that part was an added bonus!

Sue mom to Kate 13 and Karrie 6 w/ds

[Guest guest]

On Saturday, February 1, 2003, at 06:43 PM, Leis wrote:

> The phrase " you must be careful what you wish for " ran thru my head

> several

> times over the next few months. Some days I though that God had cursed

> me, and allot of the days I know I had been given a blessing. I thank

> God every day for my little man, and my wonderful hubby- who helped

> create our miracle. I am very glad that I asked God for BJ.

This is so true. With , I had an AFP that showed an elevated

risk for DS but the sonogram didn't show any markers for DS. But it did

clearly show a penis. I had really really wanted another girl and spent

much of my pregnancy wishing for another girl, thinking wouldn't it be

funny if the US was wrong. In a sense it was, but not in the way I

expected! In any case, Nicky is very much the baby I hoped for, very

mellow, and he sleeps well, I really couldn't have a better baby.

I don't know if I've told this story here before or not. But one of my

older son's favorite books is called " Flap your wings " . In the story, a

bird couple find an egg in their nest and an alligator hatches out. The

father bird says " it's in our nest we must feed him. " One night while

Nicky was still in the NICU my DH said " I feel a little like father

bird in Flap your wings, Nicky's not quite what we expected, but he's

in our nest, we must feed him and teach him how to fly. " After he said

that I knew everything would be ok.

Anne mom to 6, Nate 4 and Nicky DS 4 months and married

to the occasional boob Kim.

[Guest guest]

Your post just touched me so much! I have Bethany with DS who is almost

4 months – and my DH and I went thru sort of the same thing in the NICU

– we were so upset that everyone we called/saw for the first time cried

– and we had just had a baby! We kept saying – even though she’s not

what we expected, this is our baby and we love her please don’t cry!

I’ll have to see if I can find that book in the library.

Michele

Mom to Tyler 4 ½ , and Bethany 3 ½ months - DS

Re: I'm New

On Saturday, February 1, 2003, at 06:43 PM, Leis wrote:

> The phrase " you must be careful what you wish for " ran thru my head

> several

> times over the next few months. Some days I though that God had

cursed

> me, and allot of the days I know I had been given a blessing. I thank

> God every day for my little man, and my wonderful hubby- who helped

> create our miracle. I am very glad that I asked God for BJ.

This is so true. With , I had an AFP that showed an elevated

risk for DS but the sonogram didn't show any markers for DS. But it did

clearly show a penis. I had really really wanted another girl and spent

much of my pregnancy wishing for another girl, thinking wouldn't it be

funny if the US was wrong. In a sense it was, but not in the way I

expected! In any case, Nicky is very much the baby I hoped for, very

mellow, and he sleeps well, I really couldn't have a better baby.

I don't know if I've told this story here before or not. But one of my

older son's favorite books is called " Flap your wings " . In the story, a

bird couple find an egg in their nest and an alligator hatches out. The

father bird says " it's in our nest we must feed him. " One night while

Nicky was still in the NICU my DH said " I feel a little like father

bird in Flap your wings, Nicky's not quite what we expected, but he's

in our nest, we must feed him and teach him how to fly. " After he said

that I knew everything would be ok.

Anne mom to 6, Nate 4 and Nicky DS 4 months and married

to the occasional boob Kim.

[Guest guest]

I don't know if I've told this story here before or not. But one of my

older son's favorite books is called " Flap your wings " . In the story, a

bird couple find an egg in their nest and an alligator hatches out. The

father bird says " it's in our nest we must feed him. " One night while

Nicky was still in the NICU my DH said " I feel a little like father

bird in Flap your wings, Nicky's not quite what we expected, but he's

in our nest, we must feed him and teach him how to fly. " After he said

that I knew everything would be ok.

Awwww... Anne that is so sweet!

B

GOD BLESS AMERICA !

[Guest guest]

In a message dated 2/20/2003 7:33:51 PM Eastern Standard Time,

gbissias@... writes:

> I am a special

> education teacher working with students with moderate/severe

> disabilities at the Middle School level.

