Hello!

[Guest guest]

I do know there is a little girl, Sage, who also has scoliosis and arthrogryposis. She is being casted at this time. Hopefully her sweet Momma will chime in soon. TashaMommy of 5 year old twin boys- and Fort Worth, Texas is treated at Texas ish Rite Hospital in Dallas, TexasSeries of 6 casts for 14 months followed by bracing since September 2007You can read 's story at.... http://www.infantilescoliosis.org/stories.html

From: Tame Olson <dazies2001@...>"infantile scoliosis treatment " <infantile scoliosis treatment >Sent: Sat, August 28, 2010 7:44:33 AMSubject: Re: Hello!

If there is a reason there is an underlying reason they don't want to cast due to the neuromuscular condition I do know a 2 year old who had the rods/ surgery and he's doing fabulous. I am positive the people on this site can lead you to a good place for a second opinion. TameSent from my iPhoneOn Aug 28, 2010, at 2:16 AM, "crazerach" <rathomas@...> wrote:I wanted to introduce myself to the group. I have a wonderful son Tommy who is 2 1/2 that was recently diagnosed with severe scoliosis. Now while I've known for awhile(as moms do) that he had something going on with his spine, the doctors at Shriners have finally shown interest in this problem. Recently we were told he would need to have growth rods placed to correct the curvature in his spine (which is about 45 degrees). I had already explored the Mehta

method before this appointment so I completely shut down and rejected what they were offering. At this point I am seriously torn with how to procede and which treatment to choose. My son has some other underlying neuromuscular problems and has endured 4 previous surgeries for other issues. I am scared to death at the severity of the growth rod surgery and how it will affect him. From what the doctors are telling me, at this point this surgery is medically necessary to prevent any lung involvement due tohis curve. I am really interested In hearing all of your stories regarding the casting your children have had, any surgeries they may have had to try and correct their spine, and your honest opinions on why you chose casting rather than any other treatment. We are scheduled to meet back with the spine specialist in Sept. And I am really hoping I will make the right decision for my precious little man. Thank you all in advance for your help as I know

how important any info you may be able to give me will be. - Mommy to Tommy Lee 2 1/2 with scoliosis and arthrogryposis, and also mommy to his big brother Logan who is 10 ------------------------------------

[Guest guest]

WElcome to CAST! You have come to the right place for gathering solid

info on Early Treatment with Mehtas form of EDF casting. May I recommend

a couple of things to help you get started on the casting path? First, go

to the Resource Page of www.infantilescoliosis.org or the FILES section of

this group to dwnld/read a published medical journal titled " Growth as a

corrective force in the early treatment of progressive infantile

scoliosis, " by Mehta. I would also view " A New Direction, " DVD...Both of

these items will help to give you a better understanding of this gentle,

corrective treatment modality. I would also go to the Story section of

www.infantilescoliosis.org to read surgery and ET stories. There have

been quite a few children on CAST over the years w/ arthrogryposis who

have benefited greatly from a series of properly applied EDF casts and I

hope they will see this post and chime in. Please read the article and

let us know if you have questions. What Shriners are going to?

Sincerely,

HRH

> I wanted to introduce myself to the group. I have a wonderful son Tommy

> who is 2 1/2 that was recently diagnosed with severe scoliosis. Now while

> I've known for awhile(as moms do) that he had something going on with his

> spine, the doctors at Shriners have finally shown interest in this

> problem. Recently we were told he would need to have growth rods placed to

> correct the curvature in his spine (which is about 45 degrees). I had

> already explored the Mehta method before this appointment so I completely

> shut down and rejected what they were offering. At this point I am

> seriously torn with how to procede and which treatment to choose. My son

> has some other underlying neuromuscular problems and has endured 4

> previous surgeries for other issues. I am scared to death at the severity

> of the growth rod surgery and how it will affect him. From what the

> doctors are telling me, at this point this surgery is medically necessary

> to prevent any lung involvement due to his curve. I am really interested

> In hearing all of your stories regarding the casting your children have

> had, any surgeries they may have had to try and correct their spine, and

> your honest opinions on why you chose casting rather than any other

> treatment. We are scheduled to meet back with the spine specialist in

> Sept. And I am really hoping I will make the right decision for my

> precious little man. Thank you all in advance for your help as I know how

> important any info you may be able to give me will be.

> - Mommy to Tommy Lee 2 1/2 with scoliosis and arthrogryposis, and

> also mommy to his big brother Logan who is 10

>

>

[Guest guest]

Welcome! My son's story is on a website Breezymama.com on left side of the the homepage, under popular posts, click on Crooked Love. There is also a video of him at age 19 months in his first cast near the bottom of the ISOP home page. (www.infantilescoliosis.org)I don't know about your Tommy's other condition, and I am not a doctor- however, if you can avoid growing rod surgeries at a young age, that is what you want to do, in my opinion. Once the spinal surgeries begin young, there is no going back. If you must do it, than you must, of course, but if Mehta casts are an option, you want to act fast and get your son's info and X-rays to the nearest Mehta trained doctor near you. Time is vital, because the

curve can continue to worsen rapidly, as my son's did.Casting can at least hold a progressive curve better than a brace, a brace often will not hold it without casting first. Ask any and all questions you have of this great group!Heidi, Bexon's Mommy, (3 years old, in 8th cast from Salt Lake City Shriners, currently down from 62 degrees to 20 in cast)From: crazerach <rathomas@...>infantile scoliosis treatment Sent: Sat, August 28, 2010 12:16:35 AMSubject: Hello!

I wanted to introduce myself to the group. I have a wonderful son Tommy who is 2 1/2 that was recently diagnosed with severe scoliosis. Now while I've known for awhile(as moms do) that he had something going on with his spine, the doctors at Shriners have finally shown interest in this problem. Recently we were told he would need to have growth rods placed to correct the curvature in his spine (which is about 45 degrees). I had already explored the Mehta method before this appointment so I completely shut down and rejected what they were offering. At this point I am seriously torn with how to procede and which treatment to choose. My son has some other underlying neuromuscular problems and has endured 4 previous surgeries for other issues. I am scared to death at the severity of the growth rod surgery and how it will affect him. From what the doctors are telling me, at this point this surgery is medically necessary to prevent any lung

involvement due to his curve. I am really interested In hearing all of your stories regarding the casting your children have had, any surgeries they may have had to try and correct their spine, and your honest opinions on why you chose casting rather than any other treatment. We are scheduled to meet back with the spine specialist in Sept. And I am really hoping I will make the right decision for my precious little man. Thank you all in advance for your help as I know how important any info you may be able to give me will be.

