Guest guest Posted December 5, 2005 Report Share Posted December 5, 2005 Hi Camilla! Welcome to the group! (Sorry so late!) Hope you enjoy it here! My hubby is fluent in German, though he is from France but grew up in Alsace. Are you close to there at all? We live in California, but go back to France as often as we can. Flying is a HUGE pain though so I don't look forward to that part! hehe Just wanted to say hi and welcome! oh and hope you get your internet back soon! (I thought i saw in another post that you just moved and were still getting settled) Ca-mil-la@... wrote: Hello to all of you! My name is Camilla from Germany and I just joined this list. I was happy to find it as I don't know anybody with SMA and am eager to know how other people around the world live (with it). First of all I will tell you a bit about me. My english is not very good ~ sorry for this, but I hope it is not too bad. I learned it at school and this is a looong time ago. :-) OK, I am 34 years old, SMA type 2, female, single with cat. I have a younger brother who will be father in 6 month. He, his wife, me parents and me are very close. For some years I live on my own and 4 times a day a Mobile Care Service comes to take care about my needs. I work as a chairman's secretary (4 hours a day) in a big non-profit organisation which cares about persons with special needs. We have 12 integrative kindergartens, several flats for handicaped and / or old persons, a children's hospice and much more. Working there is great, I love it, allthough it is very hard for my muscles very often. Things I can not do are done by my boss or the colleagues. This works fine. When I am home I love reading thriller, listening to audiobooks on my iPod, watching tv, meeting with friends and family, go shopping and watch people while sipping a mug of coffee and I talk on the phone for hours and hours. One big hobby is cooking and if I could as I would like to do, I would be in the kitchen all day. So I come up with recipes and my helpers prepare them for me. 9 years ago I had a bad car accident on the way from work home. The driver only squeezed his thumb. Several times I broke my arms, legs, hip and even my neck, witch was just diagnosed 5 days later although I told the doctors it hurts. They said I never felt pain, as I never fell on my knees as a child (I am in an electric chair since I was 5), so I can not decide whether it is a broken neck or just a whiplash. Unfortunately I was right but very lucky not to be paralyzed. This would be bitter fate! :-) I was ill for 18 month, 12 month in bed. It was not very funny and I lost a lot of my muscular power which I can not regain. I think this is enough for the beginning. It is getting dark outside, I will swich on the lights, grap my cat and the phone and call my family. You know, talk for hours and hours .... ;-) I am eager to get to know all of you! Best wishes, Camilla ______________________________________________________________ Verschicken Sie romantische, coole und witzige Bilder per SMS! Jetzt bei WEB.DE FreeMail: http://f.web.de/?mc=021193 A FEW RULES * The list members come from many backgrounds, ages and beliefs So all members most be tolerant and respectful to all members. * Some adult language and topics (like sexual health, swearing..) may occur occasionally in emails. Over use of inappropriate language will not be allowed. If your under 16 ask your parents/gaurdian before you join the list. * No SPAMMING or sending numerous emails unrelated to the topics of spinal muscular atrophy, health, and the daily issues of the disabled. Post message: Subscribe: -subscribe Unsubscribe: -unsubscribe List manager: (Sexy Mature Artist) Email: Esma1999@... oogroups.com List manager: (Sexy Mature Artist) Email: Esma1999@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2006 Report Share Posted February 27, 2006 I have noticed. I have also noticed that it didn't USED to be close to the WW plan. In the early '90s when I did WW it was heavy on empty, high glycemic, carbs like rice cakes. Now they seem to push a plan very close to, or at least workable with, BFL. That said, I'm not sure why you'd want to go pay $10 a week, weather you go to the meeting or not, when you can do this for free. If you feel the need for a meeting type atmousphere find your local chapter of T.O.N.S. But, if WW's meeting format really works for you, go for it. What ever works to make you strong healthy and lean, right? Barbara Barbara > > Hi, I'm a newbie to this group. I'm very interested in utilizing BFL > to get into great shape. I've noticed that the diet part of BFL for > women is *very* close to The Core Plan on Weight Watchers. > > I'm curious to know if anyone else here has noticed the same or is > trying to work both programs at once. > > Thanks in advance. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2006 Report Share Posted March 1, 2006 Rogena, I too am new to this group and am just starting to understand the frustrations and challenges that go with this diagnosis. But know this, these women are wonderfully supportive and helpful. They have answered about 1000 posts by me in the last few days, never making me feel like I was being ridiculous. As they keep telling me, you are not alone! Welcome! Fritze mom to Ana...13mo old, IgG def and who knows what else... > > Hi, my name is Rogena and I am new to this group. I am a devoted > mother to four wonderful boys (well, five if you include my husband, > lol). Our 3 year old, Cole, was diagnosed in October 2005 with > Selective IgA with a subclass IgG deficiency. He had his baseline > bloodwork done then and we do a follow up bloodtest in April. At > that time the doctors are also going to test him for Celiac > disease. I had him back to the ENT yesterday and we decided to give > him a second set of ear tubes and give him an adenoidectomy in three > weeks. While this whole PID thing is new to us, I am becoming > increasingly amazed at how little the pediatricians seem to > understand about this disorder. I seem to have to be my childs own > advocate. I have never been one to rush to the doctor for childhood > illnesses, but I find myself fighting to get my son the help he > needs. The pediatrician we have is great, but she tends to treat > him more as your typical healthy toddler, not one with a > deficiency. I have pretty much had to request all the tests he has > had thus far. My biggest medical partner has been the ENT. He > actually is the one who questioned the PID and got the ball rolling. > I have not found a local support group, but am excited to find this > group...which I wouldn't have found if it hadn't been for > www.midf.org. THANKS! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2006 Report Share Posted March 1, 2006 Welcome Rogena! You must be a soul sister of mine because I ALWAYS tell people I have 3 boys, 4 if you count my hubby! LOL I have two boys with Shwachman-Diamond Syndrome (SDS) and low immunoglobulins. The doctors just keep their diagnosis as SDS and they get replacement IG therapy. We just switch from IVIG to SCIG (Subcutaneous IG) Here is a link to our family website, if you are interested www.shwachman.50megs.com <http://www.shwachman.50megs.com/> You'll find a lot of wonderful folks here! ~Pattie~ " It is easy to take liberty for granted when you have never had it taken from you. " ~ Dick Cheney _____ From: [mailto: ] On Behalf Of nogirlsallboys Sent: Wednesday, March 01, 2006 8:08 AM Subject: Hello! Hi, my name is Rogena and I am new to this group. _____ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2006 Report Share Posted March 1, 2006 Pattie: I checked out your website...KUDOS! It is beautiful, as are your three sons. God bless you and yours in all you do-- and grant special grace towards those boys! -Rogena > > Welcome Rogena! You must be a soul sister of mine because I ALWAYS tell > people I have 3 boys, 4 if you count my hubby! LOL I have two boys with > Shwachman-Diamond Syndrome (SDS) and low immunoglobulins. The doctors just > keep their diagnosis as SDS and they get replacement IG therapy. We just > switch from IVIG to SCIG (Subcutaneous IG) Here is a link to our family > website, if you are interested www.shwachman.50megs.com > <http://www.shwachman.50megs.com/> You'll find a lot of wonderful folks > here! > > > > ~Pattie~ > > " It is easy to take liberty for granted when you have never had it taken > from you. " ~ Dick Cheney > > > > _____ > > From: [mailto: ] On Behalf Of > nogirlsallboys > Sent: Wednesday, March 01, 2006 8:08 AM > > Subject: Hello! > > > > Hi, my name is Rogena and I am new to this group. > > > > > > > _____ > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 23, 2006 Report Share Posted July 23, 2006 Hey Dawn, Im new here, but im sure there is someone that could talk with you. Just know that youre in my prayers as well as every one else here. > > I am a woman who was born with Spina Bifida. I just found this group. > If anyone would like to talk about their experiences I'd be happy to > listen and share mine as well. > > Dawn > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 27, 2006 Report Share Posted August 27, 2006 Welcome Olly, Nice to have you aboard. You sound quite grown up for your 16 yrs- I have a 15 yr old daughter- It will be great to have your youthful perspective on all the issues. Welcome! Peace to You, Beth Hello! Hiya, My name is Olly Pool from London, England. I'm 16 years old with SMA type 2. Also have had the spinal fusion operation. Basically anyone who wants to chat about abosoultely anything, please go ahead! Because i'm new and don't know how how these things work. lol I'm always on msn messenger...please add me on mchotwheels@...! Olly Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 27, 2006 Report Share Posted August 27, 2006 > > Welcome Olly, > Nice to have you aboard. You sound quite grown up for your 16 yrs- I have a 15 yr old daughter- It will be great to have your youthful perspective on all the issues. Welcome! > Peace to You, > Beth > Hello! > > > Hiya, > > My name is Olly Pool from London, England. > > I'm 16 years old with SMA type 2. Also have had the spinal fusion > operation. > > Basically anyone who wants to chat about abosoultely anything, please > go ahead! > > Because i'm new and don't know how how these things work. lol > > I'm always on msn messenger...please add me on > mchotwheels@...! > > Olly > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 27, 2006 Report Share Posted August 27, 2006 Hey Olly, check my other message to the group, LOL. I didn't see this until i scrolled up, haha. Add me to messenger if you like, it's KatyaFan@.... I'm 23, most of my friends with SMA are around my age. LOL. I have a few friends in your neck of the world. And I don't have SMA, I am deaf though. On 8/27/06, Olly <ollypool@...