Guest guest Posted July 1, 2004 Report Share Posted July 1, 2004 Why do you think he refuses to use it, ? I've not had much success with students I've worked with and communication devices, either. One of the big problems I had, which I KNOW isn't the case in your situation, is the lack of carryover with families. Families only wanted it to be used at school and I've always felt to be worthwhile and beneficial and a " voice " for the child it needs to be used in all environments as much as possible. Most (3 out of the 5) of the parents I worked with asked us to leave it at school vs. traveling back and forth everyday and NEVER used it in the summer. One family just told us to keep it at school over the summer and another couldn't find theirs till a month after school started and it showed up under a couch on their unused porch. Even in school the kids have been reluctant to use it and I " m not sure why. We (Mac's IEP team) have discussed the possibility of experimenting with a device for Mac since his speech is still pretty unclear to anyone unfamiliar. We're all (but especially me) torn on whether this is the right approach to take. He IS talking, is interacting with people and I'm not sure whether a device would help with his speech or slow down his progress in the way of speech. I think a device can often be intimidating to other kids and also seen as a toy to other kids--so that is another issue of educating his peers. Then I also worry about my commitment to a device--would I be a good parent as far as that goes...remembering to take it with us, remembering to make sure it is charged up and has the appropriate vocab programmed, taking the time to make sure he gets practice with it at home???? He communicates well here at home and with me with him in public--he talks a LOT and will use signs (which to me is great as it is readily available, nothing to remember to take with you, no technology concerns, no batteries to worry about..) as needed. I don't know which route to go. I do know if a device is a good thing to try with him we'd better do it earlier than later as I'm sure, like anything else, the longer you wait the harder it is to learn the system and the more resistive he may be to it. How long has Maverick been using a device? Jill Re: new to group Hi, My son, Maverick is 13 and uses a Vantage talker. I can set up anything he wants on it, and once I show him where something is or where to make a sentence, he can do it correctly with no problem. BUT, he can't build the sentence on his own, and he doesn't use it with others since no one really takes the time to listen to what he is trying to say. This summer he goes to a program 2 mornings a week to work on using it in a school setting, but still pretty much refuses to use it. M. ¸...¸ ___/ /\ \___ ¸...¸ ,·´º o`·, /__/ _/\_ \__\ ,·´º o`·, ```)¨(´´´ | | | | | | | | | ```)¨(´´´ ¸,.-·²°´ ¸,.-·~·~·-.,¸ `°²·-.¸ ......for a tree is recognized by its fruit. 3:33 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2004 Report Share Posted July 18, 2004 Hi.....Sorry I haven't replied sooner, but I was on vacation. We took Mav's talker on vacation. I kept it charged and I even made a VACATION page for him with each activity that he did each day. He wouldn't even look at it when we were around the relatives. In fact, he really had to be pushed to sit down and use it with me, and I must say that in 2 1/2 weeks, the only time it was used (Other than the times I made him) was when I made him tell me what he wanted at Burger King, then I left it on his table and his 8 yr old brother started using the joke page. I would have it out wherever we went...and tried to encourage him to use it,,,but no luck. He had an Alpha talker in Kindergarten and 1st grade, but they (the school) really resisted using it and I think he got a negative feeling from that. So, we said we'll focus on sign and wait for the speech to come. It never came....so then in 6th grade........we went to the Vantage. M. ¸...¸ ___/ /\ \___ ¸...¸ ,·´º o`·, /__/ _/\_ \__\ ,·´º o`·, ```)¨(´´´ | | | | | | | | | ```)¨(´´´ ¸,.-·²°´ ¸,.-·~·~·-.,¸ `°²·-.¸ ......for a tree is recognized by its fruit. 3:33 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2004 Report Share Posted July 20, 2004 My bad kneecap will move about an inch (but I do have to use firm pressure). My good one only half an inch. Here's a test: put your legs FLAT out in front of you & make sure they're relaxed. Tighten the quads on the good knee, if you have one, so you can see how the kneecap tracks -- does it move mainly straight toward your body, or does it move somewhat laterally? Compare with the bad knee. My bad knee moves noticeably more laterally than my good one. This is my problem. This is what causes the kneecap to rub against the femur & wear away the articular cartilage. If I use the quad machine (bent leg lift) w/o knee tape (see below), my kneecap actually snaps out of the trochlea. Since you're new here, I'll repeat my daily mantra: Have you tried knee tape (McConnell taping)? If not, we can help you find out where to get it & how to apply it. Or if you have a PT contact, AND they're experienced in kneecaps, they can help you. I have to use knee tape in order to do quad strengthening exercises