I'm New

[Guest guest]

Welcome, Marci! This is a very encouraging and informative group. I can

understand how you feel about 'holding your breath' with Justus. We all held

our breath when was born and he does not have the autism disorder but

managed to end up with the same ones his oldest brother has and a few extra

problems added on. Ah, well, they certain keep our lives from getting dull,

lol.

BETTY ANN-62 yo, possibly undx'd Bipolar

grandma to

ANDREW - 12 yo-- Bipolar/ADHD, Homeschooled

EVAN - 10 yo-- nonverbal autism

DAVID 8 yo Bipolar/ADHD

and mother to ANDREA -33 yo, their mom, also

Bipolar/ADHD

wife to BOB - 72 yo, a very tired grandpa

----- Original Message -----

From: " Marci Laskey " <marcilaskey@...>

>

> Hi everyone. I am a new member to this group but not so new to autism and

> behavior difficulties. I have a 7 year old son, Darius who has autism, a

NT

> 12 year old stepson,Josh, and an 11 month old baby, Justus, who we are

> still holding our breath over. I guess time will tell if he will be

> affected or not. We llive near Pittsburgh, Pa. I look forward to getting

> to know you all.

>

>

> Marci

> Walk Far For NAAR

> Join our team: " Doin' It For Darius "

[Guest guest]

Hi Betty,

I hope this isn't too personal but can you tell me what kind of

problemsa and your oldest have?

Marci

Walk Far For NAAR

Join our team: " Doin' It For Darius "

>From: " Betty " <gk37@...>

>Reply-autism

><autism >

>Subject: Re: I'm new

>Date: Mon, 24 May 2004 21:21:21 -0700

>

Welcome, Marci! This is a very encouraging and informative group. I can

understand how you feel about 'holding your breath' with Justus. We all held

our breath when was born and he does not have the autism disorder but

managed to end up with the same ones his oldest brother has and a few extra

problems added on. Ah, well, they certain keep our lives from getting dull,

lol.

BETTY ANN-62 yo, possibly undx'd Bipolar

grandma to

ANDREW - 12 yo-- Bipolar/ADHD, Homeschooled

EVAN - 10 yo-- nonverbal autism

DAVID 8 yo Bipolar/ADHD

and mother to ANDREA -33 yo, their mom, also

Bipolar/ADHD

wife to BOB - 72 yo, a very tired grandpa

----- Original Message -----

From: " Marci Laskey " <marcilaskey@...>

>

> Hi everyone. I am a new member to this group but not so new to autism and

> behavior difficulties. I have a 7 year old son, Darius who has autism, a

NT

> 12 year old stepson,Josh, and an 11 month old baby, Justus, who we are

> still holding our breath over. I guess time will tell if he will be

> affected or not. We llive near Pittsburgh, Pa. I look forward to getting

> to know you all.

>

>

> Marci

> Walk Far For NAAR

> Join our team: " Doin' It For Darius "

[Guest guest]

and both have Rapid cycling Bipolar and ADHD as does their mom.

It runs in my mother's family, apparently in my husband's family because

several of his kids are at least, ADHD, and both 's husband suffer

some degree of depression. and Evan's father could work for months

with little sleep each night. and always had to be doing something. His

self-med of choice was beer. Check my signature line and you will see that

it is not too personal, lol. Of my two children, my oldest and youngest are

also bipolar/ADHD. My 41 yo son's med of choice is pot or alcohol, unless he

is on probation and then he uses nothing. is off street drugs and on

medication thru county mental health. I still have legal custody of her boys

because of previous drug use but the only thing keeping her from getting

custody back is having her own place. That is not going to happen because

these 3 boys are too much for her to handle alone--or me either for that

matter. We do a fair job of family blending. That is until someone blows

under too much strain.

BETTY ANN-62 yo, possibly undx'd Bipolar

Effexor, Buspar

grandma and guardian to

ANDREW - 12 yo-- Bipolar/ADHD, Homeschooled

Adderall 30 mg, Abilify 20 mg, Zoloft 50 mg,

EVAN - 9 yo-- nonverbal autism

Abilify 20 mg 1x daily, 75 mg Trazodone, 1 mg Risperdal

DAVID 8 yo Bipolar/ADHD

Adderall 20 mg daily, 1 mg Risperdal 3 x daily,

50 mg Strattera

and mother to ANDREA -33 yo, their mom -

Bipolar/ADHD, Topamax, Tegretol, Singular, Wellbutrin

wife to BOB - 72 yo, a very tired grandpa

----- Original Message -----

From: " Marci Laskey " <marcilaskey@...>

> Hi Betty,

> I hope this isn't too personal but can you tell me what kind of

> problemsa and your oldest have?

> Marci

> Walk Far For NAAR

> Join our team: " Doin' It For Darius "

[Guest guest]

Betty it is so great that you and can work together for the boys now. I don't know how any one does it alone!! Pat K

[Guest guest]

Carol,

Study list archives of both oxyplus and ozonetherapy.

Mfg of generators:

Plasmafire

Ozone Services

Lonevity Resources.

