Re: surgery to extend quality of life

[Guest guest]

But foot surgery help with the lack of feeling in your feet?

I find this the one thing at my point in CMT right now, that I

really hate. My feet stay so cold. Would any kind of foot surgery help

with this?

Patty

[Guest guest]

Patty,

My 14 yr son has CMT diagnosed 3 yrs ago. At our last neurologist appt. we where

told to see the surgeon now vs later as his heel cords and foot drop have gotton

so much worse in the last 6 months. How do you make a decision like surgery when

you cannot find any information about the pros/cons of having surgery.......any

thoughts would be greatly appreciated.

Thanks

[Guest guest]

Hi there,,, My daughter who is now 24, when she was 17 was diagnosed with CMT

from Me I presume. I have never been tested but certainly have all the syptoms

that we got from my mother. Anyway, three different Orthopedic surgeons said do

not have her feet operated on unless there is severe pain. My daughter has no

pain, just CMT looking feet. They said do not do it for cosmetic purposes

because the surgery involved is quite extensive and no guarantee. So she has

not had surgery and lives with her CMT feet, just like alot of us do in the

family. She is getting married in May.. So there are difinitely pros and cons

to surgery, so get a few M.D. opinions before going on.. Good luck... It is not

an easy decision... Elaine.

[Guest guest]

Hi Patty, I do not believe so .. Surgery won't help with balance, feeling.

Good luck .. Elaine

<pattysellers@...> wrote:But foot surgery help with the lack of feeling in

your feet?