or walk a significant distance (I use it on the treadmill). The special tape is more or less sweatproof (not totally -- I have to do nonsweating things first). Surgically, you can have a lateral retinacular release and/or a medial -- I forget now what they call it, but they shorten the medial retinaculum. I had the LR done in '95 & it worked 100% and some people here have had it done recently and are very happy with the results. Others haven't had such good results. Sometimes you can have knee pain that seems to come from one place when in fact it's coming from somewhere else. I thought I had ITBS for years until I had an MRI & it showed a meniscal tear. I finally got scoped (Jan. this year) & the meniscal tear was pretty extensive. He removed about 2/3 of the lateral meniscus and now I don't have THAT pain any more. I thought I'd have pain from bone-on-bone (femur-on-tibia) after that, but I don't. Then again, I'm not running or playing soccer. What did they do in your scope? Just smooth out the CP? That didn't work for me, although I used to know a woman it did work for. Depends on the person, I guess. Or what else they do. My surgeon didn't do a lateral release this time bec. my quads are weak. Wants me to strengthen them (esp. VMO) first & see if that pulls the kneecap back where it's supposed to be. Ann new to group Hello all, I`m a 50 year old male from NC. I`ve been dealing with knee pain since 96. I`ve had both knees scoped. Been on Mobic, Bextra, Celebrex, all the asprins etc...injections etc. I work for Norfolk Southern and waiting occupational disability from the RR Retirement board. Sometimes I feel so useless. To look at my knees you`d think nothing was wrong. I feel some people maybe consider that I just want an easy way out but the pain of work is unbearable. Catching up on moving equipment, stairs, walking on rock ground..etc.You can take your thumb and fore finger, grasp my patella and move it back and forth about an inch...going back to Dr. Thursday Does anyone else experience this? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 21, 2004 Report Share Posted September 21, 2004 There are several. Eve for one has popped in. The best bet is to go to zaplife.org and you will find several others. Gail New to group Hello I am new to group and was wondering if there were many Australians using this service.Please visit the Zapper homepage athttp://www.ZapLife.org Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 21, 2004 Report Share Posted September 21, 2004 Hi Gaylynn. It is so great to hear that you are doing well. When we were conversing back and forth a couple of years ago, you were not doing well at all. Now here you are offering your help. IM so happy for you. How is Ross. Do you still have your summer house? E mail me. > Hi, > > When I had my ICD implanted my husband used the Zapper file for information and support. Eventually I had a heart transplant (18 months ago) and he doesn't use it as often so I miss out as I am not as interested in computers. However I still keep in touch with a few people by email or telephone in other States in Australia. I am still involved in the Cardiomyopathy Association as once again I had so much support from that group. I am now putting back a little through my involvement in the Heart/Lung Transplant group as it is the one area that I feel I have the most experience as it seems less scientific. However I well remember the days of the ICD! > > Recently one of Australia's world famous surfers was on a TV interview program (now living in the US) explaining his life with an ICD and saying how he had no choice but to give up his iron man events. He was probably one of the fittest people in Australia. It was interesting to hear about his zap experiences. > > I am so grateful for the health services here. Didn't need to worry about this until I turned 50 but sure do now! > > Good luck and please let me know if I can be of any help. > > Regards > > Gaylynn > > > New to group > > > Hello I am new to group and was wondering if there were many > Australians using this service. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2004 Report Share Posted September 25, 2004 thank you for the welcom Joyce I have had my ICD for 2 and half years and do not know anyone else with one so this is a good place to talk and get information.Joyce <digntheview@...> wrote: Hello My name is Joyce, and I live in Calif. I am also new here, It has been very helpful for me, I have a ICD for two weeks, Welcome, and I have there is someone in you area... New to group Hello I am new to group and was wondering if there were many Australians using this service.Please visit the Zapper homepage athttp://www.ZapLife.org Please visit the Zapper homepage athttp://www.ZapLife.org Find local movie times and trailers on Movies. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 15, 2005 Report Share Posted March 15, 2005 Hello Everyone, I sure appreciate the warm responses to my questions. To answer Sherri's questions, our daughter's hands don't have the classic single crease, but her face is a bit flatter, her eyes have the DS " look " and her ears are set a bit low. Her mouth is very small, thus her tongue shows (as if it's the tongue that is too large). She is super flexible and makes us laugh at her amazing body movements, but seriously in my heart I knew it meant she had poor muscle tone. We suspected nothing at birth, but I did notice how small her mouth cavity was. The bowel movement was an issue immediately after birth, but then, the doctors say that breast fed babies may go for days without a movement, and that is " normal " . Normal or not, it didn't seem like a good situation to me, and when she did finally have the movement, it was a lot of work for her - that made me wonder too. Like she had such poor muscle tone even in her colon. I have friends who have family members with DS and they all believe that she is also. Her situation doesn't seem as severe as some I've heard about. The children I've known with DS are among the sweetest children I've ever known - we feel blessed to be entrusted with this little treasure of a child. We plan to see a neurodevelopmentalist in April. I also am looking into vitamin supplements made specifically for DS. Hopefully we can get a medical diagnosis soon so that we can do everything possible to optimize this important developmental time in her life. mentioned audiological testing. I have not heard of this. What does this actually test for? I can't tell you enough how much I appreciate your help. Bless you , Jan and Sherri Bless you all, Wife to a wonderful husband and father, Mark Mother to 8 beautiful children Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 15, 2005 Report Share Posted March 15, 2005 Hello Everyone, I sure appreciate the warm responses to my questions. To answer Sherri's questions, our daughter's hands don't have the classic single crease, but her face is a bit flatter, her eyes have the DS " look " and her ears are set a bit low. Her mouth is very small, thus her tongue shows (as if it's the tongue that is too large). She is super flexible and makes us laugh at her amazing body movements, but seriously in my heart I knew it meant she had poor muscle tone. We suspected nothing at birth, but I did notice how small her mouth cavity was. The bowel movement was an issue immediately after birth, but then, the doctors say that breast fed babies may go for days without a movement, and that is " normal " . Normal or not, it didn't seem like a good situation to me, and when she did finally have the movement, it was a lot of work for her - that made me wonder too. Like she had such poor muscle tone even in her colon. I have friends who have family members with DS and they all believe that she is also. Her situation doesn't seem as severe as some I've heard about. The children I've known with DS are among the sweetest children I've ever known - we feel blessed to be entrusted with this little treasure of a child. We plan to see a neurodevelopmentalist in April. I also am looking into vitamin supplements made specifically for DS. Hopefully we can get a medical diagnosis soon so that we can do everything possible to optimize this important developmental time in her life. mentioned audiological testing. I have not heard of this. What does this actually test for? I can't tell you enough how much I appreciate your help. Bless you , Jan and Sherri Bless you all, Wife to a wonderful husband and father, Mark Mother to 8 beautiful children Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 15, 2005 Report Share Posted March 15, 2005 , A pediatrician, developmental pediatrician or geneticist can order the blood test. Really, any doctor can. I would definately have her tested - there are other syndromes that resemble DS and it's important to know for sure what if if anything she has. There are medical guidelines for children with DS (at http://ds-health.com) and adjusted growth charts. She would also qualify for early intervention (special ed for babies) - but from how you described your family, you may not like the intense services some families receive (which is perfectly OK - early intervention is often seen as early interference and if I could do it again, I'd get rid of the teacher and just have PT, OT and ST). If I could suggest one book right now, it would be the gross motor skills and children with DS by Pat Winders. Then there is the Communication book by Libby Kumin (for younger children) and I believe there is one for OT and kids with DS. It sounds like your daughter could benefit from Physical, Speech and Occupational Therapy right now. Your daughters best teachers will be her older sibs, but therapy is critical to faciliate their development! Anyway, those books are all available through woodbinehouse.com or via amazon.com. We have another parent here that uses oil for her child and swears by it. If your child has a definate diagnosis, then you can search for a doctor to treat your child yet respect the alternative therapies that you prefer. If your child does have DS, I would highly recommend getting an audiological eval in addition to the therapies. I'm glad you found us - I look forward to hearing about all in your family. , 's mom and List Owner New to Group > > > Hi, > > I'm , mother of 8 beautiful children. Our last is a sweet little > girl (just turned 1 year) whom we suspect has DS. We have not had her > tested, but she has some classic symptoms that