Guest guest Posted March 3, 2004 Report Share Posted March 3, 2004 - What part of Florida are you in? I'm in Palm Beach County. The East coast. Barb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2004 Report Share Posted March 13, 2004 Hi Bob, I'm in Florida too, and I would like to find a doctor that has some knowledge in this. What part of our huge state are you in? Thanks and take care, Elaine Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2004 Report Share Posted March 13, 2004 Elaine- This is Barb ib Fl. I'm in Palm Beach County. Where are you? I know of drs. with CMT knowledge. Barb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2004 Report Share Posted March 18, 2004 Hi Barb, Thanks for writing.. I'm in Pasco County right outside Tampa... Any information regarding doctors would be grateful... Thanks Elaine Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 4, 2004 Report Share Posted July 4, 2004 Barb, We live in Orange Park, just outside of ville. What part of Fla do you live in. Faye Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 5, 2004 Report Share Posted July 5, 2004 Faye- I'm down in south Florida. I live in Lake Worth in Palm Beach County.We've been here since 1979. My late son went to school at the school for the Deaf and Blind (he was deaf) up by you in St.Augustine., Barb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 5, 2004 Report Share Posted July 5, 2004 Barb, I need to see if I can find a support group in ville. It sure is frustrating for our 14yr old to deal with this. It is hard for me also. I want to push her, but know I can only a little bit. It sure is frustrating. My niece was deaf and went to St. Augustine. She learned alot and did well. Thanks for the reply. Faye in Fla Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2005 Report Share Posted August 12, 2005 Hi Elaine, I have been living in Naples for seven years now. I came from Toronto area and of course the cold was effecting CMT, so warmth is better. I too bicycle,workout on gym machine, and used to swim in my pool, but I sold that home, now my neighbor lets me use his pool. I haven't worked in few years, I tried partime just driving a car for 2 days week, but became so fatigued i couldnt get my energy back in the 5 days off, I had to quit. Your right you have to do the best with what you have. Thank You. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2006 Report Share Posted April 23, 2006 Hi Barb, So your in Orange Park? Wow what a small world... My daughter lives in ville and going up 301 I see signs of Orange Park. We too like North Fl. We are in Central Fl. just north of Tampa. 3 1/2 hours from Jax. What part of S. Fl. did you live? I don't like south Fl either to hot and crowded for sure. Anyway,, I really want to make sure the AFOisn't gong to bother my yucky veins. Thanks for you answer... Elaine in Port Richey Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2006 Report Share Posted April 25, 2006 Hi Elaine, I was reading your e-mail and broke down once in Port St.Richey and I thought it was beautiful. I live in the Keys and thank God, I have a great neurologist, she only has two other patients down here with CMT and she is wanted by so many people, her list is full. If you could get down here, her name is Dr. Brown-Soltero and has saved me in more ways than one. She even cut me a break on my electric test (I forgot what the Real name it's called) by 1,000. She's a lifesaver and knew what I had before I did. If you need anymore info e-mail me. Take care. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2006 Report Share Posted April 27, 2006 Hi Elaine- I lived in Lake Worth which is next to West Palm Beach in Palm Beach County for 26 yrs. My daughter and I just went down there this past weekend for a visit. We definitely like it up here much better. I know the area where you are too.My husbands aunt recently moved to Punta Gorda. I think the west coast of Fl is way too hot in the summer. When you wear your AFO do you wear a support hose for your " yucky " veins? I do hope you can adjust to it. Barb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2006 Report Share Posted May 4, 2006 Hi , Wow, small world for sure... You never know if I take a trip down there to the Keys. This is so unbelievable to meet, via email all these wonderful people with CMT. Never did I know what it was, and know it sure answers alot of questions. May I contact you at your home email address? Take care, and thanks. Elaine Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2006 Report Share Posted May 4, 2006 Hi Elaine, Sure, I thought I gave it to you. It's spoolie4@.... I did a classic CMT move yesterday. I was walking back from the mailbox and my ankle felt like it was going to give out, then I looked up for a second to see how nice my windows looked (I had cleaned them) and my ankle did give and I fell over a huge coral rock and scraped up my arm and leg really bad. Besides worrying about getting coral rock poisoning, I guess cause of the CMT I can't even get near my leg because it hurts so bad, the nerve endings I guess. Oh yeah, then there was the embarrassment, hoping no one saw me!!!....lol Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2006 Report Share Posted May 7, 2006 Hi ,, Boy I know just what you mean... I sure hope your leg and scrapes feel better and heal just fine for you... I took a bad fall a few months ago at Goodwill dropping some things off for them and started to walk backwards to get out of their way as they were emptying my car, and and down I went, backwards, my you... on my back and thank goodness I didn't hit my head on the concrete... Of course everyone comes and asks if I am ok, and wanted to help me up right away.. I asked them to just let me sit for a few minutes and then I got my self up... Nothing broke, whewww, but my backside was BRUISED,,,I mean bigtime... Oh I just have to remind myself that I cannot walk as fast as the next person and can't do some of the moves others do. I am going to write more to you at home... Take care,, and be careful... Elaine Jeff & <spoolie4@...