Guest guest Posted February 29, 2004 Report Share Posted February 29, 2004 Hi , This is Rita. I haven't been here too long but I wanted to respond to your post. My family was put through the mill with all kinds of testing which included my two brothers one has CMT, my Dad and I also have it. My Dad's brother is the one who kinda started it all. He was first diagnosed with Polio, then changed it and had the entire family in for a range of testing. Back then they did not have a simple blood test. Those of us that showed the classic signs had to stay and were put through more. But as for surgery my Uncle had tried the tendon surgery and others and it just did not help. Stretching the tendon behind the foot helped for about two yrs. but it always went back so I decided it was not for me. I used to wear AFOs but even with those I continued to twist my ankles and have fractured my ankles and feet I can't even count how many times now. Well I now use a electric wheelchair all the time it is a life saver. I am homebound because of other problems but with the wheelchair it just gives me more freedom. I agree with toxins get tests or whatever but stay away from gas leaks if possible and find out right away it is very dangerous. Sorry your trip wasn't better for you. Rita Quote Link to comment Share on other sites More sharing options...
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