Re: Improved early muscle reinnervation using FK506

March 11, 2004

Gretchen, You amaze me! How do you stay cutting edge with this research? I

am so greatful to have you as a friend and list moderator. I have no doubt that

you will be the first to tell us when a successful treatment is available.

Thank you from

Spencer

Adam and

March 12, 2004

GfijiG6@... writes:

- it is the where and when I wait expectantly for.

I wish we could get some get estimates on the when question.

How many years until we have a treatment. Not cure just treatment.

March 12, 2004

, I just like to stay current with what's happening. For too many

years no one told me anything (pre-Internet), now there is so much

research going on and I am just grateful for the Net and that the info

can get to the people who need it. I feel it is so important to have

open access of research information. I have two papers by researchers on

CMT X and gene mutations that European researchers have sent me. One of

these days I intend to synthesize these papers down to a few paragraphs

and then post them. Just as soon as I finish reading the papers from the

Italian CMT Conf.

Besides it is amazing to watch the " research race " so to speak. I have

no doubt total CMT arrestment will arrive - it is the where and when I

wait expectantly for. ~ Gretchen

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