Book: Flood Your Body With Oxygen by Ed McCabe

Dennis

I'm new

>

>

> Hi,

>

> I've just joined this group. I have had ME for 13 years and fairly

> recently been diagnosed with borrelia in the UK. I'm currently

> taking Samento which is helping, but will probably need something

> stronger and I'm not keen on antibiotics. I've just bought myself a

> sauna tent and am considering getting ozone/oxygen generators so I

> can have ozone saunas. Please can someone tell me where to start

> learning about this - books, urls etc.

>

> I've heard that it is bad to breathe in ozone. How do you stop

> yourself from breathing in a little when in the sauna - I would

> doubt there is a 100% seal around the neck. Also some would escape

> when getting in and out the sauna. Or doesn't breathing in this

> small amount matter?

>

> Thanks,

> Carol

>

>

>

>

>

>

>

> OxyPLUS is an unmoderated e-ring dealing with oxidative therapies, and

other alternative self-help subjects.

>

> THERE IS NO MEDICAL ADVICE HERE!

>

> This list is the 1st Amendment in action. The things you will find here

are for information and research purposes only. We are people sharing

information we believe in. If you act on ideas found here, you do so at your

own risk. Self-help requires intelligence, common sense, and the ability to

take responsibility for your own actions. By joining the list you agree to

hold yourself FULLY responsible FOR yourself. Do not use any ideas found

here without consulting a medical professional, unless you are a researcher

or health care provider.

>

> You can unsubscribe via e-mail by sending A NEW e-mail to the following

address - NOT TO THE OXYPLUS LIST! -

> DO NOT USE REPLY BUTTON & DO NOT PUT THIS IN THE SUBJECT LINE or BODY of

the message! :

>

> oxyplus-unsubscribeegroups

>

> oxyplus-normalonelist - switch your subscription to normal mode.

>

[Guest guest]

Join the ozone therapy list and read the archives. Also, ask Saul to send you

his ebook on ozone. He runs the ozonetherapy group.

Best wishes and much love, Ken

Ken Gullan

Institute for Research Integration (IRI), San Diego, CA 92106-2424

IRI is a 501C(3) non-profit corporation established to help children with

developmental difficulties.

To contact me off-list use kengullan@... or call 619-222-1104

I'm new

Hi,

I've just joined this group. I have had ME for 13 years and fairly

recently been diagnosed with borrelia in the UK. I'm currently

taking Samento which is helping, but will probably need something

stronger and I'm not keen on antibiotics. I've just bought myself a

sauna tent and am considering getting ozone/oxygen generators so I

can have ozone saunas. Please can someone tell me where to start

learning about this - books, urls etc.

I've heard that it is bad to breathe in ozone. How do you stop

yourself from breathing in a little when in the sauna - I would

doubt there is a 100% seal around the neck. Also some would escape

when getting in and out the sauna. Or doesn't breathing in this

small amount matter?

Thanks,

Carol

OxyPLUS is an unmoderated e-ring dealing with oxidative therapies, and other

alternative self-help subjects.

THERE IS NO MEDICAL ADVICE HERE!

This list is the 1st Amendment in action. The things you will find here are

for information and research purposes only. We are people sharing information

we believe in. If you act on ideas found here, you do so at your own risk.

Self-help requires intelligence, common sense, and the ability to take

responsibility for your own actions. By joining the list you agree to hold

yourself FULLY responsible FOR yourself. Do not use any ideas found here

without consulting a medical professional, unless you are a researcher or health

care provider.

You can unsubscribe via e-mail by sending A NEW e-mail to the following

address - NOT TO THE OXYPLUS LIST! -

DO NOT USE REPLY BUTTON & DO NOT PUT THIS IN THE SUBJECT LINE or BODY of the

message! :

oxyplus-unsubscribeegroups

oxyplus-normalonelist - switch your subscription to normal mode.

[Guest guest]

>

> Hi,

>

> I've heard that it is bad to breathe in ozone. How do you stop

> yourself from breathing in a little when in the sauna - I would

> doubt there is a 100% seal around the neck. Also some would escape

> when getting in and out the sauna. Or doesn't breathing in this

> small amount matter?

>

> Thanks,

> Carol

=======================

Hi Carol,

I also have a sauna tent. I use a towel around my neck, and yes,

some escapes whenever I unzip to get in and out, but that never has

bothered me. I suppose a small amount might escape through the neck

area but it's not noticable. But none of it is like I am putting my

face right in it trying to breathe it. At the same time, I'm not

even trying to avoid it. I just unzip get in and put the towel

around my neck and zip it up again. Never has bothered me.

Gail

[Guest guest]

Thanks to all who replied.

Carol

[Guest guest]

Dear Carol,

Breathing a small amount of ozone is harmless.

Have a fan blowing across your face and out an open window

when you are in your sauna.

Best of Health!