> wrote: Hi Elaine, Sure, I thought I gave it to you. It's spoolie4@.... I did a classic CMT move yesterday. I was walking back from the mailbox and my ankle felt like it was going to give out, then I looked up for a second to see how nice my windows looked (I had cleaned them) and my ankle did give and I fell over a huge coral rock and scraped up my arm and leg really bad. Besides worrying about getting coral rock poisoning, I guess cause of the CMT I can't even get near my leg because it hurts so bad, the nerve endings I guess. Oh yeah, then there was the embarrassment, hoping no one saw me!!!....lol Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2007 Report Share Posted February 21, 2007 I live in the northwest panhandle west of Tallahassee Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2007 Report Share Posted March 18, 2007 I live in the northwest panhandle in Pensacola!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2007 Report Share Posted March 24, 2007 Hi there Lloyd, I live in the central part just north of Tampa. CMT with foot drop and boy do people like to watch me walk.. LOL I wear an AFO on my left foot. Write when you can. Elaine Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2007 Report Share Posted May 20, 2007 Hi Anne, my name is Lainie and I live in Delray Beach area should be down there in a few months,if you are interested I would love to meet - if not don't worry I won't take it personal,if you like you can e-mail me. Thank You Lainie (PS 4 kids,honey you need a medal just for that) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2007 Report Share Posted June 10, 2007 Hey Lainie! Thanks for getting back to me. Guess what, we are thinking about moving to Florida in August; What part of Florida are you? We are looking at West Coast this time. Jackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2007 Report Share Posted June 10, 2007 Hi Jackie- I'm not Lainie but I live outside ville, Fl. That's the northeast part of the state. I lived down in Palm Beach County for over 26 yrs. I've been to the west coast of Fl for trips. It is very hot there in the summer but I believe cheaper than Palm Beach County. Florida in general is no longer a cheaper state to live in. Good luck......... Barb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2007 Report Share Posted June 10, 2007 Hey Jackie...pardon me for sticking my nose in but where are you moving from??? Just wondering as I just moved out of Fla. not to long ago, couldn't handle the hot,humid weatherwith my CMTand could not find help with health care...I was one of the millions that was uninsured.Nearly died! Geri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2007 Report Share Posted June 11, 2007 If you're moving to Florida, consider that the east coast is generally somewhat cooler than the west coast and the center of the state was the model for Dante's Inferno. In all it's a good CMT place, few steps lots of handicapped parking, only 2 weeks of winter per year. Like winter up north don't expect to venture out very much from June to October while the sun is out anyway. It'll often be over 95 and 90+% humidity after dark as well. Personally as long as the A/C is working I handle heat better than winter cold. I had to finally move away, there are just too many people down there for me, I'm not a line person, and there are lines for everything down there. I miss bike riding in the Everglades though and New Year's Eve in Key West. Laine Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2007 Report Share Posted June 11, 2007 Geri, I am moving from land. Wierd, because heat and humidity do not bother me, but the cold really does. It really is going to depend on the type of job my husband gets regarding the health care situation. I am sorry to hear about your experience. Where did you move to? Jackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2007 Report Share Posted June 11, 2007 Laine, Where did you move to? Last we spoke I thought you lived in Florida. Funny, heat does not bother me. Last summer my husband cracked up at me because I was laying outside taking a nap when it was 100 degrees. We also honeymooned in Mexico in August and have traveled to the desert in July, so I am not worried about heat or sun. My husband on the other hand complains all the time about the heat, so I am surprised that he is the one pushing to move down south. For me, Florida is the only way I can get my dream home. Ranchers up North are very few and far between and when there is one they are so expensive. I do wonder if I will really miss the change of seasons and the scenery up here, but I have always been happier in the sun and heat and I hate wearing clothes or coats (LOL). My biggest problem with Florida is how freezing the restaurants are! Jackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2007 Report Share Posted June 11, 2007 I moved back to Northern Minnesota..I couldn't handle the heat or all the people..the cost of everything was unreal, in Fort Walton Fla..When I did try to get health care the woman said if you think its bad now wait! We are going to get lots of people from other countries and they get heath care first....that was enough for me! I was Minnesota bound ..winter or not! One has to be on S.S Disability, Rich or have very good insurance...no excuse for be poor and disabled!!That's the way it is in so many states not just Fla. Sorry Fla people but I never care to see the state again. I nearly died and the health care system didn't give a damn. The doctor I did find there was over $100 for a visit, didn't know what CMT was and didn't care, gave me the wrong meds ended up in ER for two hours at a cost of well over $4,000. The hospital discharge papers said I had fatigue... " NOT " . I think I had a small stroke...the meds the doctor gave me had a recall that caused strokes!!.........nothing like protecting one another a the expense of a another human being....so be very careful when moving be picky with your health care...if you can. I'm so glad to be out of there. Geri Quote Link to comment Share on other sites More sharing options...
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