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CMT Awareness

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Hello to all:

I just read the following article on cmtworld.org

http://www.cmtworld.org/epublisher/publish/article_85.php

Describing the " rareness " of CMT, etc.

After reading it, I thought to myself how come there are no TV ads

for CMT?

There seems to be many ads for all other " serious " disorders,

heart/stroke, cancer, etc.

Any thoughts?

Take care

aka Sandman (CMT makes me sleepy!!)

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Awareness in general:

I just helped my 10 year old write a speech for a school contest. It had to

be about an invention. Keeping the CMT awareness in mind we wrote about DAFO

braces. They were the first braces that my son Adam wore after he was diagnosed

with CMT. Several teachers have now been educated on DAFO braces. LOL

gets to say her speech in front of the school on the 25th. If she

wins she goes to the school district contest.

I think of this a win for awareness already.

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