Guest guest Posted September 12, 2010 Report Share Posted September 12, 2010 Postoperative sensitivity is also common after posterior composite restoration... This is bcos of polymerisation shrinkage which cause which cause restn to shrink with resultant dentinal tubule fluid accumulation beneath a shrunken restn thus causing a hydrodynamic gradient to occur within tubules leading to sensitivity. Sent from my iPhoneOn 12 Sep 2010, at 22:27, drimtiyaz23 <drimtiyaz23@...> wrote: A tooth may be sensitive to cold for several weeks after a filling is placed. The metals in amalgam (silver) conduct the cold very well, transmitting it to the pulp. Bonded (tooth-colored) fillings require etching the tooth with acid before the filling is placed. In some cases, this etching removes enough enamel to make the tooth sensitive. However, advances in bonding now make it less likely to cause tooth sensitivity.Sent from my iPhoneOn 12 Sep 2010, at 22:17, drimtiyaz23 <drimtiyaz23@...> wrote: When u restore a deep lesion the dentin is exposed so the dentinal tubules are patent or open.... Unless dentin bonding agents are used to close them.... Thus the ability of dentine to react to thermal stimuli is related to hydrodynamic fluid movement by which a thermal gradient results in fluid flow within tubules and this leads to a reaction of tooth to stimulus.It depends on restorative material used. Which restorative material your cavity is restored with???Sent from my iPhoneOn 12 Sep 2010, at 21:48, Neelam Raza <neelamraza@...> wrote: yeah but like wat will cause that?From: Chandima Liyanage <kasundi02@...>Subject: Re: Re: Hello! Date: Sunday, September 12, 2010, 5:57 PM Hi Charlot I went to Eastman course couple of weeks ago. I feel it is good. We had indivigual/ one to one teaching and the instructor was nice too. That is the only course I followed (for LDS Part2 exam) and I think it is well worth for the money I spent. There were only six people, perhaps, that may be the reason why we had indivigual attention!. Good Luck Kasundi From: Nidhi Tripathi <nidhi_tripathi12@...> Sent: Sun, September 12, 2010 6:26:21 PMSubject: Re: Re: Hello! hi Charlot, I attended fred s course..n i was nt very happy with the course coz he was not giving time individually reason being the student teacher ratio was high. Don t have ny idea about eastman course From: Charlot Vam <charlotvam@...> Sent: Sun, 12 September, 2010 17:45:43Subject: Re: Re: Hello! Hi, Anybody attend Dr. Fred manikin course? I need to know if it's helpful or not and is eastman course better that his coure?? Thanks, Charlot From: tasudani <tasudani@...> Sent: Sun, September 12, 2010 7:17:20 PMSubject: Re: Hello! Hi tarika and Teja...I have recently applied for the exam and hoping to give it next year.I live in Stafford which is twenty to twenty five min away from Birmingham.like teja mentioned earlier we could start studying online or over the phone and meet up when it is possiblehope to here from you soontina>> Hi All,> > My name is Tarika Chauhan and I'm a new to this group. I've applied for the ORE exam and will most likely sit for the part-1 next year. I have just started preparation for the same.> > I'm living in Cambridge, UK. Is there anyone around Cambridge or in London who is also preparing for the same Or is there any study group so that we can study together?> > Looking forward to your response.> > Regards,> Tarika> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 12, 2010 Report Share Posted September 12, 2010 thankx a million guysanother thingwat r the causes of tenderness during and after rct From: Chandima Liyanage <kasundi02@...>Subject: Re: Re: Hello! Date: Sunday, September 12, 2010, 5:57 PM Hi Charlot I went to Eastman course couple of weeks ago. I feel it is good. We had indivigual/ one to one teaching and the instructor was nice too. That is the only course I followed (for LDS Part2 exam) and I think it is well worth for the money I spent. There were only six people, perhaps, that may be the reason why we had indivigual attention!. Good Luck Kasundi From: Nidhi Tripathi <nidhi_tripathi12@...> Sent: Sun, September 12, 2010 6:26:21 PMSubject: Re: Re: Hello! hi Charlot, I attended fred s course..n i was nt very happy with the course coz he was not giving time individually reason being the student teacher ratio was high. Don t have ny idea about eastman course From: Charlot Vam <charlotvam@...> Sent: Sun, 12 September, 2010 17:45:43Subject: Re: Re: Hello! Hi, Anybody attend Dr. Fred manikin course? I need to know if it's helpful or not and is eastman course better that his coure?? Thanks, Charlot From: tasudani <tasudani@...> Sent: Sun, September 12, 2010 7:17:20 PMSubject: Re: Hello! Hi tarika and Teja...I have recently applied for the exam and hoping to give it next year.I live in Stafford which is twenty to twenty five min away from Birmingham.like teja mentioned earlier we could start studying online or over the phone and meet up when it is possiblehope to here from you soontina>> Hi All,> > My name is Tarika Chauhan and I'm a new to this group. I've applied for the ORE exam and will most likely sit for the part-1 next year. I have just started preparation for the same.> > I'm living in Cambridge, UK. Is there anyone around Cambridge or in London who is also preparing for the same Or is there any study group so that we can study together?> > Looking forward to your response.> > Regards,> Tarika> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 13, 2010 Report Share Posted September 13, 2010 I attended the Eastman course and the MJDF preparation course.Eastman couse:Advantages:More direction for your studyUp dateCPD certificate that u can claim as verifiable CPD hours if everything go well.DisavantagesThe Eastman course is very expensive,almost 700 pounds for a week .It is done two weeks before the exam.I suggest to do it in march if you are having the exam in september otherwise it will bring more questions than answers.JanetFrom: Nidhi Tripathi <nidhi_tripathi12@...> Sent: Sun, September 12, 2010 8:26:21 PMSubject: Re: Re: Hello! hi Charlot, I attended fred s course..n i was nt very happy with the course coz he was not giving time individually reason being the student teacher ratio was high. Don t have ny idea about eastman course From: Charlot Vam <charlotvam@...> Sent: Sun, 12 September, 2010 17:45:43Subject: Re: Re: Hello! Hi, Anybody attend Dr. Fred manikin course? I need to know if it's helpful or not and is eastman course better that his coure?? Thanks, Charlot From: tasudani <tasudani@...> Sent: Sun, September 12, 2010 7:17:20 PMSubject: Re: Hello! Hi tarika and Teja...I have recently applied for the exam and hoping to give it next year.I live in Stafford which is twenty to twenty five min away from Birmingham.like teja mentioned earlier we could start studying online or over the phone and meet up when it is possiblehope to here from you soontina>> Hi All,> > My name is Tarika Chauhan and I'm a new to this group. I've applied for the ORE exam and will most likely sit for the part-1 next year. I have just started preparation for the same.> > I'm living in Cambridge, UK. Is there anyone around Cambridge or in London who is also preparing for the same Or is there any study group so that we can study together?> > Looking forward to your response.> > Regards,> Tarika> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2010 Report Share Posted September 17, 2010 Hi Jami!!! Congrats on your new baby!!! He sounds adorable!! Just as a suggestion, does he have reflux? Sometimes baby's arch their backs when they have this. Sorry, I don't have any suggestions on the bronchitis! Sue mom to Kate 20 and Karrie 14 w/ds and mild autism On Fri, Sep 17, 2010 at 3:27 PM, Jami wrote: > Hi, > I just wanted to introduce myself! I am new to this group and new to > everything really involving Down Syndrome. I have a 2 1/2 month old > named Casey who has Down Syndrome. At this point you can't really tell > besides the fact that he is a little floppy and he arches his back a > lot. Also, he is a little smaller in stature and looks somewhat like a > newborn still (I'm not complaining. ) He has a minor heart defect > (vsd) which is healing itself (thank goodness!). He's only had one > surgery so far for Laryngomalacia (larynx collapsing into airway) and > is still recovering. He currently has chronic bronchitis and if anyone > has any suggestions on the best way to get rid of that I am all ears! > We love love love him and his older siblings adore him (probably too > much). is the one who let me know about this group and I > hope I can meet more wonderful people in this new world we have found > ourselves in. > > Jami Fergie > > > > ------------------------------------ > > Click reply to all for messages to go to the list. Just hit reply for > messages to go to the sender of the message. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2010 Report Share Posted October 23, 2010 Welcome to this great group! One thing you have in your favor is that it was caught very early giving her the best option for treatment. I haven't heard of casting beeing done on a baby so young but please don't let the ortho docs give you the wait and see approach. I would gather medical records, xrays, etc. And apply to the closest Shriners to you that does Mehta casting so she will be in the best place for treatment should she need it as it sounds like she does. Don't wait. Time is always of the essence in progressive cases. Please ask any questions of us you may have. chilliwackpitbull <chilliwackpitbull@...> wrote: >While on the one hand I'm sad to be here, on the other I'm glad to see there's such a great online support community available > >My beautiful baby girl has some form of scoliosis - still going through diagnosis to determine whether it's progressive or not, but it's looking that way. > >I first noticed when she was about 3 weeks old that she always leaned to the right, but with this being my first baby thought maybe it was normal and would go away. It got worse instead. She saw the ped and had xrays done when she was just about 10 weeks old, and the xrays showed a 13 degree curve, but normal vertebrae. Since then, the curve to the side hasn't seemed to worsen really, but she's starting to bulge out in the back on the opposite side of the curve (her ribs are humping out a bit), and the curve in her spine is now visible to the naked eye. She'll be 14 weeks old on Tuesday. > >The pediatrician has said we may still be dealing with something relatively harmless like positional deformity, but she's worried as you don't usually see a curve in babies so young se says. We've been referred to BC Children's Hospital to see the orthopedist who specializes in spines and scoliosis. The ped says even if it's not progressive (which is the hope), baby needs physio to correct the curvature. > >I'll admit I'm pretty much terrified for my baby. I hate that there's something " wrong " , and I hate that she may wind up having her early years filled with hospital visits, medical procedures, braces, casts, etc. It just makes me want to cry for her > >I guess I'm just looking for support, and maybe some info on what to expect, treatment options if it IS progressive, etc., so that I can be more informed when we go to the specialist. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2010 Report Share Posted October 23, 2010 Welcome to this great group! One thing you have in your favor is that it was caught very early giving her the best option for treatment. I haven't heard of casting beeing done on a baby so young but please don't let the ortho docs give you the wait and see approach. I would gather medical records, xrays, etc. And apply to the closest Shriners to you that does Mehta casting so she will be in the best place for treatment should she need it as it sounds like she does. Don't wait. Time is always of the essence in progressive cases. Please ask any questions of us you may have. chilliwackpitbull <chilliwackpitbull@...> wrote: >While on the one hand I'm sad to be here, on the other I'm glad to see there's such a great online support community available > >My beautiful baby girl has some form of scoliosis - still going through diagnosis to determine whether it's progressive or not, but it's looking that way. > >I first noticed when she was about 3 weeks old that she always leaned to the right, but with this being my first baby thought maybe it was normal and would go away. It got worse instead. She saw the ped and had xrays done when she was just about 10 weeks old, and the xrays showed a 13 degree curve, but normal vertebrae. Since then, the curve to the side hasn't seemed to worsen really, but she's starting to bulge out in the back on the opposite side of the curve (her ribs are humping out a bit), and the curve in her spine is now visible to the naked eye. She'll be 14 weeks old on Tuesday. > >The pediatrician has said we may still be dealing with something relatively harmless like positional deformity, but she's worried as you don't usually see a curve in babies so young se says. We've been referred to BC Children's Hospital to see the orthopedist who specializes in spines and scoliosis. The ped says even if it's not progressive (which is the hope), baby needs physio to correct the curvature. > >I'll admit I'm pretty much terrified for my baby. I hate that there's something " wrong " , and I hate that she may wind up having her early years filled with hospital visits, medical procedures, braces, casts, etc. It just makes me want to cry for her > >I guess I'm just looking for support, and maybe some info on what to expect, treatment options if it IS progressive, etc., so that I can be more informed when we go to the specialist. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2010 Report Share Posted October 23, 2010 Just wanted to let you know that we are glad to have you and that you have def come to the right place. We also commend your ped for not taking the "wait and see" approach as most peds do! It's good that you did find it so young and at 13*. Like said please don't accept the wait and see from the ortho either! Also their isn't anything "wrong" with your baby, she'll just need a little extra help along the way. How I look at it is God made her this way for a purpose, whatever it may be! WELCOME!!! Tonya Perkins Asheboro,NC mother of ,11 & Nora,4 scoliosis, acid reflux 9th cast, down to 12* in cast Greenville Shriners,SC From: chilliwackpitbull <chilliwackpitbull@...>infantile scoliosis treatment Sent: Fri, October 22, 2010 9:00:10 PMSubject: Hello! While on the one hand I'm sad to be here, on the other I'm glad to see there's such a great online support community available :)My beautiful baby girl has some form of scoliosis - still going through diagnosis to determine whether it's progressive or not, but it's looking that way.I first noticed when she was about 3 weeks old that she always leaned to the right, but with this being my first baby thought maybe it was normal and would go away. It got worse instead. She saw the ped and had xrays done when she was just about 10 weeks old, and the xrays showed a 13 degree curve, but normal vertebrae. Since then, the curve to the side hasn't seemed to worsen really, but she's starting to bulge out in the back on the opposite side of the curve (her ribs are humping out a bit), and the curve in her spine is now visible to the naked eye. She'll be 14 weeks old on Tuesday.The pediatrician has said we may still be dealing with something relatively harmless like positional deformity, but she's worried as you don't usually see a curve in babies so young se says. We've been referred to BC Children's Hospital to see the orthopedist who specializes in spines and scoliosis. The ped says even if it's not progressive (which is the hope), baby needs physio to correct the curvature.I'll admit I'm pretty much terrified for my baby. I hate that there's something "wrong", and I hate that she may wind up having her early years filled with hospital visits, medical procedures, braces, casts, etc. It just makes me want to cry for her :(I guess I'm just looking for support, and maybe some info on what to expect, treatment options if it IS progressive, etc., so that I can be more informed when we go to the specialist. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2010 Report Share Posted October 23, 2010 Welcome! You have definitely found a wonderful place to ask questions, find information and most of all get support! Like the other ladies have mentioned, you do have time on your side and if you can get into a Shriners hospital near you for casting, or treatment in general, you will be in the best of hands we haven't started casting for our son yet (he should get his 1st cast on before Christmas) but considering what our other options were, casting is an answer to our prayers. Good luck to you and your little one.Warmly,, Mommy to Tommy Lee 2 1/2 w/ a 61* curve and Logan who is 10On Oct 22, 2010, at 6:00 PM, "chilliwackpitbull" <chilliwackpitbull@...> wrote: While on the one hand I'm sad to be here, on the other I'm glad to see there's such a great online support community available My beautiful baby girl has some form of scoliosis - still going through diagnosis to determine whether it's progressive or not, but it's looking that way. I first noticed when she was about 3 weeks old that she always leaned to the right, but with this being my first baby thought maybe it was normal and would go away. It got worse instead. She saw the ped and had xrays done when she was just about 10 weeks old, and the xrays showed a 13 degree curve, but normal vertebrae. Since then, the curve to the side hasn't seemed to worsen really, but she's starting to bulge out in the back on the opposite side of the curve (her ribs are humping out a bit), and the curve in her spine is now visible to the naked eye. She'll be 14 weeks old on Tuesday. The pediatrician has said we may still be dealing with something relatively harmless like positional deformity, but she's worried as you don't usually see a curve in babies so young se says. We've been referred to BC Children's Hospital to see the orthopedist who specializes in spines and scoliosis. The ped says even if it's not progressive (which is the hope), baby needs physio to correct the curvature. I'll admit I'm pretty much terrified for my baby. I hate that there's something "wrong", and I hate that she may wind up having her early years filled with hospital visits, medical procedures, braces, casts, etc. It just makes me want to cry for her I guess I'm just looking for support, and maybe some info on what to expect, treatment options if it IS progressive, etc., so that I can be more informed when we go to the specialist. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2010 Report Share Posted October 23, 2010 Thank you for the welcome As for the wait and see approach, when is it okay, and when is it not? If her curve is the same (13*), or only slightly increased, is it reasonable to wait and see if it resolves on its own? I've read that many cases of infant scoliosis DO self-resolve. How do we know which ones will and which ones won't? Is 13* a big deal? I've been reading like crazy, and two things come up - first, I can never find any mention of a baby so young having a measurable curve, and second, what I do find says that 10-15* is not treated, but just monitored. My father-in-law is making me feel like a paranoid nut for even worrying about this. He says that probably many babies have curves, and it's just that their moms don't take them to the doctor for it, and they outgrow it on their own. Maybe he's right. Am I worrying for nothing? How do I know which Shriners hospitals do the Mehta casting? There is only one Shriners hospital in Canada, on the other side of the country (in Quebec, I live in BC). We only have one set of xrays so far, taken almost 4 weeks ago. I guess we'll know more when she finally sees the orthopedist and gets new xrays, however that might not be for a few months as they see children in order of urgency. One set of xrays says nothing about progression, so they're not going to read that as " urgent " . I wonder if I should be pushing for the pediatrician here in town to order another set of xrays while we wait? The xraying was hard. The techs didn't know how to take the film, as they usually have the child stand for it, and, obviously, my baby can't stand up. They wound up doing them with her laying down and us (me and a tech) gently pulling her as straight as we could and holding her still. Poor baby cried the whole time > > >While on the one hand I'm sad to be here, on the other I'm glad to see there's such a great online support community available > > > >My beautiful baby girl has some form of scoliosis - still going through diagnosis to determine whether it's progressive or not, but it's looking that way. > > > >I first noticed when she was about 3 weeks old that she always leaned to the right, but with this being my first baby thought maybe it was normal and would go away. It got worse instead. She saw the ped and had xrays done when she was just about 10 weeks old, and the xrays showed a 13 degree curve, but normal vertebrae. Since then, the curve to the side hasn't seemed to worsen really, but she's starting to bulge out in the back on the opposite side of the curve (her ribs are humping out a bit), and the curve in her spine is now visible to the naked eye. She'll be 14 weeks old on Tuesday. > > > >The pediatrician has said we may still be dealing with something relatively harmless like positional deformity, but she's worried as you don't usually see a curve in babies so young se says. We've been referred to BC Children's Hospital to see the orthopedist who specializes in spines and scoliosis. The ped says even if it's not progressive (which is the hope), baby needs physio to correct the curvature. > > > >I'll admit I'm pretty much terrified for my baby. I hate that there's something " wrong " , and I hate that she may wind up having her early years filled with hospital visits, medical procedures, braces, casts, etc. It just makes me want to cry for her > > > >I guess I'm just looking for support, and maybe some info on what to expect, treatment options if it IS progressive, etc., so that I can be more informed when we go to the specialist. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2010 Report Share Posted October 23, 2010 Thanks for the welcome. i posted back to about the wait-and-see bit, so won't rewrite my huge post here. Just wanted to address the " wrong " comment, as I realize it may have come off as insensitive: I know there's nothing " wrong " with her, and chose poor wording. My adopted son has autism, and I foster kids with special needs, and it drives me batty when people label people with disabilities or differences as lesser or defective. I don't think of my baby girl as anything less than perfect Rather I just hate that she may have a more difficult time of things I can't stand the idea of her hurting or being unhappy. Also, as a parent to a kid with some very significant issues, there's a selfish part of me that is upset at the prospect of baby having issues of her own - I know it's not logical, but I just really wanted a chance at the " normal " parenting experience, if you kwim? > > Just wanted to let you know that we are glad to have you and that you have def > come to the right place. We also commend your ped for not taking the " wait and > see " approach as most peds do! It's good that you did find it so young and at > 13*. Like said please don't accept the wait and see from the ortho > either! Also their isn't anything " wrong " with your baby, she'll just need a > little extra help along the way. How I look at it is God made her this way for a > purpose, whatever it may be! WELCOME!!! >  > Tonya Perkins > Asheboro,NC > mother of ,11 & > Nora,4 scoliosis, acid reflux > 9th cast, down to 12* in cast > Greenville Shriners,SC > > > > > ________________________________ > From: chilliwackpitbull <chilliwackpitbull@...> > infantile scoliosis treatment > Sent: Fri, October 22, 2010 9:00:10 PM > Subject: Hello! > >  > While on the one hand I'm sad to be here, on the other I'm glad to see there's > such a great online support community available > > My beautiful baby girl has some form of scoliosis - still going through > diagnosis to determine whether it's progressive or not, but it's looking that > way. > > I first noticed when she was about 3 weeks old that she always leaned to the > right, but with this being my first baby thought maybe it was normal and would > go away. It got worse instead. She saw the ped and had xrays done when she was > just about 10 weeks old, and the xrays showed a 13 degree curve, but normal > vertebrae. Since then, the curve to the side hasn't seemed to worsen really, but > she's starting to bulge out in the back on the opposite side of the curve (her > ribs are humping out a bit), and the curve in her spine is now visible to the > naked eye. She'll be 14 weeks old on Tuesday. > > The pediatrician has said we may still be dealing with something relatively > harmless like positional deformity, but she's worried as you don't usually see a > curve in babies so young se says. We've been referred to BC Children's Hospital > to see the orthopedist who specializes in spines and scoliosis. The ped says > even if it's not progressive (which is the hope), baby needs physio to correct > the curvature. > > I'll admit I'm pretty much terrified for my baby. I hate that there's something > " wrong " , and I hate that she may wind up having her early years filled with > hospital visits, medical procedures, braces, casts, etc. It just makes me want > to cry for her > > I guess I'm just looking for support, and maybe some info on what to expect, > treatment options if it IS progressive, etc., so that I can be more informed > when we go to the specialist. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2010 Report Share Posted October 23, 2010 We were told to wait and see by our ped when our son was 10wks. I was still concerned so when I saw our family Dr at 3mos I requested physio for his delays and requested the xrays. We got the results when our son was 4months and were referred to an ortho. She didn't give us any initial measurements. She told us to wait. I noticed some changes and wanted to see her sooner. His curvature had changed. From my experience I wouldn't wait too long. Our ortho told us and is still telling me that his curvature could improve that is why I am seeking another opinion. Our local shriners will pay to send us to Montreal. We are in Saskatchewan. We are on the list in calgary, Edmonton and Montreal. Hopefully we hear something soon. Do you know what the wait time is at BCCH? There are some Canadians on here that go to salt lake city. You are not being paranoid. It is scary. I was told the same thing by my family. I am scared b\c I have seen what untreated scoliosis has done to my husbands uncles back. Sent from my BlackBerry® wireless handheldFrom: chilliwackpitbull <chilliwackpitbull@...>Sender: infantile scoliosis treatment Date: Sat, 23 Oct 2010 05:14:51 +0000<infantile scoliosis treatment >Reply infantile scoliosis treatment Subject: Re: Hello! Thank you for the welcome :)As for the wait and see approach, when is it okay, and when is it not? If her curve is the same (13*), or only slightly increased, is it reasonable to wait and see if it resolves on its own? I've read that many cases of infant scoliosis DO self-resolve. How do we know which ones will and which ones won't?Is 13* a big deal? I've been reading like crazy, and two things come up - first, I can never find any mention of a baby so young having a measurable curve, and second, what I do find says that 10-15* is not treated, but just monitored.My father-in-law is making me feel like a paranoid nut for even worrying about this. He says that probably many babies have curves, and it's just that their moms don't take them to the doctor for it, and they outgrow it on their own. Maybe he's right. Am I worrying for nothing?How do I know which Shriners hospitals do the Mehta casting? There is only one Shriners hospital in Canada, on the other side of the country (in Quebec, I live in BC).We only have one set of xrays so far, taken almost 4 weeks ago. I guess we'll know more when she finally sees the orthopedist and gets new xrays, however that might not be for a few months as they see children in order of urgency. One set of xrays says nothing about progression, so they're not going to read that as " urgent " . I wonder if I should be pushing for the pediatrician here in town to order another set of xrays while we wait?The xraying was hard. The techs didn't know how to take the film, as they usually have the child stand for it, and, obviously, my baby can't stand up. They wound up doing them with her laying down and us (me and a tech) gently pulling her as straight as we could and holding her still. Poor baby cried the whole time > > >While on the one hand I'm sad to be here, on the other I'm glad to see there's such a great online support community available > >> >My beautiful baby girl has some form of scoliosis - still going through diagnosis to determine whether it's progressive or not, but it's looking that way.> >> >I first noticed when she was about 3 weeks old that she always leaned to the right, but with this being my first baby thought maybe it was normal and would go away. It got worse instead. She saw the ped and had xrays done when she was just about 10 weeks old, and the xrays showed a 13 degree curve, but normal vertebrae. Since then, the curve to the side hasn't seemed to worsen really, but she's starting to bulge out in the back on the opposite side of the curve (her ribs are humping out a bit), and the curve in her spine is now visible to the naked eye. She'll be 14 weeks old on Tuesday.> >> >The pediatrician has said we may still be dealing with something relatively harmless like positional deformity, but she's worried as you don't usually see a curve in babies so young se says. We've been referred to BC Children's Hospital to see the orthopedist who specializes in spines and scoliosis. The ped says even if it's not progressive (which is the hope), baby needs physio to correct the curvature.> >> >I'll admit I'm pretty much terrified for my baby. I hate that there's something " wrong " , and I hate that she may wind up having her early years filled with hospital visits, medical procedures, braces, casts, etc. It just makes me want to cry for her > >> >I guess I'm just looking for support, and maybe some info on what to expect, treatment options if it IS progressive, etc., so that I can be more informed when we go to the specialist.> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2010 Report Share Posted October 23, 2010 My daughter was born with a 23* curve. BUT, she has congenital scoliosis, not idiopathic. Have you had congenital scoliosis ruled out? JaneFrom: chilliwackpitbull <chilliwackpitbull@...>infantile scoliosis treatment Sent: Fri, October 22, 2010 10:14:51 PMSubject: Re: Hello! Thank you for the welcome As for the wait and see approach, when is it okay, and when is it not? If her curve is the same (13*), or only slightly increased, is it reasonable to wait and see if it resolves on its own? I've read that many cases of infant scoliosis DO self-resolve. How do we know which ones will and which ones won't? Is 13* a big deal? I've been reading like crazy, and two things come up - first, I can never find any mention of a baby so young having a measurable curve, and second, what I do find says that 10-15* is not treated, but just monitored. My father-in-law is making me feel like a paranoid nut for even worrying about this. He says that probably many babies have curves, and it's just that their moms don't take them to the doctor for it, and they outgrow it on their own. Maybe he's right. Am I worrying for nothing? How do I know which Shriners hospitals do the Mehta casting? There is only one Shriners hospital in Canada, on the other side of the country (in Quebec, I live in BC). We only have one set of xrays so far, taken almost 4 weeks ago. I guess we'll know more when she finally sees the orthopedist and gets new xrays, however that might not be for a few months as they see children in order of urgency. One set of xrays says nothing about progression, so they're not going to read that as "urgent". I wonder if I should be pushing for the pediatrician here in town to order another set of xrays while we wait? The xraying was hard. The techs didn't know how to take the film, as they usually have the child stand for it, and, obviously, my