confirm in our hearts > that she is a special child with unique needs compared to our other > children. I am thankful to find this discussion group. I hope you can > help me answer some basic questions. > > As for symptoms, the worst problem is sluggish bowel function. She > spent 8 months of her life going a good week between movements. I > discovered an essential oil that has helped a lot. We rub the oil on > her abdomen and bottoms of her feet - now movements are consistently > every-other day. Otherwise, she is a sweet, happy little one-year old > who looks and behaves like she's 6 months old. She crawls, but > doesn't pull to stand. I only nurse her, so we don't have any issues > with eating yet. When we've tried to feed her little bites, it has > come back out like she is not coordinated to respond to it like our > other children were. I am aware that that is an issue that will need > patience. > > These are our questions right now: How important is it to have her > tested medically? What is involved; it is a blood test? I have been > researching the internet for information, and I find that I might > should have her thyroid function tested. I'd love to hear comments > from seasoned parents. We like to treat medical issues as naturally > as possible. If it's best that we have her tested, what type of > doctor should we turn to for help? Also, does anyone have a great > book that they'd recommend? > > Thanks so much! > > > > > > > Click reply to all for messages to go to the list. Just hit reply for messages to go to the sender of the message. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 15, 2005 Report Share Posted March 15, 2005 , A pediatrician, developmental pediatrician or geneticist can order the blood test. Really, any doctor can. I would definately have her tested - there are other syndromes that resemble DS and it's important to know for sure what if if anything she has. There are medical guidelines for children with DS (at http://ds-health.com) and adjusted growth charts. She would also qualify for early intervention (special ed for babies) - but from how you described your family, you may not like the intense services some families receive (which is perfectly OK - early intervention is often seen as early interference and if I could do it again, I'd get rid of the teacher and just have PT, OT and ST). If I could suggest one book right now, it would be the gross motor skills and children with DS by Pat Winders. Then there is the Communication book by Libby Kumin (for younger children) and I believe there is one for OT and kids with DS. It sounds like your daughter could benefit from Physical, Speech and Occupational Therapy right now. Your daughters best teachers will be her older sibs, but therapy is critical to faciliate their development! Anyway, those books are all available through woodbinehouse.com or via amazon.com. We have another parent here that uses oil for her child and swears by it. If your child has a definate diagnosis, then you can search for a doctor to treat your child yet respect the alternative therapies that you prefer. If your child does have DS, I would highly recommend getting an audiological eval in addition to the therapies. I'm glad you found us - I look forward to hearing about all in your family. , 's mom and List Owner New to Group > > > Hi, > > I'm , mother of 8 beautiful children. Our last is a sweet little > girl (just turned 1 year) whom we suspect has DS. We have not had her > tested, but she has some classic symptoms that confirm in our hearts > that she is a special child with unique needs compared to our other > children. I am thankful to find this discussion group. I hope you can > help me answer some basic questions. > > As for symptoms, the worst problem is sluggish bowel function. She > spent 8 months of her life going a good week between movements. I > discovered an essential oil that has helped a lot. We rub the oil on > her abdomen and bottoms of her feet - now movements are consistently > every-other day. Otherwise, she is a sweet, happy little one-year old > who looks and behaves like she's 6 months old. She crawls, but > doesn't pull to stand. I only nurse her, so we don't have any issues > with eating yet. When we've tried to feed her little bites, it has > come back out like she is not coordinated to respond to it like our > other children were. I am aware that that is an issue that will need > patience. > > These are our questions right now: How important is it to have her > tested medically? What is involved; it is a blood test? I have been > researching the internet for information, and I find that I might > should have her thyroid function tested. I'd love to hear comments > from seasoned parents. We like to treat medical issues as naturally > as possible. If it's best that we have her tested, what type of > doctor should we turn to for help? Also, does anyone have a great > book that they'd recommend? > > Thanks so much! > > > > > > > Click reply to all for messages to go to the list. Just hit reply for messages to go to the sender of the message. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 15, 2005 Report Share Posted March 15, 2005 In a message dated 3/16/2005 12:53:50 AM Eastern Standard Time, HisServantToo@... writes: > > mentioned audiological testing. I have not heard of this. What does > this actually test for? > You should ask for a BAER test (Brainstem Auditory Evoked Response) - using electrodes attached to your child's head and earphones they can measure what your child's hearing actually is. Even is it is totally fine, it will give you a " baseline " for measuring hearing problems that may crop up later. Something like 60 - 80% of DS children suffer hearing loss issues - possibly due to ear & sinus infections (poor drainage in those little passages!) - Becky Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 15, 2005 Report Share Posted March 15, 2005 In a message dated 3/16/2005 12:53:50 AM Eastern Standard Time, HisServantToo@... writes: > > mentioned audiological testing. I have not heard of this. What does > this actually test for? > You should ask for a BAER test (Brainstem Auditory Evoked Response) - using electrodes attached to your child's head and earphones they can measure what your child's hearing actually is. Even is it is totally fine, it will give you a " baseline " for measuring hearing problems that may crop up later. Something like 60 - 80% of DS children suffer hearing loss issues - possibly due to ear & sinus infections (poor drainage in those little passages!) - Becky Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2005 Report Share Posted March 16, 2005 Hi , I am , mom to 3 wonderful daughters ages 5, 7, and 9. My middle daughter, , has DS. Although they did do the bloodwork in the hospital after she was born to confirm, the genetecist who spoke with us that first night told us she had DS, and blood test or not, he was certain. He said that there are many features associated with DS, and not any person would have all of them, but as he put it " DS was diagnosed for years before karyotypes, and if I wasn't 100% sure she had DS, we wouldn't be having this conversation. " For example, she only has a crease on one hand. Interestingly, so does my husband (which we now know something like 8% of the typical population has a single palmar crease). And the list of " features " goes one. But, my point is, we had a doc who was willing to diagnose without bloodwork..... he has seen enough children with DS to be confident. You probably will eventually need an official diagnosis so that your daughter will be able to receive services like speech, PT, OT, and special education. You might not want them now, but it's likely you will in the future, and you never know when something will come up..... it's good to be " in the system " for Early Intervention, even if you decide that you don't want to use any/all of their services. Most Early Intervention basically teaches the family ways to help the child, rather than thinking that 1x per week of PT will do anything significant. It sound like you have a houseful of loving teachers, so having a PT come in and teach everyone ways to stimulate your daughter, make sure her legs are in the correct positions (those lax ligaments can cause bad habits as the kiddos get more mobile), etc. could be a real benefit to your daughter. The same might be true for other areas, such as speech and OT. Also, about half the kids with DS have some heart problems..... I know that a ped. cardiologist checked out while she was still in the hospital (her coloring was AWFUL), came in, told us " you don't need me " , and we were very thankful. I don't know if minor heart problems are easily detected by the pediatrician...... maybe someone with heart experience will speak up. The thyroid test are very important, particularly in the early years, as low thyroid function can cause mental delay. This is why they do a heel stick to check all newborn babies... it's enough of a problem to a baby/child to warrent screening the entire population, and should certainly be done with kids that have an increased risk on thyroid problems. I believe the recomendation is yearly thyroid screenings for individuals without thyroid problems. The audiology testing that mentioned is important because many kids with DS have some form of hearing problem. Of course, hearing is related to language skills, so if a child isn't hearing well (or has fluid in her ears, like many DS kids do due to the smaller ear tubes), it can really affect their language skills. Again, this is something you may choose to treat in a variety of ways, but knowing what your daugher's hearing state is now, and in the future, can make a significant difference to her language skills. In 's case, she always seemed to have fluid in her ears, not necessarily infected, but especially when she was younger, she wasn't able to clear this fluid. And, she did have more ear infections that her sisters. We knew she could hear pretty well, but they were concerned that she would be hearing things " like under water " , and worried that her speech would be affected. Now, at age 7, we are thrilled that the majority of her speech is understood by almost all who listen to her. I know that many kids with DS do have feeding problems, so it would probably be worth bringing this up with the neurodevelopmentalist when you see him/her, or with an OT that specialize in feeding issues. Yes, patience is