> wrote: > > > > > > Welcome Olly, > > Nice to have you aboard. You sound quite grown up for your 16 yrs- > I have a 15 yr old daughter- It will be great to have your > youthful perspective on all the issues. Welcome! > > Peace to You, > > Beth > > Hello! > > > > > > Hiya, > > > > My name is Olly Pool from London, England. > > > > I'm 16 years old with SMA type 2. Also have had the spinal > fusion > > operation. > > > > Basically anyone who wants to chat about abosoultely anything, > please > > go ahead! > > > > Because i'm new and don't know how how these things work. lol > > > > I'm always on msn messenger...please add me on > > mchotwheels@...! > > > > > Olly > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 27, 2006 Report Share Posted August 27, 2006 Hi, welcome!! Olly <ollypool@...> wrote: Hiya, My name is Olly Pool from London, England. I'm 16 years old with SMA type 2. Also have had the spinal fusion operation. Basically anyone who wants to chat about abosoultely anything, please go ahead! Because i'm new and don't know how how these things work. lol I'm always on msn messenger...please add me on mchotwheels@...! Olly --------------------------------- Get your own web address for just $1.99/1st yr. We'll help. Small Business. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2006 Report Share Posted August 29, 2006 You've joined an awesome group , YOU CAN SOOOO DO THIS!! Welcome aboard!! Darcy On 8/29/06, claudiaynesto <claudiaynesto@...> wrote: All,My name is and I just joined the group! (((Wave))) I have decided that I am tired of being over weight.... so I'm gonna do something about it.... I've always been active doing some form of sport mainly running (sporadically) - With my first pregnancy I gained +65lbs my son weighted a healthy 10.4 lbs with my second I gained 45 lbs and she weighted 9.5lbs... I want to be fit.... I want to look great...not just good but great.... so I decided the time is now. In June of last year I had weighted in at 206... I am 5'6 " - I ran and did a spinning class....I stopped it all a few months back. Today I weight 175lbs give or take although I know all about nutrition, forms, exercises, routines ...yaddi...yaddi...yadda... I haven't applied it.This time I am fed up and really want to change the way I look.I started running again, doing the 1998 TAE-BO basic and Pilates 10 minute solution. In December we will be going to Puerto Rico to visit family - I have to look good, no if's, and's, but's or rolls ;-) - My target weight is 150lbs (temp) eventually I wanna get to 135 with nice muscle tone - I get discouraged easily so I'm looking for motivation....Whoa...OOOOOkay..... I said it..... I feel better now.... :-)) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2006 Report Share Posted August 29, 2006 In a message dated 8/29/2006 9:10:56 P.M. US Eastern Standard Time, claudiaynesto@... writes: I get discouraged easily so I'm looking for motivation.... You'll get plenty of motivation here. Welcome to the group. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2006 Report Share Posted August 30, 2006 hi claudia and welcome. i haven't been posting much with school and my daughter(she is autistic) but i found your post pretty inspiring. b/c as you stated you know what you need to do but you just have to do it, and congrats and taking that first step. the way you put things is right and wish many had that same attitude. i think a goal weight of 150 by december is a reasonable and doable goal and i hope we can help every step of the way. i don't have the 10 min solution pilates tape but i do have the tae-bo and that is a great place to start. i just love kickboxing and running(even though i haven't been able to run much lately), i find the best forms of losing weight and gaining some endurance is from these two cardio workouts. i also do weights and pilates and yoga. to keep my strength and flexibilty. the fact that the abs are looking tight is just the bonus LOL, a very nice bonus.hope to hear more about your workouts kassia Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+ countries) for 2¢/min or less. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2006 Report Share Posted August 30, 2006 hi claudia!! welcome to the group, it is nice to meet you here! running, taebo and pilates sounds great. you will probably want to add some strength training into your routine after you have got that stuff down. i am thrilled that you have decided to work on your fitness level again. you can do it!!! we are all here to help you through it, so please post often. :*carolyn. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2006 Report Share Posted August 30, 2006 It's great to meet you, . I'm --also known as the token male in this predominantly female group. You'll find this is a great group to help you get motivated. Be sure to post some pics in the photo section so we can see your before and after results. > > All, > > My name is and I just joined the group! (((Wave))) I have > decided that I am tired of being over weight.... so I'm gonna do > something about it.... I've always been active doing some form of > sport mainly running (sporadically) - With my first pregnancy I gained > +65lbs my son weighted a healthy 10.4 lbs with my second I gained 45 > lbs and she weighted 9.5lbs... I want to be fit.... I want to look > great...not just good but great.... so I decided the time is now. In > June of last year I had weighted in at 206... I am 5'6 " - I ran and > did a spinning class....I stopped it all a few months back. > > Today I weight 175lbs give or take although I know all about > nutrition, forms, exercises, routines ...yaddi...yaddi...yadda... I > haven't applied it. > > This time I am fed up and really want to change the way I look. > I started running again, doing the 1998 TAE-BO basic and Pilates 10 > minute solution. In December we will be going to Puerto Rico to visit > family - I have to look good, no if's, and's, but's or rolls ;-) - My > target weight is 150lbs (temp) eventually I wanna get to 135 with nice > muscle tone - I get discouraged easily so I'm looking for > motivation.... > > Whoa...OOOOOkay..... I said it..... I f eel better now.... :-)) > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 26, 2006 Report Share Posted September 26, 2006 >hi jane i have conns too am from the uk i have had 15 years of hell not noing wot was rong with me . doctors were hopeless . it stared with a fit . and the got worse as time went my by i was sick shacky on edge , sweating , pain on my kidneys , back pain, musicel pain i cud go on for days lol love wendy > Hello everyone! > > My name is Jane, i've been looking on the internet for information on > Conns Syndrome and have finally found a support group, a very > exclusive one considering there's only a few members! > > I had Conns Syndrome confirmed about a month ago, after blood tests > etc. > > Im 22 and in the RAF at RAF Marham, Norfolk, in the UK. The only > reason i found out ive got this problem is because i wanted to go on > a parachute course and when i went for the medical i set the alarm > off on the blood pressure monitor! I subsequently have not been > allowed to jump out of an aeroplane........ probably for the best!! > > Due to being in the RAF things are moving along reasonably fast > (fingers crossed!), its only been about 4 months since i went for my > medical, im seeing my consultant on wednesday so hopefully i'll find > out more then. I want this sorted as soon as possible as i have been > medically downgraded and in the RAF that means no detachments to > sunny desert climates and not much chance of promotion, and im pretty > eager to do both! > > Last week i had to wear a 24 tape heart monitor that was a right pain > in the arse! made sleeping uncomfortable, should get the results from > that and an ultrasound and xray on wednesday. > > I read in one of the emails that someone has suffered from > breathlessness. I had to have time off of work a fortnight ago > because i was feeling out of breath without doing anything and also > felt dizzy. The doctor had no idea why i felt breathless, i was > wondering if any of you knew why i have felt like this? > > I am very lucky at the moment to have other things to think about, > ive got a wonderful boyfriend, Doug, who is really understanding when > i feel down and get upset, and were moving out of the barrack block > on friday to rent a house together. So interior decorating and > buying furniture is occupying me for the moment! > > I would really like to hear from anyone about how they are coping and > how their treatment is going, so please email me. > > Jane > : ) > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 28, 2006 Report Share Posted September 28, 2006 Hi Jane As to duration of tx it all depends on what is causing your Conns and what type you have. Have you had a cat scan of your adrenals?Low potasssium happens when there is too much aldosterone, low potassium makes you breathless,weak and sick. I hope you are watching your potassium level and eat K rich foods. I have a adenoma (tumor) in my left adrenal gland which is over producing, aldosterone,DHEA, testosterone, norepinehrine, normetanephrine, Dopamine. I am in the process of discovery the discovery is raising my blood pressure. 