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mom of teen boys with CMT

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Hi Everyone...

I appreciate everyone's kind words of support. I have printed

out the letters to share with my sons in hopes that they might want

to communicate with those who know what it's like. They read the

letters with alot of interest..but at this point are unwilling to

communicate online. Maybe in time, they will. This disease is so

frustrating on so many levels to them and we are learning as we go.

It helps to see how others cope and work around the difficulties that

CMT presents. No one I know around here knows about CMT and it's nice

to visit a site where everyone is affected in some way by this

disease.

thanks so much

Carin

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