Guest guest Posted January 14, 2004 Report Share Posted January 14, 2004 Hello, My name is and I live in , FL with my husband of 28yrs. About 6 months ago I was tentatively diagnosed with CMT. My Dr. is waiting for my insurance company to OK a DNA blood test to identify what kind. I have no reflexes in either leg, places on my feet that are numb, as a child I always had to wear what was called " Saddle Oxfords " , very weak ankles and my balances stinks. I also most of the time have to walk with the assistance of a cane. And I do have very high arches. Since 1981, I've had 6 different back surgeries. The recent one was an attempt to fix my spinal cord stimulator which didn't work. I had the stimulator put in in 1994 to help with the severe pain in my left leg. The surgery was to replace one lead in my left side and put one in my right side but things happened and it didn't work. I have 2 beautiful children. One (Anita) is the oldest and she works at the Correction Institute here in and my son is married with 1 child (he is the apple of Nana's eye). We live in the county which is nice and quiet. I'm interested in learning all I can about CMT. I'd never heard of this until I went to a Neurologist several months ago. From my research, I've learned that CMT can have several stages. I have problems with my hand going to sleep. The Dr. wants me to have Carpul Tunnel surgery but I'm not ready for that. Thank you very much for allowing me to join your group. Sincerly, Quote Link to comment Share on other sites More sharing options...
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