Dr. Saul Pressman

--------------------------------------------------------------------------------\

-------

----Original Message Follows----

From: " carolwxyz99 " <carolwxyz99@...>

Reply-oxyplus

oxyplus

Subject: I'm new

Date: Sat, 20 Nov 2004 15:05:42 -0000

Hi,

I've just joined this group. I have had ME for 13 years and fairly

recently been diagnosed with borrelia in the UK. I'm currently

taking Samento which is helping, but will probably need something

stronger and I'm not keen on antibiotics. I've just bought myself a

sauna tent and am considering getting ozone/oxygen generators so I

can have ozone saunas. Please can someone tell me where to start

learning about this - books, urls etc.

I've heard that it is bad to breathe in ozone. How do you stop

yourself from breathing in a little when in the sauna - I would

doubt there is a 100% seal around the neck. Also some would escape

when getting in and out the sauna. Or doesn't breathing in this

small amount matter?

Thanks,

Carol

[Guest guest]

My suggestion would be read Swigg's site, it answers all of your

questions, and if you are not sweating after 20 mins. of doing the HIIT, you

definitely are not working the HIIT. If I do one minute more then 20, I fall

off whatever I happen to be using that day. Kick up the volume, and work hard

that 20 mins. You will not want to do any more then that..trust me.

Good Luck, and thanks for joining us.

~

http://www.skwigg.com/id24.html

alescardozo <anadayur@...> wrote:

Hello all...!!!

I'm new in the body for life this is my 2nd week and I have some

questions:

1.- Can I mix the myoplex shake with fruit (like a smoothie) ?

2.- I don't really wake up early so I start working out around 9 am

and my first meal is at 10:30 something like that so... I can't make

the 6 meals a day I hardly do 4 is that affect me and how?

3.- I also don't do the 20 minutes cardio I'm doing 25 - 30 minutes

because I really start to sweat after 20 min... is that ok?

Please help me because I have fail in almost everysingle diet I tried

and I need to loose 31 pounds...!!!!!!

Thanks

Ana

---------------------------------

[Guest guest]

Ana - I agree with . If you are not sweating until about 20 minutes

then the intensity you need for HIIT isn't there. Let's put it like this:

at the highest part of the interval, you should feel like you could not move

any faster if you were being chased by a starved Lion on the Serengeti.

That's the kind of work effort that melts the fat off. But I often do 30-35

minutes too - 20 of HIIT and then another 10-15 of MUCH lighter cardio. To

me it almost feels better to do that as a cool-down than just stop at 20.

Regarding #1 - yes, you can add fruit to regular Myoplex. Lite Myoplex is

balanced already (protein & carbs) so be careful adding fruit to that.

#2 - yes you need more than 4 meals if you want excellent results. Your

body needs the nutrients to repair & recover from the intense workouts.

Also, to rev your metabolism, you need to be constantly feeding your body.

How about spacing your meals like this: 10:30, 1 PM, 3:30, 6 PM, 8:30 PM

and 10:30 PM? For the last meal, I like to do something lighter like

cottage cheese with fruit or a protein shake with fruit or protein pudding.

Check out this link to see what it requires to really have great results:

http://www.skwigg.com/id64.html

Bottom line is if you put in the work with consistency and intensity, you

will be wildly successful!

Good luck!

_____

From:

[mailto: ] On Behalf Of Kerr

Sent: Thursday, 05 May, 2005 5:27 PM

Subject: Re: I'm new

My suggestion would be read Swigg's site, it answers all of your

questions, and if you are not sweating after 20 mins. of doing the HIIT, you

definitely are not working the HIIT. If I do one minute more then 20, I

fall off whatever I happen to be using that day. Kick up the volume, and

work hard that 20 mins. You will not want to do any more then that..trust

me.

Good Luck, and thanks for joining us.

~

http://www.skwigg.com/id24.html

alescardozo <anadayur@...> wrote:

Hello all...!!!

I'm new in the body for life this is my 2nd week and I have some

questions:

1.- Can I mix the myoplex shake with fruit (like a smoothie) ?

2.- I don't really wake up early so I start working out around 9 am

and my first meal is at 10:30 something like that so... I can't make

the 6 meals a day I hardly do 4 is that affect me and how?

3.- I also don't do the 20 minutes cardio I'm doing 25 - 30 minutes

because I really start to sweat after 20 min... is that ok?

Please help me because I have fail in almost everysingle diet I tried

and I need to loose 31 pounds...!!!!!!

Thanks

Ana

[Guest guest]

As far as the workouts go, i think you really should stick to the

program. Bill's pretty clear on the 20 min cardio rule. Can you wake up

earlier? Go to bed later? You must sleep an awfully lot

alescardozo wrote:

> Hello all...!!!

>

> I'm new in the body for life this is my 2nd week and I have some

> questions:

>

> 1.- Can I mix the myoplex shake with fruit (like a smoothie) ?

>

> 2.- I don't really wake up early so I start working out around 9 am

> and my first meal is at 10:30 something like that so... I can't make

> the 6 meals a day I hardly do 4 is that affect me and how?

>

> 3.- I also don't do the 20 minutes cardio I'm doing 25 - 30 minutes

> because I really start to sweat after 20 min... is that ok?

>

> Please help me because I have fail in almost everysingle diet I tried

> and I need to loose 31 pounds...!!!!!!