baby can't stand up. They wound up doing them with her laying down and us (me and a tech) gently pulling her as straight as we could and holding her still. Poor baby cried the whole time > > >While on the one hand I'm sad to be here, on the other I'm glad to see there's such a great online support community available > > > >My beautiful baby girl has some form of scoliosis - still going through diagnosis to determine whether it's progressive or not, but it's looking that way. > > > >I first noticed when she was about 3 weeks old that she always leaned to the right, but with this being my first baby thought maybe it was normal and would go away. It got worse instead. She saw the ped and had xrays done when she was just about 10 weeks old, and the xrays showed a 13 degree curve, but normal vertebrae. Since then, the curve to the side hasn't seemed to worsen really, but she's starting to bulge out in the back on the opposite side of the curve (her ribs are humping out a bit), and the curve in her spine is now visible to the naked eye. She'll be 14 weeks old on Tuesday. > > > >The pediatrician has said we may still be dealing with something relatively harmless like positional deformity, but she's worried as you don't usually see a curve in babies so young se says. We've been referred to BC Children's Hospital to see the orthopedist who specializes in spines and scoliosis. The ped says even if it's not progressive (which is the hope), baby needs physio to correct the curvature. > > > >I'll admit I'm pretty much terrified for my baby. I hate that there's something "wrong", and I hate that she may wind up having her early years filled with hospital visits, medical procedures, braces, casts, etc. It just makes me want to cry for her > > > >I guess I'm just looking for support, and maybe some info on what to expect, treatment options if it IS progressive, etc., so that I can be more informed when we go to the specialist. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2010 Report Share Posted October 23, 2010 I am jumping in late. I just wanted to say at 3 months old you are going to be hard pressed to find a doctor who will cast. Although Many of us here were the victim of wait and see diagnosis, you are right, there is a time where it is appropriate. I believe Dr. K at UAB Birmingham has casted a child as young as 7 months, 9 is the norm. Our son was 10 months at first cast. Our first ortho told us wait and watch when our son had a 67 degree curve at 10 months old. We knew that wasn't right. But 13 degrees it does seem logical. The timing would be what I question. Maybe new xrays once your child can sit unassisted in a month or two. Our casting ortho takes sitting films once they can sit. The other determining factor as to whether it is resolving or not will be the measure of rotation to the spine. If a curve is borderline, hovering around 20, the RVAD can help determine if it will progress. Don't apologize for Worrying there is something wrong with your sweet little one. That is a normal response as is crying, questioning, and becoming a research nut as I did. I swear I read every opinion, paper, journal I could get my hands on. We get a week out of cast each time and I sit and analyze every change in his curve like a hawk. I remember sitting in our first appt at Chicago Shriners telling my husband it looks so much better this week I bet they send us home. They of course walked in with different news, but you worry and analyze yourself sick. It's your baby. Once your armed with enough knowledge you will know how to proceed and be the best advocate for your child. By reading your original post you know the guidelines. In my thoughts you are ready and have a plan of attack if the numbers increase. 80% are self resolving. We are all the 20% that rule didn't apply to.Take care. Sent from my iPhoneOn Oct 23, 2010, at 12:14 AM, "chilliwackpitbull" <chilliwackpitbull@...> wrote: Thank you for the welcome As for the wait and see approach, when is it okay, and when is it not? If her curve is the same (13*), or only slightly increased, is it reasonable to wait and see if it resolves on its own? I've read that many cases of infant scoliosis DO self-resolve. How do we know which ones will and which ones won't? Is 13* a big deal? I've been reading like crazy, and two things come up - first, I can never find any mention of a baby so young having a measurable curve, and second, what I do find says that 10-15* is not treated, but just monitored. My father-in-law is making me feel like a paranoid nut for even worrying about this. He says that probably many babies have curves, and it's just that their moms don't take them to the doctor for it, and they outgrow it on their own. Maybe he's right. Am I worrying for nothing? How do I know which Shriners hospitals do the Mehta casting? There is only one Shriners hospital in Canada, on the other side of the country (in Quebec, I live in BC). We only have one set of xrays so far, taken almost 4 weeks ago. I guess we'll know more when she finally sees the orthopedist and gets new xrays, however that might not be for a few months as they see children in order of urgency. One set of xrays says nothing about progression, so they're not going to read that as "urgent". I wonder if I should be pushing for the pediatrician here in town to order another set of xrays while we wait? The xraying was hard. The techs didn't know how to take the film, as they usually have the child stand for it, and, obviously, my baby can't stand up. They wound up doing them with her laying down and us (me and a tech) gently pulling her as straight as we could and holding her still. Poor baby cried the whole time > > >While on the one hand I'm sad to be here, on the other I'm glad to see there's such a great online support community available > > > >My beautiful baby girl has some form of scoliosis - still going through diagnosis to determine whether it's progressive or not, but it's looking that way. > > > >I first noticed when she was about 3 weeks old that she always leaned to the right, but with this being my first baby thought maybe it was normal and would go away. It got worse instead. She saw the ped and had xrays done when she was just about 10 weeks old, and the xrays showed a 13 degree curve, but normal vertebrae. Since then, the curve to the side hasn't seemed to worsen really, but she's starting to bulge out in the back on the opposite side of the curve (her ribs are humping out a bit), and the curve in her spine is now visible to the naked eye. She'll be 14 weeks old on Tuesday. > > > >The pediatrician has said we may still be dealing with something relatively harmless like positional deformity, but she's worried as you don't usually see a curve in babies so young se says. We've been referred to BC Children's Hospital to see the orthopedist who specializes in spines and scoliosis. The ped says even if it's not progressive (which is the hope), baby needs physio to correct the curvature. > > > >I'll admit I'm pretty much terrified for my baby. I hate that there's something "wrong", and I hate that she may wind up having her early years filled with hospital visits, medical procedures, braces, casts, etc. It just makes me want to cry for her > > > >I guess I'm just looking for support, and maybe some info on what to expect, treatment options if it IS progressive, etc., so that I can be more informed when we go to the specialist. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2010 Report Share Posted October 23, 2010 One more thing...I would guess many of our kids had measurable curves at younger ages in your childs range they were just undisgmosed. curve at 5 1/2 months was 27 degrees. It was read as no obvious abnormality by a radiologist. It was when we pulled the film 4.5 months later at his diagnosis it was actually read and assigned a number. Also many of the papers written will note their degree curve when casting was initiated. For these little ones onset was much sooner and overlooked. Sent from my iPhoneOn Oct 23, 2010, at 12:14 AM, "chilliwackpitbull" <chilliwackpitbull@...> wrote: Thank you for the welcome As for the wait and see approach, when is it okay, and when is it not? If her curve is the same (13*), or only slightly increased, is it reasonable to wait and see if it resolves on its own? I've read that many cases of infant scoliosis DO self-resolve. How do we know which ones will and which ones won't? Is 13* a big deal? I've been reading like crazy, and two things come up - first, I can never find any mention of a baby so young having a measurable curve, and second, what I do find says that 10-15* is not treated, but just monitored. My father-in-law is making me feel like a paranoid nut for even worrying about this. He says that probably many babies have curves, and it's just that their moms don't take them to the doctor for it, and they outgrow it on their own. Maybe he's right. Am I worrying for nothing? How do I know which Shriners hospitals do the Mehta casting? There is only one Shriners hospital in Canada, on the other side of the country (in Quebec, I live in BC). We only have one set of xrays so far, taken almost 4 weeks ago. I guess we'll know more when she finally sees the orthopedist and gets new xrays, however that might not be for a few months as they see children in order of urgency. One set of xrays says nothing about progression, so they're not going to read that as "urgent". I wonder if I should be pushing for the pediatrician here in town to order another set of xrays while we wait? The xraying was hard. The techs didn't know how to take the film, as they usually have the child stand for it, and, obviously, my baby can't stand up. They wound up doing them with her laying down and us (me and a tech) gently pulling her as straight as we could and holding her still. Poor baby cried the whole time > > >While on the one hand I'm sad to be here, on the other I'm glad to see there's such a great online support community available > > > >My beautiful baby girl has some form of scoliosis - still going through diagnosis to determine whether it's progressive or not, but it's looking that way. > > > >I first noticed when she was about 3 weeks old that she always leaned to the right, but with this being my first baby thought maybe it was normal and would go away. It got worse instead. She saw the ped and had xrays done when she was just about 10 weeks old, and the xrays showed a 13 degree curve, but normal vertebrae. Since then, the curve to the side hasn't seemed to worsen really, but she's starting to bulge out in the back on the opposite side of the curve (her ribs are humping out a bit), and the curve in her spine is now visible to the naked eye. She'll be 14 weeks old on Tuesday. > > > >The pediatrician has said we may still be dealing with something relatively harmless like positional deformity, but she's worried as you don't usually see a curve in babies so young se says. We've been referred to BC Children's Hospital to see the orthopedist who specializes in spines and scoliosis. The ped says even if it's not progressive (which is the hope), baby needs physio to correct the curvature. > > > >I'll admit I'm pretty much terrified for my baby. I hate that there's something "wrong", and I hate that she may wind up having her early years filled with hospital visits, medical procedures, braces, casts, etc. It just makes me want to cry for her > > > >I guess I'm just looking for support, and maybe some info on what to expect, treatment options if it IS progressive, etc., so that I can be more informed when we go to the specialist. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2010 Report Share Posted October 23, 2010 If it were me I would go ahead and apply to a Shriners that does Mehta casting. How far are you from Salt Lake City, Utah? The def do Mehta casting and treat those from Canada. I would just want to be in the right place if it does progress. My son was dx at 6 mos with a 12 degree curve and three months later it was at 38 degrees. His ribs also stuck out which was a sign of rotation, or like a twisting of the spine. I would think xrays would be good to do 2 to 3 mos from the last one. Given how young your child is laying down xrays are appropriate. If you are not close to the states you could call your closest !hriners and ask if they do Mehta casting. If they act like your crazy you know they don't. also there are Canadians on here that will probably chime in to help. By the way, my son has also been diagnosed on the autism spectrum. As if we needed another problem. So I can relate to how you feel wanting a " normal " child. We are on our last cast, #7 and my son went from a 50 degree curve and is now at 4 degrees. Mehta casting works! chilliwackpitbull <chilliwackpitbull@...> wrote: >Thank you for the welcome > >As for the wait and see approach, when is it okay, and when is it not? If her curve is the same (13*), or only slightly increased, is it reasonable to wait and see if it resolves on its own? I've read that many cases of infant scoliosis DO self-resolve. How do we know which ones will and which ones won't? > >Is 13* a big deal? I've been reading like crazy, and two things come up - first, I can never find any mention of a baby so young having a measurable curve, and second, what I do find says that 10-15* is not treated, but just monitored. > >My father-in-law is making me feel like a paranoid nut for even worrying about this. He says that probably many babies have curves, and it's just that their moms don't take them to the doctor for it, and they outgrow it on their own. Maybe he's right. Am I worrying for nothing? > >How do I know which Shriners hospitals do the Mehta casting? There is only one Shriners hospital in Canada, on the other side of the country (in Quebec, I live in BC). > >We only have one set of xrays so far, taken almost 4 weeks ago. I guess we'll know more when she finally sees the orthopedist and gets new xrays, however that might not be for a few months as they see children in order of urgency. One set of xrays says nothing about progression, so they're not going to read that as " urgent " . I wonder if I should be pushing for the pediatrician here in town to order another set of xrays while we wait? > >The xraying was hard. The techs didn't know how to take the film, as they usually have the child stand for it, and, obviously, my baby can't stand up. They wound up doing them with her laying down and us (me and a tech) gently pulling her as straight as we could and holding her still. Poor baby cried the whole time > > >> >> >While on the one hand I'm sad to be here, on the other I'm glad to see there's such a great online support community available >> > >> >My beautiful baby girl has some form of scoliosis - still going through diagnosis to determine whether it's progressive or not, but it's looking that way. >> > >> >I first noticed when she was about 3 weeks old that she always leaned to the right, but with this being my first baby thought maybe it was normal and would go away. It got worse instead. She saw the ped and had xrays done when she was just about 10 weeks old, and the xrays showed a 13 degree curve, but normal vertebrae. Since then, the curve to the side hasn't seemed to worsen really, but she's starting to bulge out in the back on the opposite side of the curve (her ribs are humping out a bit), and the curve in her spine is now visible to the naked eye. She'll be 14 weeks old on Tuesday. >> > >> >The pediatrician has said we may still be dealing with something relatively harmless like positional deformity, but she's worried as you don't usually see a curve in babies so young se says. We've been referred to BC Children's Hospital to see the orthopedist who specializes in spines and scoliosis. The ped says even if it's not progressive (which is the hope), baby needs physio to correct the curvature. >> > >> >I'll admit I'm pretty much terrified for my baby. I hate that there's something " wrong " , and I hate that she may wind up having her early years filled with hospital visits, medical procedures, braces, casts, etc. It just makes me want to cry for her >> > >> >I guess I'm just looking for support, and maybe some info on what to expect, treatment options if it IS progressive, etc., so that I can be more informed when we go to the specialist. >> > >> > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2010 Report Share Posted October 23, 2010 Welcome to CAST! If the baby is not weight bearing, the film should be supine (laying on his/her back) with arms to side....Not above head as this may make the curve look better than it really is... I think you may be in the " wait and see " for a month or so, until the type of scoli is determined. Its completely reasonable for a 13 degree curve to only be monitored. Ive seen higher curves resolve, so it is completely possible. How old is she? Please read Growth as a corrective force in the Early Treatment of progresive infantile scoliosis, By Mehta and the RVAD article in the FILES section of this group. This will give you better understanding of this gentle, corrective treatment and simple, effective measurement technique. If the RVAD's over 20, its probably progressive.. I would contact the Shriners in SLC asap. Send over your babes films, ask about the upcoming tutorial and go from there. Stay on CAST to find the nearest ET trained doc. You're on the right track!! For sure. Sincerely, HRH > Thank you for the welcome > > As for the wait and see approach, when is it okay, and when is it not? If > her curve is the same (13*), or only slightly increased, is it reasonable > to wait and see if it resolves on its own? I've read that many cases of > infant scoliosis DO self-resolve. How do we know which ones will and > which ones won't? > > Is 13* a big deal? I've been reading like crazy, and two things come up - > first, I can never find any mention of a baby so young having a measurable > curve, and second, what I do find says that 10-15* is not treated, but > just monitored. > > My father-in-law is making me feel like a paranoid nut for even worrying > about this. He says that probably many babies have curves, and it's just > that their moms don't take them to the doctor for it, and they outgrow it > on their own. Maybe he's right. Am I worrying for nothing? > > How do I know which Shriners hospitals do the Mehta casting? There is > only one Shriners hospital in Canada, on the other side of the country (in > Quebec, I live in BC). > > We only have one set of xrays so far, taken almost 4 weeks ago. I guess > we'll know more when she finally sees the orthopedist and gets new xrays, > however that might not be for a few months as they see children in order > of urgency. One set of xrays says nothing about progression, so they're > not going to read that as " urgent " . I wonder if I should be pushing for > the pediatrician here in town to order another set of xrays while we wait? > > The xraying was hard. The techs didn't know how to take the film, as they > usually have the child stand for it, and, obviously, my baby can't stand > up. They wound up doing them with her laying down and us (me and a tech) > gently pulling her as straight as we could and holding her still. Poor > baby cried the whole time > > >> >> >While on the one hand I'm sad to be here, on the other I'm glad to see >> there's such a great online support community available >> > >> >My beautiful baby girl has some form of scoliosis - still going through >> diagnosis to determine whether it's progressive or not, but it's >> looking that way. >> > >> >I first noticed when she was about 3 weeks old that she always leaned >> to the right, but with this being my first baby thought maybe it was >> normal and would go away. It got worse instead. She saw the ped and >> had xrays done when she was just about 10 weeks old, and the xrays >> showed a 13 degree curve, but normal vertebrae. Since then, the curve >> to the side hasn't seemed to worsen really, but she's starting to bulge >> out in the back on the opposite side of the curve (her ribs are humping >> out a bit), and the curve in her spine is now visible to the naked eye. >> She'll be 14 weeks old on Tuesday. >> > >> >The pediatrician has said we may still be dealing with something >> relatively harmless like positional deformity, but she's worried as you >> don't usually see a curve in babies so young se says. We've been >> referred to BC Children's Hospital to see the orthopedist who >> specializes in spines and scoliosis. The ped says even if it's not >> progressive (which is the hope), baby needs physio to correct the >> curvature. >> > >> >I'll admit I'm pretty much terrified for my baby. I hate that there's >> something " wrong " , and I hate that she may wind up having her early >> years filled with hospital visits, medical procedures, braces, casts, >> etc. It just makes me want to cry for her >> > >> >I guess I'm just looking for support, and maybe some info on what to >> expect, treatment options if it IS progressive, etc., so that I can be >> more informed when we go to the specialist. >> > >> > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2010 Report Share Posted October 23, 2010 W hat a great post. Thank you. i know we've all felt the same or similar and I appreciate your sensitivity to this. So many people on the planet never get it. I def. KWIM. HRH Thanks for the welcome. i posted back to about the wait-and-see > bit, so won't rewrite my huge post here. Just wanted to address the > " wrong " comment, as I realize it may have come off as insensitive: > > I know there's nothing " wrong " with her, and chose poor wording. My > adopted son has autism, and I foster kids with special needs, and it > drives me batty when people label people with disabilities or differences > as lesser or defective. I don't think of my baby girl as anything less > than perfect Rather I just hate that she may have a more difficult > time of things I can't stand the idea of her hurting or being unhappy. > Also, as a parent to a kid with some very significant issues, there's a > selfish part of me that is upset at the prospect of baby having issues of > her own - I know it's not logical, but I just really wanted a chance at > the " normal " parenting experience, if you kwim? > > >> >> Just wanted to let you know that we are glad to have you and that you >> have def >> come to the right place. We also commend your ped for not taking the >> " wait and >> see " approach as most peds do! It's good that you did find it so young >> and at >> 13*. Like said please don't accept the wait and see from the >> ortho >> either! Also their isn't anything " wrong " with your baby, she'll just >> need a >> little extra help along the way. How I look at it is God made her this >> way for a >> purpose, whatever it may be! WELCOME!!! >>  >> Tonya Perkins >> Asheboro,NC >> mother of ,11 & >> Nora,4 scoliosis, acid reflux >> 9th cast, down to 12* in cast >> Greenville Shriners,SC >> >> >> >> >> ________________________________ >> From: chilliwackpitbull <chilliwackpitbull@...