important, but there many be other things involved to, especially with mouth size, tounge (size, tone, proper movement), chewing ability, and textures....some kids have problems with different textures, etc. I think that someone experienced in issues with solids might be helpful to you..... I remember the OT checking for all kinds of things as was chewing on different types of food items, though was better on solids than liquids.... she had a " suck/swallow-coordination " problems, which thankfully resolved as she got older. There are a lot of things to go on in a baby/toddler with DS's life, and sometimes it seems really " over the top. " But, I would encourage you to envision what dreams you have for your daughter, how you see her at elementary school age, older school age, and an adult. Many of the decisions we make in the early years help steer our children on the course we dream for them. And, many grow up and do something different, just like typical kids do. But I found that having a vision for my daughter's future made many of the decisions of " what should I do " easier. We are very fortunate that our daughter is doing great. She's healthy, in 1st grade, in a regular class, reads at grade level, has friends, goes to Brownies and Sunday School. Sometimes she's the sweetest kid around (like I heard kids with DS were)..... other times she's willful and stubborn, which although frustrating, I believe will be good skills for her (if we can help her manage them :-) in the future...... she's learning how to stand up for herself. I am a firm believer that Early Intervention is good for all kids with delays, and if the service delivery model is teaching the family, in the family's environment, it can really made a difference in their life. Good luck, and I hope you find a lot of good information here. , mom to (9), (7 DS), and (5) > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2005 Report Share Posted March 16, 2005 Hi , I am , mom to 3 wonderful daughters ages 5, 7, and 9. My middle daughter, , has DS. Although they did do the bloodwork in the hospital after she was born to confirm, the genetecist who spoke with us that first night told us she had DS, and blood test or not, he was certain. He said that there are many features associated with DS, and not any person would have all of them, but as he put it " DS was diagnosed for years before karyotypes, and if I wasn't 100% sure she had DS, we wouldn't be having this conversation. " For example, she only has a crease on one hand. Interestingly, so does my husband (which we now know something like 8% of the typical population has a single palmar crease). And the list of " features " goes one. But, my point is, we had a doc who was willing to diagnose without bloodwork..... he has seen enough children with DS to be confident. You probably will eventually need an official diagnosis so that your daughter will be able to receive services like speech, PT, OT, and special education. You might not want them now, but it's likely you will in the future, and you never know when something will come up..... it's good to be " in the system " for Early Intervention, even if you decide that you don't want to use any/all of their services. Most Early Intervention basically teaches the family ways to help the child, rather than thinking that 1x per week of PT will do anything significant. It sound like you have a houseful of loving teachers, so having a PT come in and teach everyone ways to stimulate your daughter, make sure her legs are in the correct positions (those lax ligaments can cause bad habits as the kiddos get more mobile), etc. could be a real benefit to your daughter. The same might be true for other areas, such as speech and OT. Also, about half the kids with DS have some heart problems..... I know that a ped. cardiologist checked out while she was still in the hospital (her coloring was AWFUL), came in, told us " you don't need me " , and we were very thankful. I don't know if minor heart problems are easily detected by the pediatrician...... maybe someone with heart experience will speak up. The thyroid test are very important, particularly in the early years, as low thyroid function can cause mental delay. This is why they do a heel stick to check all newborn babies... it's enough of a problem to a baby/child to warrent screening the entire population, and should certainly be done with kids that have an increased risk on thyroid problems. I believe the recomendation is yearly thyroid screenings for individuals without thyroid problems. The audiology testing that mentioned is important because many kids with DS have some form of hearing problem. Of course, hearing is related to language skills, so if a child isn't hearing well (or has fluid in her ears, like many DS kids do due to the smaller ear tubes), it can really affect their language skills. Again, this is something you may choose to treat in a variety of ways, but knowing what your daugher's hearing state is now, and in the future, can make a significant difference to her language skills. In 's case, she always seemed to have fluid in her ears, not necessarily infected, but especially when she was younger, she wasn't able to clear this fluid. And, she did have more