>

> Thanks

>

> Ana

>

>

>

> ------------------------------------------------------------------------

>

[Guest guest]

On Friday 08 July 2005 03:15 am, wrote:

> I am Kimi and live in Andover, MN.

Welcome Kimi!

My name is . I grew up in Blaine, but now I live near Winsted, MN. I

have also read " The Maker's Diet " , " Nourishing Traditions " but have only

skimmed parts of " Eat Fat Lose Fat " . Yes, take it slow, some of these

changes are hard. For me, the hardest part is thinking ahead.

Raw milk and kefir are wonderful!!

Again, welcome!

Oster, MN

Isaiah 26:3

" I believe in Christianity as I believe that the sun has

risen, not only because I see it, but because by it I see

everything else. "

--C. S.

[Guest guest]

Hi (and all)

Thanks for the welcome.

You are right about the thinking ahead, that is a hard one for me too. The other

thing is finding real foods at a price I can afford and yet a fair price to the

producer.

I know it is a lot of work to produce quality real foods. (we also have chickens

who roam around the yard and give us beautiful healthy eggs. (1 and 1/2 ac.

worth of yard;-) That is one reason I am so thankful for the nice sized garden

we have. This year we are trying several heirloom plants, Zucchini, pumpkins,

cucumbers, peas, beans and tomato's. I am really looking forward to the

tomato's!

I can or freeze most of the garden or we eat it right away. I would love to

learn how to can things that would stay with in the trad-foods way of eating. I

feel like I have so much to learn.

Our pantry is getting low so now I am trying to fill it with trad-foods and

would love to hear of any suggestions of basic things I should start with.

I would also like to know of what is a good but not too pricy grain grinder. I

do have a kitchen aid mixer and have thought of getting the grain grinder for

that but would like to hear if any one has one and how they like it. I have

thought of a hand grinder and wonder if I would like that better, so I can bring

it camping and when I go to visit with my dd and family.

Like I said, I have so much to learn here and so many questions too!