- Mommy to Tommy Lee 2 1/2 with scoliosis and arthrogryposis, and also mommy to his big brother Logan who is 10

[Guest guest]

Hi ,

You have nothing to lose by exploring casting in my opinion. Noelle bagan with a triple curve, the main was b/t 45-50 degrees. While it has taken some time, she is currently at 18 degrees and her lungs are fine. This is not to say that we will or won't ever need surgery..... It's way too soon to know that, but in the meantime casting is much less invasive and our plan is to continue with it until it "cures" her or until she's much older if she will, in fact, have to have surgeries. Most cast changes are done every 3 months or so on average..... If you try casting and you don't like it or your doctors feel it isn't effective, you can always have the surgery at that point. I feel like I was in a similar place and chose to try the cast on the chance that it might work for us. Good luck and please keep me posted. - Noelle's mommy, 3 1/2 years oldRochester

NYCasted 8 times for 1 1/2 years9 months in braceRegressed and currently in cast 9reflux, mild plagiocephaly, mild torticollos, hypotonia, ligament laxity, suspected Ehler's Danlos III

From: crazerach <rathomas@...>Subject: Hello!infantile scoliosis treatment Date: Saturday, August 28, 2010, 7:16 AM

I wanted to introduce myself to the group. I have a wonderful son Tommy who is 2 1/2 that was recently diagnosed with severe scoliosis. Now while I've known for awhile(as moms do) that he had something going on with his spine, the doctors at Shriners have finally shown interest in this problem. Recently we were told he would need to have growth rods placed to correct the curvature in his spine (which is about 45 degrees). I had already explored the Mehta method before this appointment so I completely shut down and rejected what they were offering. At this point I am seriously torn with how to procede and which treatment to choose. My son has some other underlying neuromuscular problems and has endured 4 previous surgeries for other issues. I am scared to death at the severity of the growth rod surgery and how it will affect him. From what the doctors are telling me, at this point this surgery is medically necessary to prevent any lung involvement

due to his curve. I am really interested In hearing all of your stories regarding the casting your children have had, any surgeries they may have had to try and correct their spine, and your honest opinions on why you chose casting rather than any other treatment. We are scheduled to meet back with the spine specialist in Sept. And I am really hoping I will make the right decision for my precious little man. Thank you all in advance for your help as I know how important any info you may be able to give me will be. - Mommy to Tommy Lee 2 1/2 with scoliosis and arthrogryposis, and also mommy to his big brother Logan who is 10

[Guest guest]

Hey Racheal!

Welcome =) I have a Logan as well and he started off with a 45 degree curve as well. He doesnt have any other underlying medical issues. We started casting him at 9 months old. He is in his 4th cast now and is at zero in cast. We have had nothing but success with the casting. He also had torticollis and plagiocephally...but both of those have resolved. He also has a rotation which has gotten better but still has a bit more to go on that. If you have any questions...this group is WONDERFUL! Hope you get some of your questions answered! =)

Logan's mama (45 down to 0 in 4th cast, 14 months old)

From: crazerach <rathomas@...>infantile scoliosis treatment Sent: Sat, August 28, 2010 3:16:35 AMSubject: Hello!

I wanted to introduce myself to the group. I have a wonderful son Tommy who is 2 1/2 that was recently diagnosed with severe scoliosis. Now while I've known for awhile(as moms do) that he had something going on with his spine, the doctors at Shriners have finally shown interest in this problem. Recently we were told he would need to have growth rods placed to correct the curvature in his spine (which is about 45 degrees). I had already explored the Mehta method before this appointment so I completely shut down and rejected what they were offering. At this point I am seriously torn with how to procede and which treatment to choose. My son has some other underlying neuromuscular problems and has endured 4 previous surgeries for other issues. I am scared to death at the severity of the growth rod surgery and how it will affect him. From what the doctors are telling me, at this point this surgery is medically necessary to prevent any lung involvement due

to his curve. I am really interested In hearing all of your stories regarding the casting your children have had, any surgeries they may have had to try and correct their spine, and your honest opinions on why you chose casting rather than any other treatment. We are scheduled to meet back with the spine specialist in Sept. And I am really hoping I will make the right decision for my precious little man. Thank you all in advance for your help as I know how important any info you may be able to give me will be. - Mommy to Tommy Lee 2 1/2 with scoliosis and arthrogryposis, and also mommy to his big brother Logan who is 10

[Guest guest]

Thank you all for your swift responses and kind words. I don't think anyone else

can really grasp how difficult and scary something like this is. I am so

relieved to know I am not alone and to hear stories of other families in the

same boat as mine. I am in contact with Angie at SLC shriners and in the process

of getting Tommy's records and images sent to her. I know in my heart I want to

explore this option until I know completely that I am doing the right thing for

my angel.

I was wondering too, for the parents who's children have already been casted,

did you choose casting to stop the curve from progressing and to buy time before

having to operate? Or do the casts eventually correct the spine completely? And

will they always have to wear a brace post-cast or is there still surgery to

fuse the spine?

