Guest guest Posted February 18, 2004 Report Share Posted February 18, 2004 Welcome to , . First off, here is the medication alert list http://www.cmtworld.org/html/cmtrx.php these medications/substances are known to aggravate CMT symptoms. While there was a paper presented by Dr. for MDA on CMT and the Statin medications, right now Dr. Parry's list holds firm as we await more scientific reports on use of the statin medications and CMT. I lived in OKC for 3 years back in the 1980's. I had a very good private doctor there, I just cannot remember his name right now. Let me think on this and dig through my files. In the meantime, the Muscular Dystrophy Association has doctors that are knowledgeable about CMT - even though CMT is not a dystrophy - and the MDA does see CMT patients at their clinics. You can find a clinic near you hopefully - go to the MDA website and enter your zip code. Here's the MDA url http://www.mdausa.org Sometimes the " not knowing " about CMT and the sense of fear and worry that goes with it is lightened and lifted once information is obtained and accepted. Perhaps as you research and participate here, you will lighten and relax a bit. Also perhaps once you target the inheritance pattern of CMT in your family, you may feel a bit better. Your children can all be tested by a very simple blood test. Again, welcome to . Please don't hesitate to post or ask questions. We're all here to learn. ~ Gretchen Quote Link to comment Share on other sites More sharing options...
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