ear infections that her sisters. We knew she could hear pretty well, but they were concerned that she would be hearing things " like under water " , and worried that her speech would be affected. Now, at age 7, we are thrilled that the majority of her speech is understood by almost all who listen to her. I know that many kids with DS do have feeding problems, so it would probably be worth bringing this up with the neurodevelopmentalist when you see him/her, or with an OT that specialize in feeding issues. Yes, patience is important, but there many be other things involved to, especially with mouth size, tounge (size, tone, proper movement), chewing ability, and textures....some kids have problems with different textures, etc. I think that someone experienced in issues with solids might be helpful to you..... I remember the OT checking for all kinds of things as was chewing on different types of food items, though was better on solids than liquids.... she had a " suck/swallow-coordination " problems, which thankfully resolved as she got older. There are a lot of things to go on in a baby/toddler with DS's life, and sometimes it seems really " over the top. " But, I would encourage you to envision what dreams you have for your daughter, how you see her at elementary school age, older school age, and an adult. Many of the decisions we make in the early years help steer our children on the course we dream for them. And, many grow up and do something different, just like typical kids do. But I found that having a vision for my daughter's future made many of the decisions of " what should I do " easier. We are very fortunate that our daughter is doing great. She's healthy, in 1st grade, in a regular class, reads at grade level, has friends, goes to Brownies and Sunday School. Sometimes she's the sweetest kid around (like I heard kids with DS were)..... other times she's willful and stubborn, which although frustrating, I believe will be good skills for her (if we can help her manage them :-) in the future...... she's learning how to stand up for herself. I am a firm believer that Early Intervention is good for all kids with delays, and if the service delivery model is teaching the family, in the family's environment, it can really made a difference in their life. Good luck, and I hope you find a lot of good information here. , mom to (9), (7 DS), and (5) > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2005 Report Share Posted April 13, 2005 Welcome ! I think I counted once and there were 25 breaths on the commuter tape. I like it because it really challenges your lungs because you hold the lift longer. I just know you are going to LOVE LL. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2005 Report Share Posted May 28, 2005 Hi Bonnie, Where in Texas are you? I ask because I am in Texas and have a wide range of friends in the state and may have someone that I can network you with. It sometimes helps to have another parent in the school district to help you through the system. Your " little princess " will do great in whatever she does because you are an in touch Mom and that makes a big difference. When I advocate for children in our district I am amazed at the kids who have parents who never ask questions, never attend ARD, never drop by the campus to see what is going on. I know like you say that there are many things going on especially in a multichild home, and we have jobs and we are busy, but the kids need and deserve our time too. It is a balancing act, but it can be done. Hope all goes well. Thanks and God Bless, Gwen Downs But Not Out family support group Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2005 Report Share Posted May 28, 2005 Hi Bonnie, Where in Texas are you? I ask because I am in Texas and have a wide range of friends in the state and may have someone that I can network you with. It sometimes helps to have another parent in the school district to help you through the system. Your " little princess " will do great in whatever she does because you are an in touch Mom and that makes a big difference. When I advocate for children in our district I am amazed at the kids who have parents who never ask questions, never attend ARD, never drop by the campus to see what is going on. I know like you say that there are many things going on especially in a multichild home, and we have jobs and we are busy, but the kids need and deserve our time too. It is a balancing act, but it can be done. Hope all goes well. Thanks and God Bless, Gwen Downs But Not Out family support group Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2005 Report Share Posted June 5, 2005 Welcome back to LifeLift. Since the lists are a little slow right now due to the warm weather you can either go back and read some of the archives on the list or you can find a lot of the same messages on the testimonial pages at the web site at www.oxygenlift.net There are always amazing testimonials on the end of the newsletters too. You will be inspired by the great messages we receive. Many of the people who send them are members of our support list here, but they are not always able to come in and write so going back and reading some of their past messages can be helpful. Do everything you