Kimi

~~~~~~~~~~~~~~~~~

www.Jremedies.com

" Nothing in my hand I bring. Simply to His cross I cling. "

[Guest guest]

Hi Kimi, and all,

I've been wondering the same thing about my pantry. Now that I've

gotten rid of all the convenience, packaged foods, the pantry is very

empty! (I don't have my book yet, so I've just tried a couple of

Sally's recipes that were published in Maker's Diet.) So what are the

dry goods that you all have in your pantries? Would love to know the

staples.

~ Angie ~

> Our pantry is getting low so now I am trying to fill it with trad-

foods and would love to hear of any suggestions of basic things I

should start with.

[Guest guest]

At 09:39 AM 9/02/2005, wiseguy05 wrote:

> I'm a true " vidiot "

>but I try to keep my collection under a 100. DH laughs w/ a glazed

>over look whenever he sees all my workouts. But I use them all!

hiya tish! welcome to the group! it is great to have you here!

im currently doing a project with all of my fitness dvds and cds...

categorizing and creating a spreadsheet of them all, taking them all out of

their cases and storing them in a soft sided binder and cross referencing

the binder contents to the spreadsheet. its taking me forever but it sure

is fun to get out all of my workouts and look them all over. it makes me

want to do every single one right then and there! basically i have a need

to be organized but this project also keeps all of my dvds out of my

husband's sight...heh heh. now he wont be able to open drawer after

drawer of dvds and give me major heck for having so many! my binder holds

144 discs and if i ever get it filled up then i know i will be in biiiig

trouble! LOL once i get that done, my project will be to spend the next

year doing every single one of those discs in that binder, plus any new

ones i acquire...heh. im hoping that i can weed some of them out that

way. but looking at all of them this past week, i cant say that i feel

like parting with any of them!

>I prefer doing a bunch of add-ons so I get lots of variety out of each

>workout.

im finding that so many workouts are 20-40 minutes anymore. the long 60

mins (or more) workouts dont seem to be as popular now in our time-crunched

society. so im finding that im doing add-ons more and more now too... and

it really is alot of fun. also there are days when i certainly find the

prospect of one 60 min workout to be intimidating yet i happily do three 20

min sessions (or some other mixture of lengths to equal 60 mins) with no

problem! go figure!

:*carolyn.

--

No virus found in this outgoing message.

Checked by AVG Anti-Virus.

Version: 7.0.323 / Virus Database: 267.10.17/84 - Release Date: 8/29/2005

[Guest guest]

welcome tish i'm new too - don't worry they're pretty

gentle around here:D

http://pixelated24.blogspot.com

It does not matter how slowly you go,

as long as you do not stop.

Unknown

__________________________________________________

[Guest guest]

Hi ,

I'm not sleeping tonight either. One of the many gifts of HCV. I've had this thing for 30 years now, with minimal damage. Last liver scan showed stage one fibrosos and my liver enzymes are only slightly elevated at the last blood test.

Having this has made me much more aware of what I put in my body, I can tell you. I've never done drugs and was, long ago, a social drinker only. Always made me sick. lol Now, I am much more careful of the amounts of ibuprofen I take for pain and do not drink at all. Every prescription must be weighed against what damage it might do to my liver and I have many days when I feel a far below normal range of energy. Lack of energy being my worst symptom, thankfully.

I took one 6 month round of treatment a couple of years ago, and coralled the virus, but relapsed 4 months later. The second round, I was taken off after 6 weeks with deep depression. I believe I could have made it through, did the first time, but my husband is not quite grown up and was not facing the prospect of a sick wife for a year very well, so I allowed myself to be disuaded.

I would say, given the benefit of stopping the progress of the disease, I would take the treatment. You, however, have other serious concerns to factor in and only your doc can help you decide if the toll on your body would be worth it. Most people have some degree if side affects, many have severe sides. I am 62 and cannot go through it alone, just don't have that degree of strength, so will wait for the next generation of treatment, which promises to be of much shorter duration and much more effective.

My doc once told me, I will not die of HCV, but rather with it, for whatever that means. Meantime, I read the posts of this group and absorb as much of the info and hope and caring I can.

LOng winded devil, aren't I. Hope you will enjoy some of the jokes, they are not overwhelming in volume and sometimes give a chuckle in an otherwise toooooo grim world.

A laugh a day keeps the blues away.

Sharon

Ok, everyone I'll give it another go. I was just really shocked to receive my first email from the group about something completely different than HCV. So I am over it and want to find out what I can re this illness.I unfortunately also have an autoimmune disease called Primary Biliary Cirrhosis (PBC) where the immune system attacks the bile ducts of the liver. I was dx in May 05. The cause is unknown. I was dx 2 days ago with HCV. I'm also currently recovering from a hysterectomy (Oct 27th. After spending the last 5 months researching PBC and finally coming to terms with this life-threatening illness, then having my surgery, I was hoping I was on the road to getting my health back and not worrying anymore. So I was a bit shocked to find out I have 2 liver diseases and I have to start all over again and research this new illness. Apparently the treatments do not compliment each other, which is a big concern.

[Guest guest]

Sharon, Well hon, Im SOOO sorry you didnt have a grown up hubby to help you complete your treatment. The reason I am speaking about this is because I was so blessed to have one while I was on treatment. I had been married to a fireman who ran a lot of medical calls while on the firetruck but when it came to his family, he wouldnt tolerate ME being sick EVER!!! It was a good thing that I did not know I had hep at that time.. I finally was able to escape him while he was working a double shift at the firestation,, I backed up the moving truck, had hired two men to help me,, and I moved.. My daughter and I packed up my house in 12 hours and the truck came and within 24 hours I was moved into my new place... HE tried to find me but I got a restraining order and since he was a public servant(??LOL) he was ordered to leave me alone OR lose his job.. and all his retirement, etc,,, I found love again and after being married to this most wonderful