> >> infantile scoliosis treatment >> Sent: Fri, October 22, 2010 9:00:10 PM >> Subject: Hello! >> >>  >> While on the one hand I'm sad to be here, on the other I'm glad to see >> there's >> such a great online support community available >> >> My beautiful baby girl has some form of scoliosis - still going through >> diagnosis to determine whether it's progressive or not, but it's looking >> that >> way. >> >> I first noticed when she was about 3 weeks old that she always leaned to >> the >> right, but with this being my first baby thought maybe it was normal and >> would >> go away. It got worse instead. She saw the ped and had xrays done when >> she was >> just about 10 weeks old, and the xrays showed a 13 degree curve, but >> normal >> vertebrae. Since then, the curve to the side hasn't seemed to worsen >> really, but >> she's starting to bulge out in the back on the opposite side of the >> curve (her >> ribs are humping out a bit), and the curve in her spine is now visible >> to the >> naked eye. She'll be 14 weeks old on Tuesday. >> >> The pediatrician has said we may still be dealing with something >> relatively >> harmless like positional deformity, but she's worried as you don't >> usually see a >> curve in babies so young se says. We've been referred to BC Children's >> Hospital >> to see the orthopedist who specializes in spines and scoliosis. The ped >> says >> even if it's not progressive (which is the hope), baby needs physio to >> correct >> the curvature. >> >> I'll admit I'm pretty much terrified for my baby. I hate that there's >> something >> " wrong " , and I hate that she may wind up having her early years filled >> with >> hospital visits, medical procedures, braces, casts, etc. It just makes >> me want >> to cry for her >> >> I guess I'm just looking for support, and maybe some info on what to >> expect, >> treatment options if it IS progressive, etc., so that I can be more >> informed >> when we go to the specialist. >> > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2010 Report Share Posted October 23, 2010 Hello and welcome,Yes, it is reasonable to wait and see with a 13* curve - but do not wait long (3 months for follow-up x-ray and certainly bring her in sooner if you "just know" she's getting worse.) A mother's intution should not be taken lightly.My daughter was diagnoised with a 12* curve at 6 months old. Her follow-up x-ray a few months later showed no signs of scoliosis and was perfectly straight. She is still straight today at 21 mo old. So there are resolving cases out there :)One important thing about the follow-up x-ray - since your original x-ray was taken lying down you should have the follow-up x-ray taken lying down as well (even if your child is able to sit by then. ) It's important to "compare apples to apples." If the positioning is changed from lying down to sitting up you will not be able to determine whether it's true progression or just positional.Also, one other thing that I learned with my daughter is that since infants tend to be "chubby" it's difficult to see their spine and rotation. One key factor that you/the doc can look for is skin folds. There's info and photos available online that describes this. I had no idea until I read my daughter's doc notes and read that the skin folds are what alerted him to order an x-ray as he could not see the small 12* curve with his naked eye.Let me know if I can be of any help.~Noah 5 years old9 months of casting in SLC; 2 1/2 years of bracing; Currently treatment-free at 8*And Mariella 1 yr old - resolved Infantile Scoliosis chilliwackpitbull <chilliwackpitbull@...> wrote: >Thank you for the welcome > >As for the wait and see approach, when is it okay, and when is it not? If her curve is the same (13*), or only slightly increased, is it reasonable to wait and see if it resolves on its own? I've read that many cases of infant scoliosis DO self-resolve. How do we know which ones will and which ones won't? > >Is 13* a big deal? I've been reading like crazy, and two things come up - first, I can never find any mention of a baby so young having a measurable curve, and second, what I do find says that 10-15* is not treated, but just monitored. > >My father-in-law is making me feel like a paranoid nut for even worrying about this. He says that probably many babies have curves, and it's just that their moms don't take them to the doctor for it, and they outgrow it on their own. Maybe he's right. Am I worrying for nothing? > >How do I know which Shriners hospitals do the Mehta casting? There is only one Shriners hospital in Canada, on the other side of the country (in Quebec, I live in BC). > >We only have one set of xrays so far, taken almost 4 weeks ago. I guess we'll know more when she finally sees the orthopedist and gets new xrays, however that might not be for a few months as they see children in order of urgency. One set of xrays says nothing about progression, so they're not going to read that as "urgent". I wonder if I should be pushing for the pediatrician here in town to order another set of xrays while we wait? > >The xraying was hard. The techs didn't know how to take the film, as they usually have the child stand for it, and, obviously, my baby can't stand up. They wound up doing them with her laying down and us (me and a tech) gently pulling her as straight as we could and holding her still. Poor baby cried the whole time > > >> >> >While on the one hand I'm sad to be here, on the other I'm glad to see there's such a great online support community available >> > >> >My beautiful baby girl has some form of scoliosis - still going through diagnosis to determine whether it's progressive or not, but it's looking that way. >> > >> >I first noticed when she was about 3 weeks old that she always leaned to the right, but with this being my first baby thought maybe it was normal and would go away. It got worse instead. She saw the ped and had xrays done when she was just about 10 weeks old, and the xrays showed a 13 degree curve, but normal vertebrae. Since then, the curve to the side hasn't seemed to worsen really, but she's starting to bulge out in the back on the opposite side of the curve (her ribs are humping out a bit), and the curve in her spine is now visible to the naked eye. She'll be 14 weeks old on Tuesday. >> > >> >The pediatrician has said we may still be dealing with something relatively harmless like positional deformity, but she's worried as you don't usually see a curve in babies so young se says. We've been referred to BC Children's Hospital to see the orthopedist who specializes in spines and scoliosis. The ped says even if it's not progressive (which is the hope), baby needs physio to correct the curvature. >> > >> >I'll admit I'm pretty much terrified for my baby. I hate that there's something "wrong", and I hate that she may wind up having her early years filled with hospital visits, medical procedures, braces, casts, etc. It just makes me want to cry for her >> > >> >I guess I'm just looking for support, and maybe some info on what to expect, treatment options if it IS progressive, etc., so that I can be more informed when we go to the specialist. >> > >> > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2010 Report Share Posted October 23, 2010 Hello to another Canuck Hmmm - the ped doesn't want to wait and see per say, rather she wants to " wait and see the specialist " . She's stated very clearly that baby needs physio for her back at the least, but doesn't want that started until after we've seen the specialist and ruled out anything more serious causing the curve. She does say that baby may well outgrow this, but doesn't believe she'll outgrow it without some help (physio). No idea on the wait at BCCH, and don't know what they do for scoliosis there. I've spent a ton of time at their orthopedic clinic as of late for my son, who had a bone tumour removed (benign) and a bone graft done. Ironically, I've had baby with me while there, but the appointments weren't for her. I know for my son, he got in very quickly (within two weeks of the xray that showed his tumour), but in his case they were worried it was cancer (urgent). Baby's first contact with the ped about this was when she was just shy of 10 weeks. The pediatrician could see what I was talking about and immediately sent us for xrays, which came back showing the 13* curve (had them done that day). The ped got the films back when baby was 12 weeks old and saw baby. Observed that there's changes in the curve she could see since last visit (baby's back starting to bulge out) and put in a referral to see an ortho. She's now just shy of 14 weeks and is visibly a bit worse. The curve to the side (she tilts to her right) is the same, but her ribs are starting to bulge out in the back on her left now. Waiting to see the ortho at BCCH. I guess if I don't hear back from BCCH by Wednesday, I'll call and bug them again about an appointment... Good luck with your son! > > > > >While on the one hand I'm sad to be here, on the other I'm glad to see there's such a great online support community available > > > > > >My beautiful baby girl has some form of scoliosis - still going through diagnosis to determine whether it's progressive or not, but it's looking that way. > > > > > >I first noticed when she was about 3 weeks old that she always leaned to the right, but with this being my first baby thought maybe it was normal and would go away. It got worse instead. She saw the ped and had xrays done when she was just about 10 weeks old, and the xrays showed a 13 degree curve, but normal vertebrae. Since then, the curve to the side hasn't seemed to worsen really, but she's starting to bulge out in the back on the opposite side of the curve (her ribs are humping out a bit), and the curve in her spine is now visible to the naked eye. She'll be 14 weeks old on Tuesday. > > > > > >The pediatrician has said we may still be dealing with something relatively harmless like positional deformity, but she's worried as you don't usually see a curve in babies so young se says. We've been referred to BC Children's Hospital to see the orthopedist who specializes in spines and scoliosis. The ped says even if it's not progressive (which is the hope), baby needs physio to correct the curvature. > > > > > >I'll admit I'm pretty much terrified for my baby. I hate that there's something " wrong " , and I hate that she may wind up having her early years filled with hospital visits, medical procedures, braces, casts, etc. It just makes me want to cry for her > > > > > >I guess I'm just looking for support, and maybe some info on what to expect, treatment options if it IS progressive, etc., so that I can be more informed when we go to the specialist. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2010 Report Share Posted October 23, 2010 Hello,We go to BCCH and see Dr R. It took us about 8 months to get in to see him witch is crazy! I really have been very happy with him and his team.I would definatly get your Dr to put in the referral. You might want to look into Shriners Portland.Mommy to Thaddeus Sent from my iPhoneOn Oct 22, 2010, at 10:30 PM, kfaul@... wrote: We were told to wait and see by our ped when our son was 10wks. I was still concerned so when I saw our family Dr at 3mos I requested physio for his delays and requested the xrays. We got the results when our son was 4months and were referred to an ortho. She didn't give us any initial measurements. She told us to wait. I noticed some changes and wanted to see her sooner. His curvature had changed. From my experience I wouldn't wait too long. Our ortho told us and is still telling me that his curvature could improve that is why I am seeking another opinion. Our local shriners will pay to send us to Montreal. We are in Saskatchewan. We are on the list in calgary, Edmonton and Montreal. Hopefully we hear something soon. Do you know what the wait time is at BCCH? There are some Canadians on here that go to salt lake city. You are not being paranoid. It is scary. I was told the same thing by my family. I am scared b\c I have seen what untreated scoliosis has done to my husbands uncles back. Sent from my BlackBerry® wireless handheldFrom: chilliwackpitbull <chilliwackpitbull@...> Sender: infantile scoliosis treatment Date: Sat, 23 Oct 2010 05:14:51 +0000<infantile scoliosis treatment >Reply infantile scoliosis treatment Subject: Re: Hello! Thank you for the welcome As for the wait and see approach, when is it okay, and when is it not? If her curve is the same (13*), or only slightly increased, is it reasonable to wait and see if it resolves on its own? I've read that many cases of infant scoliosis DO self-resolve. How do we know which ones will and which ones won't? Is 13* a big deal? I've been reading like crazy, and two things come up - first, I can never find any mention of a baby so young having a measurable curve, and second, what I do find says that 10-15* is not treated, but just monitored. My father-in-law is making me feel like a paranoid nut for even worrying about this. He says that probably many babies have curves, and it's just that their moms don't take them to the doctor for it, and they outgrow it on their own. Maybe he's right. Am I worrying for nothing? How do I know which Shriners hospitals do the Mehta casting? There is only one Shriners hospital in Canada, on the other side of the country (in Quebec, I live in BC). We only have one set of xrays so far, taken almost 4 weeks ago. I guess we'll know more when she finally sees the orthopedist and gets new xrays, however that might not be for a few months as they see children in order of urgency. One set of xrays says nothing about progression, so they're not going to read that as "urgent". I wonder if I should be pushing for the pediatrician here in town to order another set of xrays while we wait? The xraying was hard. The techs didn't know how to take the film, as they usually have the child stand for it, and, obviously, my baby can't stand up. They wound up doing them with her laying down and us (me and a tech) gently pulling her as straight as we could and holding her still. Poor baby cried the whole time > > >While on the one hand I'm sad to be here, on the other I'm glad to see there's such a great online support community available > > > >My beautiful baby girl has some form of scoliosis - still going through diagnosis to determine whether it's progressive or not, but it's looking that way. > > > >I first noticed when she was about 3 weeks old that she always leaned to the right, but with this being my first baby thought maybe it was normal and would go away. It got worse instead. She saw the ped and had xrays done when she was just about 10 weeks old, and the xrays showed a 13 degree curve, but normal vertebrae. Since then, the curve to the side hasn't seemed to worsen really, but she's starting to bulge out in the back on the opposite side of the curve (her ribs are humping out a bit), and the curve in her spine is now visible to the naked eye. She'll be 14 weeks old on Tuesday. > > > >The pediatrician has said we may still be dealing with something relatively harmless like positional deformity, but she's worried as you don't usually see a curve in babies so young se says. We've been referred to BC Children's Hospital to see the orthopedist who specializes in spines and scoliosis. The ped says even if it's not progressive (which is the hope), baby needs physio to correct the curvature. > > > >I'll admit I'm pretty much terrified for my baby. I hate that there's something "wrong", and I hate that she may wind up having her early years filled with hospital visits, medical procedures, braces, casts, etc. It just makes me want to cry for her > > > >I guess I'm just looking for support, and maybe some info on what to expect, treatment options if it IS progressive, etc., so that I can be more informed when we go to the specialist. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2010 Report Share Posted October 23, 2010 I'm not sure? How do they rule it out? I do know that baby's xray was normal, aside from the curve. Her vertebrae, ribs, hips, etc. were all normal (doc checked for any abnormalities). The doc has asked me if this curve was apparent at birth, which I don't think it was. I first noticed it when baby was about 3 weeks old. > > > > >While on the one hand I'm sad to be here, on the other I'm glad to see there's > >such a great online support community available > > > > > >My beautiful baby girl has some form of scoliosis - still going through > >diagnosis to determine whether it's progressive or not, but it's looking that > >way. > > > > > >I first noticed when she was about 3 weeks old that she always leaned to the > >right, but with this being my first baby thought maybe it was normal and would > >go away. It got worse instead. She saw the ped and had xrays done when she was > >just about 10 weeks old, and the xrays showed a 13 degree curve, but normal > >vertebrae. Since then, the curve to the side hasn't seemed to worsen really, > >but she's starting to bulge out in the back on the opposite side of the curve > >(her ribs are humping out a bit), and the curve in her spine is now visible to > >the naked eye. She'll be 14 weeks old on Tuesday. > > > > > >The pediatrician has said we may still be dealing with something relatively > >harmless like positional deformity, but she's worried as you don't usually see a > >curve in babies so young se says. We've been referred to BC Children's Hospital > >to see the orthopedist who specializes in spines and scoliosis. The ped says > >even if it's not progressive (which is the hope), baby needs physio to correct > >the curvature. > > > > > >I'll admit I'm pretty much terrified for my baby. I hate that there's > >something " wrong " , and I hate that she may wind up having her early years filled > >with hospital visits, medical procedures, braces, casts, etc. It just makes me > >want to cry for her > > > > > >I guess I'm just looking for support, and maybe some info on what to expect, > >treatment options if it IS progressive, etc., so that I can be more informed > >when we go to the specialist. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2010 Report Share Posted October 23, 2010 I live 1/2 hour from the WA border, about 3 hours from Seattle. My babe's ribs are starting to stick out also, in the back on her left. Only really noticeable when she's in a supported sitting position, not if she's held upright but stretched out. That's wonderful that your son's curve has improved so dramatically! Tough his having autism on top of the scoliosis - how has he handled the casting? My son would FREAK. He recently had surgery on his arm and we told the docs they'd need to cast it so he couldn't get at it and instead they just did a partial cast. So then we had him not only fussing over and working at getting the cast off, but he got at his incision and ripped out his stitches - ugh. Thankfully he's healed up now! Anyhow, it really seems like what's needed is to get in to see the ortho and have another set of films done to compare to the first. Hopefully they see baby soon! > >> > >> >While on the one hand I'm sad to be here, on the other I'm glad to see there's such a great online support community available > >> > > >> >My beautiful baby girl has some form of scoliosis - still going through diagnosis to determine whether it's progressive or not, but it's looking that way. > >> > > >> >I first noticed when she was about 3 weeks old that she always leaned to the right, but with this being my first baby thought maybe it was normal and would go away. It got worse instead. She saw the ped and had xrays done when she was just about 10 weeks old, and the xrays showed a 13 degree curve, but normal vertebrae. Since then, the curve to the side hasn't seemed to worsen really, but she's starting to bulge out in the back on the opposite side of the curve (her ribs are humping out a bit), and the curve in her spine is now visible to the naked eye. She'll be 14 weeks old on Tuesday. > >> > > >> >The pediatrician has said we may still be dealing with something relatively harmless like positional deformity, but she's worried as you don't usually see a curve in babies so young se says. We've been referred to BC Children's Hospital to see the orthopedist who specializes in spines and scoliosis. The ped says even if it's not progressive (which is the hope), baby needs physio to correct the curvature. > >> > > >> >I'll admit I'm pretty much terrified for my baby. I hate that there's