Re: Philadelphia CMT doctors

[Guest guest]

Hello,

I saw Dr. Skubeck (I think that is his name) at Grandview Hospital and he

knew CMT right away. I also went to University of PA Hospital, neurology

dept where I saw the dept. head. Both Drs. said basically " Sorry, there is

not anything I can do for you. You don't have to come back. " But they sent

reports to my family practice for giving me the pain control, AFOs ,

physical and OT therapy. I am pleased with all the medical people I saw.

Joan

[Guest guest]

Hi Pam,

It's not Philadelphia, but I see Dr. Milind Kothari, D.O. at The Milton S.

Hershey Medical Center in Hershey, PA. Not only does he specialize in

neuromuscular diseases -- including CMT -- but the neuromuscular clinic at

Hershey is a designated MDA clinic. If you're not already aware of the benefits

of being treated at an MDA clinic, there is plenty of discussion in the

archives. I highly recommend Dr. Kothari and the staff at Hershey Med. I have

been seen there for about 3 years, and my father and two of my sisters see Dr.

Kothari as well.

Mark Fulton

Mechanicsburg, PA

[Guest guest]

As a suggestion for an MD in the Philadelphia area, you could try Dr.

Scherer at the Hospital of the University of Pa. He does a lot of work with

CMT patients.

P.

[Guest guest]

I went to Dr. Fishbeck at U of P and he never even suspected that

I had a hip dysplasia. In fact, he set me up for steroid shots in my

hip without so much as an X-ray. Both he and the Ortho he referred me

to, informed me that I had bursitis and left it there. I was freaked by

the needles and didn't go through with it. Four years later I had a

complete hip replacement because my hip socket was deformed at birth and

the top of my femur had been worn straight.

So be careful. I assumed U of P would be an excellent resource, but

their reputation doesn't mean much when the individual doctor doesn't

live up to it.

Lorna

[Guest guest]

Pam: Where in town do you live. I am currently living in Warrington,

Bucks Co. but lived in Fountain Hill/Bethlehem/town/Easton for 20 years

before. I found a Dr. at the Abington Hospital that diagnosised my CMT a couple

of years ago. I have also seen Dr. Steve Scherer in Philadelphia--in fact I

have an appointment March 14 to see him again. I have been in touch with a Dr.

in NY that is doing research with CMT 2. Write back--my email is enclosed.

Sharon