finding doctors who know CMT

[Guest guest]

:

You're definitely right that the drs. have to have a wealth of

knowledge about CMT to be of any success. The dr I had for my fusion

claimed that he had several patients with CMT. Now I wonder about

that. I live in the Little Rock area of Arkansas, which is where

most people in the state come for extensive medical care.

Unfortunately, I haven't been able to find very many doctors who have

even heard of CMT and if they have, they know just enough to be

afraid to treat me. I think they are worried about the liability it

puts them in if things don't go well.

So anyway, I am going to St. Louis which is my hometown and try the

doctors that some of my relatives are using. There has actually been

members of my extended family that have participated in a CMT study

at Washington University Hospital in St. Louis under a Dr. Kwan.

That is encouraging, maybe I will get lucky and come out of this

dilemna better than before. As I told Gretchen, thank you so very

much for your concern and support. That is something so precious to

me. Nowhere else do I feel the level of understanding that I do

amongst my CMT friends. I don't remember how I handled all of this

before I found .