I look forward to all of your responses and I am truly grateful for all of the

support

>

> I wanted to introduce myself to the group. I have a wonderful son Tommy who is

2 1/2 that was recently diagnosed with severe scoliosis. Now while I've known

for awhile(as moms do) that he had something going on with his spine, the

doctors at Shriners have finally shown interest in this problem. Recently we

were told he would need to have growth rods placed to correct the curvature in

his spine (which is about 45 degrees). I had already explored the Mehta method

before this appointment so I completely shut down and rejected what they were

offering. At this point I am seriously torn with how to procede and which

treatment to choose. My son has some other underlying neuromuscular problems and

has endured 4 previous surgeries for other issues. I am scared to death at the

severity of the growth rod surgery and how it will affect him. From what the

doctors are telling me, at this point this surgery is medically necessary to

prevent any lung involvement due to his curve. I am really interested In hearing

all of your stories regarding the casting your children have had, any surgeries

they may have had to try and correct their spine, and your honest opinions on

why you chose casting rather than any other treatment. We are scheduled to meet

back with the spine specialist in Sept. And I am really hoping I will make the

right decision for my precious little man. Thank you all in advance for your

help as I know how important any info you may be able to give me will be.

> - Mommy to Tommy Lee 2 1/2 with scoliosis and arthrogryposis, and also

mommy to his big brother Logan who is 10

>

[Guest guest]

Hey, , glad you found the group! I told you that there would be lots of info on here:)Because I do have a child with another condition (Arthrogryposis) besides Scoliosis, I feel that I can say for certain that it is harder to " keep " the improvement that a child with congenital scoliosis may get. I think that others with kids with congenital can attest to that, (not to mention that most every doc would tell you the same thing)

However, I still say it is defiantly worth trying. If y'all get into SLC, go for it!!!There are several of us on here who have made the choice to cast (or at least try it) even though we know our kids will still have to have surgery. We just will leave no stone unturned in trying to wait as long as possible. It doesn't always work that way, but, as for me, I'm going to exhaust all options before I put Sage through surgery.

Sometimes, due to the severity, lungs/heart being compromised, etc.., surgery just can't be put off. We may get to that point ourselves, but for now,  we are just going to keep trying!     It is murky water when it comes to the Arthro/Scoliosis link. You will find that so many who have AMC also have scoliosis--usually severe--but there will be the " odd one " in the bunch who never progresses--(sometimes when they have a tethered spinal cord, and have it de-tethered, it greatly improves the scoliosis, but I guess that may be true for the non-AMC'ers also?)

I think it is so hard to make the correlation because there are so many different types of AMC that can involve so many different areas of the body, not to mention the genetic links.     .  Wish you the best of luck, and look forward to talking with you again on the AMC group!

  Janet Downey, Sage's mom          On Sat, Aug 28, 2010 at 9:27 PM, Medlin <amanda.medlin@...> wrote:

 

Hey Racheal!

Welcome =)  I have a Logan as well and he started off with a 45 degree curve as well. He doesnt have any other underlying medical issues. We started casting him at 9 months old. He is in his 4th cast now and is at zero in cast. We have had nothing but success with the casting. He also had torticollis and plagiocephally...but both of those have resolved. He also has a rotation which has gotten better but still has a bit more to go on that.  If you have any questions...this group is WONDERFUL! Hope you get some of your questions answered! =)

Logan's mama (45 down to 0 in 4th cast, 14 months old)

From: crazerach <rathomas@...>infantile scoliosis treatment

Sent: Sat, August 28, 2010 3:16:35 AMSubject: Hello!

 

I wanted to introduce myself to the group. I have a wonderful son Tommy who is 2 1/2 that was recently diagnosed with severe scoliosis. Now while I've known for awhile(as moms do) that he had something going on with his spine, the doctors at Shriners have finally shown interest in this problem. Recently we were told he would need to have growth rods placed to correct the curvature in his spine (which is about 45 degrees). I had already explored the Mehta method before this appointment so I completely shut down and rejected what they were offering. At this point I am seriously torn with how to procede and which treatment to choose. My son has some other underlying neuromuscular problems and has endured 4 previous surgeries for other issues. I am scared to death at the severity of the growth rod surgery and how it will affect him. From what the doctors are telling me, at this point this surgery is medically necessary to prevent any lung involvement due

to his curve. I am really interested In hearing all of your stories regarding the casting your children have had, any surgeries they may have had to try and correct their spine, and your honest opinions on why you chose casting rather than any other treatment. We are scheduled to meet back with the spine specialist in Sept. And I am really hoping I will make the right decision for my precious little man. Thank you all in advance for your help as I know how important any info you may be able to give me will be.

- Mommy to Tommy Lee 2 1/2 with scoliosis and arthrogryposis, and also mommy to his big brother Logan who is 10

[Guest guest]

I can say that in the year and a half I've been on the group, we have seen children come and go, from having progressive scoliosis, to 2-3 casts, to a straight spine- usually being held in a brace for a year follow-up.Since we began at a high degree- 62 at age 19 months- we were just under the crucial age of 2 (since the human spine grows 50 percent in the first 2 years of life, the casts harness that natural growth)- so, we will have a longer road. We are looking at 2 plus years of casts and then bracing possibly for all of childhood. If our son had been treated just 2-3 months sooner, he may have been done with a year of casts and only a year of bracing. Done before preschool.In other words, it depends on the child, and of course each body is unique. Casts to hold off surgery for

as long as possible certainly are worth it. Our son has a syrinx cyst in his spine that may or may not make his correction more difficult- but we have cut the curve in half already, his body shape looks normal out of the cast, and his rotation is almost gone. That is big, because as long as the spine is rotating, there may be regression once in a brace. My understanding is that Mehta or EDF casts are much better at both correcting rotation and at holding and even potentially curing a curve, than braces are. I'm convinced a brace would not have held my child's tenacious curve. Starting younger and at a lower COBB angle helps a lot to be one of the "cured" cases- we may never get there, but avoiding surgery for as long as possible (hopefully completely) and giving our child a great quality of life is already being achieved. He would've been in growing rods at age 2, and right now he's happy as a clam who LOVES dinosaurs! :

) Heidi, Bexon's Mommy, (3 years old, in 8th cast from Salt Lake City Shriners, currently down from 62 degrees to 20 in cast)From: crazerach <rathomas@...>infantile scoliosis treatment Sent: Sat, August 28, 2010 7:59:09 PMSubject: Re: Hello!

Thank you all for your swift responses and kind words. I don't think anyone else can really grasp how difficult and scary something like this is. I am so relieved to know I am not alone and to hear stories of other families in the same boat as mine. I am in contact with Angie at SLC shriners and in the process of getting Tommy's records and images sent to her. I know in my heart I want to explore this option until I know completely that I am doing the right thing for my angel.

