introduction

[Guest guest]

Hi there,

I guess I am a newbie, but I have thrown my 2 cents in already. Then, I

realized I may not introduced myself. I had been a regular years ago at

the MGH chat room and off and at CMT . So, if we haven't met yet,

my name is Rhonda, I am 35 and I live in Northwestern Pennsylvania. I

do not know yet what type of CMT I have yet, I was tested at Athena for

1a, 1b, and X with no matches. According to the symptoms listed, I am

inclined to guess I am 4c but who knows.

I have had scoliosis along with my CMT- had a spinal fusion at age 14.

I also had both knees done to keep them from dislocating, but the left

is just too bad now, there's not much holding it in place. I had a

tendon transfer of the right foot, and a few other surgeries too. My

CMT worsened during my first pregnancy- I had SEVERE morning sickness

which required my gallbladder to be removed in my 5th month of preg. I

was severely incapacitated after the birth, but slowly gained enough

strength to walk and function.

I now have trouble walking, worse with shoes on, and the fatigue is

terrible. I have arthritis in both knees, but Synvisc did the trick! I

have alot of joint pain whih nothing really seems to help.

Anti-inflammatory meds have given me reflux disease now so I am pretty

well stuck with hot baths for pain and massage therapy works temporarily.

I have 2 little boys, , age 9, and Austin, 6 next week. They are so

far strong and healthy (praise God!). I am a genealogist as a

profession, concentration mostly on Swedish heritage. Anyway, that's

me, glad to be here.

Love,

Rhonda