Hi GiGi,

Welcome to the group!! What type classroom do you teach in? A

life-skills? Is the autism program you want changed to in the same

school? Have you checked it out? Do they implement ABA/DTT and a good

communication program? I'm sure you're very knowledgeable about all the

various type classrooms.....just curious. And where do you live?

K, feel like you got the third degree??? LOLOL

Welcome again!!

Donna (Mom to Maddie, 9, DS and autism, aka Bam Bam)

[Guest guest]

Welcome Gigi!!!

Nice to have you with us. Share lots of experiences with us, okay? LOL

Gail :-)

<< Hello everyone! I've been receiving your emails for a couple weeks and

finally decided to say hello. My name is Gigi and I am mom to two

beautiful children. My oldest, , 6 yrs old has Down syndrome and

Autism. My daughter Mia is 2 and developing typically. I am a special

education teacher working with students with moderate/severe

disabilities at the Middle School level.

I've really enjoyed (and can relate) to many of your emails! The potty

training and pooping in the bath especially! I am looking forward

(haha) to 's ACC next week -- I'm requesting a change in placement

to a program for children with Autism and expecting some resistance from

many corners of the game! Considering I work for the same coop

(district) that he's provided services from we'll see how colorful it

gets!

Thanks for all your words of encouragement!

Gigi >>

[Guest guest]

In a message dated 2/21/2003 11:55:08 AM Eastern Standard Time,

gbissias@... writes:

> The teacher there is really phenomenal- creative, dedicated, knowledgable.

> Her class is based on the TEACCH philosophy.

> S/L is integrated. OT is integrated, SI focus. It is the " baby " of our

> co-op, so the money is being flooded into the program to provide what is

> necessary to make it a success.

>

That's great Gigi!!! Maddie goes to school via personal cab. I used the

autism piece to say that she couldn't be in a bus which would take twice as

long. There is a TEACCH school very near the school she goes to now, but it

was definitely not for her. It's fabulous that this teacher has such a

good reputation. We ALL know how very crucial that is to a successful

program.

Good luck!!! And keep us posted!!

Donna

[Guest guest]

In a message dated 2/21/2003 11:55:08 AM Eastern Standard Time,

gbissias@... writes:

> The teacher there is really phenomenal- creative, dedicated, knowledgable.

> Her class is based on the TEACCH philosophy.

> S/L is integrated. OT is integrated, SI focus. It is the " baby " of our

> co-op, so the money is being flooded into the program to provide what is

> necessary to make it a success.

>

That's great Gigi!!! Maddie goes to school via personal cab. I used the

autism piece to say that she couldn't be in a bus which would take twice as

long. There is a TEACCH school very near the school she goes to now, but it

was definitely not for her. It's fabulous that this teacher has such a

good reputation. We ALL know how very crucial that is to a successful

program.

Good luck!!! And keep us posted!!

Donna

[Guest guest]

>

> Hi GiGi,

> Welcome to the group!! What type classroom do you teach in? A

> life-skills? Is the autism program you want changed to in the same

> school? Have you checked it out? Do they implement ABA/DTT and a good

> communication program? I'm sure you're very knowledgeable about all the

> various type classrooms.....just curious. And where do you live?

> K, feel like you got the third degree??? LOLOL

> Welcome again!!

> Donna (Mom to Maddie, 9, DS and autism, aka Bam Bam)

Donna,

Yes, my classroom works on daily living skills. We start to transition the

students from the elementary program which is pre-academic focus and the high

school which is a community based class.

The Autism class is not at his home school -- where he is now is. It is about a

20 minute drive by car- who knows how long for the bus to get him there. The

teacher there is really phenomenal- creative, dedicated, knowledgable. Her

class is based on the TEACCH philosophy.

S/L is integrated. OT is integrated, SI focus. It is the " baby " of our co-op,

so the money is being flooded into the program to provide what is necessary to

make it a success.

Gigi

[Guest guest]

In a message dated 2/21/03 11:54:59 AM Eastern Standard Time,

gbissias@... writes:

> . Her class is based on the TEACCH philosophy.

