Guest guest Posted March 17, 2004 Report Share Posted March 17, 2004 Mieke, My last EMG/NCV was all within the normal range too. But no one in my family (I have gone back in the " tree " to about 1850) shows anything even close to CMT/HMSN. I have had more problems in the past with CMT than I do now. (I was diagnosed in childhood) I wear orthotic inserts in my shoes that keep my feet stable, even on unstable ground like grass or stones. I also have tremors in my hands and with a medication once a day, the problem is solved. All through my life I have had some spot tingling, it comes and goes. I have never paid much attention to it and just keep moving. Exercise has really helped me I think. Swimming, other aquatics, pilates, yoga for awhile, biking, walking, etc. Always when changing routines I start slow with something new. According to my last EMG/NCV report in 1998 or 1999, I have " some form of neuronal CMT " - meaning Type 2. DNA tests for Type 2's are not quite ready to be performed for diagnosis. Perhaps this is why you cannot get a " set " diagnosis. There are about 32 types of HMSN/CMT that genetists know about right now. And no doubt more to come. Perhaps you can look for either orthotics or AFOs to give support to your feet and legs and making walking less tiring and more pleasurable. Maybe with this help your doctor could recommend some kind of exercise and possibly vitamins. If I get very tired, I take a nap during the day, but because sleep is vitally important to my overall CMT " package " I get well rested each night. I would be interested to hear from others who have Normal EMG/NCV tests. ~ Gretchen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2004 Report Share Posted March 17, 2004 Gretchen: I have normal tests--that is why I have had most Dr. tell me that I do not have CMT. When I was diagnosised, it was from family history (although none in my family have an actual diagnosis of CMT) and physical characteristics (high arches, burning feet, hammer toes, balance issues, unusual gait). I am going to see Dr. Scherer in Phily on Friday and have many questions to ask him this time. I have also been in touch with Dr. Younger in NY. Sharon Poole Quote Link to comment Share on other sites More sharing options...
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