man,, practically on our first anniversary got my diagnosis...WHAT at shock!!! I told him that he did not bargan for this and I would understand if he wanted out... He sat and cried and said he wished it were him instead of me,, now THAT is LOVE!!! He put me to bed, took over EVERYTHING,, and I mean EVERYTHING,, and allowed ME to just work on getting enough sleep , taking my meds at the right time,, he drove me to EVERY doc appt, every blood draw and carried me more than once to the bathroom when I couldnt get there myself... So for the life of me,, I just cannot understand why your spouse wouldnt do the same and help you finish tx... Did he NOT understand that you ARE FIGHTING FRO YOUR LIFE??? I wish that I could live near every woman who does not have the kind of support I had while they were on tx,, I WOULD be there for you... I WOULD help you... It just makes me so disappointed to see grown men acting like little boys.. I realized just how much I had been

blessed when I realized that had I stayed married to the fireman, I would never have been able to treat my hep and my liver was so sick, that by today I probably woudnt be here or would be waiting for a transplant... God Bless you hon,, maybe if you could find a good friend to help you, you might be able to treat again.. NEVER GIVE UP!! NEVER! What your doc meant when he said that you will die WITH this disease instead of from it is a common saying the docs give us...Thats because this disease moves so slowly most of the time that we will die of old age with our diseased liver instead of dying from it. But never take advantage of your poor liver,, and Im so glad you think about everything before you eat or take it.. we all need to do that.. Anyway, sorry I wrote a book, but I felt in my heart to address your "poor" hubby.. Happy Thanksgiving! love jackieSHARON CROSBY

<csharonxoxo@...> wrote: Hi , I'm not sleeping tonight either. One of the many gifts of HCV. I've had this thing for 30 years now, with minimal damage. Last liver scan showed stage one fibrosos and my liver enzymes are only slightly elevated at the last blood test. Having this has made me much more aware of what I put in my body, I can tell you. I've never done drugs and was, long ago, a social drinker only. Always made me sick. lol Now, I am much more careful of the amounts of ibuprofen I take for pain and do not drink at all. Every prescription must be weighed

against what damage it might do to my liver and I have many days when I feel a far below normal range of energy. Lack of energy being my worst symptom, thankfully. I took one 6 month round of treatment a couple of years ago, and coralled the virus, but relapsed 4 months later. The second round, I was taken off after 6 weeks with deep depression. I believe I could have made it through, did the first time, but my husband is not quite grown up and was not facing the prospect of a sick wife for a year very well, so I allowed myself to be disuaded. I would say, given the benefit of stopping the progress of the disease, I would take the treatment. You, however, have other serious concerns to factor in and only your doc can help you decide if the toll on your body would be worth it. Most people have some degree if side affects, many have severe sides. I am 62 and cannot go through it

alone, just don't have that degree of strength, so will wait for the next generation of treatment, which promises to be of much shorter duration and much more effective. My doc once told me, I will not die of HCV, but rather with it, for whatever that means. Meantime, I read the posts of this group and absorb as much of the info and hope and caring I can. LOng winded devil, aren't I. Hope you will enjoy some of the jokes, they are not overwhelming in volume and sometimes give a chuckle in an otherwise toooooo grim world. A laugh a day keeps the blues away. Sharon Ok, everyone I'll give it another go. I was just really shocked to receive my first email from

the group about something completely different than HCV. So I am over it and want to find out what I can re this illness.I unfortunately also have an autoimmune disease called Primary Biliary Cirrhosis (PBC) where the immune system attacks the bile ducts of the liver. I was dx in May 05. The cause is unknown. I was dx 2 days ago with HCV. I'm also currently recovering from a hysterectomy (Oct 27th. After spending the last 5 months researching PBC and finally coming to terms with this life-threatening illness, then having my surgery, I was hoping I was on the road to getting my health back and not worrying anymore. So I was a bit shocked to find out I have 2 liver diseases and I have to start all over again and research this new illness. Apparently the treatments do not compliment each other, which is a big concern.It's a pleasure having you join in our conversations. We hope you have found the support you need with us. If you are using email for your posts, for easy access to our group, just click the link-- Hepatitis C/Happy Posting Jackie

[Guest guest]

Hi , IM SO GLAD you decided to give us another shot at being helpful. THATS what we are here for.. I had a scare with PBC last month. I had my gallbladder removed and while they were in there ,, took another liver biopsy and the lab pathology report suggested that I had this and had to have that AMA test and thank God it was negative.. scared me a lot and I dont scare easily... So I know what you have gone through in coming to terms with that!! And having hep c on top of that is pretty scary. I wish I had some specific info to help you in making a decision regarding treating your hep,, but I dont. I have known another gal who had Hep C and Autoimmune hep,, so she treated her hep c AFTER she treated her Autoimmune hep.. very complicated for sure! Please feel free to ask ANY question or make any comment regarding Hep and how it has affected your life! God Bless you and HAPPY THANKSGIVING!!! jaxgingertumeric <kswift@...> wrote: Ok, everyone I'll give it another go. I was just really shocked to receive my first email from the group about something completely different than HCV. So I am over it and want to find out what I can re this illness.I unfortunately also have an autoimmune disease called Primary Biliary Cirrhosis (PBC) where the immune system attacks the bile ducts of the liver. I was dx in May 05. The cause is unknown. I was dx 2 days ago with HCV. I'm also currently recovering from a hysterectomy (Oct 27th. After spending the last 5 months researching PBC and finally coming to terms with this life-threatening illness, then having my surgery, I was hoping I was on the road to getting my health back and not worrying anymore. So I was a bit shocked to find