> S/L is integrated. OT is integrated, SI focus. It is the " baby " of our

> co-op, so the money is being flooded into the program to provide what is

> necessary to make it a success.

>

> Gigi

>

>

>

Hi Gigi, sounds like you did your homework on this one. If you got the dx and

they have room for I would say it's a go. Wish I knew what to do

sometimes. I am always wishy-washy. Rochelle's Life skills teacher said the

autism class has many behavior problems so she thought her class was better.

If that teacher is as good as you say I'd be very excited. Good luck and

Welcome.

Diane (mom to Rochelle 6-ds/asd/celiac and Danny almost 9 -ld/asd/ocd)

[Guest guest]

In a message dated 2/21/03 11:54:59 AM Eastern Standard Time,

gbissias@... writes:

> . Her class is based on the TEACCH philosophy.

> S/L is integrated. OT is integrated, SI focus. It is the " baby " of our

> co-op, so the money is being flooded into the program to provide what is

> necessary to make it a success.

>

> Gigi

>

>

>

Hi Gigi, sounds like you did your homework on this one. If you got the dx and

they have room for I would say it's a go. Wish I knew what to do

sometimes. I am always wishy-washy. Rochelle's Life skills teacher said the

autism class has many behavior problems so she thought her class was better.

If that teacher is as good as you say I'd be very excited. Good luck and

Welcome.

Diane (mom to Rochelle 6-ds/asd/celiac and Danny almost 9 -ld/asd/ocd)

[Guest guest]

Hi, . I'm glad to hear you're back at work and in training. I live in

NJ too with my husband and kids. Are you stationed at Ft. Monmouth? are you

being treated by military doctors?

Please let me know if I can help you in any way. welcome to the group.

[Guest guest]

>

> Thank you for your service. Sorry and glad you are here. You went

from 80 to 15 mg of pred in 2 months???????? you are superman!!!lol

Stay strong. My best t oyour wife, she is welcome anytime as well!!!

, G.otF.M.

{goddess of the full moon} MA { Massachusetts} we like to remind each other

where we are from, stills senility and all....

>

>

> Diag: 2 mo ago

> Curently on a Pred taper from 80 now at 15 mg.

> 27 yrs old / in the military / from NJ

> I am back to work and training again

> nice to be a part of your group

>

>

>

>

>

>

>

>

>

>

>

[Guest guest]

Than you for supporting our troops, and welcoming me. My guys are over there

without me because of the (AOSD). I should be with them, but I'll make it

eventually.

superman:-)

Re: I'm new

> >

> > Thank you for your service. Sorry and glad you are here.

> You went

> from 80 to 15 mg of pred in 2 months???????? you are superman!!!lol

> Stay strong. My best t oyour wife, she is welcome anytime as well!!!

>

> , G.otF.M.

> {goddess of the full moon} MA { Massachusetts} we like to remind

> each other

> where we are from, stills senility and all....

> >

> >

> > Diag: 2 mo ago

> > Curently on a Pred taper from 80 now at 15 mg.

> > 27 yrs old / in the military / from NJ

> > I am back to work and training again

> > nice to be a part of your group

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

I went back about a month after the initial onset. I started training (lightly)

shortly after (I was on 80 mg then). Now at 15, I'm running 3-4 days a week,

lifting 3 days and swimming 2 days a week as well as fighting 5. I think thats

the key for me stay active but not to over do it.

I'm stationed in Philadelphia (recruiting for an ROTC program). I was supposed

to ship out in Jan (Im attached to the 101st Airborne Division) but I got the

disease in the middle of DEC. I went to Monmouth University my freshmen year of

college (1993) and played football for them. I'm from and living in Southern

NJ (exit 3 NJTP) (1hr 45min) or so from Ft Monmouth.

I am under a civilian doctor's care as well as monthly trips to Walter Army

Medical Hospital.

Thanks for the welcome and offer.

Re: I'm new

> Hi, . I'm glad to hear you're back at work and in training.

> I live in

> NJ too with my husband and kids. Are you stationed at Ft.

> Monmouth? are you

> being treated by military doctors?

>

> Please let me know if I can help you in any way. welcome to the

> group.

>

>

>

>