Guest guest Posted March 12, 2004 Report Share Posted March 12, 2004 Dear Joyce, Rita, and Barb, thanks so much for answering about my son's swelling and your experiences with it. I hope you know what a miracle this support group is to me. I truly mean that! I guess you all know how it is to feel like you are the only one out there with your feelings and problems with CMT. Until you got on this great support network. Joyce, I too read that article about how the blood leaks into the tissue causing the swelling. Did you try the thrombosis stockings? If you did , did they help? , yes , one doctor thinks it is a type of gouty Arthritis and is treating him for that but it isn't helping. He is using a steroid med. What did they do to help your son with his? Barb, what symptoms does the Pagets disease have and is it at all related to the CMT? Rita, are you unable to walk because of the swelling or because of the usual effects of the CMT? I will tell my son to ask his doctor about the Methocarbamol. Maybe it will help him too. Are your legs no longer swelling? and has the pain mostly gone away? If so, I am so happy for you. To all of you, I don't know you but I love you. Thanks, Have a great day and make the most of what is best about it. Stevie Quote Link to comment Share on other sites More sharing options...
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