Guest guest Posted June 7, 2002 Report Share Posted June 7, 2002 Hi Ellen, I too have the same questions! The first neurosurgeon I took my daughter to cited that same study. I have searched all over the internet and I can't find it anywhere! I was so taken aback by this doctors comments about my daughter (it'll round out on it's own, her head is perfect,how many bald men do you see,whos heads aren't symmetrical? and so on) that I didn't even think to ask him. I really wish now that I had. If you ever find it,please post it. I'd really like to read it! Thanks, > Has anyone in the group had any luck in educating his doctors? I'd like > to read the study that all the docs. seem to cite that pertains to a > study group where half the patients were banded and half were not. The > results (I'm told) indicated that those banded were no better off " years " > later. If true, these results are hard to believe, and are at best > biased. > > I'd like to write a lengthy letter to our neurosurgeon not so much > chastising him, as educating him, especially from the parental viewpoint. > It breaks my heart to hear " our story " over and over across the country. > > Has anyone taken their headsicles in to show their doctors? How did they > respond? > > Does anyone know of any scientific studies proving that banding is highly > effective? Maybe the folks at Cranial Tech. can tell me if they have > participated or initiated any studies, particularly follow-up studies on > their patients? > > Other than those with craniosynostosis and mild cases, who is NOT a > candidate for banding, or in other words what plagio. conditions can't be > improved by banding? > > Ellen (Mom to Amy- 2nd day in DOC Band and doing great) > New Jersey > > ________________________________________________________________ > GET INTERNET ACCESS FROM JUNO! > Juno offers FREE or PREMIUM Internet access for less! > Join Juno today! For your FREE software, visit: > http://dl.www.juno.com/get/web/. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2002 Report Share Posted June 8, 2002 In a message dated 6/7/02 2:44:04 PM Central Daylight Time, hemplee@... writes: << Has anyone taken their headsicles in to show their doctors? How did they respond? We didn't have a headsicle made so I can't help on this one. However, I would be tempted to take something like that to my ped if he had been unsupportive. (He actually was very helpful AFTER we pushed him to give us a referral) Does anyone know of any scientific studies proving that banding is highly effective? Maybe the folks at Cranial Tech. can tell me if they have participated or initiated any studies, particularly follow-up studies on their patients? I would definitely look to CT for something like that. Tim Littlefield has referred to a number of articles through our group that would probably fit the bill. Have you checked out our bookmark section? I know it has links to some studies. You might also check out www.plagiocephaly.org for something like that. Also, check out cranial tech's webpage. Other than those with craniosynostosis and mild cases, who is NOT a candidate for banding, or in other words what plagio. conditions can't be improved by banding? >> Good question - I'm not really sure about this one. I'll be interested to see what some of the others have to say about his. Marci (Mom to ) Oklahoma Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2002 Report Share Posted June 8, 2002 & Ellen: I think I have a copy of the article you are talking about. It has been photocopied a million times and is almost impossible to read. I will try to dig it out this weekend and let you know the name and author. Tami (mom to Annika) --- stripes6060 <taime@...> wrote: > Hi Ellen, > I too have the same questions! The first > neurosurgeon I took my > daughter to cited that same study. I have searched > all over the > internet and I can't find it anywhere! I was so > taken aback by this > doctors comments about my daughter (it'll round out > on it's own, her > head is perfect,how many bald men do you see,whos > heads aren't > symmetrical? and so on) that I didn't even think to > ask him. I really > wish now that I had. If you ever find it,please post > it. I'd really > like to read it! > Thanks, > > > > > Has anyone in the group had any luck in educating > his doctors? I'd > like > > to read the study that all the docs. seem to cite > that pertains to a > > study group where half the patients were banded > and half were not. > The > > results (I'm told) indicated that those banded > were no better > off " years " > > later. If true, these results are hard to > believe, and are at best > > biased. > > > > I'd like to write a lengthy letter to our > neurosurgeon not so much > > chastising him, as educating him, especially from > the parental > viewpoint. > > It breaks my heart to hear " our story " over and > over across the > country. > > > > Has anyone taken their headsicles in to show their > doctors? How > did they > > respond? > > > > Does anyone know of any scientific studies proving > that banding is > highly > > effective? Maybe the folks at Cranial Tech. can > tell me if they > have > > participated or initiated any studies, > particularly follow-up > studies on > > their patients? > > > > Other than those with craniosynostosis and mild > cases, who is NOT a > > candidate for banding, or in other words what > plagio. conditions > can't be > > improved by banding? > > > > Ellen (Mom to Amy- 2nd day in DOC Band and doing > great) > > New Jersey > > > > > ________________________________________________________________ > > GET INTERNET ACCESS FROM JUNO! > > Juno offers FREE or PREMIUM Internet access for > less! > > Join Juno today! For your FREE software, visit: > > http://dl.www.juno.com/get/web/. > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2004 Report Share Posted January 19, 2004 In a message dated 1/13/2004 9:09:47 AM Pacific Standard Time, juliexbi@... writes: From now on, I don't go to a dr without a copy to present to them and web info for them to research. If they don't seem interested.....then I'm not interested in letting them even look at me. ************************************ A few years ago my doctor had another doctor working with him. I thought I'd give the new doctor a chance. Until he told me CMT was sexually transmitted!!!! I wish then I could take antibotics, LOL Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2004 Report Share Posted January 20, 2004 Sorry the nurse in me got a kick out of your response . Technically, it is not transmitted " sexually " unless there is some form of osmosis I'm not aware of! LOL educating doctors > A few years ago my doctor had another doctor working with him. I thought I'd > give the new doctor a chance. Until he told me CMT was sexually > transmitted!!!! I wish then I could take antibotics, LOL > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2004 Report Share Posted January 20, 2004 He may have been talking about Sexual Maturation (NOTE from the LIST Moderator: The World Book Dictionary, maturation mean " the process of growing or developing. It also has to do with Biology, the development of germ cells " ). educating doctors > A few years ago my doctor had another doctor working with him. I thought I'd > give the new doctor a chance. Until he told me CMT was sexually > transmitted!!!! I wish then I could take antibotics, LOL > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2004 Report Share Posted January 20, 2004 In a message dated 1/20/2004 4:38:23 PM Pacific Standard Time, thewisdomhousedelmin@... writes: He may have been talking about Sexual Maturation (NOTE from the LIST Moderator: The World Book Dictionary, maturation mean " the process of growing or developing. It also has to do with Biology, the development of germ cells " ). Na he said STD... jenny Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2006 Report Share Posted July 19, 2006 YAY! Now how do we convince the doctors to take this course? I've been too busy dealing with life, moving, etc, so I haven't chimed in but have learned so much from " lurking " . I'm 75, and in response to the postings about aging gracefully, my experience about aging is - Sometimes it rocks and sometimes it's rocky. I've been staggering & falling more & more, so today I had my first appointment to be fitted for AFOs. I'm so excited, I'll be able to walk with less fear (altho I sure find a lot of lucky pennies from keeping my eyes on the ground for obstacles). I always wear pants, but when I get my AFOs I want to start wearing skirts so I can show them off. Stay cool, Ruth in Northern California gfijig <fijiwigged@...> wrote: I think this fall their will be a new on-line and video course from Los Angeles that ANY doctor can take for 'continuning medical education credit' on CMT. More about this when I get the details. ~ Gretchen Quote Link to comment Share on other sites More sharing options...
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