Re:CMT better as adult than as teen.

[Guest guest]

Greetings:

Sorry for the late reply on this topic, but I've been too busy

to post the past few days. I too, have had many aspects of my CMT get BETTER

over the years/since I've been an adult. This is not to say, however, that

there hasn't been any progression, because while many symptoms are better, I

have a few that are worse.

AS A CHILD/TEEN: I had terrible leg pains especially in the evenings or at

night, I was very fatigued, I fell often (3 concussions), I walked very slowly

and had foot drop if I walked more than say 1/4 mile. I started wearing

AFO's at 16 but only wore them a year or so due to vanity. I wore them

regularly

again from age 27 or so to about age 30.

NOW AT AGE 33: I don't get leg pains any more, or almost never; fatigue is

rarely a problem; I have a lot more energy than I did as a teen (I think

depression played a part there as a teen too, though)., I can walk faster than

I

could in years and can now keep up with most people's " normal " pace (this used

to be hard for me). I don't wear AFO's but do wear in shoe orthotics when I

can find shoes they fit in. I still have occasional foot drop but it takes

longer to set in. I also don't fall nearly as much as I did as a teen ;

maybe a few times a year as opposed to a few times a month.

WHAT HAS GOTTEN WORSE: I can't move my toes as much as I could when I was

younger, my balance standing still is noticeably worse. I also can not stand

on my toes at all any more which means even wearing shoes w/ pretty small heels

causes me to lurch formward/bend at the knees. My hands are also weaker and

have some atrophy - this is new over the past 5- 6 years. I had an increase

in tremors this past fall but they decreased again w/o need for meds; I think

this was related to anxiety as well as CMT. I have less anxiety now and less

tremors.

VITAMINS: I take a B complex, Co Enzyme Q10, Glucosamine/Chondroiton (for

joints and cartilage), E and C combo - daily. I also take potassium and

sellenium on occasion.

EXERCISE: I exercise at least three times a week, often more. I use the

no-impact eliptical machine at my gym, walk and also take a pilates class. I

have lost about 10 pounds due to exercise over the past year which has helped

some with balance and energy.

HEALING: I see a " healing touch " practitioner twice per month; this is a lot

like Reiki. It has really helped but in small increments.

I too am interested in hearing if there are any others who also have had some

improvements in their CMT over time.

Peace, Marti