I was wondering too, for the parents who's children have already been casted, did you choose casting to stop the curve from progressing and to buy time before having to operate? Or do the casts eventually correct the spine completely? And will they always have to wear a brace post-cast or is there still surgery to fuse the spine?

I look forward to all of your responses and I am truly grateful for all of the support

>

> I wanted to introduce myself to the group. I have a wonderful son Tommy who is 2 1/2 that was recently diagnosed with severe scoliosis. Now while I've known for awhile(as moms do) that he had something going on with his spine, the doctors at Shriners have finally shown interest in this problem. Recently we were told he would need to have growth rods placed to correct the curvature in his spine (which is about 45 degrees). I had already explored the Mehta method before this appointment so I completely shut down and rejected what they were offering. At this point I am seriously torn with how to procede and which treatment to choose. My son has some other underlying neuromuscular problems and has endured 4 previous surgeries for other issues. I am scared to death at the severity of the growth rod surgery and how it will affect him. From what the doctors are telling me, at this point this surgery is medically necessary to prevent any lung involvement

due to his curve. I am really interested In hearing all of your stories regarding the casting your children have had, any surgeries they may have had to try and correct their spine, and your honest opinions on why you chose casting rather than any other treatment. We are scheduled to meet back with the spine specialist in Sept. And I am really hoping I will make the right decision for my precious little man. Thank you all in advance for your help as I know how important any info you may be able to give me will be.

> - Mommy to Tommy Lee 2 1/2 with scoliosis and arthrogryposis, and also mommy to his big brother Logan who is 10

>

[Guest guest]

My son is one of the ones that has been cured with casting and I may not write

as much as others but do stick around to encourage all the new comers. Devyn was

19months when he recieved his first cast. He was over 40degrees at that time. We

would have started sooner but he has Chiari Malformation and required brain

surgery before we could proceed with casting. We went with casting to save our

sons life and to cure his scoliosis. He wore a total of three casts and then a

brace for a year. He went to a brace at 10degrees with very little rotation

left. After 6 months in the brace he measured at 0. After brace wear he went

back up to 12degrees and with growth he straightened back out. He is almost 5yrs

old and is as straight as can be. He has a little rotation left which is slowly

correcting as he grows. This was the best thing we could have ever done for our

son. If he would not of had the casts we would hav already been through surgery

and his life could be very grim. Please let me know if you have any other

questions that I can answer for you.

Rochelle mom to Devyn 4yrs 8months Infantile Scoliosis, Chiari 1

> >

> > I wanted to introduce myself to the group. I have a wonderful son Tommy who

is

> >2 1/2 that was recently diagnosed with severe scoliosis. Now while I've known

> >for awhile(as moms do) that he had something going on with his spine, the

> >doctors at Shriners have finally shown interest in this problem. Recently we

> >were told he would need to have growth rods placed to correct the curvature

in

> >his spine (which is about 45 degrees). I had already explored the Mehta

method

> >before this appointment so I completely shut down and rejected what they were

> >offering. At this point I am seriously torn with how to procede and which

> >treatment to choose. My son has some other underlying neuromuscular problems

and

> >has endured 4 previous surgeries for other issues. I am scared to death at

the

> >severity of the growth rod surgery and how it will affect him. From what the

> >doctors are telling me, at this point this surgery is medically necessary to

> >prevent any lung involvement due to his curve. I am really interested In

hearing

> >all of your stories regarding the casting your children have had, any

surgeries

> >they may have had to try and correct their spine, and your honest opinions on

> >why you chose casting rather than any other treatment. We are scheduled to

meet

> >back with the spine specialist in Sept. And I am really hoping I will make

the

> >right decision for my precious little man. Thank you all in advance for your

> >help as I know how important any info you may be able to give me will be.

> >

> > - Mommy to Tommy Lee 2 1/2 with scoliosis and arthrogryposis, and also

> >mommy to his big brother Logan who is 10

> >

>

[Guest guest]

I don't know if they are telling you this because of the underlying conditions but I will tell you that my daughter was at 72 degrees when we started casting at almost 2 years old and though they don't know how much correction we will get, we are currently at 31 degrees. We will most likely need surgery in the future but our doc told us that it's important to hold it off for as long as possible because the surgeries are countless and the complication rate is high and that's why I'm going to continue casting. Have you talked to a doc that is actually doing the Mehta casting? IF not, I suggest you do to see what they have to say. Casting does not hold my daughter back at all! Good luck with everything and keep us posted on what is

happening. Patty, mom of Isabella, 3 years old, in 7th scoli cast (Rochester) & mom to (9) & Evan(6)From: crazerach <rathomas@...>infantile scoliosis treatment Sent: Sat, August 28, 2010 3:16:35 AMSubject: Hello!

I wanted to introduce myself to the group. I have a wonderful son Tommy who is 2 1/2 that was recently diagnosed with severe scoliosis. Now while I've known for awhile(as moms do) that he had something going on with his spine, the doctors at Shriners have finally shown interest in this problem. Recently we were told he would need to have growth rods placed to correct the curvature in his spine (which is about 45 degrees). I had already explored the Mehta method before this appointment so I completely shut down and rejected what they were offering. At this point I am seriously torn with how to procede and which treatment to choose. My son has some other underlying neuromuscular problems and has endured 4 previous surgeries for other issues. I am scared to death at the severity of the growth rod surgery and how it will affect him. From what the doctors are telling me, at this point this surgery is medically necessary to prevent any lung

involvement due to his curve. I am really interested In hearing all of your stories regarding the casting your children have had, any surgeries they may have had to try and correct their spine, and your honest opinions on why you chose casting rather than any other treatment. We are scheduled to meet back with the spine specialist in Sept. And I am really hoping I will make the right decision for my precious little man. Thank you all in advance for your help as I know how important any info you may be able to give me will be.