something " wrong " , and I hate that she may wind up having her early years filled with hospital visits, medical procedures, braces, casts, etc. It just makes me want to cry for her > >> > > >> >I guess I'm just looking for support, and maybe some info on what to expect, treatment options if it IS progressive, etc., so that I can be more informed when we go to the specialist. > >> > > >> > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2010 Report Share Posted October 23, 2010 Thank you! 8 months?! That's terrible! My daughter's pediatrician has put in the referral to the orthopedic clinic at BCCH, and they received it yesterday (I spoke to the receptionist). The pediatrician thought that the appointment should be booked within 2 weeks of them receiving the referral (as in they call me sometime in the 2 weeks after referral to schedule an appointment, not that the appointment happens in that 2 week window), and attached a note that baby should be considered somewhat " urgent " just because of how young she is. We're kind of running a month behind though - first the x-ray place didn't forward the films to my ped, or she would have called us back right away rather than waiting for our 2 week follow up appointment. I showed up for the follow up and she had to call and request the xrays. Then she said she'd have the referral sent out that day and we should hear from BCCH within two weeks, but her receptionist didn't send it off until yesterday, 2 weeks after that appointment!!! So I relayed all of this to BCCH on the phone yesterday and hopefully they take that into account when setting up her appointment. Thanks for the tip re: Portland - much closer than SLC! > > > > > > >While on the one hand I'm sad to be here, on the other I'm glad to see there's such a great online support community available > > > > > > > >My beautiful baby girl has some form of scoliosis - still going through diagnosis to determine whether it's progressive or not, but it's looking that way. > > > > > > > >I first noticed when she was about 3 weeks old that she always leaned to the right, but with this being my first baby thought maybe it was normal and would go away. It got worse instead. She saw the ped and had xrays done when she was just about 10 weeks old, and the xrays showed a 13 degree curve, but normal vertebrae. Since then, the curve to the side hasn't seemed to worsen really, but she's starting to bulge out in the back on the opposite side of the curve (her ribs are humping out a bit), and the curve in her spine is now visible to the naked eye. She'll be 14 weeks old on Tuesday. > > > > > > > >The pediatrician has said we may still be dealing with something relatively harmless like positional deformity, but she's worried as you don't usually see a curve in babies so young se says. We've been referred to BC Children's Hospital to see the orthopedist who specializes in spines and scoliosis. The ped says even if it's not progressive (which is the hope), baby needs physio to correct the curvature. > > > > > > > >I'll admit I'm pretty much terrified for my baby. I hate that there's something " wrong " , and I hate that she may wind up having her early years filled with hospital visits, medical procedures, braces, casts, etc. It just makes me want to cry for her > > > > > > > >I guess I'm just looking for support, and maybe some info on what to expect, treatment options if it IS progressive, etc., so that I can be more informed when we go to the specialist. > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2010 Report Share Posted October 23, 2010 I hope you can get in sooner. we knew Thaddeus had scoliosis at birth. we also see Dr A in the ortho clinic at BCCH. she would keep and eye on him untill we got to see Dr R we already knew his curve was about 45* and still is. he is currently in a brace 20 hours a day. we have not gone with casting yet because he has very low tone and we are working on his mobility right now. as soon as his curve changes we will be casting. I really hope Dr R decides to cast here and the we will go ahead with that. you will need a MRI to check for any abnomalities when we had ours in Jan the told us the wait was 18 months!! INSANE. we got in right away because of the degree of Thaddeus' curve. So hopfully they will get you on the list on in asap. we dont go back to BCCH till Nov 30, it will be 5 months since our last visit and i cant wait because Thaddeus' back look much better. Let us know when yo get in Mom to Thaddeus From: chilliwackpitbull <chilliwackpitbull@...>infantile scoliosis treatment Sent: Sat, October 23, 2010 9:25:15 AMSubject: Re: Hello! Thank you!8 months?! That's terrible! My daughter's pediatrician has put in the referral to the orthopedic clinic at BCCH, and they received it yesterday (I spoke to the receptionist). The pediatrician thought that the appointment should be booked within 2 weeks of them receiving the referral (as in they call me sometime in the 2 weeks after referral to schedule an appointment, not that the appointment happens in that 2 week window), and attached a note that baby should be considered somewhat "urgent" just because of how young she is.We're kind of running a month behind though - first the x-ray place didn't forward the films to my ped, or she would have called us back right away rather than waiting for our 2 week follow up appointment. I showed up for the follow up and she had to call and request the xrays. Then she said she'd have the referral sent out that day and we should hear from BCCH within two weeks, but her receptionist didn't send it off until yesterday, 2 weeks after that appointment!!! So I relayed all of this to BCCH on the phone yesterday and hopefully they take that into account when setting up her appointment.Thanks for the tip re: Portland - much closer than SLC!> > > > > > >While on the one hand I'm sad to be here, on the other I'm glad to see there's such a great online support community available > > > >> > > >My beautiful baby girl has some form of scoliosis - still going through diagnosis to determine whether it's progressive or not, but it's looking that way.> > > >> > > >I first noticed when she was about 3 weeks old that she always leaned to the right, but with this being my first baby thought maybe it was normal and would go away. It got worse instead. She saw the ped and had xrays done when she was just about 10 weeks old, and the xrays showed a 13 degree curve, but normal vertebrae. Since then, the curve to the side hasn't seemed to worsen really, but she's starting to bulge out in the back on the opposite side of the curve (her ribs are humping out a bit), and the curve in her spine is now visible to the naked eye. She'll be 14 weeks old on Tuesday.> > > >> > > >The pediatrician has said we may still be dealing with something relatively harmless like positional deformity, but she's worried as you don't usually see a curve in babies so young se says. We've been referred to BC Children's Hospital to see the orthopedist who specializes in spines and scoliosis. The ped says even if it's not progressive (which is the hope), baby needs physio to correct the curvature.> > > >> > > >I'll admit I'm pretty much terrified for my baby. I hate that there's something "wrong", and I hate that she may wind up having her early years filled with hospital visits, medical procedures, braces, casts, etc. It just makes me want to cry for her > > > >> > > >I guess I'm just looking for support, and maybe some info on what to expect, treatment options if it IS progressive, etc., so that I can be more informed when we go to the specialist.> > > >> > >> > > >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2010 Report Share Posted October 23, 2010 My son tolerates the cast extremely well! Its like a second skin to him. I actually more worried how he will react having it removed he's so used to it. He learned to do everything in it. Roll over, sit up walk, run and now jumping and climbing! They really adjust so quickly. Much faster than we do! chilliwackpitbull <chilliwackpitbull@...> wrote: >I live 1/2 hour from the WA border, about 3 hours from Seattle. > >My babe's ribs are starting to stick out also, in the back on her left. Only really noticeable when she's in a supported sitting position, not if she's held upright but stretched out. > >That's wonderful that your son's curve has improved so dramatically! Tough his having autism on top of the scoliosis - how has he handled the casting? My son would FREAK. He recently had surgery on his arm and we told the docs they'd need to cast it so he couldn't get at it and instead they just did a partial cast. So then we had him not only fussing over and working at getting the cast off, but he got at his incision and ripped out his stitches - ugh. Thankfully he's healed up now! > >Anyhow, it really seems like what's needed is to get in to see the ortho and have another set of films done to compare to the first. Hopefully they see baby soon! > > >> >> >> >> >While on the one hand I'm sad to be here, on the other I'm glad to see there's such a great online support community available >> >> > >> >> >My beautiful baby girl has some form of scoliosis - still going through diagnosis to determine whether it's progressive or not, but it's looking that way. >> >> > >> >> >I first noticed when she was about 3 weeks old that she always leaned to the right, but with this being my first baby thought maybe it was normal and would go away. It got worse instead. She saw the ped and had xrays done when she was just about 10 weeks old, and the xrays showed a 13 degree curve, but normal vertebrae. Since then, the curve to the side hasn't seemed to worsen really, but she's starting to bulge out in the back on the opposite side of the curve (her ribs are humping out a bit), and the curve in her spine is now visible to the naked eye. She'll be 14 weeks old on Tuesday. >> >> > >> >> >The pediatrician has said we may still be dealing with something relatively harmless like positional deformity, but she's worried as you don't usually see a curve in babies so young se says. We've been referred to BC Children's Hospital to see the orthopedist who specializes in spines and scoliosis. The ped says even if it's not progressive (which is the hope), baby needs physio to correct the curvature. >> >> > >> >> >I'll admit I'm pretty much terrified for my baby. I hate that there's something " wrong " , and I hate that she may wind up having her early years filled with hospital visits, medical procedures, braces, casts, etc. It just makes me want to cry for her >> >> > >> >> >I guess I'm just looking for support, and maybe some info on what to expect, treatment options if it IS progressive, etc., so that I can be more informed when we go to the specialist. >> >> > >> >> >> > >> > >> > > Quote Link to comment Share on other sites More sharing options...
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