6 out of whack hormones should mean something but to which side could be doing this to me its still a mystery. And then there is Adrenal vein sampling to make sure of right and left side differences. I am on my way to see a Doc in San Francisco General hosp that Dr. Grim in here is sending me to. No one in Sacramento at the University has a clue to my problem. I even saw the Professor yesterday who wrote the Chapter on Endocrinology Hypertension in Basic and Clinical Endo tex book. Even he sent me to SF General to the same dr. I just dont understand it I am not that different just sick. The good new is the Dr. in here who is wonderful and been looking after people like us for 40 years is moving 1 hour in a half from me from Wisconson to California. I cant believe some one your age has this. ita > > Hello everyone! > > My name is Jane, i've been looking on the internet for information on > Conns Syndrome and have finally found a support group, a very > exclusive one considering there's only a few members! > > I had Conns Syndrome confirmed about a month ago, after blood tests > etc. > > Im 22 and in the RAF at RAF Marham, Norfolk, in the UK. The only > reason i found out ive got this problem is because i wanted to go on > a parachute course and when i went for the medical i set the alarm > off on the blood pressure monitor! I subsequently have not been > allowed to jump out of an aeroplane........ probably for the best!! > > Due to being in the RAF things are moving along reasonably fast > (fingers crossed!), its only been about 4 months since i went for my > medical, im seeing my consultant on wednesday so hopefully i'll find > out more then. I want this sorted as soon as possible as i have been > medically downgraded and in the RAF that means no detachments to > sunny desert climates and not much chance of promotion, and im pretty > eager to do both! > > Last week i had to wear a 24 tape heart monitor that was a right pain > in the arse! made sleeping uncomfortable, should get the results from > that and an ultrasound and xray on wednesday. > > I read in one of the emails that someone has suffered from > breathlessness. I had to have time off of work a fortnight ago > because i was feeling out of breath without doing anything and also > felt dizzy. The doctor had no idea why i felt breathless, i was > wondering if any of you knew why i have felt like this? > > I am very lucky at the moment to have other things to think about, > ive got a wonderful boyfriend, Doug, who is really understanding when > i feel down and get upset, and were moving out of the barrack block > on friday to rent a house together. So interior decorating and > buying furniture is occupying me for the moment! > > I would really like to hear from anyone about how they are coping and > how their treatment is going, so please email me. > > Jane > : ) > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2006 Report Share Posted September 29, 2006 Please send us all your labs numbers when you get them and your Hx of low K. I a young women I would first suspect renal artery problems as causing severe high blood pressure and low K. Renin will help separate the causes. Keep us posted. May your pressure be low! C.E. Grim, B.S., M.S., M.D. Specializing in Difficult to Control High Blood Pressure and the Physiology and History of Survival During Hard Times and Heart Disease today. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2006 Report Share Posted October 17, 2006 In a message dated 10/17/2006 5:22:20 PM Central Daylight Time, nikkicowan@... writes: palpitations? I have palpatations, I dont know what they are associated with except I happen to have a low pottassium level..my son also has had them since age 10 or so and he is not +...so who knows?? Wecome..geri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2006 Report Share Posted October 17, 2006 I did some googling around and there seemed to be a connection with the chest pain and/or palps with C. However, there are many reasons for them, as well. But I have, in the last year, ended up in the emergency room more than once with heavy chest pain. The blood tests do not show enzymes related to heart damage. My doc says she thinks that it is blocked arteries. Nitro does help the pain. But she wants to run many thousands of dollars worth of tests and that just cannot happen right now. ly, I think if I had clogged arteries causing that much pain I would have passed over by now with the big one. But there seems to be repeatable circumstances. I do not tolerate heat (and I live in Coastal Texas), so on my feet and in the heat and if I am dehydrated I get ill that if I don’t change my surroundings seem to advance to the chest pain. Those nerves that serve that area are closely bundled and there might be lots of reasons for my trouble, but I am chasing down some liver connections. Nikki In a message dated 10/17/2006 5:22:20 PM Central Daylight Time, nikkicowan@... writes: palpitations? I have palpatations, I dont know what they are associated with except I happen to have a low pottassium level..my son also has had them since age 10 or so and he is not +...so who knows?? Wecome..geri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2006 Report Share Posted October 17, 2006 I have heart problems , but there is no clear evidence linking it to my hep c . My brother came home from Viet Nam with hep non a non b and died within 5 yrs , that was back in 1980 . I still hurt allot about his death , he was only 28 when he died and he passed on Christmas day . Anway welcome to the group , I am the medical researcher and if you have any questions please don't hesitate to post . Hello! Hello! My name is Nikki and my husband and I have been positive for @35 years. We are not going to do tx, but are doing alternative things. DH is going to have some testing done-he had a stroke last May and now is being treated by VA. We have been self employed for most of that time with no health ins. I did have a viral load done about 5 years ago and it was about 500,000. My brother passed away from this two years ago. I have recently changed what I am doing for my C and went from feeling pretty bad most of the time to feeling really good, so it must be helping. Does anyone here suffer from chest pain and palpitations? Nikki Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2006 Report Share Posted October 17, 2006 Hi Nikki, What are you doing instead of Conventional treatment? No chest pains here, but my nerves are sure shot.. Blessings, Sheena Nikki Cowan <nikkicowan@...> wrote: Hello! My name is Nikki and my husband and I have been positive for @35 years. We are not going to do tx, but are doing alternative things. DH is going to have some testing done-he had a stroke last May and now is being treated by VA. We have been self employed for most of that time with no health ins. I did have a viral load done about 5 years ago and it was about 500,000. My brother passed away from this two years ago. I have recently changed what I am doing for my C and went from feeling pretty bad most of the time to feeling really good, so it must be helping. Does anyone here suffer from chest pain and palpitations? Nikki Stay in the know. Pulse on the new .com. Check it out. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2006 Report Share Posted October 17, 2006 A cheap test to have done would be your cholesterol , if it's high then you may have some arteriole sclerosis blocking your heart arteries and causing chest pain . RE: Hello! I did some googling around and there seemed to be a connection with the chest pain and/or palps with C. However, there are many reasons for them, as well. But I have, in the last year, ended up in the emergency room more than once with heavy chest pain. The blood tests do not show enzymes related to heart damage. My doc says she thinks that it is blocked arteries. Nitro does help the pain. But she wants to run many thousands of dollars worth of tests and that just cannot happen right now. ly, I think if I had clogged arteries causing that much pain I would have passed over by now with the big one. But there seems to be repeatable circumstances. I do not tolerate heat (and I live in Coastal Texas), so on my feet and in the heat and if I am dehydrated I get ill that if I don’t change my surroundings seem to advance to the chest pain. Those nerves that serve that area are closely bundled and there might be lots of reasons for my trouble, but I am chasing down some liver connections. Nikki In a message dated 10/17/2006 5:22:20 PM Central Daylight Time, nikkicowansbcglobal (DOT) net writes: palpitations? I have palpatations, I dont know what they are associated with except I happen to have a low pottassium level..my son also has had them since age 10 or so and he is not +...so who knows?? Wecome..geri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2006 Report Share Posted October 18, 2006 I am doing retention enemas with my morning urine, colloidal silver and a teaspoon of DMSO. When I first heard about urine therapy I was totally revolted, but being the curious person that I am and highly motivated from my brother’s very sad and drawn out and painful passing. I read Martha Christy’s “Your Own Perfect Medicine” and I gave it a try. It has been amazing for me and my life is back on track, I feel really good. Nikki Hi Nikki, What are you doing instead of Conventional treatment? No chest pains here, but my nerves are sure shot.. Blessings, Sheena Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2006 Report Share Posted October 18, 2006 Nikki I would not ignore this and assume it is liver. We can think everything is associated with liver and it isn't. Many of us will die from something other than Hep C. My brother for instance, 55, complete athlete, never drank or smoked, had the same pain and problems with heat and dehydration. Found out he had a 90% blockage in on artery and 50% in 2 others. We couldn't believe it, nor could he because of his healthy lifestyle. He was playing a tennis match and the heat and dehydration got to him for the last time and he decided he really needed to have this checked out. Anyway it is your life, but those chest pains could be heart attacks. An angiogram might be in order, at the very least a stress test. I'm not trying to diagnose you, I guess my point is we need to be careful not to blame everything on liver. We have a lot of other systems going on in our bodies. Thanks for listening Ginger Quote Link to comment Share on other sites More sharing options...
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