- Mommy to Tommy Lee 2 1/2 with scoliosis and arthrogryposis, and also mommy to his big brother Logan who is 10

[Guest guest]

,

I think every child is a different circumstance. For us, we were extremely lucky

to have caught the curve early - only 20 degrees. Her age was against us; she

was 2 and a half when it was diagnosed, but the doctors at Shriner's in Chicago

moved quickly to cast her because of a)her age and her RVAD (39).

Makenna has an underlying genetic condition that makes the scoliosis

progressive, so that fact probably swayed them as well. Our doctor was very

careful to tell us that since there was an underlying condition causing the

scoliosis and it wasn't purely idiopathic, that we just didn't know how she

would respond. The most favorable outcomes are in children who begin casting

under age 2 and have no other underlying conditions. Looks like two strikes

against us, right? Well, I am happy to report that Makenna measured 10 degrees

out of cast at our last casting. She will wear her current cast until mid

October and then will transition to a brace (which was moulded while she was

being casted, so it should continue to add more correction). We are a success

story - against the odds. But I think it's important to send the message to

never give up! Just because the odds aren't in our favor, doesn't mean the

outcome won't be.

I know most kids seem to be able to transition to a brace and then eventually

nothing. I am not sure what will happen with Makenna. Since the underlying

condition predisposes her scoliosis to be progressive, I'm not sure we ever

really rest easy until she is done growing. Casting has afforded us the

opportunity to reverse the current progression of her curve. If it does progress

again later, at least we gained the 10-15 degrees.

Hope this helps. Good luck!

You can read Makenna's full story at www.sosmakenna.com - along with a rant

against the medical/insurance system I had last night!!!

Amy

mom to Makenna. 3 years old. Treated at Chicago Shriners. In 4th cast.

> >

> > I wanted to introduce myself to the group. I have a wonderful son Tommy who

is 2 1/2 that was recently diagnosed with severe scoliosis. Now while I've known

for awhile(as moms do) that he had something going on with his spine, the

doctors at Shriners have finally shown interest in this problem. Recently we

were told he would need to have growth rods placed to correct the curvature in

his spine (which is about 45 degrees). I had already explored the Mehta method

before this appointment so I completely shut down and rejected what they were

offering. At this point I am seriously torn with how to procede and which

treatment to choose. My son has some other underlying neuromuscular problems and

has endured 4 previous surgeries for other issues. I am scared to death at the

severity of the growth rod surgery and how it will affect him. From what the

doctors are telling me, at this point this surgery is medically necessary to

prevent any lung involvement due to his curve. I am really interested In hearing

all of your stories regarding the casting your children have had, any surgeries

they may have had to try and correct their spine, and your honest opinions on

why you chose casting rather than any other treatment. We are scheduled to meet

back with the spine specialist in Sept. And I am really hoping I will make the

right decision for my precious little man. Thank you all in advance for your

help as I know how important any info you may be able to give me will be.

> > - Mommy to Tommy Lee 2 1/2 with scoliosis and arthrogryposis, and also

mommy to his big brother Logan who is 10

> >

>

[Guest guest]

,

In my daughter's case we are buying time until surgery is required. The ortho

surgeon we met with said once you get growing rods the spine will have to be

fused in about 5 years, and then the torso stops growing, so you want to put it

off as long as you can. You will love the staff at Salt Lake City!

mom to Audrey, 3rd cast, SLC

> >

> > I wanted to introduce myself to the group. I have a wonderful son Tommy who

is 2 1/2 that was recently diagnosed with severe scoliosis. Now while I've known

for awhile(as moms do) that he had something going on with his spine, the

doctors at Shriners have finally shown interest in this problem. Recently we

were told he would need to have growth rods placed to correct the curvature in

his spine (which is about 45 degrees). I had already explored the Mehta method

before this appointment so I completely shut down and rejected what they were

offering. At this point I am seriously torn with how to procede and which

treatment to choose. My son has some other underlying neuromuscular problems and

has endured 4 previous surgeries for other issues. I am scared to death at the

severity of the growth rod surgery and how it will affect him. From what the

doctors are telling me, at this point this surgery is medically necessary to

prevent any lung involvement due to his curve. I am really interested In hearing

all of your stories regarding the casting your children have had, any surgeries

they may have had to try and correct their spine, and your honest opinions on

why you chose casting rather than any other treatment. We are scheduled to meet

back with the spine specialist in Sept. And I am really hoping I will make the

right decision for my precious little man. Thank you all in advance for your

help as I know how important any info you may be able to give me will be.

> > - Mommy to Tommy Lee 2 1/2 with scoliosis and arthrogryposis, and also

mommy to his big brother Logan who is 10

> >

>

[Guest guest]

Hi TarikaMy situation is just about the same as yours. I live in Birmingham though, we can discuss how to get started and palns for preparation onlie and over the phonedo let me know if you are interested

Good luckTejaswiniOn Wed, Sep 8, 2010 at 11:15 PM, tarika_chauhan <tarika_chauhan@...> wrote:

 

Hi All,

My name is Tarika Chauhan and I'm a new to this group. I've applied for the ORE exam and will most likely sit for the part-1 next year. I have just started preparation for the same.

I'm living in Cambridge, UK. Is there anyone around Cambridge or in London who is also preparing for the same Or is there any study group so that we can study together?

Looking forward to your response.

Regards,

Tarika

[Guest guest]

Hi

I too am planning to apply soon and sit sometimes next year...we could help each

other in studies and later too. Are you working as well?

>

> >

> >

> > Hi All,

> >

> > My name is Tarika Chauhan and I'm a new to this group. I've applied for the

> > ORE exam and will most likely sit for the part-1 next year. I have just

> > started preparation for the same.

> >

> > I'm living in Cambridge, UK. Is there anyone around Cambridge or in London

> > who is also preparing for the same Or is there any study group so that we

> > can study together?

> >

> > Looking forward to your response.

> >

> > Regards,

> > Tarika

> >

> >

> >

>

[Guest guest]

Hi tarika and Teja...

I have recently applied for the exam and hoping to give it next year.I live in

Stafford which is twenty to twenty five min away from Birmingham.like teja

mentioned earlier we could start studying online or over the phone and meet up

when it is possible

hope to here from you soon

tina

>

> Hi All,

>

> My name is Tarika Chauhan and I'm a new to this group. I've applied for the

ORE exam and will most likely sit for the part-1 next year. I have just started

preparation for the same.