out I have 2 liver diseases and I have to start all over again and research this new illness. Apparently the treatments do not compliment each other, which is a big concern.Plus what I've read so far re HCV, type 1 (unknown subtype) isn't very promising for treatment. If anyone knows otherwise I'd love to hear about it. My GI suggested that treatment for HCV would worsen my PBC, but I'm seeing a hepatologist tomorrow and hopefully I'll know more.I'd sure love to hear peoples take on the treatment and whether it is worth it. Interestingly I do not nor have I ever had elevated LFTs (odd I believe for both illnesses). I'm trying to look at that as a positive thing. Well I've probably written far more than I should have, but can't sleep.Thanks in advance for any info, suggested sites or research. Jackie

[Guest guest]

Oh Jackie, you got through my sense of humor shield like no one has for a very long time. Thank you for your concern and support. It truly touched me.

I believe that the next generation of treatment is not far away, so will hang on. I'm thankfully not as ill as so many we hear from here. I can afford to wait for a short time.

I knew there was a tug to rejoin this group, I'm very glad I obeyed that tug.

A laugh a day keeps the blues away.

Sharon

Re: I'm new

Sharon,

Well hon, Im SOOO sorry you didnt have a grown up hubby to help you complete your treatment. The reason I am speaking about this is because I was so blessed to have one while I was on treatment. I had been married to a fireman who ran a lot of medical calls while on the firetruck but when it came to his family, he wouldnt tolerate ME being sick EVER!!! It was a good thing that I did not know I had hep at that time.. I finally was able to escape him while he was working a double shift at the firestation,, I backed up the moving truck, had hired two men to help me,, and I moved.. My daughter and I packed up my house in 12 hours and the truck came and within 24 hours I was moved into my new place... HE tried to find me but I got a restraining order and since he was a public servant(??LOL) he was ordered to leave me alone OR lose his job.. and all his retirement, etc,,,

I found love again and after being married to this most wonderful man,, practically on our first anniversary got my diagnosis...WHAT at shock!!! I told him that he did not bargan for this and I would understand if he wanted out... He sat and cried and said he wished it were him instead of me,, now THAT is LOVE!!! He put me to bed, took over EVERYTHING,, and I mean EVERYTHING,, and allowed ME to just work on getting enough sleep , taking my meds at the right time,, he drove me to EVERY doc appt, every blood draw and carried me more than once to the bathroom when I couldnt get there myself... So for the life of me,, I just cannot understand why your spouse wouldnt do the same and help you finish tx... Did he NOT understand that you ARE FIGHTING FRO YOUR LIFE???

I wish that I could live near every woman who does not have the kind of support I had while they were on tx,, I WOULD be there for you... I WOULD help you... It just makes me so disappointed to see grown men acting like little boys.. I realized just how much I had been blessed when I realized that had I stayed married to the fireman, I would never have been able to treat my hep and my liver was so sick, that by today I probably woudnt be here or would be waiting for a transplant...

God Bless you hon,, maybe if you could find a good friend to help you, you might be able to treat again.. NEVER GIVE UP!! NEVER!

What your doc meant when he said that you will die WITH this disease instead of from it is a common saying the docs give us...Thats because this disease moves so slowly most of the time that we will die of old age with our diseased liver instead of dying from it. But never take advantage of your poor liver,, and Im so glad you think about everything before you eat or take it.. we all need to do that..

Anyway, sorry I wrote a book, but I felt in my heart to address your "poor" hubby..

Happy Thanksgiving!

love

jackie

[Guest guest]

Hi Sharon Well I too am very glad you rejoined... YOUR laugh a day is good to remember,, laughter help our immune system so many laughs a day is even better!!! Im glad you were not offended by my response about your husband... we can love them, but they really stink when we are sick...lol.. Anyway, I hope you had a great Thanksgiving... I did and Im full,, lol, going to do my mod in chat time tonite and then hit the sack! tired,, you know ,, all that eating,, haha loves ya jaxSHARON CROSBY <csharonxoxo@...> wrote: Oh Jackie, you got through my sense of humor shield like no one has for a very long

time. Thank you for your concern and support. It truly touched me. I believe that the next generation of treatment is not far away, so will hang on. I'm thankfully not as ill as so many we hear from here. I can afford to wait for a short time. I knew there was a tug to rejoin this group, I'm very glad I obeyed that tug. A laugh a day keeps the blues away. Sharon Re: I'm new Sharon, Well hon, Im SOOO sorry you didnt have a grown up hubby to help you complete your treatment. The reason I am speaking about this is because I was so blessed to have one while I was on treatment. I had been married to a fireman who ran a lot of medical calls while on the firetruck but when it came to his family, he wouldnt tolerate ME being sick EVER!!! It was a good thing that I did not know I had hep at that time.. I finally was able to escape him while he was working a double shift at the firestation,, I backed up the moving truck, had hired two men to help me,, and I moved.. My daughter and I packed up my house in 12 hours and the truck came and within 24 hours

I was moved into my new place... HE tried to find me but I got a restraining order and since he was a public servant(??LOL) he was ordered to leave me alone OR lose his job.. and all his retirement, etc,,, I found love again and after being married to this most wonderful man,, practically on our first anniversary got my diagnosis...WHAT at shock!!! I told him that he did not bargan for this and I would understand if he wanted out... He sat and cried and said he wished it were him instead of me,, now THAT is LOVE!!! He put me to bed, took over EVERYTHING,, and I mean EVERYTHING,, and allowed ME to just work on getting enough sleep , taking my meds at the right time,, he drove me to EVERY doc appt, every blood draw and carried me more than once to the bathroom when I couldnt get there myself... So for the life of me,, I just cannot understand why your spouse wouldnt do the same and help you finish tx... Did he NOT understand that you ARE FIGHTING FRO YOUR

