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Debs/Tess,

When I had thyroid surgery several years ago, I was placed in a room with a

girl who had had a bypass operation. She may have had other surgery as

well, I'm not sure. What I most remember was all the pain she was in and

her calling the nurse every 15 minutes. With that and the blood pressure

cuff on my arm also going off every 15 minutes, it was a very long night.

On the other hand, one of my co-worker's husband had the surgery when his

weight was really causing him life threatening medical problems. His

surgery was successful and he is doing very well. While he is still heavy,

he is leading a normal and active life and no longer being admitted to the

hospital for weight related complications.

Something to think about,

Suzanne

Re: [ ] PT & Update

> Hi Tess,

>

> Thanks for your words of encouragement and your prayers. All

contributions

> are welcomed! LOL.

>

> It sounds as though you had a very busy day. PT always exhausts me but

can

> be very beneficial. You are a tough lady to hang in there like this. I

am

> encouraged that the " blue stuff " is helping you. Perhaps I may send for

some

> myself.

>

> I am so sorry to hear that your tonsil problem has not been resolved yet.

> Gee, I thought my HMO moved slower than turtles! Good thing this wasn't

> anything life threatening or urgent like an appendectomy, you would be in

sad

> shape. So I guess you gotta wait a little while longer for your new

nightie.

> I didn't buy a new nightie, but I did order the new bathrobe that Avon

> offered. It is actually quite pretty, white with red roses. Who knew

that

> Avon sold more than Skin So Soft and lipstick!!!!! LOL.

>

> Does the referral to the gastric bypass surgeon mean that you have decided

to

> go forward with the surgery? Or is it just for a consultation. I am

still

> hearing very satisfied stories plus just as many unsatisfied stories

> regarding this procedure. I am still in the debating stages and my jury

is

> still out. Please let me know what happens. The ones who are successful,

> have VERY impressive results. The ones that are still successful, the

people

> are VERY unhappy with the diet and the whole program. I think it is a

highly

> individual thing. I still don't know what I would do. My weight is

coming

> off very slowly by making healthier choices in food and being able to swim

in

> my backyard pool and some walking when I am able to.

>

> Please let me know how the tonsil trouble works out and don't take no for

an

> answer, you do have appeal rights if you are using an in network provider

and

> then the case goes before an entire unbiased committee. Boy who ever

> miscoded this diagnosis and procedure really started a snowball that is

> quickly getting out of control.

>

> Either I will be posting tomorrow night or I will " twist " someone in the

> house to post and let all know how things went. I am certain it will all

go

> like a text book.

>

> Until then,

>

> Gentle, tender, angel hugs,

>

> Debs in FL

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Guest guest

Dear Suzanne...Thank you, Suzanne. The more information the better.

With something so potentially dangerous yet potentially life-saving, I

believe a lot of thought & prayer must go into the decision. I know

folks who had great success and some with many problems afterwards. One

thing I have learned and believe...the ones who were more educated about

bariatric surgery AND had involvement with WLS (weight loss surgery)

support groups generally do better. This is another journey we really

can't do alone.

Hugs of Hope & Love...

Tess

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  • 1 year later...

,

Hi, I don't have CMT, I joined this group and have been getting great

information about CMT. My mom has it and I am hoping to learn more on how to

help her. I am also curious about the affects of Gastric Bypass on CMT

patients. I am actually having the Gastric Bypass Surgery next month. I have

about 250 lbs to lose. I will tell you that it is not as easy as your doctor is

making it out to be. I can't believe doctor would say it is an " easy " way out.

It is a very hard, and extreme way to go. I believe that the choice is your's

to make but definatley do your research and make an informed decision. Good

Luck. If you ever have any questions, please feel free to email me.

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Hi ,

I joined this group to gain information and support for my friend,

Sandie, who has CMT. We both had the gastric bypass in 1986 and neither of

us would recommend this procedure to you - especially for 50 lbs. Sandie

and I both had over 150 lbs to lose and we lost a fair bit of it. We kept

it off for a few years but then regained most of it after developing

fibromyalgia and chronic fatigue syndrome. This cost me my job and

apparently kicked Sandies CMT into high gear. We've both been left with

serious problems eating normal food and upchuck on a regular basis. Sandie

is in the process of having a bowel obstruction properly diagnosed and

treated but it looks like it is the result of the bypass. And she's just

miserable with it right now. She didn't have much trouble in the early

years after the surgery but she's making up for it now. We both have reflux

disease. We had started a suppoort group at the time of our surgeries and

the few people we have had contact with have all regained most, all or even

more weight.

You're right that your husband is being naive. So was I. My surgeon was

the head of surgery and I had been referred to him so I trusted that he knew

what he was doing. But we were never told the full story about this

surgery. I'm so sorry that I had it done. Now I hear from doctors all over

that this surgeon is not well thought of anymore. But he's still doing the

surgery.

Anyway, I'm rambling. I say to anyone contemplating this surgery, no

matter how desperate you may be to lose weight " DON'T DO IT! THIS ISN'T THE

ANSWER. "

Janus

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  • 4 months later...
Guest guest

Good Afternoon!

Just like to let everyone know my sister-in-law (no CMT) has had gastric

bypass surgery and has lost over 150+ lbs. Yes, it does work--but there can

be a lot of complications. She has had several. Also have another friend

who had it about a few months ago but not eating correctly--not losing any

weight either. So if anyone is really considering it. Please do your

homework and really research it. Too may people don't really know what

their getting into with this surgery.

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  • 2 years later...

Hello : You may hear from a few people that have freinds that had bi-pass, but we on this board had the lap band - I would never do the bi-pass as I dont want to be "gutted". The lap band has just as good of results but leaves your body as it was meant to be. I have seen studys that show many people will start to gain weight back in as little as three years after the bi-pass, and many surgeries have resulted in long term medical issues that can include death. I would look very hrd at the band as an alternative. Kenmagnoliamouth <karenostrom@...> wrote: Has anyone had the gastric bypass?I'm more interested in it, and wonder how folks feel about it.I am Interstitial Cystitis (IC), it is a permanent diease of thebladder and the lining dissolves. I'm on medication to give me a fauzbladder.But basically, I've quit smoking and I'm gaining about 5 lbs a week. I wasn't skinny before, but also I can't eat any diet products becausethe stuff they have in them is bad for the bladder, I can only have 2fruits blueberries and pears. Two types of nut almonds and cashews. No alchol, no salad dressing ( and who is going to eat a saladwithout dressing) nothing citrus or acidic at all and many preservatives.I can eat meat, and most vegtables so the likihood of me being able toget on a diet and stick to it would have me going around hungry allthe

time.When I quit smoking 11 years ago, my weight went up to 220 pounds, Istarted back smoking and lost it all back down to 140. I can't goback to smoking this time. So I need some help would appreciateanyone helping me to understand how all of this happens and feelsafterwards. Thanks

Access over 1 million songs - Music Unlimited.

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I'm looking at both of them, but because of a pre existing medical

condition, I'm thinking the by pass is better for me long term.

I wondered if there was another group for DR Aceves for by pass

but couldn't find it. I know ultimatly I will consult with both my

doctors here before making a final decision, and will more than likely

go with what they want me to do

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