>

> I'm living in Cambridge, UK. Is there anyone around Cambridge or in London who

is also preparing for the same Or is there any study group so that we can study

together?

>

> Looking forward to your response.

>

> Regards,

> Tarika

>

[Guest guest]

Hi all

I too am starting from scratch.

I live near Hounslow in London.

Please contact if interested in studying together.

Regards

Jesy

From: bubled@...Date: Fri, 10 Sep 2010 16:52:17 +0000Subject: Re: Hello!

HiI too am planning to apply soon and sit sometimes next year...we could help each other in studies and later too. Are you working as well?> > >> >> > Hi All,> >> > My name is Tarika Chauhan and I'm a new to this group. I've applied for the> > ORE exam and will most likely sit for the part-1 next year. I have just> > started preparation for the same.> >> > I'm living in Cambridge, UK. Is there anyone around Cambridge or in London> > who is also preparing for the same Or is there any study group so that we> > can study together?> >> > Looking forward to your response.> >> > Regards,> > Tarika> >> > > >>

[Guest guest]

Hi,

Anybody attend Dr. Fred manikin course? I need to know if it's helpful or not and is eastman course better that his coure??

Thanks,

Charlot

From: tasudani <tasudani@...> Sent: Sun, September 12, 2010 7:17:20 PMSubject: Re: Hello!

Hi tarika and Teja...I have recently applied for the exam and hoping to give it next year.I live in Stafford which is twenty to twenty five min away from Birmingham.like teja mentioned earlier we could start studying online or over the phone and meet up when it is possiblehope to here from you soontina>> Hi All,> > My name is Tarika Chauhan and I'm a new to this group. I've applied for the ORE exam and will most likely sit for the part-1 next year. I have just started preparation for the same.> > I'm living in Cambridge, UK. Is there anyone around Cambridge or in London who is also preparing for the same Or is there any study group so that we can study

together?> > Looking forward to your response.> > Regards,> Tarika>

[Guest guest]

hi Charlot,

I attended fred s course..n i was nt very happy with the course coz he was not giving time individually reason being the student teacher ratio was high.

Don t have ny idea about eastman course

From: Charlot Vam <charlotvam@...> Sent: Sun, 12 September, 2010 17:45:43Subject: Re: Re: Hello!

Hi,

Anybody attend Dr. Fred manikin course? I need to know if it's helpful or not and is eastman course better that his coure??

Thanks,

Charlot

From: tasudani <tasudani@...> Sent: Sun, September 12, 2010 7:17:20 PMSubject: Re: Hello!

Hi tarika and Teja...I have recently applied for the exam and hoping to give it next year.I live in Stafford which is twenty to twenty five min away from Birmingham.like teja mentioned earlier we could start studying online or over the phone and meet up when it is possiblehope to here from you soontina>> Hi All,> > My name is Tarika Chauhan and I'm a new to this group. I've applied for the ORE exam and will most likely sit for the part-1 next year. I have just started preparation for the same.> > I'm living in Cambridge, UK. Is there anyone around Cambridge or in London who is also preparing for the same Or is there any study group so that we can study

together?> > Looking forward to your response.> > Regards,> Tarika>

[Guest guest]

Hi Charlot

I went to Eastman course couple of weeks ago. I feel it is good. We had indivigual/ one to one teaching and the instructor was nice too. That is the only course I followed (for LDS Part2 exam) and I think it is well worth for the money I spent. There were only six people, perhaps, that may be the reason why we had indivigual attention!.

Good Luck

Kasundi

From: Nidhi Tripathi <nidhi_tripathi12@...> Sent: Sun, September 12, 2010 6:26:21 PMSubject: Re: Re: Hello!

hi Charlot,

I attended fred s course..n i was nt very happy with the course coz he was not giving time individually reason being the student teacher ratio was high.

Don t have ny idea about eastman course

From: Charlot Vam <charlotvam@...> Sent: Sun, 12 September, 2010 17:45:43Subject: Re: Re: Hello!

Hi,

Anybody attend Dr. Fred manikin course? I need to know if it's helpful or not and is eastman course better that his coure??

Thanks,

Charlot

From: tasudani <tasudani@...> Sent: Sun, September 12, 2010 7:17:20 PMSubject: Re: Hello!

Hi tarika and Teja...I have recently applied for the exam and hoping to give it next year.I live in Stafford which is twenty to twenty five min away from Birmingham.like teja mentioned earlier we could start studying online or over the phone and meet up when it is possiblehope to here from you soontina>> Hi All,> > My name is Tarika Chauhan and I'm a new to this group. I've applied for the ORE exam and will most likely sit for the part-1 next year. I have just started preparation for the same.> > I'm living in Cambridge, UK. Is there anyone around Cambridge or in London who is also preparing for the same Or is there any study group so that we can study

together?> > Looking forward to your response.> > Regards,> Tarika>

[Guest guest]

hi pplwhat can b the causes of sensitivity after the restoration of deep carious lesions?From: Chandima Liyanage <kasundi02@...>Subject: Re: Re: Hello! Date: Sunday, September 12, 2010, 5:57 PM

Hi Charlot

I went to Eastman course couple of weeks ago. I feel it is good. We had indivigual/ one to one teaching and the instructor was nice too. That is the only course I followed (for LDS Part2 exam) and I think it is well worth for the money I spent. There were only six people, perhaps, that may be the reason why we had indivigual attention!.

Good Luck

Kasundi

From: Nidhi Tripathi <nidhi_tripathi12@...> Sent: Sun, September 12, 2010 6:26:21 PMSubject: Re: Re: Hello!

hi Charlot,

I attended fred s course..n i was nt very happy with the course coz he was not giving time individually reason being the student teacher ratio was high.

Don t have ny idea about eastman course

From: Charlot Vam <charlotvam@...> Sent: Sun, 12 September, 2010 17:45:43Subject: Re: Re: Hello!

