Guest guest Posted February 18, 2004 Report Share Posted February 18, 2004 Hi , Welcome to group, my name is Rita and I just joined a few days ago. Everybody is very friendly. I have found a lot of information here. I know how frustrating it is when one does not really know what is going on with their body. Our brains keep on ticking and thinking but our poor bodies just don't want to keep up. I have learned to pace myself from listening to everyone telling me and mainly by listening to what my body is saying. It is a worrysome thing with kid's and not knowing if they have CMT. I have 2 boy's age 25 and 22. Both were tested with a blood test and both of them came out good. They do not have CMT. But you know my oldest boy Casey say's " Mom I'm still going to have kid's and love them just the same even if they do get CMT, because they can have a decent life with it just like you " . Well I cried on that one because see I'm in a wheelchair but I try to keep my chin up and smile alot. There are other sites too that you can visit and I'm sure someone will lead you there. Good Luck and if you like you can email me any time. Rita Quote Link to comment Share on other sites More sharing options...
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