LIFE??? I wish that I could live near every woman who does not have the kind of support I had while they were on tx,, I WOULD be there for you... I WOULD help you... It just makes me so disappointed to see grown men acting like little boys.. I realized just how much I had been blessed when I realized that had I stayed married to the fireman, I would never have been able to treat my hep and my liver was so sick, that by today I probably woudnt be here or would be waiting for a transplant... God Bless you hon,, maybe if you could find a good friend to help you, you might be able to treat again.. NEVER GIVE UP!! NEVER! What your doc meant when he said that you will die WITH this disease instead of from it is a common saying the docs give us...Thats because this disease moves so slowly most of the time that we will die of old age with our diseased liver instead of dying from it. But never take advantage of your poor liver,, and Im so glad you think

about everything before you eat or take it.. we all need to do that.. Anyway, sorry I wrote a book, but I felt in my heart to address your "poor" hubby.. Happy Thanksgiving! love jackie Jackie

[Guest guest]

Hiya Ginger...What Province are you in? I can give you all types of links for Canadian Liver Foundation...and Gastroenterolgy. My husband has been diagnosed with HCV...4th stage cirr and gall stones. He is also had 1 gasttroscope for varices and 2 more to go for banding, they've already banded 6. They have him on medication for that too...so if you'd let me know your province I've researched pretty much all of them as we are in Manitoba, and are receiving AWESOME medical attention. They have him with a team of doctors that communicate everytime we visit one, it's absolutely extrodinary care. gingertumeric <kswift@...> wrote: Ok, everyone I'll give it another go. I was just really shocked to receive my first email from the group about something completely different than HCV.

So I am over it and want to find out what I can re this illness.I unfortunately also have an autoimmune disease called Primary Biliary Cirrhosis (PBC) where the immune system attacks the bile ducts of the liver. I was dx in May 05. The cause is unknown. I was dx 2 days ago with HCV. I'm also currently recovering from a hysterectomy (Oct 27th. After spending the last 5 months researching PBC and finally coming to terms with this life-threatening illness, then having my surgery, I was hoping I was on the road to getting my health back and not worrying anymore. So I was a bit shocked to find out I have 2 liver diseases and I have to start all over again and research this new illness. Apparently the treatments do not compliment each other, which is a big concern.Plus what I've read so far re HCV, type 1 (unknown subtype) isn't very promising for treatment. If anyone knows otherwise I'd love to hear about it.

My GI suggested that treatment for HCV would worsen my PBC, but I'm seeing a hepatologist tomorrow and hopefully I'll know more.I'd sure love to hear peoples take on the treatment and whether it is worth it. Interestingly I do not nor have I ever had elevated LFTs (odd I believe for both illnesses). I'm trying to look at that as a positive thing. Well I've probably written far more than I should have, but can't sleep.Thanks in advance for any info, suggested sites or research.

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[Guest guest]

Hi a, My name is . I live in Indiana. I don't know much about your specific conditions but if you have a friend to talk to sometimes it makes it a little easier. I suffer from depression, and have Muscular Dystrophy. I also feel like crying all the time. I would love to talk to you, my email address is ratkat309@... and my scrernname on instant messenger is: ratkat309 keep your chin up! hope to hear from you soon..... a <mhmilligan@...> wrote: My name is a and i am from British Columbia Canada, i am so scared i have type 2 diabetes, severe sleep apnea, something is wrong with my liver, sezures, bi-polor, depression,

learning disability, i feel like crying all the time because i don't understand anything about my condtions can someone please help?thanksHugsa~~~~ *** ~~~ *** ~~~ *** ~~~~The Being Sick CommunityMessage Archives-/messagesChat:- Scheduled Chats at /chatBookmarks:-Add a website URL you have found useful./linksPersonal Complaints or problems:-Please contact a moderator email: -owner Subscription Details:-1) Individual email - means that every email sent to the list you receive.2) Daily Digest - sends you 25 messages in one single email for you to browse. This is an excellent option if you receive alot of email.3) Web only/No mail - means that you can pop into groups at your convenience and

receive no email.To modify your subscription settings please visit:- /joinTo subscribe or unsubscribe please email:--subscribe -unsubscribe This group is not intended to diagnose or treat illnesses. No one on this group is qualified to diagnose medical conditions. If you feel you need medical attention, seek the advice of a qualified physician.~~~~ *** ~~~ *** ~~~ *** ~~~~When nothing is sure, everything is possible.--- Margaret Drabble~~~~ *** ~~~ *** ~~~ *** ~~~~

[Guest guest]

oh martina i am sorry you are so scared. you do seem to have a lot on your plate. it is okay to be scared and it is okay to cry. there are lots of people here that will help you and talk to you when you need it. keep us posted on how you are feeling and i look forward to hearing from you soon. evelyna <mhmilligan@...> wrote: My name is a and i am from British Columbia Canada, i am so scared i have type 2 diabetes, severe sleep apnea, something is wrong with my liver, sezures, bi-polor, depression, learning disability, i feel like crying all the time because i don't understand anything about my condtions can someone please help?thanksHugsa~~~~ *** ~~~ *** ~~~ *** ~~~~The Being Sick

CommunityMessage Archives-/messagesChat:- Scheduled Chats at /chatBookmarks:-Add a website URL you have found useful./linksPersonal Complaints or problems:-Please contact a moderator email: -owner Subscription Details:-1) Individual email - means that every email sent to the list you receive.2) Daily Digest - sends you 25 messages in one single email for you to browse. This is an excellent option if you receive alot of email.3) Web only/No mail - means that you can pop into groups at your convenience and receive no email.To modify your subscription settings please visit:- /joinTo subscribe or unsubscribe please

email:--subscribe -unsubscribe This group is not intended to diagnose or treat illnesses. No one on this group is qualified to diagnose medical conditions. If you feel you need medical attention, seek the advice of a qualified physician.~~~~ *** ~~~ *** ~~~ *** ~~~~When nothing is sure, everything is possible.--- Margaret Drabble~~~~ *** ~~~ *** ~~~ *** ~~~~