Hi,

Anybody attend Dr. Fred manikin course? I need to know if it's helpful or not and is eastman course better that his coure??

Thanks,

Charlot

From: tasudani <tasudani@...> Sent: Sun, September 12, 2010 7:17:20 PMSubject: Re: Hello!

Hi tarika and Teja...I have recently applied for the exam and hoping to give it next year.I live in Stafford which is twenty to twenty five min away from Birmingham.like teja mentioned earlier we could start studying online or over the phone and meet up when it is possiblehope to here from you soontina>> Hi All,> > My name is Tarika Chauhan and I'm a new to this group. I've applied for the ORE exam and will most likely sit for the part-1 next year. I have just started preparation for the same.> > I'm living in Cambridge, UK. Is there anyone around Cambridge or in London who is also preparing for the same Or is there any study group so that we can study

together?> > Looking forward to your response.> > Regards,> Tarika>

[Guest guest]

Exposure of dentinal tubules leading to increased fluid movementBcos of capillary action and differential thermal expansion.... Sent from my iPhoneOn 12 Sep 2010, at 21:00, Neelam Raza <neelamraza@...> wrote:

hi pplwhat can b the causes of sensitivity after the restoration of deep carious lesions?From: Chandima Liyanage <kasundi02@...>Subject: Re: Re: Hello! Date: Sunday, September 12, 2010, 5:57 PM

Hi Charlot

I went to Eastman course couple of weeks ago. I feel it is good. We had indivigual/ one to one teaching and the instructor was nice too. That is the only course I followed (for LDS Part2 exam) and I think it is well worth for the money I spent. There were only six people, perhaps, that may be the reason why we had indivigual attention!.

Good Luck

Kasundi

From: Nidhi Tripathi <nidhi_tripathi12@...> Sent: Sun, September 12, 2010 6:26:21 PMSubject: Re: Re: Hello!

hi Charlot,

I attended fred s course..n i was nt very happy with the course coz he was not giving time individually reason being the student teacher ratio was high.

Don t have ny idea about eastman course

From: Charlot Vam <charlotvam@...> Sent: Sun, 12 September, 2010 17:45:43Subject: Re: Re: Hello!

Hi,

Anybody attend Dr. Fred manikin course? I need to know if it's helpful or not and is eastman course better that his coure??

Thanks,

Charlot

From: tasudani <tasudani@...> Sent: Sun, September 12, 2010 7:17:20 PMSubject: Re: Hello!

Hi tarika and Teja...I have recently applied for the exam and hoping to give it next year.I live in Stafford which is twenty to twenty five min away from Birmingham.like teja mentioned earlier we could start studying online or over the phone and meet up when it is possiblehope to here from you soontina>> Hi All,> > My name is Tarika Chauhan and I'm a new to this group. I've applied for the ORE exam and will most likely sit for the part-1 next year. I have just started preparation for the same.> > I'm living in Cambridge, UK. Is there anyone around Cambridge or in London who is also preparing for the same Or is there any study group so that we can study

together?> > Looking forward to your response.> > Regards,> Tarika>

[Guest guest]

yeah but like wat will cause that?From: Chandima Liyanage <kasundi02@...>Subject: Re: Re: Hello! Date: Sunday, September 12, 2010, 5:57 PM

Hi Charlot

I went to Eastman course couple of weeks ago. I feel it is good. We had indivigual/ one to one teaching and the instructor was nice too. That is the only course I followed (for LDS Part2 exam) and I think it is well worth for the money I spent. There were only six people, perhaps, that may be the reason why we had indivigual attention!.

Good Luck

Kasundi

From: Nidhi Tripathi <nidhi_tripathi12@...> Sent: Sun, September 12, 2010 6:26:21 PMSubject: Re: Re: Hello!

hi Charlot,

I attended fred s course..n i was nt very happy with the course coz he was not giving time individually reason being the student teacher ratio was high.

Don t have ny idea about eastman course

From: Charlot Vam <charlotvam@...> Sent: Sun, 12 September, 2010 17:45:43Subject: Re: Re: Hello!

Hi,

Anybody attend Dr. Fred manikin course? I need to know if it's helpful or not and is eastman course better that his coure??

Thanks,

Charlot

From: tasudani <tasudani@...> Sent: Sun, September 12, 2010 7:17:20 PMSubject: Re: Hello!

Hi tarika and Teja...I have recently applied for the exam and hoping to give it next year.I live in Stafford which is twenty to twenty five min away from Birmingham.like teja mentioned earlier we could start studying online or over the phone and meet up when it is possiblehope to here from you soontina>> Hi All,> > My name is Tarika Chauhan and I'm a new to this group. I've applied for the ORE exam and will most likely sit for the part-1 next year. I have just started preparation for the same.> > I'm living in Cambridge, UK. Is there anyone around Cambridge or in London who is also preparing for the same Or is there any study group so

that we can study

together?> > Looking forward to your response.> > Regards,> Tarika>

[Guest guest]

It could be due to delayed expansion or residual cariesSent from my iPhoneOn 12 Sep 2010, at 21:48, Neelam Raza <neelamraza@...> wrote:

yeah but like wat will cause that?From: Chandima Liyanage <kasundi02@...>Subject: Re: Re: Hello! Date: Sunday, September 12, 2010, 5:57 PM

Hi Charlot

I went to Eastman course couple of weeks ago. I feel it is good. We had indivigual/ one to one teaching and the instructor was nice too. That is the only course I followed (for LDS Part2 exam) and I think it is well worth for the money I spent. There were only six people, perhaps, that may be the reason why we had indivigual attention!.

Good Luck

Kasundi

From: Nidhi Tripathi <nidhi_tripathi12@...> Sent: Sun, September 12, 2010 6:26:21 PMSubject: Re: Re: Hello!

hi Charlot,

I attended fred s course..n i was nt very happy with the course coz he was not giving time individually reason being the student teacher ratio was high.

Don t have ny idea about eastman course

From: Charlot Vam <charlotvam@...> Sent: Sun, 12 September, 2010 17:45:43Subject: Re: Re: Hello!