can to keep yourself inspired and you will succeed. Take good care, Rashelle Harness the Powerful Benefits of Oxygen with LifeLift. Oxygen burns fat, tones muscles, reduces stress Breathe in the most efficient way possible with Life Lift! www.oxygenlift.net. Life Lift is the Original Aerobic Breathing New to group Hi all I'm new to the group and new to LifeLift. Well, actually I ordered a couple of videos last year and in a frantic attempt to lose weight one week before a beach vacation I tried them. I actually saw results, but lost my routine while at the beach. I'm hoping this group will give me the inspiration to get going again. (Beach vacation in 23 days!!) What can changing the way you breathe do for you? Everything! See why tens of thousands agree, Life Lift is the best! http://www.oxygenzoo.com ------------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2005 Report Share Posted July 16, 2005 Hello Sandy! Welcome to the group. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2005 Report Share Posted July 16, 2005 welcome sandy!! you say you have mostly pilates workouts, what do you do for cardio? kassia Start your day with - make it your home page Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2005 Report Share Posted July 16, 2005 Sandy, Welcome to the group. You will find lots of support here, as well as a few good video trades! Be sure to post your reviews of the dvds you do. I need to get back to doing that, but haven't done videos in a while because I've been doing my workouts at the gym. But that is about to be a combination of the gym and home, so hopefully I'll be able to review some soon. I'm really into Pilates and would love to hear what dvds we have in common, or what you have that I might want to invest in. (hehe) Have a great workout today! Tonya new to group Hi,This is my first post! I've been reading all your efforts and you are all very inpsirational.I am just getting into an exercise routine - routine for me means that I will exercise in some way every day.I investigated a gymn but by the time I get there etc I am spending time I do not have and so I discovered DVDs.I had a very old tape of Jane Fonda's low impact and that felt good and since our computer has been updated I thought the DVDs were a good way to go.Now I have a small assortment - mostly Pilates.Well, I am a large woman but I have been enjoying the exercise and feeling better for it.Thanks for listening.Sandy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2005 Report Share Posted July 16, 2005 Welcome Sandy !!!!!!!!! I'm Sandie as well, but go by Gymmie on the 'net On 7/15/05, <themuses@...> wrote: Hi,This is my first post! I've been reading all your efforts and you are all very inpsirational. -- Be a F.R.O.G . °Ü°GLYSDI,Gymmie in TexasCompliments of Tae Bo2 Hours A Day5 Days A Week " You can exericise til the cows come home, but if you don't eat right, you'll just be a cow coming home. " Anonymous Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2005 Report Share Posted July 18, 2005 That's good to know Carolyn. I was hoping that a good DVD workout along with normal regular exercise such as walking and swimming would get me fit and keep me there. I don' have the time to travel to the gymn etc. Cheers, Sandy > > i do all of my workouts at home with vhs/dvd. > in the summer i do throw in some outdoor walks and bike rides when possible. > :*carolyn. > > > -- > No virus found in this outgoing message. > Checked by AVG Anti-Virus. > Version: 7.0.300 / Virus Database: 267.8.13 - Release Date: 7/12/2005 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2005 Report Share Posted July 18, 2005 Sandy, I use a variety of workouts on dvd to keep fit. I like a combination of aerobics, weight training, yoga and Pilates. I find I can keep fit with just the aerobics but I feel better and can do my job better (I'm a mom:) if I add the weight training and yoga. Also doing weights I lose weight faster than without them. As a family we lead an active lifestyle - we bike and walk everywhere and spend a lot of time " playing " (things like gym type exercises and running and jumping rope work well to keep me healthy as well as being fun for kids) The yoga centers me so I am more mentally able to work. I love working out with dvds - to me gyms aren't as fun and then you have to deal with other people. lol thewaterpool wrote: > That's good to know Carolyn. I was hoping that a good DVD workout > along with normal regular exercise such as walking and swimming would > get me fit and keep me there. > > I don' have the time to travel to the gymn etc. > > Cheers, > Sandy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2005 Report Share Posted July 18, 2005 Hi , You sound very active and super fit. LOL Yes, I tend to like to do my own thing. It just seems like more fun and I also don't feel so pressured into doing exercises that are too much for me while still wanting to keep up. Sandy In , Sprague <kittyn@r...> wrote: > Sandy, > I use a variety of workouts on dvd to keep fit. I like a combination of > aerobics, weight training, yoga and Pilates. I find I can keep fit with Quote Link to comment Share on other sites More sharing options...
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