Advice about Doctors

[Guest guest]

--- In , " wjack@e... " <wjack@e...>

wrote:

> Greetings,

> We unwittingly told our families about Lucy's high heavy metal

results

> on her DDI hair test. My husband's family has been bombarding us

> with " I talked to my doctor and he said she'd be dead if she had

that

> much...in her. Tell them to do a blood test " .

My reply: " Yes, she would be dead by now if it was that high in the

blood. Fortunately, it is not in the blood, it has moved into the

tissues and organs. Unfortunately, that means she is autistic and

her body has major problems functioning. Altho autistic is better

than dead, it is still not acceptable to us. Thank you for your

concern. "

My understanding is that

> the blood test gives the picture of what's circulating in the body

at that

> moment whereas the hair test tells what has accumulated in the

body.

> From a hair test you can infer what might be going on with

> accumulation in brain and organs especially if you take into

account the

> child's symptoms of heavy metal toxicity. Do I have this basically

right.

It sounds basically right to me.

Good luck.

Dana

[Guest guest]

Hi all,

I have been to so many doctors about my CMT that I lost count a long

time ago. I have always felt that most doctors are fairly

complacent. Most doctors just tell me something to try to appease

me, but never seem to really attempt to resolve anything. When I

talk to my primary care physician about CMT, he seems to just think I

have become more depressed and wants to increase my daily Zoloft.

The main reason he seems to think this is because of my fatigue, he

wants to contribute that to depression. While I think it is mostly

CMT.

Where I live, I am familiar with quite a few doctors who seem to be

more interested in medicine as a business instead of actually helping

people's health. I don't remember things being like this when I was

a kid. But, in the last few years, I have seen so many doctor's

offices where it seems like the doctor is in a race to see how many

patients he can see in one day (how much money he can make).

Anyway...Last week I went to see the neurologist at the local MDA

Clinic. I was VERY impressed, he actually discussed all aspects of

the disease with me, answered my questions, discussed possibly

options and elaborated on medical info I have previously read.

So, this is just a reminder to everyone: If you keep looking you

will find a Doctor who will be helpful! You don't have to accept

half-baked answers from a physician you don't trust. If more people

like us quit demand better health care and stop going to doctors that

don't really want to help, then we CAN raise the standards and not

just pad the pockets of the local doctors.

Thanks!