Hi,

Anybody attend Dr. Fred manikin course? I need to know if it's helpful or not and is eastman course better that his coure??

Thanks,

Charlot

From: tasudani <tasudani@...> Sent: Sun, September 12, 2010 7:17:20 PMSubject: Re: Hello!

Hi tarika and Teja...I have recently applied for the exam and hoping to give it next year.I live in Stafford which is twenty to twenty five min away from Birmingham.like teja mentioned earlier we could start studying online or over the phone and meet up when it is possiblehope to here from you soontina>> Hi All,> > My name is Tarika Chauhan and I'm a new to this group. I've applied for the ORE exam and will most likely sit for the part-1 next year. I have just started preparation for the same.> > I'm living in Cambridge, UK. Is there anyone around Cambridge or in London who is also preparing for the same Or is there any study group so

that we can study

together?> > Looking forward to your response.> > Regards,> Tarika>

[Guest guest]

When u restore a deep lesion the dentin is exposed so the dentinal tubules are patent or open.... Unless dentin bonding agents are used to close them.... Thus the ability of dentine to react to thermal stimuli is related to hydrodynamic fluid movement by which a thermal gradient results in fluid flow within tubules and this leads to a reaction of tooth to stimulus.It depends on restorative material used. Which restorative material your cavity is restored with???Sent from my iPhoneOn 12 Sep 2010, at 21:48, Neelam Raza <neelamraza@...> wrote:

yeah but like wat will cause that?From: Chandima Liyanage <kasundi02@...>Subject: Re: Re: Hello! Date: Sunday, September 12, 2010, 5:57 PM

Hi Charlot

I went to Eastman course couple of weeks ago. I feel it is good. We had indivigual/ one to one teaching and the instructor was nice too. That is the only course I followed (for LDS Part2 exam) and I think it is well worth for the money I spent. There were only six people, perhaps, that may be the reason why we had indivigual attention!.

Good Luck

Kasundi

From: Nidhi Tripathi <nidhi_tripathi12@...> Sent: Sun, September 12, 2010 6:26:21 PMSubject: Re: Re: Hello!

hi Charlot,

I attended fred s course..n i was nt very happy with the course coz he was not giving time individually reason being the student teacher ratio was high.

Don t have ny idea about eastman course

From: Charlot Vam <charlotvam@...> Sent: Sun, 12 September, 2010 17:45:43Subject: Re: Re: Hello!

Hi,

Anybody attend Dr. Fred manikin course? I need to know if it's helpful or not and is eastman course better that his coure??

Thanks,

Charlot

From: tasudani <tasudani@...> Sent: Sun, September 12, 2010 7:17:20 PMSubject: Re: Hello!

Hi tarika and Teja...I have recently applied for the exam and hoping to give it next year.I live in Stafford which is twenty to twenty five min away from Birmingham.like teja mentioned earlier we could start studying online or over the phone and meet up when it is possiblehope to here from you soontina>> Hi All,> > My name is Tarika Chauhan and I'm a new to this group. I've applied for the ORE exam and will most likely sit for the part-1 next year. I have just started preparation for the same.> > I'm living in Cambridge, UK. Is there anyone around Cambridge or in London who is also preparing for the same Or is there any study group so

that we can study

together?> > Looking forward to your response.> > Regards,> Tarika>

[Guest guest]

A tooth may be sensitive to cold for several weeks after a filling is placed. The metals in amalgam (silver) conduct the cold very well, transmitting it to the pulp. Bonded (tooth-colored) fillings require etching the tooth with acid before the filling is placed. In some cases, this etching removes enough enamel to make the tooth sensitive. However, advances in bonding now make it less likely to cause tooth sensitivity.Sent from my iPhoneOn 12 Sep 2010, at 22:17, drimtiyaz23 <drimtiyaz23@...> wrote:

When u restore a deep lesion the dentin is exposed so the dentinal tubules are patent or open.... Unless dentin bonding agents are used to close them.... Thus the ability of dentine to react to thermal stimuli is related to hydrodynamic fluid movement by which a thermal gradient results in fluid flow within tubules and this leads to a reaction of tooth to stimulus.It depends on restorative material used. Which restorative material your cavity is restored with???Sent from my iPhoneOn 12 Sep 2010, at 21:48, Neelam Raza <neelamraza@...> wrote:

yeah but like wat will cause that?From: Chandima Liyanage <kasundi02@...>Subject: Re: Re: Hello! Date: Sunday, September 12, 2010, 5:57 PM

Hi Charlot

I went to Eastman course couple of weeks ago. I feel it is good. We had indivigual/ one to one teaching and the instructor was nice too. That is the only course I followed (for LDS Part2 exam) and I think it is well worth for the money I spent. There were only six people, perhaps, that may be the reason why we had indivigual attention!.

Good Luck

Kasundi

From: Nidhi Tripathi <nidhi_tripathi12@...> Sent: Sun, September 12, 2010 6:26:21 PMSubject: Re: Re: Hello!

hi Charlot,

I attended fred s course..n i was nt very happy with the course coz he was not giving time individually reason being the student teacher ratio was high.

Don t have ny idea about eastman course

From: Charlot Vam <charlotvam@...> Sent: Sun, 12 September, 2010 17:45:43Subject: Re: Re: Hello!

Hi,

Anybody attend Dr. Fred manikin course? I need to know if it's helpful or not and is eastman course better that his coure??

Thanks,

Charlot

From: tasudani <tasudani@...> Sent: Sun, September 12, 2010 7:17:20 PMSubject: Re: Hello!

Hi tarika and Teja...I have recently applied for the exam and hoping to give it next year.I live in Stafford which is twenty to twenty five min away from Birmingham.like teja mentioned earlier we could start studying online or over the phone and meet up when it is possiblehope to here from you soontina>> Hi All,> > My name is Tarika Chauhan and I'm a new to this group. I've applied for the ORE exam and will most likely sit for the part-1 next year. I have just started preparation for the same.> > I'm living in Cambridge, UK. Is there anyone around Cambridge or in London who is also preparing for the same Or is there any study group so

that we can study

together?> > Looking forward to your response.> > Regards,> Tarika>